11/20/08 - 5:37 - Another Episode

Wow, I don't even know what to say right now. I am just in complete and utter shock about what is going on. Kayleigh just had another pulmonary hypertension episode. She was put on the vent again and they boosted up her nitric even more. Several of the neonantologists are by her side and the cardiologist who did her heart surgery is with her as well. Since I can barely move because of my neck, I am here at home with Allyson and Brandon, but Aimee is up there with Kayleigh right now.

Please pray for my little girl!

God Bless,

The Freemans

52 comments:

Anthony's Mommy said...

Adam, I'm sorry your neck is so stiff from all this stress. Your body just had to find a way to deal with it =-( Mine usually gets taken out on my stomach.

Do they still think this is caused by the fortifier?

You have been in my prayers all day. All of you!

Kim

Amy said...

I am so sorry to hear that Kayleigh is having a rough time right now. I am praying for her. I hope your neck gets better soon Adam. Stress can really do some mean stuff to your body.

In Christ's Love,

Amy S in KS

Amber said...

OH gosh, I'm so sorry she is going through this. I can't imagine how frustrating it must be to not know whats going on. Poor Kayleigh. I will say more extra prayers for her tonight.

Babyksmom05@yahoo.com

Kelly said...

My heart just aches for you and your family. Hang in there. We are all praying for your little girl to get through this tough time and be even stronger for it....

Angie said...

You don't know me but I happened upon your blog and have been following Kayleigh for approx 3 weeks. Just wanted you to know that your family is in my thoughts and prayers. Kayleigh is a strong little girl and will continue to fight.
Angie
A NICU nurse from Indiana

Staci said...

Praying hard for Kayleigh and you and Aimee and the doctors (so they can use their knowledge to figure out how to help Kayleigh). Kayleigh has fought so hard to this point that I am sure she will fight her way through this as well. Just keep in mind that if you and Aimee can make it through all this then Kayleigh's puberty/teenage years should be a breeze :) Take care and know that you all are in our thoughts and prayers.

Kristin said...

Praying for you guys! Kayleigh is a strong and stubborn little girl! She won't let another hurdle get in her way! I just hope she gets through this one quickly and has NO MORE!!!
Your whole family is in my thoughts and prayers everyday, but especially today!

~*~Brianne~*~ said...

That stinks!! I'm still praying, praying, praying, and more praying!!! I pray that Kayleigh will get better, and that you and Aimee will get a break because I can't even imagine how insanely stressed out you two are!! :(

Anonymous said...

Oh Adam,
I am so sorry things are going this way. She will remain in my prayers many times a day. God bless you.
With Love from Southern NH

Sarah said...

I'm praying really hard for you guys...I brought you up yesterday at our prayer meeting at church, so now our church is praying too! Keep us updated!

Anonymous said...

Gosh guys...I keep checking your blog and waiting for a positive update. I am praying throughout the day, and I will keep doing so! Hang in there and know that God is right there with you all.

Cathy

Mat & Laurel Lunnen said...

Lots of prayers for Kayleigh today and your family....

Jen said...

We're praying...

Pamela said...

We are here praying for her and your family.

Leigh Anne said...

No words... just prayers, she is being placed on my heart throughout the day to pray for her.

AliciaJohnson1983 said...

Kayleigh is in my prayers. I cannot believe this his happened when she was so close to coming home. Maybe it is God's way of saying that she just isn't quite ready to come home yet. But I pray so much that she is able to get better and be able to come home with you soon.
Best Wishes
Alicia

Denise said...

Wow, Adam, I am so sorry. I am at a lose of words, I just don't feel like at this point anything I can say will help you. But know we are praying for you! Hang in there!
Love you guys!

Jennifer said...

Straight from another site------asking GOD to heal your sweet angel and lifting you and your family in prayer!

sumi said...

Kayleigh looks like such a sweetie. :-)

I am praying.

cincymomof4 said...

That is good that her cardiologist is there and hopefully he can make a call on what is happening and the cause of it. Everything seemed so well before she started back on the fortifier. We will all be anxious to hear the next update and we pray that it will be better.

I hope your neck gets better - heating pads and pain medication!

Take care Adam and thanks for keeping us posted. I'm praying for her!

Anonymous said...

Adam & Aimee,
Have been following your love story for Kaleigh for over 2 months. Found Kaleigh's story through Morgan's story. Morgan's parents posted scripture on 11/19 which I will share with you. "Lord, when doubts fill my mind, when my heart is in turmoil, quiet me and give me renewed hope and cheer." Psalm 94:19
Praying for both of you and Kayleigh. May God bless Kayleigh with His healing hand and may God bless you with comfort and love.

C. Herlong
Irmo, SC

Lia said...

Wow! this is sad news I am praying that Kayleigh will turn the corner and be home with you soon.

Mel said...

Came to you thru another blog and I will gladly pray for your precious angel and ask those I know to pray for her as well. Lord, restore this precious child to health and give her loving parents the courage they need to walk this journey. In Jesus's name. Amen.
Melanie
Oklahoma

Alli said...

Adam, I've had neck and back spasms before. It only seems like you can't move. It gets better if you move around and loosen up. Get to the hospital to be your with girls! Pop some Motrin.

Be strong, Kayleigh!! You're a fighter! You can do it!

Anonymous said...

