Throughout the day yesterday, Kayleigh's sats started to worsen. It was getting harder and harder for Kayleigh to keep her oxygen saturation above 90, so they had to keep increasing her oxygen intake. Late last night, they reached a point where nothing was helping and they had to put Kayleigh back on the Nitric system to open up the air sacs in her lungs. This helped bring Kayleigh's sats back to normal, but they had to give Kayleigh a sedative to help her rest because she was starting to get really irritated.
"So far" the blood culture is showing negative for any infection and they are waiting to get the results back from the RSV test. The culture takes 48 hours for something to show up, so we still have about 12 hours left. Although, if nothing is showing right now, I doubt it will. No one is really sure why she is doing this, but they are keeping a close eye on her.
If all the tests come back normal, the doctor said he would point all fingers to the fortifier. She doesn't show signs of allergies towards it, but maybe she is just intolerable to it. Aimee made a good point that she loves onions, but they tear up her stomach sometimes to a point where she is very uncomfortable. The x-ray came back much better than this morning, so her trapped air is passing through. My biggest problem with this all is why is it effecting her lung/pulmonary pressures? Is her body/heart not responding well to the surgery? Are we to expect Kayleigh's hypertension to kick in at the drop of a hat, whenever she is upset or intolerable to something? No one really knows just yet and not knowing is really getting under my skin.
Hopefully we will get all the answers soon and I will be sure to pass them on. Everyone has given us some really great ideas on what this could be and we have mentioned every single one of them to the doctors. Some were ruled out by good reasoning and they are testing for others. We will all be glad when they figure it out so we can move on and get ourselves back on track.
Thank you all so much for your support and hang tight. This is not suitable for the impatient, but our hands are unfortunately tied. Good gracious, you should see me right now. I woke up with so much stress that my neck has tightened up to the point where I can no longer move it in any direction. I look like one of those women in the Kayan Tribe who have those gold rings that stretch their necks to unbelievable lengths. Pain reliever and the heating pad have not helped at all, so I am just going to have to take it easy.
After 8 long weeks, the extra testing on the placenta came back and all test confirmed it to be normal. So, we have no idea why Kayleigh was growing so far behind or why there was barely any amniotic fluid throughout the pregnancy. I guess "scientifically" we are never going to know what caused all of this.
Thank for all your prayers and God Bless,
The Freemans :)