9/25/08 - Making Progress
Today, Kayleigh has been moving in the right direction, but we won't know fully if the pulmonary hypertension is going to be an on going issue until we are able to completely wean her off the nitric oxide. When they first started her on the nitric, her settings were at 20 and they dropped her to 10 and then to 5 this morning. Right now she is at 2 and they are going to continue to wean her every 3 hours. The good thing is, she has the Viagra to help as a back up. So, we are making progress and we pray that she continues to do well.
This afternoon, she was resting well and satting high. Even though she is not completely perfect right now, it is such a relief to see her satting good and sleeping. My heart just breaks when she is irritated and she is struggling to bring her sats up. We are trying to stay strong through all of this, but it is by far the hardest thing we have ever been through in our lives. I am just so blessed to have Aimee to lean on when I am having a tough time and vice versa.
I just got off the phone with the nurse and in ten minutes, they are going to wean her down to just 1 on the nitric oxide. So far so good. Let's just hope she keeps it up. Sorry as there was not much update, but not much news is very good sometimes.
Thank you all so much for your prayers. We can't begin to describe how awesome the feeling is to have all of you behind us. The comments are so encouraging to us and they keep us positive through this trying time. THANK YOU!! THANK YOU!! THANK YOU!!
The Freemans :)