Welcome Everyone to Kayleigh's Story

Hello Everyone,

Aimee and I wanted to put something together for all of those we send updates to and for those who are just joining us and want to join the journey of Kayleigh's story.

Our first baby update was sent out April, 21st 2008 but it all began on December 18 at a hotel at Disney World in Orlando Florida. Aimee told me not to go in to details but a long story short, we were going to bring home a very nice souvenire. Little did we know that we were about to experience the world's most scary and exciting roller coaster of our lives.

From New Years when we received a positive pregnancy test to the beginning of April, everything was fantastic. We went to our normal Doctors visits and followed every single direction we were given to a "T". Everything was perfect as we imagined until Aimee went in to take an AFP exam. The AFP test tells us there is a chromosome issue, but doesn't tell us what chromosome issue it is. The AFP came back abnormal and the Ultra Sound showed our baby growing a couple weeks behind. We were devestated!!! "How could this be! We are good people, so why could this happen to us." Those were the words that we spoke for days.

So, our next route was the get an amniocentesis done which is something we wish on no one. It involves a long needle and the possibility of really hurting the baby. Aimee cramped really bad afterwards and was in serious pain. The test is suppose to clarify which chromosome issue our little baby has. So from there, all there was to do was wait to hear the results and waiting was hell!



6 comments:

Jennifer said...

Hey there!

I just found your blog and promise to read every post :) I plan to be a NICU nurse. So far...your story has been very touching and amazing :) I am not a very faithful commenter...in fact I rarely comment on any blog if at all. So know that even if I don't leave a comment...I am still reading every post, and taking the story all in! and praying for your miracle EVERY day!

you are in my thoughts and prayers. If you want to contact me...my email is jennygdelp@comcast.net, and my blogs (which sadly I don't find the time to update very often) are www.jennydelp.blogspot.com and jacklynnlee.blogspot.com

take care!!

Jennifer

Grace Wall said...

Hello my name is Grace and I just want to tell you what a beautiful baby girl you have. Little girls are true blessings. I can truly say that I completely understand where you are coming from when you say that its been a "rollercoaster" ride. With our first daughter my husband and I found out that she was gonna have a heart defect. Our little Faith Hailey was born June 10, 2006. She endured many surgeries, with her first being at only 4 days old. She went through a heart transplant at only 1 month old. On august 20, 2006 she became our guardian angel. I spent many days and nights by her side in the PICU. Although she was not a preemie she was small for her age. Almost a year later we found out we were having another girl. She is now a HEALTHY 7 month old and her name is Kailey Faith. God has definitely blessed you with a wonderful little girl. Never give up hope and just to let you know the doctors arent ALWAYS right.

God Bless,
Ryan, Grace, Faith, and Kailey Wall

Anonymous said...

I'm praying for your sweet baby girl stay strong

Anonymous said...

Hi! My name is Jessica. I have been following your strong little girl's story for a while now. I am praying for her! I am amazed at her strength and desire to live. She must know what an awesome family she has!!

Kay said...

Words are hard to place at this moment for me..my husband and I experienced some of the same your little unit endured. December 1963, we were blessed with twin daughters:Ann Annette and Carla Kay their struggles did not last as long as your precious Kayleigh's none the less the impact of the loss remains strong in a parents heart..Here we are so many years later with pain and a loss feeling, wonder of what if's and how their lives would have unfolded....how they would have enriched our family by their presence. Now at 62 the loss is so real to myself as well as my dear husband. I have taken an approach of thinking that God placed them in our presences for a reason...all things I believe God uses for his glory and teachings....I am so happy to see how you have developed this little angels visit into positive. I have always been more private with my angels touch. Even with my demeanor being a more private display.....I see so many ways they by blessing us for such a short time have touched so many hearts. The Impact is overwhelming and ever lasting. I must end saying we had 3 beautiful children after Ann and Carla...in 1965 we had a beautiful bundle of joy placed in our arms once again a Girl she has been nothing short of an Angel herself..amazing person and God is the center of her very soul yet today as she has raised her family and now a grandmother! One year after our Blesses gift placed in our arms for leading and teaching we were blessed again with a fine strong Boy ~ full of drive and energy he holds still today as he blesses his 2 beautiful girls by being a strong figure and role model for them hourly in their lives! Come 4yrs last for us....God blessed us for our last time with another wonderful boy! Tender hearted...strength of a soldier with his approach to life but his heart big enough for 50 men!! He was truly Blessed 2007 after being told so many scary things about the precious child he waited so long to have, that they should expect possible terrible things due to gene issues...God saw things different for her she was born PERFECT...brilliant...physically perfect no issues at all~ and now he is currently waiting his second blessing due in Feb.
With all of Life’s up's and Down's I see things only positive....even the down sides for I know there is a lesson God is placing before us somewhere in it's existence.....and it is up to us to create the beauty of it all so that His light will be seen above it all. God Bless you in your future!

Kay said...

Words are hard to place at this moment for me..my husband and I experienced some of the same your little unit endured. December 1963, we were blessed with twin daughters:Ann Annette and Carla Kay their struggles did not last as long as your precious Kayleigh's none the less the impact of the loss remains strong in a parents heart..Here we are so many years later with pain and a loss feeling, wonder of what if's and how their lives would have unfolded....how they would have enriched our family by their presence. Now at 62 the loss is so real to myself as well as my dear husband. I have taken an approach of thinking that God placed them in our presences for a reason...all things I believe God uses for his glory and teachings....I am so happy to see how you have developed this little angels visit into positive. I have always been more private with my angels touch. Even with my demeanor being a more private display.....I see so many ways they by blessing us for such a short time have touched so many hearts. The Impact is overwhelming and ever lasting. I must end saying we had 3 beautiful children after Ann and Carla...in 1965 we had a beautiful bundle of joy placed in our arms once again a Girl she has been nothing short of an Angel herself..amazing person and God is the center of her very soul yet today as she has raised her family and now a grandmother! One year after our Blesses gift placed in our arms for leading and teaching we were blessed again with a fine strong Boy ~ full of drive and energy he holds still today as he blesses his 2 beautiful girls by being a strong figure and role model for them hourly in their lives! Come 4yrs last for us....God blessed us for our last time with another wonderful boy! Tender hearted...strength of a soldier with his approach to life but his heart big enough for 50 men!! He was truly Blessed 2007 after being told so many scary things about the precious child he waited so long to have, that they should expect possible terrible things due to gene issues...God saw things different for her she was born PERFECT...brilliant...physically perfect no issues at all~ and now he is currently waiting his second blessing due in Feb.
With all of Life’s up's and Down's I see things only positive....even the down sides for I know there is a lesson God is placing before us somewhere in it's existence.....and it is up to us to create the beauty of it all so that His light will be seen above it all. God Bless you in your future!