I am just hoping and praying that we have more days like today. After her glycerin shaves last night, she had two big blow outs and another “Large Stool” as they called it, today. She grew 40 grams last night which is double what the doctors were hoping for Kayleigh to grow each day. (Total 1605 = 3lbs – 8.6 oz) One of our doctors said that he would do the happy dance if she grows 20 grams a day, so he owes us two happy dances.
Her feedings went pretty good today. Besides sleeping like a rock this afternoon and not being interested in eating when we were there, she took all of her 32 mls this evening without a problem in just 20 minutes. The reason she has been tired is possibly due to the increase of oxygen they are giving her. The doctors decided to decrease her flow to .5%, but hike up her oxygen to 100% which won’t affect her eyes at this state in the game, but it will mainly help her oxygenate her blood and prevent her pulmonary hypertension to act up. It was very smart move because I don’t think I have ever seen her sleep so heavily than we have today, which will also prevent her from burning unnecessary calories.
The doctors are sending Aimee’s breast milk off to find out what the caloric make up is. That way we can get an idea of how effective her milk will be. They will still have to fortify with something because Kayleigh needs all the other nutrients that breast milk can not offer to a preemie of Kayleigh’s size.
Tonight was a great night, because we finally finished Kayleigh’s room. I don’t think we have ever been so detailed before because we wanted to make sure everything was as close to perfect as can be. We even went back with a fine brush to touch up spots that probably didn’t need touching up. I hope it looks good.
One of our new clients/new friend shared with us a children’s book that she wrote and published. It is called Ebenezer Flea and it is just an adorable book. Aimee read it to me in the car on the way up to the hospital right after we got it and it is a cute lesson in life. I highly recommend it for your children. The website of this book is http://www.ebenezerflea.com/. Every child needs a favorite bedtime story, so we plan to read this one to Kayleigh a lot when she comes home :)
Thank you all so much for your prayers through all this. I know I thank you almost every night, but I truly can not thank you enough for the support and love you have given our family.
God Bless,
The Freemans J
God Bless,
The Freemans J
5 comments:
Sounds like you guys did have a perfect day indeed! Kayleigh continues to amaze me!! Each night before I leave Morgan Kate we pray for all the NICU babies and their families, especially Kayleigh. Keep up the great work, Kayleigh! Oh, and the nursery looks awesome!!
Way to go Kayleigh!!! That is awesome.
Adam and Aimee, with them hiking up her oxygen did they do it because she was exhibiting signs of hypertension again? I really really hope this is not the case. She is doing just amazing, I would hate for her to have a setback.
Jennifer
jlcampbell2008@yahoo.com
Since she showed signs of it right after her last surgery, they don't want to risk her going through another bout. They have her on Viagra and high oxygen to help keep those blood vessels in the lungs open. If they close, then she will go through that same scare where she will be put back on the vent and could possibly cause some major problems. It is better to be safe than sorry.
I hope that helps :)
Adam
Kayleigh is a pretty baby. We hope she is a winner.
And too, hope for the ours childrens with PH.
A hug for the parents and Kayleigh.
Fundación Colombiana de Hipertensión Pulmonar [Colombian Pulmonary Hypertension Foundation]
Great to check in with such great reports! Keep it up Kayleigh Girl!
Nursery is NICE! In our prayers as always, the Johnson's.
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