7/27/08 One Step Back

I guess when you have so many great days, your bound to have one bad one. Let's just pray that it is only a small setback and we can fix the problem and continue to move in the right direction.

Throughout the whole day today, Kayleigh was having a lot of desats and apnea spells. Her blood gasses came back abnormal, so they put her back on the vent. They thought her desats might have had something to do with the eye exam they performed. Good news is that her eye exam came back normal, but we are not out of the woods yet as they said she could develop problems as time goes by. She is just a little too premature to know just yet. Everything seems to be looking good with her eyes right now though. They also did some tests to make sure she did not have an infection, which could be causing the desats and apnea. On the other hand, they noticed her tummy was swelling up as if she was bloated from the feedings. Also, they noticed her hemoglobin level was low and on top of that, the nurse felt like Kayleigh's heart murmer was sounding louder than normal. So they had all these issues which one or all of these things were causing her to have a really rough day.

So, they took an x-ray to look at her lungs and her belly. The lungs looked a little wet which shows signs that her heart was working harder than normal again. They gave her one dose of Lasix tonight and she is going to go on antibiotics incase there is an infection. They noticed the belly was swollen because there was too much trapped air due to the CPAP, so taking her off the CPAP and extracting the trapped gas will help with that. Plus, getting her on the vent will help with her blood gasses once they set her at the right level of oxygen. They are also giving her a blood transfusion again tonight to help increase the hemoglobin.

WOW, What a busy and exciting night for Kayleigh. If one thing isn't going great, everything isn't allowed to go great in the eyes of Kayleigh. She doesn't like to make it easy on anyone, that is for sure. So it certainly stressed us out at first, but then now that every issue is being attended to, we feel much better. I just hope they take care of the problems quickly and we can get back on track. Since her head piece was taken off, they were able to get a true reading of her weight. She was 672 grams which is around 1 pound 7 ounces. Her length came in at 12.4 inches so she is just slightly bigger than your footlong at Subway. ha-ha!

We will be up there for quite sometime tomorrow and since she has her beanie off, we will be able to take some good photos. Please pray that she gets back on track and can focus on growing again.

God Bless,

The Freemans

10 comments:

Erica said...

Freeman Family,

Stay strong!! My thoughts and prayers are with you Kayleigh!! She is a tough little miracle and I know she will pull through this!! God Bless You Kayleigh!!!!! Grow Kayleigh Grow!!

Erica
Mommy to 2 boys
1 who was a 31 weeker

nani said...

I shall pray for her.

Nani

annaandallysmom said...

I hope she is doing better today. She is so strong and everyday is a battle for her. So it is understandable that some days she gets pretty tired and needs a little bit more help. Just stay strong and I am sure that she will pull through this and show that Kayleigh strength that has been shown all through this.
I will keep her and you guys in my prayers and just try to stay strong!!!

God Bless,
Monica

Anthony's Mommy said...

Uggg those eye exams are the worst! I remember when Anthony had his first one he pretty much slept the whole day afterward. He just HATED it! He would have one done every other week, but you could really start to tell how much stronger he got because they started to effect him less as time went on. Don't get me wrong, he still hates going to the eye dr. =-)

Kim

Andrew Northern said...

My prayers and heart is with you. Kayleigh is a blessing and brings tears to my eyes each day as I read her blog. God is doing an amazing work encouraging me and others through your story.

Andrew Northern
father to a 29 wk preemie.

Carly Nicole Elliotte My Micro Preemie said...

Sorry about the set backs. But it seems as if they are all on top of everything. And as far as the vent goes...at least she's been off of it for a while. Every minute off the vent helps to strengthen her lungs. So hopefully she won't need to be on it too long. And maybe the time she will be on it will help her to rest and grow more. She's a tough little cookie and I know she won't let these little set backs stand in her way of getting better. You guys are doing a great job. Kayleigh is still in my daily prayers.

In Christ,
Rachel

Sarah J. said...

Kayleigh just loves to keep everyone on their toes, huh? lots of prayers headed your way today!

Denise Northern said...

I think all preemies have ups and downs...Parker had them...he was on Cpap, off, on, off, on a nasal cannula...and such...he had a lot of destat issues as well...its a preemie thing..really. Parker also had ROP (premature eyes) but he is fine now...

It's hard though huh, watching your baby have these issues and wanting nothing but good things to happen. It is quite an emotional roller coaster. Hang in there, I know its hard, but God is so good and faithful and he is taking care of your little one!

Sorry I haven't commented much or emailed, my family was in town and we were busy!

We have some onesies we want to send you at some point. So let me know when that would work...

:)

Anonymous said...

Hey Guys - We're continuing to think of you all and pray for you and Kayleigh. Thanks for the diligent updates.

Parker Northern's Grandpa (Pete Northern)

Amber said...

I found you....well, I don't know how I found you now...but, I'm praying for your sweet tiny baby.