Are You Sitting Down???









Doesn't she look like "Mini Me" in this last photo...."Whooo-oo Haa-a-a-a-a!!"

Today was such a beautiful day! We had a meeting about Kayleigh and her new plan of action. Make sure you are sitting down. Are you ready....?

The plan of action has been confirmed for Kayleigh to go home very soon. We are looking about a month or six weeks out, maybe even less depending on how well she does with the upcoming tasks. There is not a whole lot left to do, but she can't have anymore setbacks along the way.

The next task ahead is for the doctors to insert a G-tube straight in to Kayleigh's belly. She has been trying to take a bottle and has not been too successful yet. They know it will take time, but they don't want to interrupt any developmental issues, so they are going to take out the last tube that is in her nose and put in the G-tube instead. The other tube in her nose was removed the other day for good since she no longer has any air on her belly that needs to be suctioned. The G-tube will allow Kayleigh to be on her regular feeding schedule and still be able to practice with the bottle. I can't wait to see her with no tubes on her face.

This surgery will be done next week sometime and she should recover very quick. They already took her off the continuous drip of Versed (Pain Med.), so they won't have to worry about weaning her off of that again. They will use another medication for her pain that can be stopped fairly quickly. Since being off the (Versad) pain medication completely, she is able to focus more and her eyes don't wonder around that much. Seeing her try to focus and her eyes cross is the cutest thing. They are doing an eye exam before she goes home to test her muscles in her eyes to see if the doctor needs to strengthen one over the other.

They are also weaning her off the Hydrocordizone that was used for reducing the inflammation on her lungs. Once they do that, they plan to remove the older central line out of her chest since the Flolan is the last of the medications she will be given through an IV. One by one they are starting to get rid of more lines and more meds, so she can come home on minimal items.

Right now, her feeds have been increased to 22ml's per hour and her caloric intake is at 25. She has blown up the last couple days. I know we just hit the 7 pound mark not too long ago, but she weighed in at 7 pounds - 6.2 ounces last night. It seems as if things have completely taken a turn for the better once she had her tracheotomy put in. Many of you said she would do that and you were right.

At the meeting, they told us that soon we will be training with some of the nurses for Kayleigh's home care and what to do in many different situations. We have already worked on changing the trach, but we have to train on changing the Flolan which is the scary part. There is a 3-5 minute window with that medication. If anything is pinching the line, or it is leaking, Kayleigh could go in to a hypertensive episode that could kill her. There is no room for error when taking care of our peanut.

So, needless to say, we need to be on top of our game when taking care of her at home. If our in-home nurse doesn't show up, we need to have all eyes on her 24/7 in case either the trach pops off or the Flolan is not working properly. It is enough to scare the mess out of you, but of course we will do what it takes to make sure she is home and safe. There are so many stories of how preemies just do ten times better once they're home, with growth and development.

This has been one exciting day for us and we are so pleased to see Kayleigh making leaps and bounds, especially after seeing her near death just a couple months ago. This was a day I thought was never going to get here, but it looks more promising now than ever before. To end today on a great note, Kayleigh started smiling again. You can her smile as Mommy was kissing her in the first photo and they came frequently as we played with her today. It melted my heart to see her so happy and this is such a blessing for us right now.

Thank you all so much for your support through this journey. Kayleigh has been an inspiration to so many and all we can ask is that you keep her in your prayers for next weeks surgery. We are not sure when it will be, but we will let you know. I wish everyone a wonderful weekend and please say a prayer for me as I have my final interview for my new job this weekend. If I get the position, I will be sure to clue you all in on the details.

God Bless,

111 comments:

SuperAngel said...

That is so awesome! Praying for everything to go smoothly!
HUGS!
Amanda
The Daily Planet

Sarah, Adam and Mercedes said...

Dear freeman family: I am SO happy for you guys! this is great news! keep up the good work! We're praying for ya,

Adam, Sarah, and Mercedes! <3

April Williams said...

This is ALL WONDERFUL NEWS!!!! I am sooooo HAPPY for ALL of you!!!! God will ALWAYS come through!!!!! You can ALWAYS count on that!!!! We Love You Kayleigh!!!!!

Brianne Hanson said...

