Here we go! The echocardiogram came back today to clarify one thing, Kayleigh will need surgery. The (VSD), hole in her heart will need to be closed because medication will not be able to get the job done. So as of right now, they have increased her feeds to deliver more nutrients (Carbs, Fats and Proteins) without increasing level of food they give her. So basically, she is going to have a high calorie diet packed in a small dose.
The Lasix will be used to extract the fluid out of her lungs until she is big enough to add the pulmonary band which will take over that job. Our goal is to get to 1000 grams (2lbs 3.3oz) so the Doctors can do surgey to add the pulmonary band. Once that goal is met, our next goal is to make it to 2000 grams (4lbs 6.5oz) so they can open the same incision to repair the hold (VSD) in her heart. A nurse said that we should expect an increase of 25 grams a day. If she hits that mark everyday, our first surgery will be around 18 days from now.
To help Kayleigh rest and grow as quickly as possible, they switched her over to the ventilator this morning. She was so peaceful today that we just wished they would have left her on this the whole time. The problem is, the vent is more likely to cause long term damage to the brain and respiratory system, maybe others. So, the Doctors felt it would be in the best interest of Kayleigh to take that chance, rather than not grow quick enough and die. I completely agree with that because I have heard of many preemies being on the vent for a long time and nothing major happen. We will just put that in God's hands and let him take charge.
So right now, we are playing the waiting game and praying for growth. The stars have to align for everything to work out just perfect, but God has performed many miracles and we know he will continue to watch over Kayleigh through this new battle. Kayleigh justs wants to make things interesting, doesn't she??? She has already racked up three years of time outs for all the other crap she has pulled.
Please keep us in your prayers as growth is what we need more than anything. Man, I feel like we have been fighting this battle with her size from the beginning. We hoped she would make it to a certain size to be viable when she was inside Mommy and now that she is out, she has to be a certain size to stay alive. Aimee and I were slaves to the ultrasound measurements for 12 weeks and now we are slaves to the incubator scale. I am sure 8:00 everynight will be the highlight of our day because that is when they will weigh her. Watch, my luck she is going to be a linebacker on the high school football team. ha-ha.
Thank you all for your prayers, gifts and love.