Sorry to keep you all in suspense all day long. The surgery went smooth, but the doctors didn't find any narrowing or blockage in her digestive tract that could be causing her motility problems. It wasn't the outcome I was hoping, but it certainly rules out several other possible problems. I was actually hoping for something to be wrong so they can fix it right then and there. I hate that she has a scar now, but she is one step closer to figuring out what the problem is.
The orders are to start her feeds when she has recovered and when her stomach starts to get big, we are going to feed right through it. That means we will really have to sing the poopy song and do the dance at the same time. The doctor said from what the intestines look like, if she isn't throwing up then there is no reason to stop her feeds. We will be using breast milk this time around and we will keep an eye on her blood sugar levels. I am feeling a little guilty that we didn't try the breast milk before we did the surgery, but the surgery was a success overall. It shows that the problem more than likely is within the nervous system, which isn't pushing the stool along the digestive tract like it should. Even though Kayleigh is a term baby now, they are chalking it up to her being so small.
So after a very stressful day, Aimee and I treated ourselves to Babies R US!!!! Woo Hoo. We bought several things for Kayleigh's room and then decided to register for a future baby/homecoming shower that Aimee's sister, friend and my Mom are planning. Most guys would say that the best part is getting to hold the scanner gun, but I let Aimee do it and we perked up quickly with excitement. We feel like Kayleigh is another step closer to coming home and if we aren't careful, she will be home before we know it and her room won't be finished. I am a champ with the camera, but I won't take photos of the room until we are finished. :( sorry!
So overall, today was a success because Kayleigh is now recovering well and has gotten her sats up back to normal. She was struggling a little when she got back to her room, but after a few hours she calmed down and started to relax. I thought she was supposed to be knocked out sleeping for the rest of the day, but that sure wasn't the case. She had her eyes open at one point and she was sucking on her ventilator tube. I wonder if she is hungry (Ha!). Kayleigh likes to do things her way, and that way isn't always the easiest route as we all know. I am just so glad she handled the surgery well and can soon focus on eating and growing . The eye surgery and this GI surgery is just getting her experienced for her final surgery on her heart, which is the big one.
Thank you all for your thoughts and prayers today. Even though nothing was found, God had his reasons for this surgery and I am putting all my trust in Him. Soon, Kayleigh will be home and we can all rejoice in God's amazing work. I am currently writing a book about our experience so I can reach out to others and give them the hope that you all gave me. I keep telling myself through all these ups and downs, that Kayleigh is the true author and she is just trying to make it exciting for everyone.
The Freemans :)