This is absolutely WONDERFUL news. My face just lit up when I saw the new pictures and read the story. WAY TO GO KAYLEIGH!!! Aimee & Adam, you are doing a fantastic job of making sure she has everything she needs right now. I can only imagine how scary all the new training will be, but if anyone can do it y'all can. Good luck on your interview Adam. And I hope it all works out the way you need it to. We will be praying and trusting that God helps them make the right decision, whatever that may be. Also, I will be praying that Kayleigh's body continues to get better and that she is fully prepared for the G-tube surgery. Get some much needed rest tonight, as I know you both probably need it :)

Babs said...

I'm so glad for Kayleigh and you guys, that is just great. I'll pray for everything requested.
Who knew such a little thing could inspire so much and so many.

Lindsey Wright said...

WOW! WHAT A SMILE!!!!!!
Her hair is getting blonder and blonder in every picture!

She is such a blessing and a true miracle-God Bless y'all!

Lindsey Wright
South Texas

Maria said...

That is incredible news! I am so happy to hear that she's on the track to going home!!

I'll be keeping her in my prayers, hoping the next few weeks go wonderfully for her.

Katie Anderson said...

Praise The Lord, I am so happy for you that K will soon be coming home and that she is doing so well. You are all in our prayers daily and we can't wait for the day that you announce that you are taking K home. We love you guys so much and thank you from the bottom of our hearts for sharing with us all about K and your daily updates. It means so much to me. Have a wonderful weekend, God be with you in your interview, and I look forward to hearing from you soon.

Isaac and Mommy said...

What a blessing! We will keep praying for God's will to be done! Take care! The Ross Family

Val said...

WOW, this is Awesome news! The power of prayer is so amazing. God truly does work miracles.

My baby (now 2) has a G-tube. It is such a piece of cake to take care of. He's had the Nissen wrap as well and been on a feeding pump. I think Kayleigh will love not having any tubes in her nose!

I'm so happy, you've made my night with this post!

Sabrina said...

That is such fantastic news! Thank you for the great pictures and I will most definitely be praying for both you and Kayleigh! Good luck on the interview!

Chris said...

so so awesome. God is so good. Have a beautiful weekend!!

Kristina said...

So exciting!!! Will continue to pray for you guys.

Pamela S said...

What wonderful news!!! I will be keeping all of you in my thoughts as you interview for your new job and Kayleigh continues to improve and grow! You and Aimee should be very proud that you've had the courage, strength and determination to see Kayleigh through the last 8 months. It's your love and commitment to her that is making all of this possible, and that will continue to help her grow and flourish!

Jennifer in NM said...

YAY!!!!She is so beautiful, and so full of life. It is amazing at how well she is doing and OMG on the weight gain. That is awesome!!!! I can't wait for that time to come when she is going home! I will of course pray for her to make it through the surgery safe and sound...but she will be fine!

ALways in my thoughts and prayers!

Jenn
jlcampbell2008@yahoo.com

Holly said...

How amazing!! I am so happy for you all! You will be so happy the day you bring her home. I can remember the day I brought my son home and it was the best day of my life!! Congrats and good luck Adam. I'm sure you'll do great!! You've gotten this far now it's just closin the deal!! I am so happy for all of you and I'm sure the kids will be so happy when they finally have their little baby sister home!! Take care and God Bless

Paula71 said...

Go Kalyeigh! Go Kayleigh! Go Kayleigh!
(said in a sing songy tone)

Hip Hip, Hooray Kayleigh is going home soon. You guys are going to be amazing at home with Kayleigh

Courtney Paris said...

What wonderful news! Both my babies spent time in the NICU and oh what a wonderful feeling when you get to go home!

Prayers continuing and good luck on the job!

Kristine said...

Wow such great news! Congratulations on all of these great new developments! Kayleigh looks so wonderful smiling, it made me so happy to see that! Best wishes to you all!

Love from NH,
Kristine

Sonya Campbell said...

That is WONDERFUL news!!! I am so happy for Kayleigh and your family. As always we continue to pray for you guys.

Lisa said...

I'm a fairly new reader, but have been so blessed by everything I have read about your sweet little miracle! She is living proof that The Creator of the universe does hear our prayers. I'm so happy to hear the wonderful news of her impending homecoming. What a glorious day that will be. You all will continue to be in my prayers as your lives go on to open up to new miracles with your Kayleigh. Lisa

Anonymous said...

