Wow, where do I begin? Today really showed us there is light at the end of the tunnel and it is creeping on us quick! The doctor called us this morning and we unfortunately missed his call and weren't able to get in touch with him since he was already walking out the door for the day. He said he would talk to us tomorrow, so I am really looking forward to that conversation.
What I do know (from our nurse who heard the doctor during rounds today) is that Kayleigh's cardiac catheter procedure is being moved to Tuesday or Wednesday of this week. They also dropped her oxygen flow to .1 and are now feeding her PO (Bottle) feeds at every feeding. Through out the whole day, she killed every single bottle in about 15 minutes, so how is that for progression? WOW!!!!
From talking with the doctors last week, they were saying that after Kayleigh's catheter procedure, if everything looks good and she is feeding good and growing good, then she should be good to go home. Well, we don't know for sure, but since she is feeding great, she gained another 20 grams (1655 grams = 3lbs - 10.3 0z) and her procedure is this week, we may be getting ready for a homecoming before we know it. So the progression has been so amazing this past week as if she's just hit the fast forward button on the remote.
So, cross your fingers and say some prayers as we are getting closer to completing this miracle journey that we've been on for the past 27 weeks. Wow! It has been 27 weeks since we found out Kayleigh was growing behind schedule and this nightmare of a journey had begun. I am speechless right now that I just can't put in to words how amazing this feels. God has certainly blessed us with something so special and all I want to do for the rest of my life is use this experience to help others. This feeling in my heart is just so unbelievably fantastic that I could scream with joy from the top of my lungs, although I may give Aimee a heart attack with out prior notice. WOW!!! Just speechless!
GOD BLESS EVERYONE FOR ALL THE SUPPORT AND LET'S PRAY FOR A WONDERFUL WEEK!!!!
The Freemans :)
8 comments:
I am so happy for you all. This has been such a crazy journey for you. I'm still praying. Kayleigh is beautiful.
What wonderful news!! God bless Kayleigh, her caretakers, and you all for the optimism, determination, and faith that you have shown since the beginning of this journey. I love to check your updates first thing in the morning. Good luck in the coming days!
I have been reading your blog for a little while now and check in usually twice a day hoping for updates. Todays entry brought tears to my eyes (as many in the past have as well!) and I am so happy to hear she is doing so well. What a little miracle! I look forward to reading when she comes home as well as when she reaches milestones in the future!
God Bless you all!
OH MY GOSH!!!! That is amazing that she could be going home so fast. I can't believe it. She is doing so well it is amazing. All bottle feeds and high saturation. Just one more hump it looks like, the catheter. She will do just fine. Just promise that you will continue to post for us once she gets home.
I'm so happy for you guys right now! This is just AWSOME news!!! God IS good! Kayleigh has been such a strong little trooper and I'm so proud of her. I can't wait to see the pics of her being pushed out in her little car seat!
YOU GUYS!!!! I am so happy for you! I really pray that she is able to come home soon...I want to see her home and happy, because I truly believe that it makes all the difference. Parker was a completely different baby when he came home and has done significantly better since being home. I am so happy for you guys. I am so sorry i have been messaging as much. Please know I pray for you every day. I do read your blog daily, but sometimes I don't feel I have much feedback to offer!
:) Denise
!!!!YEAH!!!! This post was exactly what I needed after a relatively sour day. :) I will try to get my picture/note out here shortly. I'm ready for posts from home...lol.
Kayleigh's Kentucky Prayer Warrior,
Kelly Sheree
Lots of prayers headed your way! What a miracle this journey has been.
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