Wow, Kayleigh's hair is really starting to come in more and more each day. I still think it's blonde. ha-ha
Today was a better today than the past couple days so I have to be excited about that. They discontinued the Dopamine that she was on because her blood pressure regulated and she peed a lot through the night. Here is the great news of today. The x-ray that they took of her showed that her heart was not as enlarged as it was yesterday and there was less fluid build up in her lungs. They have increased her IV fluids and started to feed her again. That is amazing news and I hope that it continues to progress.
The rough part of today was that she was showing a lot of signs of irritability. She was on the vent and desating like crazy, but she wasn't desating like normal. She would drop down to around 50 and then it would take her forever to get back up. They had to bag her quite a few times today which means they had to pump air into her lungs manually. They just couldn't put their finger on why she was struggling. When Aimee and I were there, they decided to reposition her and remove her vent tube. The Doctor that was watching thought he would like to try and see how she did on the Bubble CPAP again. I was not happy because I knew she would definitely not get any rest then. The Doctor figured she was just trying to refuse the vent all together. So within an hour, she was put on the Bubble CPAP, then changed to the Conventional CPAP and then back to the Vent because she was not accepting any of them and really doing poor with her breathing. It was very stressful to watch, so Aimee and I left to go down to the cafeteria with Wade and Ferris to eat dinner. It is so awesome to have friends in the NICU like them to either vent to or rejoice in good news. When we returned to see her knocked out, it was an awesome feeling. Her vitals looked good and she was sound asleep. They gave her some pain medicine to help her rest and gain her energy back. Poor girl was so wiped out, that he vent was completely breathing for her when normally she over rides it.
It is going to take some time to get used to this stress, but I am glad that we have all of our support. Aimee and I have been getting wonderful emails from so many people. To hear all the people who are out there following Kayleigh's story and praying for her just overwhelms me with joy. I love to check my computer to see who has posted to say hello and the miracle stories they share. We thank you so much because your emails and prayers are what gets us through the days. This is the hardest thing that Aimee and I have ever had to deal with in our lives. Thank you all for being amazing to us. You are all truly a blessing from God.