Someone had a long night last night.
Think she is ticklish?
After a long and stressful evening and day today, it ended on a really good note. We spoke with the doctor today and we have decided to start fortifying Aimee's breast milk instead of giving Kayleigh straight up formula. With all the tests, they don't find any other reason why she was backed up so much. When they told us last week they were taking her off the BM completely, Aimee had a funny feeling in her stomach that they shouldn't be doing this and they should be fortifying it. I guess we should listen to our funny feelings for now on and ask a bunch of questions. If anyone has any question in their mind that something should or shouldn't be done, please let me know so we can at least ask the doctor why they are doing things a certain way. That way we can all work together to make sure Kayleigh is being treated correctly or at least learn their reasoning behind what they are doing.
The scary part of this whole thing is they have to tell you all the possibilities, even if it means scaring the crap out of you. Even though NEC is not completely ruled out, it is very slim that is the reason for the back up. The reason I say that is because Kayleigh pooped a good bit this morning and her belly has gone down quite a bit throughout the day. Whatever the problem was, it's taking care of itself quickly! All the prayers today sure have helped. THANK YOU!
More great news is that since Kayleigh has been breathing really well, they lowered her oxygen flow to 4 liters. She was at 5, but since she has been on room air (21%) and satting high, there is no where to go but to lower her flow. That could have also been why her stomach was bloated and full of air. When air is forced in her nose, it will take the path of least resistance. Sometimes that means if the airways are not open, it will go down to the stomach. If she is not passing her stools, air will get trapped in there too causing it to back up. When I explain that, I feel like my stomach starts to hurt because we all know what trapped gas feels like.
Even more great news is that when we start Kayleigh's feeds back tomorrow and if she tolerates them over the next few days, we are going to try to start bottle feeding her. Aimee and I were wondering when that part of the process would be, but we didn't expect them to say real soon. We are so stoked that we get to do this. Aimee got to hold Kayleigh for 3 HOURS today. That is the longest we have had her out and she didn't desat one time, even when it was time to put her back. The funny part was that she slept so sound for all three hours, but when it was time for us to go home, she woke up and was so alert. We hated to leave her when she was awake, but I was so hungry I was about to eat her left over formula. ha-ha!
EVEN MORE great news is that I just got off the phone with our nurse and she said that she is doing even better now. Her belly went from 23 to 21 centimeters, so it is definitely going down and her weight is at 876 grams. That is 1 pound and almost 15 ounces!! Woo hoo! She weighed in at 840 grams yesterday so she has grown a lot more than usual in the past two days. She is almost at the 2 pound mark. Now we know that the formula does help with putting on weight, but we still need to get something that digests easier for Kayleigh.
I am so pleased to see that things are getting back to normal with her belly and it isn't as severe as they thought it was last night. WHEW!!! It is so true when they say a few steps forward and one step back. It is really a game of trial and error because every baby is different. When the nurse said that most babies don't tolerate fortified breast milk, Aimee said something in response that really goes much deeper than the surface if you really sit and think about it. She said, "Kayleigh is not like most babies, she has already proven that." That is so true with everything we have hurdled. From the negative doctors in the very beginning to Kayleigh shocking all the doctors right now, she is definitely NOT like all the other babies. I would say she is our little princess, but from the looks of it, she is going to be a tough cookie that won't take crap from anyone. haha
Thank you for your prayers as we go through these trials in our life. I guess since Kayleigh can handle anything put in her direction, please pray that Aimee and I stay sane and we don't end up in the hospital before Kayleigh comes home from it.
With much LOVE!
The Freemans :)