All the stars are aligning for Kayleigh to move to progressive. She is tolerating full feeds, breathing very well and holding her temperature. The only thing holding us back right now is the Cardiologist deciding whether to put a cardiac cath, which will be to monitor the pulmonary pressures. Since she is not showing signs of distress with either pulmonary hypertension or congestive heart failure, this cath will be there to monitor every second for them to fix the issue in case something were to start moving in the wrong direction.
Please pray that we continue to move in the right direction and whatever is needed to be done, will not cause any setbacks.
Kayleigh was awesome today. She latched on to Aimee for at least 5-10 minutes when breast feeding. It was so awesome and the more we try, the better she is getting. If you haven't noticed yet, Aimee and I will never give up trying!!! I think that Kayleigh gets more sucking from the bottle, so when a minimal amount comes out of Aimee, Kayleigh gets frustrated. Kayleigh took 25 mls out of 30 tonight, so that is the best she has done so far with the most amount of feeds. She has grown over 200 grams this week, so she is starting to sprout!!! I hope she keeps it up and takes off. I am not sure what she weighed in tonight yet, but I will find out in the morning.
Someone posted a comment tonight on why we haven't tried taking Kayleigh's story to TLC or some other company just as large. I might be looking at it wrong, but if I personally went to TLC with our story, they would probably think I was just some proud parent trying to get 15 minutes of fame and we would be perceived in the wrong way. I want nothing more than to touch as many lives as possible, so I would need to the help of others to do so. If someone out there who is following the story has or knows someone with great ideas on how we can reach as many people as possible, I would love to hear your ideas. This opportunity can help so many families and if we could save one life, it was worth all the while. We are stronger in numbers. Please help and let's work together.
The Freemans :)