Sending prayers from Phoenix...

kate said...

come on Kayleigh, you've gotten this far, you can do it!!

Erika said...

So sorry about your neck Adam....Praying for you all. Please update as soon as you hear. I am leaving for Florida for a week Saturday and need to know that my sweet lil Kayleigh is OK :0)

kellycowan said...

my twin baby girls and i just prayed together outloud as they ate their dinner. my husband watches your blog closely and told me to check today and pray. so we are.
love,
kelly, kanah, and grace cowan

Kelly Sheree said...

Come on Kayleigh!! I've been thinking about you all, all day...continously praying for all of you. Sorry your neck is so stiff..when I get stressed my whole body gets that way...Hopefully the drs. can quickly solve this so things can get back on the right track!!!

Best wishes, and tons of prayers,
Kayleigh's Kentucky Prayer Warrior
Kelly

Carol Ann said...

We are so saddened by the latest news but still so hopeful, as we all know what a fighter your sweet girl is. We're praying for you and thinking of your family all the time now. We carry Kayleigh in our hearts as we go about our day.
I hope this note finds you feeling better Adam.
Love The Nadeaus

Nelson Family said...

Lots of prayers and faith your little girl to pull through this.. she is such a fighter!
Blessings,
-karen

Keri said...

Sending prayers and love from rural NH...

Jennifer said...

I am always thinking of Kayleigh as well as you and Aimee throughout the day. My payers for her keep coming.

Amanda-The Family News! said...

My prayers are with you....

Amanda in SC

Alanya said...

My prayer go out to you and your beautiful little girl! I just know she going to be ok. God has a special plan for Kayleigh! May God bless you at this difficult time!!

Kristin0821 from BBC said...

Adam and Aimee - Many prayers are being said for your sweet Kayleigh tonight. May God give her continued strength to fight this newest battle. She has been so amazing through all of this - I have no doubt she will continue to amaze us all.

Blessings,
Kristin0821 from BBC

Andrea in OH said...

Many, many prayers are being said for sweet Kayleigh and your family. I hope they're able to quickly figure out what is going on and get the issue resolved.

God Bless!

Anonymous said...

Prayers, prayer, prayers, Get in a hot shower, stretch and get your butt up there. You need to have a little chat with Kayleigh.
My thoughts follow. Hang in there

Anonymous said...

It just doesn't seem fair that someone so small should suffer so much. I am praying even harder for healing for baby Kayleigh and strength for you and Aimee.

Rachelle said...

Prayers, so many prayers, I think of you all daily!

PastorL5 said...

I don't know who you are, but I found your blog through a friend of mine. I can't imagine what you're going through but know that I and tons of others are praying for your little girl and for your family.

God, please be with little Kayleigh and give her the strength, rest and peace she needs to fight what is going on with her. Please guide the doctors to the correct diagnosis so that they can provide the help she needs. Please be with Aimee and Adam and their family during this time. Give them peace and comfort and strength. Let them feel Your loving embrace every day and carry this burden for them and fill them with Your peace. Amen.

Christy said...

thinking about you guys.. praying she continues to amaze us all!

Christy said...

thinking about you guys.. praying she continues to amaze us all!

Karen, Dean & Ryan said...

Adam, I hope your neck feels better so you can see your precious girl tomorrow. You may need to get a muscle relaxer for it. I'll be praying throughout the night that Miss Kayleigh fights through this quickly.

God Bless,
Karen

Anonymous said...

Adam, I have been following your story for months now. I just have to say I wish my fiancee was as nice as you are. You are truly a unique man to take Aimee with two kids and still be so patient. My blessings to both of you and sweet Kayleigh :). Do not worry Adam, everything happens for a reason. God has a plan for her so do not get upset please. Much love to your whole family. Please let Gods peace come upon you, you are such a strong man.
~B

acutescrubnurse said...

Continuing to pray for Miss Kayleigh. I cannot imagine the stress this is doing to the two of you. Adam, I am the queen of neck pain due to stress. I normally will use ice rather then heat, and also load up on the Motrin, 4 every 6-8 hours. It will take time, but it will help if you are consistant. Here's hoping for a good night.
Rita

Ellie said...

Praying that God will rain peace from heaven on all of your heads & that Kayleigh will be fit as a fiddle before you know it.
Prayers, prayers, prayers for everyone.
~Ellie in MS

sarah said...

sending lots of prayers, thoughts and hugs your way! C'mon Kayleigh girl we all know you can right yourself soon!

Love,
Sarah, NZ

Erica said...

Prayers going Kayleighs way ALWAYS! God Bless You Kayleigh! Let us know how things are going when you all can! God Bless you ALL!
Erica
Mommy to 2 boys
1 who was a 31 weeker

Anonymous said...

Praying harder than ever for precious Kayleigh !!!!

Karen Smith
Calgary, AB

The luckiest Wife and Mom in the world! said...

I have been following your blog for a few weeks now. I pray that she takes a turn for the better now! Being a mom of three preemies I somewhat know what you are going through. All seven of us are praying for her! Let the roller coaster come to an end!!!! Lots of love out to you guys!!!

Los Bianchi Carrillo said...

Hi Adam,
For your neck try this: grab an old sock and fill it with uncooked rice, put it in the microwave for about 3 minutes, then put it around your neck, the warmth will help you muscles relax and it will stay warm for quite a while.

We are praying for beautiful Kayleigh!