With CPR complete, we are just one more step closer to coming home. We really hope we are not going to have to use CPR on Kayleigh because with her recent surgery, her breast plate/sternum has already been cracked open. I know we will do what we have to do, but there is a huge risk of breaking that breast plate/sternum when giving compressions, even if it were in perfect shape. That is a scary thing to think about.
Speaking of her recent surgery, Kayleigh's sutures and her final tummy tube have been removed. There are no more lines that are inserted in Kayleigh except for her nasal cannula, which is fine by us!!! Actually, her liters of flow have been dropped to .1 and she will be going home with her oxygen on that setting. I am not sure what will need to happen for her to be taken off of the oxygen completely, but I am sure her lung pressures will have to come down to a very safe level.
They have increased Kayleigh's caloric intake from 24 to 27, so they can try and put a little more weight on her before she goes home. Tonight, she actually lost a little weight which is odd. She has been gaining a lot lately, so we will see what tomorrow nights weight is before we worry too much. When we get home, we will have to supplement a couple feedings a day with fortified bottles along with Aimee breast feeding her at other times. This will not only allow Kayleigh to grow, but deliver a good amount of nutrients to her bones and organs. Kayleigh may always be small in stature, but we hope for her to be completely healthy otherwise. We are trying our best to NOT give up on giving her some kind of breast milk though because that is what God intended her to have. Aimee has been through the ringer anyhow, so we don't want her efforts to be a waste.
Our plan is to be home this week sometime. I wish I could pin point an exact day so we can all anticipate and celebrate, but since all her tubes/sutures have been removed and her recent blood tests came back normal, she is actually good to go NOW. They are doing another echocardiogram in the morning, so hopefully that checks out good and her pressures have come down even more. Please say a prayer that her pressures have come down even more. I am hoping they will release her early, but I don't want to get my hopes up. I guess I will just surprise everyone if that happens :)
Here are two more of Kayleigh's friends, Amanda and Reagan with signs they made. I wish I could write that good when I was their age :) We are so blessed to receive these photos. We finally got the bracelets in and they are being shipped out to all of you who bought one tomorrow. Sorry for the delay, but I can't wait to see more photos of ALL of you wearing them. If you didn't know, all the photos will be put in a scrap book that Aimee is making for Kayleigh, so she will remember every single one of you forever.
Aimee is in need of some advice and quick help from all the Mommies. Poor girl is in some serious pain and we don't want to lose the ability to breast feed Kayleigh. For those of you who had cracking/splitting issues with pumping, Aimee wants to know what did you do to take care of it. Did you stop pumping, so you could let it heal or did you use a fast acting medication to help it heal, and what was that medication. Please email Aimee directly: Aimee@TeamFreemanProperties.com THANKS A TON!!!
The Freemans :)