It has been a long day so I apologize for a short post this evening. Kayleigh is doing really well and is making slow and steady progress. They have weaned her nitric oxide down to 10 and started her Viagra back up. She has been tolerating her feeds really well and they will increase them as time goes on. They plan to take Kayleigh off the vent tomorrow if she has a good evening. She is already on a much lower vent setting and seems to be keeping her sats in the low 90's throughout the whole day.
Her echocardiogram came back showing her pressures to be in the 50's today which is good, her blood gasses all came back normal and her renal ultra sound showed no signs of problems with her kidneys. Everything seems to be checking out nicely, so we just need to continue to keep this progress moving in the right direction.
The doctors are still worried and have no answers as to where Kayleigh's pulmonary/lung pressures will go in the future. As of right now, they are still reactive and when ever Kayleigh has a pulmonary hypertension episode, the nitric, oxygen and sedation medication seem to take care of the situation. The problem we will face is when her pressures become fixed (no longer reactive) and when she has an episode, it is going to be a life threatening issue if she can't calm herself down on her own. Basically, her lung pressures will be so high and her heart will just fail. The doctors say they have no answers and we will just have to cross that bridge when we get there. I completely understand they don't know what will happen, but to me that sounds like a dodge to a detrimental answer no one wants to hear. We can only pray that Kayleigh will not be stricken with more of these life threatening hypertension episodes and she can grow out of this situation quickly. She is just so tiny right now that her little body can't handle these hypertension bouts like older children or adults can.
Please pray that Kayleigh will continue to recover well and that she will not have any more sicknesses/infections or anything that will cause her body to flip out in to a hypertensive situation. We appreciate it very much!!
I will take more photos tomorrow when they take the vent out :)
The Freemans :)