Today was a little stressful, but things are under control. Kayleigh started the day off by going back on the CPAP to help with her sleep apnea. Her oxygen was set at a normal setting as if she was breathing in air like you and I do. They only are using the CPAP to help the flow of air into her lungs which helps her not to forget to breath. It is good to see she is going to get much better rest, but no one wants to see her take steps backwards. They said there will be set backs, so I just need to get used to that.
The nurse mentioned that because she was having more sleep apnea episodes, it may be caused by an infection of some sort. So they have done some blood work to get things tested for infections. That should come back in the next day or two. There was a quick test that they took to see if it was some sort of major infection, but I forgot what they called it. The good news is, that test came back clear with no issues. We are really praying that the blood tests come back normal with no infections in the blood.
While they were running some tests, they noticed her red blood cell count was low so she had to get a series of blood transfusions. She had one transfusion this morning and they were doing another later this afternoon. The first one went really well and was done with out any issues. She has two IV's, one for nutrients and the other for blood work, so it was easy to access and get her the blood she needed.
Other than that, she is doing really well. It was good to see her today resting well without any bad apnea spells. She had a couple earlier today, but that was before they put her back on the CPAP. With the CPAP, she can still override the system and breath on her own which to me that is so much better. Seeing her stop breathing and struggle to catch back up seems like it would just wear her energy out and not allow her to get the deep sleep that she needs to help her grow.
Aimee is on the phone with the NICU right now to get an evening update. They do her vitals at 8 and 2 in the AM and PM, so we like to see how things are going every chance we can get a new update. She just got off the phone and I guess I spoke too soon. After we left late this afternoon, the nurse said she started to have some more bad spells with her apnea, so they put her on the ventilator which is a more assisted breathing machine. It is a even further step down from the CPAP, but whatever it takes to help my peanut. The nurse said to Aimee on the phone that it was a shock to see Kayleigh breathing on her own in the first place and that it is completely normal for a preemie of this age to be on the ventilator right away. We were told this may happen, but of course we all think she would be strong enough to not to struggle at all. The nurse mentioned that Kayleigh may have just worn her little self out this week trying to breath on her own. All we can hope and pray for is that she will not have sleep apnea episodes while on the ventilator. That will not be good.
All we ask is for everyone to pray pray pray for our little girl right now. We need her lungs to mature quick, so we can jump over this hurdle. Thank you everyone so much for being there for us. I will update you as soon as I hear something.