Today was one of the better days that we have seen in a while. After every feedings, Kayleigh seems to be doing better and better. She has not pooped yet, but everyone keeps telling us that since she was cleaned out with the Lower GI test, she probably needs to fill her tanks back up. So if we don't get a poop over the next couple days, I will start to worry. A lot of people mentioned in their comments about Reglan and I forgot to mention that they started Kayleigh on that yesterday. Reglan is medication to help digestion of her feeds. Since Kayleigh started her new Neocate feeds, she has been doing better as the time goes by. I'm hoping the Reglan is helping. At first, she was aspirating most of her feeds and now she is digesting most of her feeds. Throughout the past 6 hours, she has not aspirated anything, so let's pray that she keeps that up.
I did get a chance to speak with one of her doctors today. Last night after I posted, I spent about 3 hours going back through all my posts to dig up research on her feeds, poops, weight and aspirates. I took in my information to the doctor to share with him our thoughts. He agreed with my research and that if the Neocate doesn't work, we will go back to plain breast milk and keep an eye on her blood sugar levels. I felt like a weight was lifted off my back because my hard work with this blog and my notes have paid off big time. I just hope that the Neocate works so we don't have to waste anymore time fiddling around with different possibilities.
Kayleigh weighed in tonight at 1159 grams which is around 2 pounds - 9 ounces. She was dropped last night from 5 liters to 4 on her flow and is doing well with the adjustment. Kayleigh has not had any major desats all day today. When we were holding her for a few hours today, she was resting well and giving off an occasional smile. Since Kayleigh has been holding her temperature much better, they have been dressing her in some tiny preemie clothes which are still way too big for her. She looked so precious in her outfit.
I want to apologize to everyone for a goof-ball mistake on my part. We got the bracelets in and we sent them out the other day. Well, they started to show back up in our mail box because I put a 26 cent stamp on them. OOOPS! I will be correcting the problem and getting the "right" priced stamp put on this time. Sorry :(
Thank you all so much for your advice on the post yesterday. We got some really good ideas and it opened our eyes to other possibilities. We can't live without you all so thank you all so very much for all you help. We love you all so much!
The Freemans :)
The Freemans :)