tag:blogger.com,1999:blog-3511754798290820361.post2142680244585788954..comments2023-11-29T03:53:03.441-05:00Comments on Kayleigh's Story: 7/11/08 - One Step BackAdamhttp://www.blogger.com/profile/11866335057753880067noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3511754798290820361.post-58397465687885165892008-07-12T10:28:00.000-04:002008-07-12T10:28:00.000-04:00Sorry that lil Kayleigh is having a rough time rig...Sorry that lil Kayleigh is having a rough time right now. I'll continue to pray for her healing. It's great that she's breathing on her own that small though! And the NICU is like that the WHOLE time. 2 steps forward and 1 step back gets you closer to the door!!! I hope tomorrow is a better day!<BR/><BR/>In Christ,<BR/>RachelWaves of Victoryhttps://www.blogger.com/profile/16575776695564232278noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-18235624814021940862008-07-12T10:27:00.000-04:002008-07-12T10:27:00.000-04:00I know after this first month is over she will sta...I know after this first month is over she will start getting more strength. Its just their little bodies are in shock for awhile. She's doing very well. Anthony was on the ventilator for 17 days and was on the nasaltherm (like the CPAP but in a cannula form) for almost the whole time he was in the NICU. <BR/><BR/>Love the little picture video! Love that song too. I have it on one of Anthony's video montages on my youtube. Its all such an adventure and a journey.Kimberly (Anthony's Mom)https://www.blogger.com/profile/00517783303087349285noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-83702314063969238712008-07-12T10:20:00.000-04:002008-07-12T10:20:00.000-04:00When both of mine started feeds they would desat l...When both of mine started feeds they would desat like crazy.. They did best when they were on their tummy during and after feeds.. Also, if they ever got the SLIGHTEST bit anemic (remember, they draw labs on these little ones like its nothing, and 1 cc of blood for them, is huge) they would also desat! BUT, even when they were this small---- if I looked at them funny, they would desat, lol! I remember getting so close to being home and they would STILL desat.. Like the day they were going home, if the monitor read funny or something I would literally almost have a heart attack thinking they would keep them! Ugh.. She's still itty bitty-- so she's allowed to do this... It's typically outgrown by 35 weeks-- but thats for the average preemie.. Mine, like yours had SEVERE IUGR, so they get their own set of rules! Hang in there! It'll get better! She looks amazing!Christyhttps://www.blogger.com/profile/11082866314952683936noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-82799047182326580032008-07-11T23:33:00.000-04:002008-07-11T23:33:00.000-04:00Sorry, I can't look at the NICU video or the pics ...Sorry, I can't look at the NICU video or the pics to music, I'm still WAY too much of a sap....You are officially on the NICU roller coaster. Thank God for the positives...No infection! And CPAP is something you guys can handle, compared to the vent days this is so much better. Two steps forward, one step back. It's normal, she's beautiful and has so many prayers coming her way you can't even imagine. Just a reminder to stay positive and strong, the NICU can wear you guys out more than the wee ones. Remember stress = sick = they won't let you in the NICU.<BR/>You and Amy keep taking great care of each other, you are all doing great!<BR/>XOXO~Heather<BR/>(Thank you so much for adding Trey to the site, I'll ask that he keeps his post over Kayleigh's isolette) :*)Chasehttps://www.blogger.com/profile/15159773218928422067noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-7798507313468577972008-07-11T22:47:00.000-04:002008-07-11T22:47:00.000-04:00Im sorry about the set back, Im sure she'll bounce...Im sorry about the set back, Im sure she'll bounce right back! I will definatly keep her in my thoughts tonight.<BR/><BR/>Babyksmom05@yahoo.comAnonymousnoreply@blogger.com