How very exciting for your family!!
Keeping you guys in my daily prayers that Miss Kayleigh continues to grow and thrive and comes home soon.

Hope said...

Awesome news!! Give her hugs from Ava!

Sonya Campbell said...

That is WONDERFUL news. I am so happy for you guys. As always we continue to pray for your family.

Kristen and Andy said...

This is such wonderful news - she really is getting bigger and stronger so fast now - she is just too precious! I am so excited for y'all and for Miss Kayleigh. I absolutely love that first pic of her with that big kool-aid smile - such a sweetheart!

Nanny said...

Wow This truly is an awesome day that the Lord has made. I am so happy that I had tears and my eyes as I read this The minute I saw the title I knew she would be going home soon. Good luck on your interview and will keep praying for everything to work out especially you'll being able to some how stay in your house. Blessings, Lisa from Texas

LMP said...

I am so happy I actually cried!!! Happy tears as I explained to my 6 year old. This is AWESOME news!!! I am so excirted for all of you and praying that everything goes great over the next month and that is she finally gets to go home!

Becky said...

Thanks for sharing...you made my night! You go baby girl! God is SO GOOD! :)

Georgia in KC said...

This is absolutely fantastic. She is proving time and time again, just how much of a miracle she is. I will be praying for you all weekend as you have your interview. What a ray of sunshine.

Following Him said...

AMAZING News!!! Seriously...I am so dancing for Miss Kayleigh right now! God is so good :)
~Elyse~

Anonymous said...

YES!! what great news!! God is so Good!

erika said...

Yay for such awesome improvements and progress towards HOME!!! Woohooo! You will get so good at her trach and flolan...no worries. You'll be able to do it with your eyes closed and you'll just go into Super Parent mode if need be. Good luck with everything and we'll all be excited to hear about more progress!!! Yay!!!
Erika from IL

Anonymous said...

Hello again. That is wonderful news. I could hardly wait to hear that she may be going home soon. God does amazing things!!! I think of your family everyday and pray for all the best. Kayleigh is a beautiful young lady, she's a real fighter. I'll keep all of you in my thoughts and prayers. God bless.

Naomi Owata, MN

Shelley said...

That is amazing news! I have tears in my eyes because I'm so happy for you.

Anonymous said...

GO KAYLEIGH GOOOO!!!

Love you guys so much! I cried watching each video, I so wish I could do MORE!!! Thank God we have my wonderful Aunt whose house is paid for since my hubby lost his job too!
Kenna and I pray for Kayleigh together each night :)
I hope with the media coverage you guys will recieve another miracle and be able to save the house! Praying hard for that!

Rebeccajo19
& Kenna

jlwgator said...

Wonderful update. And good luck on the job interview. I am keeping my fingers crossed b/c I know how badly you would love to feel more stable. Tell Kayleigh to keep up the good work, too.

Jennifer said...

This is EXCITING news and nothing short of a HUGE BLESSING from GOD above. Grow Kayleigh...grow....your almost there. Sending lots of hugs & kisses your way. Praying that everything will go perfect for your final interview and that God's Will--will be done.

Pat said...

I am so happy for you and Kayleigh. She has always had such a strong will to live, I knew this day would come. She has overcomed so much, and I know she will continue to do so. Prayer and love are so powerful. God's hand is so evident! I will continue to pray for you all, and Adam, goodluck in your interview this weekend. I positive you will nail it!!
Pat

mdmickey said...

God Bless!!! I have a daughter born in Oct of last year. I cannot imagine what you have been through!! She is beautiful!!Kiss her for me

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Ande said...

OMGOMGOMGOMG!!! THAT'S AWESOME!!!

Vanessa said...

Oh my goodness what GREAT news!! Those lat couple of weeks are going to zoom by and she's going to be home in no time!!

Amber said...

What awesome news Aimee and Adam I am sure you guys are so thrilled just like all of us are for Kayleigh. All of this training will be a piece of cake once you get it down. It is just scary at first but I know if anyone can do it you and Aimee can. Good luck on your interview I know you will do great. You are such a well spoken person and you have a heart of gold so I know God will help you land this job. What a blessing for you and your family. You guys keep hanging in there and take one day at a time. God will help you through these trying times as well as all your supporters here on the blog. Cannot wait for the fundraiser next week. Keep up the good work Kayleigh you will be home before you know it.

