tag:blogger.com,1999:blog-3511754798290820361.post2967936879017982351..comments2023-11-29T03:53:03.441-05:00Comments on Kayleigh's Story: 11/19/08 - 6:11pm - UpdateAdamhttp://www.blogger.com/profile/11866335057753880067noreply@blogger.comBlogger52125tag:blogger.com,1999:blog-3511754798290820361.post-77312211978097576792008-11-20T14:26:00.000-05:002008-11-20T14:26:00.000-05:00You two are so strong! And she seems stronger and...You two are so strong! And she seems stronger and more tenacious than most adults I know. This fight isn't over. If there's one thing I've learned from dealing with docs and hospitals - you MUST be your own advocate. You know what's best and you know your child better than anyone. Get tough and demanding with everyone. She deserves the best treatment available. My thoughts are with you. Fight fight fight, little girl!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-80483239522518843402008-11-20T14:19:00.000-05:002008-11-20T14:19:00.000-05:00my thoughts and prayers are with Kayleigh! I conti...my thoughts and prayers are with Kayleigh! I continue to pray for Kayleigh everyday and read your posts to get all the updates. i am so sorry that she is having a set back. And yes you were anticipating her coming home soon but as you said at this point all you want is for your little girl to be strong and healthy. You and Aimee are an amazing couple and the fight the two of you have in you to stay strong for your baby is amazing. This is helping Kayleigh continue to get better. i hope this is a minor problem that can be fixed easily. Stay strong!<BR/>Katie<BR/>Baltimore, MD.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-36732279474213046122008-11-20T13:54:00.000-05:002008-11-20T13:54:00.000-05:00I've been following your story since BBC, I have a...I've been following your story since BBC, I have a Sept. baby. Kayleigh is an amazing strong little girl, a precious gift from heaven. Our family has been praying for her and for your family to continue have such amazing faith and strength. We will continue until she is home safe in her loving parents arm. <BR/>God Bless <BR/>DanielleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-52988852132797804292008-11-20T13:46:00.000-05:002008-11-20T13:46:00.000-05:00I thought she was about to go home. My prayer cha...I thought she was about to go home. My prayer chain prays 24hrs a day for 30days, gotcha covered.<BR/><BR/>Jason, Julia, and Penelope's NaniRobin E. Kitsonhttps://www.blogger.com/profile/04140214398279357745noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-33546070150466870662008-11-20T11:59:00.000-05:002008-11-20T11:59:00.000-05:00Our thoughts and prayers are with you everyday! W...Our thoughts and prayers are with you everyday! We are hoping it is something minor that is easy to fix!pigpen7https://www.blogger.com/profile/02011163675896219376noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-47797458661421821612008-11-20T11:36:00.000-05:002008-11-20T11:36:00.000-05:00Blessings and prayers for all of you.MegBlessings and prayers for all of you.<BR/>MegJoehttps://www.blogger.com/profile/13768141190409746054noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-74802025763497801142008-11-20T09:05:00.000-05:002008-11-20T09:05:00.000-05:00God bless you and your beautiful family. I will b...God bless you and your beautiful family. I will be praying for you non-stop. Please know that you are not alone.<BR/><BR/>Love,<BR/>BeckyBeckyhttps://www.blogger.com/profile/13270695007960628114noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-66670880217410367322008-11-20T03:37:00.000-05:002008-11-20T03:37:00.000-05:00Have you checked her gums - is she teething? Coli...Have you checked her gums - is she teething? Colic? - sometimes it's the little things - maybe she's starting to have 'normal' baby problems. You could try an chiropractor if there's one at the hospital. There's lots of information on the internet, but chiropractors have had good improvements with preemies - especially with colic and stuff.