We are more than happy to say that the trach will speed up her process of coming home because she would not be able to come home with the ET-tube down her throat. Yes, she still needs to tackle the reflux issue, but they may do either the g-tube/nissen or the jg-tube at the same time as the trach. After that, the doctors need to decide whether or not they want to send her home on the Flolan for her pulmonary hypertension or try and wean her off of it. There is not much else to do from there, but we said that before so pray that nothing pops out of nowhere. We will have in-home care provided for us, which will be the biggest adjustment, but we try to look at the positives and do what is best for Kayleigh. "Hey, at least I get off of night duty for a little bit longer."
Kayleigh seems to amaze us everyday. When we go in to spend time with her at her bedside, we always find ourselves lost in thought. Looking at this blessing from God that has beaten so many odds is such a great feeling. It takes me back to when I would lay next to Aimee and put our little fetal dopplar on her belly so we can listen to Kayleigh's heartbeat. Every night for 10 weeks straight, we prayed to hear the pitter-patter just one more day. We would just lay there and smile at each other with such strength and hope that Kayleigh will make it through this. Look at her now! She makes my heart melt every single time I look at her. I am the proudest Daddy in the whole wide world.
Thank you ALL who have supported us through this.