In Christ,
Amber from San Antonio, Texas

Ellie said...

wow such a blessing!!!

Jennylee said...

Seeing you little angel with no tubes on there face is the best ! Take lots of photos for us that day it will be soon !
<3

Tinika said...

Yay! I am so glad to hear it!

S said...

Wonderful, wonderful news! I'm so happy for you guys and can't wait to see her at home in her own bed!

The Carney's said...

Such wonderful news!! Continuing to pray for you in Louisiana!

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Randi said...

It is wonderful that Baby Kayleigh is doing great and looking as beautiful as ever! Her smile can just light up the world...but wait she has already done that by just being Kayleigh!

Adam, Good Luck with your job interview!! Still praying for you guys!!!

Hugs from Mississippi!!

Anonymous said...

Wow does Kayleigh ever look like Aimee in the third photo!! She is so cute and I am so excited to see her go home! You all must be elated over the news today. Can't wait to see her progress once she is home with her family.

God Bless!
Stacy

Kaden and Angel Ava's mommy said...

What great news!!! I too, think she will soar once she gets home, Kaden did!!! If it makes you feel any better, if she pops herself off of the vent and/or trach the vent will alarm. I also wanted to share with you to have the RT show you two as well as the home nurses you may have every possible way the vent circuits can become disconnected, we encountered a new one with Kaden the first night we stayed with him by ourselves in the parent room before going home. I would say now that we are all to familar with them. We have also found out that with the portable vent, the circuit can kink where it connects to the vent, especially when she becomes more active and mobile. Just some things that we have experienced. When you get your home nurses, do not feel bad if you do not think they are going to work out, just let the agency know that you would like to try somebody different. With all that Kayleigh has been through it is best for you to be picky :). It has made me feel bad in the past, but I want what is best for Kaden like I know you do with Kayleigh. It is your right as a parent to have who you feel comfortable with.

Ok, enough of my "advice", I just really wanted to let you in on a few of our experiences. I would love to answer any questions you guys may have as parents taking home a vent/trach baby. Like I have said before we have been doing this for about 4 years. Kaden also has a Mic-Key button (G-tube).

Again, I am so thrilled for you all. You continue to be in my thoughts and prayers. Good luck with next weeks surgery.

Amy

fmattso said...

That is the best news!! I will say prayers for you Adam! Good luck on the interview! To have her home would be awesome! Maybe her home willbe your Easter Gift! I can't wait to see her cute face with no tubes!! Keep fighting little one! You are going to do even greater things than you already have!! Loving the smiles!! Just melts your heart! If she keeps going she is going to weigh 8 lbs by Monday!! have a great weekend!!

adrianna york said...

That is so wonderful that she is going to be going home soon. I will keep praying for her.
Just keep Love Hope and Faith that is all we need.
From Kim and family

Denise said...

WOW that is completely amazing!!! She is just a true testament to God and the power of prayer!! Good luck on your job interview. I hope everything works out and will be praying that it does!!

Brooke said...

Praise the Lord!! That is so wonderful to hear and I am so excited for you both and for Kayleigh :) I just found your blog during the week and finished reading through the archives. I am honored to be praying for Kayleigh and for your family.

carissa said...

That is the awesomest news ever!!!!!!!!!!!!! and she is so so so so so sweet with that smile. i just want to eat her up!

The Snyder's said...

WOW..... How amazing?!?!?! God Is so good.. Thanks so much for sharing pictures with your news.. May God continue to bless you all..

Kristen said...

What a BEAUTIFUL smile she has!! I am so happy to read today's post! I am just thrilled for you all and hope that everything continues to move upwards for you! I hope that just the right people saw your news interview the other day and the prayers continue to work for you all!
You are doing great, Kayleigh! Keep up the good work!
Much love,
Kristen from Natick, MA

Tammy said...

I am so excited. I love being a part of this and seeing what God is doing. We pray for you always.

April Alcorn said...

Awwww I have HUGE goosebumps over this post!!! I'm so so happy for you guys!!! Oh my goodness she has come SO far!!!!!! What an AMAZING little girl!!! And those smiles!?!?!?! Nothing cuter I swear!!! She is a DOLL!!!!!!!! She looks so much like Amy!!! (sorry Adam!! LOL).