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-15054947415997888502008-11-20T03:16:00.000-05:002008-11-20T03:16:00.000-05:00I'm so sorry to hear about this unfortunate turn o...I'm so sorry to hear about this unfortunate turn of events. Your hope, dedication, and faith are inspiring. I will be praying for all three of you. <BR/>God bless, <BR/>Jennajaghttps://www.blogger.com/profile/17961391924377885495noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-10645278736001356542008-11-20T02:45:00.000-05:002008-11-20T02:45:00.000-05:00I have to say wow! what awesome people are out the...I have to say wow! what awesome people are out there to try to give you options and help. I have read so many good points and ideas, I know that you are doing all you can and so are the doctors, but ideas are never a bad thing and I saw some good ones.. you are so blessed to have so many people trying to help you get your baby healthy and home.. It is awesome! I only wished I could have thought to do all that you have to bring people together for this one beautiful and special little girl..<BR/>There are many people that are shocked on the fact that she was doing so well and then she is having a set back, The sad things is.. this is NICU life. that is why the NICU is often refurred to as a rollercoster. It really sucks! <BR/>Even after the NICU there will be times of stress.. fear.. but know, KNOW that she will always go back to being your wonderful little Kayleigh!<BR/>All that I know are praying for her!<BR/>lots of prayers I know God hears them!<BR/>Also- have they considered reflex? It is very common in Preemies...and it could be agravating her throat that is probably already sensitive and it can cause problems with breathing and saturations lvls. It could have also cause her to asperate and build up some preasure in her lungs...<BR/>HUGS & prayers<BR/>-Karen<BR/>(sorry I have never been a good speller)Nelson Familyhttps://www.blogger.com/profile/07012936408225696005noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-11373081141098679742008-11-20T02:42:00.000-05:002008-11-20T02:42:00.000-05:00Kayleigh just doesn't want you two to get too comf...Kayleigh just doesn't want you two to get too comfortable, so she just has to shake things up a bit. She seems to have a pattern of doing that, doesn't she? I betcha she'll be feeling lots better in a day or so. <BR/><BR/>Lots and lots of prayers headed your way!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-92200193832104912472008-11-20T02:35:00.000-05:002008-11-20T02:35:00.000-05:00Baby Luke and I are praying for Miss Kayleigh! She...Baby Luke and I are praying for Miss Kayleigh! She has overcome so much and I pray that God helps her overcome this!<BR/>Love to you all,<BR/>Rhonda and Luke SmithRhondahttps://www.blogger.com/profile/18198733367946338570noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-42343834676069011202008-11-20T01:58:00.000-05:002008-11-20T01:58:00.000-05:00Prayers for you sweet Kayleigh. I still believe y...Prayers for you sweet Kayleigh. I still believe you will be going home with Mommy and Daddy soon.Stephaniehttps://www.blogger.com/profile/01960214930673411979noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-84551441691363961522008-11-20T00:57:00.000-05:002008-11-20T00:57:00.000-05:00We're still praying everyday (along with checking ...We're still praying everyday (along with checking the updates) for Kayleigh and will continue to as she overcomes this little setback.Jenniferhttps://www.blogger.com/profile/03588508911013209710noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-56323614227714021052008-11-20T00:24:00.000-05:002008-11-20T00:24:00.000-05:00I will be sending lots of extra thoughts and praye...I will be sending lots of extra thoughts and prayers Kayleighs way tonight. I hope it is a minor problem that she will overcome. Poor baby girl needs a break, and so does mommy and daddy! Hugs to you all, stay strong.<BR/><BR/>Babyksmom05@yahoo.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-33097559742359693212008-11-19T23:09:00.000-05:002008-11-19T23:09:00.000-05:00Your family is blessed with some of the strongest ...Your family is blessed with some of the strongest people I've never met...I can only hope to draw from your strength when I need to, but right now...I'll let you keep it all! Stay strong...Little Kayleigh has it in her to keep fighting...she has shown that all along!! I am continuing to pray for you, your family and especially for the health and quick recovery of your little girl.Kerihttps://www.blogger.com/profile/03785309859586821495noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-35877196196955320292008-11-19T23:00:00.000-05:002008-11-19T23:00:00.000-05:00My thoughts and prayers are with your family and l...My thoughts and prayers are with your family and little Kayleigh!