Okay, I am going to give you all the bad news quickly and then tell you some good news because we are going to stay positive and not let the bad news effect our attitudes. Sorry I didn't take a picture today because I wanted Kayleigh to rest and I was beyond terrified to turn on her light or use the camera flash for my pleasure.
When Aimee and I arrived to the NICU today, the nurse practitioner came in to talk with us. She had went over everything we already knew (which I posted yesterday) and then a couple other pieces of information. She said that Kayleigh's heart appears to be a little more enlarged today that it did yesterday. Beyond her lungs starting to fill up with fluid, her right lung has some sacs that are not expanding, which she explained could be collapsing from working too hard when fatigued. The NP said, both the lung and heart issues could be signs of congestive heart failure. That is not good!!! Along with other bad news, they are doing blood cultures because they think she may have an infection of some sort. That means they can not feed her until that comes back clear because it could cause the infection to worsen. So no food = no growth.
Now the good news! They have started the medicine to help with her heart, so we will know if it is working within 24-48 hours. They have also started the medicine to remove the fluid from her lungs. So lets pray that both medicines will help take care of these issues. The other day, her weight was 550 grams and it jumped to 635 grams yesterday, which seemed a little weird, but they did give her a blood transfusion. Today her weight was 580 grams which is still up from the other day, so we are moving in the right direction. 580 grams is 1 pound 4.5 ounces. Kayleigh had only three desat episode all day today and it was during her cares. I know she is on the vent and that helps keep the desats from happening quite as much, but I am so happy to hear she was able to rest her body today. Earlier today, the nurse had told us her oxygen was increased to 50% due to her blood gasses coming back irregular, but since then they have decreased it down to 38%. Hopefully that continues to decrease because her settings have normally been around room air (21%) the whole time. They also changed her vent settings from 18 to 15, which I think means it is the pressure forcing air into her lungs. All I do know is that she said it was good, so if it is good then I am happy! ha-ha. For the most part, she seems to be doing better since early this morning. That to me sounds like improvement.
On another good note, Aimee has finally covered the bottom of her container with the milk she has produced. That was a goal ever since she got her first drop to make it into the bottle. We know that Kayleigh needs mommy's milk more than anything, so we are so happy to see that she is producing enough to help. It seems like more and more is coming in each day. Bless her sore boobies though, she has been pumping every 2-3 hours on the dot all the way through the night. She is such an awesome Mommy!!!
Our prayer request:
I asked the NP today if this was a common situation amongst preemies and this was her answer, "Yes, it is with a (normal size) preemies, but it is even tougher on (micro) preemies like Kayleigh because they are just so small" Size is against us and if we can't feed her, she isn't going to grow. So please pray that she will not have anything come between her and her food anymore, so she can grow and grow quick. Right now, we are dealing with a balancing act of events. Although, if she doesn't grow quick enough, we could very well lose her. We are not going to let that happen!!! We all need to pray and pray the same thing, so God will work in her life. Kayleigh is a fighter and we all know that from her past hurdles, but we need her to fight now more than ever before. Ask God to give her enough strength to make it through yet another battle.
Thank you all so much!