Brandi from NJ :) said...

My face is overwhelmed with a smile right now ... what WONDERFUL news ... What a wonderful day for you! I am so happy for all of you! :) **yay!**

Kayleigh, you're an amazing little girl! Keep smiling, Beautiful! :)

Vonetta said...

I so happy for you all. If no one ever told you this you and Aimee are my Hero's. Cause you guy's are do strong

Stephanie said...

You couldn't have given better news this morning! BEAUTIFUL pictures!!!!!!!! Praying that you get the position..what an answer to a prayer that would be! and of course no setbacks with Kayleigh!!! Hugs

Tanya said...

Congratulations, that's wonderful news, I pray there are no more setbacks.

kelly sheree said...

praise god! i haven't commented in a long time, but have been faithfully following from my phone! kayleigh is blooming into a beautiful little girl, and i think she looks a lot like aimee, but i can see adam's smile!

praying for a quick trip home! love ya all!

kelly

southview chick said...

Its so great seeing Kayleigh make progress! Im going to keep praying for ya.

Julie said...

I am so excited for you all and the light at the end of this tunnel. I will not only pray for Kayleigh for the next few weeks, but I'll pray for you all forever. God Bless!

Aidan's mommy said...

I'm so happy to hear that she is doing so well!! I love the 1st picture of Kayleigh smiling and giggling with mommy's kisses!! Way to go Kayleigh!!

Michelle said...

We are so happy and excited for you guys! She will do so much better w the G-tube. Our little guy had one and things improved so much for him. We will pray that Kayleigh has the same success w the G-tube! Continuing to pray for strength for you and Aimee! Praying also for you interview Adam! You guys have been such an encouragement to me and my family! Kayleigh is a daily part of our lives and we pray for her all the time. We have shared your story w so many of our friends because you are such an incredible example!
~Michelle

Momof2bz said...

Wow! You guys must be so excited! I bet the kids are ready for their little sister to come home and for life to return to whatever "normal" is at this point. I hope the final interview goes well. You deserve a big break and wouldn't it just be wonderful if everything aligned at once?

sinde said...

Our grandson was also born 3 mo. early.. weighing 2 lbs. He was in NICU for 4 mo. & had 4 major surgeries & we nearly lost him. I don't need to tell you how taxing it is. But you are so close now. Hang in there. You WILL be a family with a normal life very soon.. no more hospital, no more washing those hands & putting on that gown, phoning to check on her condition every morning & night, limited visitors & driving to that darn hospital every day.
Can't wait to read about that day.. it's just around the corner:)

Nicole said...

This is amazing and definitely a true showing of God's magnificence! Kayleigh's strength has inspired me in so many ways and shown me that God really is there. I love watching her progress and continue to beat the odds! I hope all goes well with your job interview you will be in my prayers. My friends and I will continue to pray for Kayleigh and her homecoming! God is great! =]

pigpen7 said...

I am so happy and excited!!! Way to go Kayleigh!!! Her pics always brings tears to my eyes. She is such a cutie! Adam - Good luck on your interview. I know you'll do great.

Melinda said...

Absolutely wonderful. I am so glad for you!!! :)

Lindsay F. said...

I am ecstatic with all the great news! You deserve only the best from here on out. When you get home this whole thing will be almost a year. Oh my gosh! It will take some time to adjust to your "new" life but I am sure not too long! God has given you what seemed like an "impossible task." But with your trust in HIM, you conquered. What a great lesson you have taught us all!
God Bless!

Carol Ann said...

What great news!!!! How exciting!!!
We're praying for the next couple of weeks to run smoothly so you guys can finally take your sweet baby home! Love the Nadeaus

Adam and Sherry said...

I am so happy for you!!!! I really can't believe how great she looks. I don't want to get your hopes up but when we had that appointment with the doctors when Matthew was in the NICU and they said it would be 4 weeks till he got to come home we were home the next week!!! So I will pray that wonderful miracle happens for you too. Love and Huggs from Utah!!

Nikki Morton said...