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-88663929117230203182008-11-19T22:39:00.000-05:002008-11-19T22:39:00.000-05:00Kayleigh you really shocked us! I never thought I ...Kayleigh you really shocked us! I never thought I would be reading these last few posts. Keep fighting girl! We love you. We've been praying for you all day today and will continue to for as long as you need us.Kala Familyhttps://www.blogger.com/profile/03000421466644888016noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-13185547006451387082008-11-19T22:22:00.000-05:002008-11-19T22:22:00.000-05:00Praying for your sweet little girl....I am adding ...Praying for your sweet little girl....I am adding you to my blog for babies needing our prayers!!!!! <BR/>Amanda - Spartanburg, SCAmanda-The Family News!https://www.blogger.com/profile/06943711041849656799noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-34877066999029468372008-11-19T22:14:00.000-05:002008-11-19T22:14:00.000-05:00I'm so sorry you guys are going through this again...I'm so sorry you guys are going through this again. It seems like every time they give her that fortifier something happens. I know Anthony was getting sick from my breast milk toward the end (at least thats what they told me) and he started having really bad apnea cause he had gas and because his tummy was so full it make it hard for him to breathe. They put him on Similac Alimentum and then when he came home our Lung dr said adding rice to his formula would help. I know some people say giving them rice so little is bad. But we see a lung specialist and he knows all about stomach issues (cause they can mess with breathing.) The rice REALLY helped. It also added calories Anthony needed. You might want to check into adding rice to the breast milk instead of fortifier....<BR/><BR/>Again I'm so sorry you guys are going through this. You are such a strong couple. <BR/><BR/>KimKimberly (Anthony's Mom)https://www.blogger.com/profile/00517783303087349285noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-28992518308319303322008-11-19T21:57:00.000-05:002008-11-19T21:57:00.000-05:00Just recently found your story. Just wanted you t...Just recently found your story. Just wanted you to know that now you have one more person to lift your sweet baby up to our Heavenly Father who hears our prayers. In His Name, CristiCristihttps://www.blogger.com/profile/01861661815295204620noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-89143633945664618962008-11-19T21:51:00.000-05:002008-11-19T21:51:00.000-05:00The California Cavanaugh's are sending their heart...The California Cavanaugh's are sending their heartfelt blessings and prayers. We read and follow Kayleigh every day, we love you all, and we are with you....we are family, and we love you... you're in our prayers today, and everyday.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-87072924066597665142008-11-19T21:43:00.000-05:002008-11-19T21:43:00.000-05:00Kayleigh, You have GOT to stop scaring mommy and d...Kayleigh, You have GOT to stop scaring mommy and daddy so much! Save some of this for your teenage years:) I'm praying for you and your family, little girl! Blessings!Heatherhttps://www.blogger.com/profile/12788861456512796647noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-3323650700084388432008-11-19T21:34:00.000-05:002008-11-19T21:34:00.000-05:00Thank you for the update! Parker and prayed for Ka...Thank you for the update! Parker and prayed for Kayleigh tonight as I was rocking him before bed! I wonder if she may have some kind of allergy to the fortifier? It seems like whenever she is on it it is worse. Remember as her parents you have EVERY right to speak up and say, hey, we want you to do this, or we feel this. I remember when we did that with Parker. we made them give him a wedge and next thing we knew his reflux was better and he was home! <BR/><BR/>I pray that you can find some peace tonight. Try to get some rest and know we are all here for you!Denihttps://www.blogger.com/profile/05348064868746881636noreply@blogger.comtag:blogger.com,1999:blog-3511754798290820361.post-85112595233917644092008-11-19T21:33:00.000-05:002008-11-19T21:33:00.000-05:00I am a NICU RN of 15 years....what about plain bre...I am a NICU RN of 15 years....what about plain breastmilk but adding someting called intralipids to it-I know every NICU is different but just wanted to throw that out there.<BR/>GOOD LUCK....in my thoughts and prayers!!!!Anonymousnoreply@blogger.com