Aimee, the kids and I went up to see Kayleigh earlier in the day today because we had an appointment on that side of town. Kayleigh was sound asleep and doing really well. Her alarm was going off, but only because her sats were high and her oxygen needed to be lowered. That is an alarm I hope to hear more often. Since she had a good evening and was doing good all day, they increased her feeds from 1ml to 2ml. There was a new nurse today and she was telling us that Kayleigh had a bad night, but we dug a little deeper to find out she only had 3 desats all night long. I don't think she knows Kayleigh all that well because that is really good for her to only have 3 desats.
Kayleigh also had a chest x-ray this morning and it showed that the fluid in her lungs looked much less than usual, so take a deep breath of fresh air because that is some delightful news. Let's just hope that it stays that way so she can grow and get to the weight she needs to be to have the surgery. When Aimee went back to see her, she noticed her eyes and nose were a little black and blue. The nurse said they were going to test her hemoglobin to see if maybe she needs more blood. If that is the case, she will get her fourth blood transfusion.
I just called up to get more news. She is doing really well and resting. Her weight went down a little, but the lasix medication they were giving her is going to cause her to fluctuate a little. She weighed in at 642grams which is 1pound 6.7 oz. She did have a couple poops today too so she is tolerating the increased feeds. They are going to test her blood gases soon to see if they can wein her even lower on the oxygen. Over all, she is having a really good day today.
Also, take a look over to the right toolbar as today I helped Brandon and Allyson create their own blogs so they would feel a part of everything that is going on. I can't imagine how tough it is for them to see their little sister in the isolette and have to wait for a long time before they can play dress up or wrestle. (Especially the wrestling) Brandon and Allyson have been so wonderful when we go in to the NICU and they ask very good questions. It is a fear that we may not be able to give them the attention during this hard and stressful time. Today I was able to spend a lot of time giving them their "own" (.com) They were just thrilled to see they are on the internet, but now they have their own website. Please do me a huge huge favor and post a comment praising them on a how wonderful big brother/big sister they are being for Kayleigh. It would mean a lot for Aimee and I, but I am sure they will think it is the coolest thing in the world. Plus they have checked constantly every five minutes to see if they get new visitors. ha-ha.
Thank you all so much and God Bless!!!