Ohh! She's so georgous!! I have to say Adam, she's definately Daddy's girl..right now, she's spitting image of you in the face! :) She'll look like her momma as time goes on, I'm sure. God is so amazing. As I've said on here before, Jehova Jira. God always provides. maybe that news cast was His way of getting the word out on the financial need. I know all will go well, and when it's time, Kayleigh will come home to her brown and pink room! Love you guys!! We're going to be at Levine's March 9th to deliver the donations. Rach and I'd love to see you guys! I'll let you know what time we're gonna be there. Kiss Kayleigh for us!!

Denise said...

What great news! You are right about babies doing better at home. We brought a very sick baby home but once we had been home a while he just took off. The NICU had been unable to get him off oxygen after his second surgery, but once we were home he was off in a month. He was 1lb 8oz at birth and now he weighs 16 lbs! I know your little girl is going to do great. God works miracles, I have seen it with my eyes! : )
If you ever have the time feel free to check out our blog!

Jenny said...

Praise the Lord:) Her little smile is just so precious. I will be praying for ya'll.

Christa @ Quintooples said...

What AWESOME NEWS!!!! I still read everyday, and I have been hoping to hear this!

Praying always!

Lindsey Barham said...

Freeman's:
This makes my day!!! I knew God was going to get her home with you guys soon. Thank the Lord for answered prayers. Lets all continue to pray for her procedure to go well next wk and get her home. What a glorius day this will be (Angels will be shouting and singing in heaven). I will say a special pray for you Adam this weekend for your job. She is looking GREAT!!! I can not ever express to you and Aimee how much Kayleigh has ministered to me as well as my family. I am praying for wonderful results next week with the donation/giveaway. Please everyone lets give enerything we have to help Kayleigh's family out. God will bless all of us for doing his work and his will. :) I cant wait for more wonderful updates soon. We love you all.

Brandon, Andrea and Emma said...

We are just so excited for you right now! Prayer is such a powerful tool! Those pictures you have of Kayleigh smiling just melts my heart. I am so, so, so happy to see her doing so wonderful! What wonderful parents you both are....I can tell she is just so happy to be near you! Praying that this next surgery/healing will be quick so Kayleigh is heading home soon!! Our prayers are still with you all to stay strong and healthy! Praise our wonderful God for all He has done for you!

Anonymous said...

YEA!!! That is great news! GO KAYLEIGH!!! It has been such a long road for you & now the end of the NICU is almost here. Time for this chapter in her life to end & a new chapter to begin. I am so excited for you both. Hang in there before you know it you will be walking out of that hospital with your beautiful little girl in your arms. What a relief it will be for you & your other children.

Ashley said...

Kayleighs smile just lit up my computer screen!! Thank you so much for sharing! We will be continuing to pray for your interview.

Lori from TN said...

Hi Adam and Aimee!!

I just wanted to share a really neat website with the two of you!!

http://www.birthverse.com/default.cfm

You can find the bible verse just for your birthday!! Thought it was pretty neat myself!!

Hope you have a GREAT rest of the weekend! I'm so glad to read that Kayleigh had fun in her little seat today!!

Lori (mommy to a 25 weeker)

Audrey said...

This is wonderful news! I'm going to ask my church to pray for her tomorrow that everything goes as planned! I can't wait until we can see her beautiful face without all of those tubes too!

Angie said...

Praise the Lord!!! This just made my day! I am beyond happy for your family. Adam - best of luck with the job interview!!

Anonymous said...

Praising God, enough said!

Nikki Morton said...

I also meant to ask...did you guys find out about the Medicaid for Kayleigh?? I may have missed the post if you did, but I was wondering. If not, did you find any other insurance options that are more reasonable?

April Williams said...

Just wanted to let you know that I am still thinking about you guys and PRAYING for Kayleigh! She is SUCH AN ANGEL! YOU GO KAYLEIGH! You are going to be fine baby girl! God is holding you in the palm of his hand! You truely have touched so many lives. I wake up thinking of you and go to bed at night thinking of you! I am so glad to hear that you will get to go home VERY SOON! You are the toughest little angel that I have ever seen! You keep on being STRONG and know that there are soooooo many people who love you and are praying for you!!!! I loved your picture above! The one with you smiling! You have the most beautiful smile I have ever seen angel!!!! Much Love From Lancaster, South Carolina!!!

babycody2008@yahoo.com

Mrs.Naz@BecomingMe said...

such wonderful news!

Amy said...

I am so happy for you guys. I just scrolled back through the archives, and it is amazing how far that baby girl has came. The Lord intends something great for that little girl, and I am blessed to get to watch it unfold.

My best to you and your family. Thanks for sharing your "world" with us.

Anonymous said...

Totally a mini-me pose!

I am praying for you to have a blessed interview and a wonderful time in OKC. Sorry, it is so cold here!

Love and Prayers,
Holly in OKC

Chip and Dani Brown said...

That is one of the most beautiful smiles I've ever seen. I am crying tears of happiness for all these blessings from the Lord! We'll continue to pray for no setbacks and for everything to run smoothly! GOD IS SO GOOD!

Anonymous said...

Adam:
For goodness sakes! Don't look so nervous the next time you have a tv interview! Remember that the end result is always so short! They always cut stuff out.
Besides that- good job to both of you!
Super excited that your tiny girl will come home soon :)
Your Realtor friend in Chicago,
Lisa

thegilbreathfam said...

Awesome! I am so glad she is so close to coming home. I am praying for Kayleigh. What a long journey it has been. You and your family are very strong. You and your baby have touched many people. Thank you for sharing her with us.

Nic said...

this is just fantastic.
the last few times i have come on here i needed to mute the sounds, tonight just as i did the touch of thie first sone come on, my husbad said "whats that" i put it back on.... we signed our marriage certificate to "over the Rainbow" i read your comments with this song in the background and had tears of happiness as well as calmness.

its fantastic the words "home time" is no near you can smell them!
Nic

Kristie said...

She is absoultely amazing!

Please send out an urgent prayer request for this baby! Thanks Adam and Aimee!!

http://patriceandmattwilliams.blogspot.com/

LizzyT said...

What a beautiful baby I hope she is home soon with you.

Anonymous said...

Kayleigh is such a precious miracle! Wonderful news that her trip home is being planned. I'm praying for her strength and wellness daily. You are a beautiful family and an inspiration to many people. It's wonderful to see how God has taken care of Kayleigh and He'll continue to do so. You're in my prayers.
Kristine (preemiestories@gmail.com)

Darlene said...

Such amazing news for your family! That is a precious smile...
She is beautiful.

Indian Summer said...

Congrats!! You will find that the gtube is very easy to deal with. :) I've been dealing with my daughter's for 5 years and she's almost (finally) tube-weaned. I'm glad we were able to do it pressure-free on her schedule.

There's a great support group: http://www.parent-2-parent.com/forum/

Lots and lots of kids with tubes for many reasons. It's a very positive board and the parents there really know their stuff. Come on over and check it out!

Faye said...

GUYS THIS IS GREAT. OH WHAT AN AWSOM GOD WE HAVE!SENDING YOU ALL HUGS!!!!!!!!!!

THE FRYOR CLAN said...

I have been following this blog for some time and I am so so happy to see the update. CONGRATS. little Kayleigh is gorgeous and is so inspiring!

Brandijo said...

What a God send!! I hope that her journey to get to go home goes well, and that you will have steady hands while changing her tubes.

God Bless your Family!!

4 Lettre Words said...

Fantastic news!! Thank you, Jesus!

Rachel said...

Absolutely WONDERFUL news! I knew our prayers were working. What a complete miracle this baby girl is!

I cant wait to hear the words.....WE ARE GOING HOME!

elteescat said...

GOING HOME?!! HURRRRAAAAAAAAYYYYY!!!!!!!!!
Yes, she TOTALLY looks like Mini Me in that last picture!!!! She's saying, "Pay my parents $500 trillon dollars and I won't drop a poopie diaper bomb on this hospital!"

Jessica said...

I just wanted to let you both know how much you have touched my life. I started reading your blog about 7 months ago when I was pregnant with my son. My husband and I have a daughter and have lost 2 sons 1 to preterm labor and 1 to late term miscarriage. In January (again at 23 weeks) our preterm labor begain, they were able to get another week out of the pregnancy, but unfortunalty it was not enough. After spending 6 days in the NICU our son Evan passed away. After our loss I turned from God, angry that he had taken another child from us. Your story has given me so much hope for the future. When I read it, I feel closer to God. I just want you to know that you are in my thoughts and prayers.