11/24/08 - Quick Update

It has been a long day so I apologize for a short post this evening. Kayleigh is doing really well and is making slow and steady progress. They have weaned her nitric oxide down to 10 and started her Viagra back up. She has been tolerating her feeds really well and they will increase them as time goes on. They plan to take Kayleigh off the vent tomorrow if she has a good evening. She is already on a much lower vent setting and seems to be keeping her sats in the low 90's throughout the whole day.

Her echocardiogram came back showing her pressures to be in the 50's today which is good, her blood gasses all came back normal and her renal ultra sound showed no signs of problems with her kidneys. Everything seems to be checking out nicely, so we just need to continue to keep this progress moving in the right direction.

The doctors are still worried and have no answers as to where Kayleigh's pulmonary/lung pressures will go in the future. As of right now, they are still reactive and when ever Kayleigh has a pulmonary hypertension episode, the nitric, oxygen and sedation medication seem to take care of the situation. The problem we will face is when her pressures become fixed (no longer reactive) and when she has an episode, it is going to be a life threatening issue if she can't calm herself down on her own. Basically, her lung pressures will be so high and her heart will just fail. The doctors say they have no answers and we will just have to cross that bridge when we get there. I completely understand they don't know what will happen, but to me that sounds like a dodge to a detrimental answer no one wants to hear. We can only pray that Kayleigh will not be stricken with more of these life threatening hypertension episodes and she can grow out of this situation quickly. She is just so tiny right now that her little body can't handle these hypertension bouts like older children or adults can.

Please pray that Kayleigh will continue to recover well and that she will not have any more sicknesses/infections or anything that will cause her body to flip out in to a hypertensive situation. We appreciate it very much!!

I will take more photos tomorrow when they take the vent out :)

God Bless,

The Freemans :)

24 comments:

Kira said...

So *now* how long before they think she'll be able to come home?

Praying for Miss K!

Nelson Family said...
This comment has been removed by the author.
Jennifer said...

Still praying in California.I'm glad to hear things are still going well :)

Joseph said...

It sounds like she is moving in the right direction!! Always praying for her, for you and your family, and for all of the people taking care of her.

Stephanie said...

Hello I have just recently started following your post. You guys have blessed me so much with the strenghth. I pray that God will give you more strenghth than you know what to do with, along with your baby she sounds like she is doing so well. I am constantly checking for posts on her. I am sooo glad that she is doing so well. We serve a mighty God!!
Good Luck today.. I am looking forward to seeing some more pics and some more good news on her.
You guys have a wonderful day..
Stephanie - in Wooster Ohio

Stephanie said...

Hello I have just recently started following your post. You guys have blessed me so much with the strenghth. I pray that God will give you more strenghth than you know what to do with, along with your baby she sounds like she is doing so well. I am constantly checking for posts on her. I am sooo glad that she is doing so well. We serve a mighty God!!
Good Luck today.. I am looking forward to seeing some more pics and some more good news on her.
You guys have a wonderful day..
Stephanie - in Wooster Ohio

Watts Family said...

We are so glad to hear that she is improving. Now we have one more thing to add to our "things to be thankful for" list. Have a blessed Thanksgiving. We wont be able to check in again until Monday but we'll keep praying everyday.

Watts Family

The Shumards said...

I am so glad to hear that Kayleigh is doing better! It is such a roller coaster in the NICU...we were going home 3 times before we actually did! So hang in there and know that you are all being bathed in prayer!

Keri said...

Very happy to hear that Kayleigh has started to move in the right direction again...keep up your strength and know that you have a whole army of people praying for you and lil' miss Kayleigh all over the world.

Keri, Rural NH

Mel said...

So grateful to hear of slow and steady progress. Remember, slow and steady wins the race (tortoise and the hare)!
Will continue to pray for sweet sweet angel girl Kayleigh and for you two!

Dear Lord,
Please be with this sweet angel girl and her loving parents. Please be with her as the doctors take out her vent and keep her strong and stable. Please help her grow and gain weight so her body may be more capable to handle stresses. Thank you Lord for your gifts of love, courage and faith-all very obviously present in these two parents. In Jesus's name-Amen.


Still praying in OK!
M

The Woollard Family said...

I'm so glad you posted last night, I was getting worried!

Kayleigh seems to be doing more wonderful everyday lately, thank goodness! Still praying...

Not sure if Aimee received the picture I emailed her of my preemie daughter praying for Kayleigh :0)

A girl I met on Cafemom just had her daughter on the 22nd at 23 weeks and she's having a very hard time. I gave her the website here to Kayleigh's Story for some encouraging words since you are amazing at keeping the world up to date with things going on.

Take care and God Bless,
The Woollard Family

Anonymous said...

I look forward to reading your daily blogs, it's the first thing I do when I get home from work and before I go to bed. My husband thinks I am nuts but....your daughter is simply amazing....I was in tears the first time I found your blog and read the story from the beginning. I have a 3 yr. old daughter and a 6 mo. old son. I was blessed with two healty kids but I am so inspired by the willpower of Kayleigh and the fight she has put up. She is such a tough little cookie. She is in my thoughts and prayers everyday. I have my fingers crossed that you get to take your precious baby home soon. God bless!

Sanborn Family of 4 said...

Sounds like she is getting better and better slowly! GOOOOO!!!! Kayleigh! My family and I have been following your story from the beginning and we are all praying for you in OREGON!! Keep up the good work!

Reyna Family said...

I am so glad she is getting better I had not read your post for a couple days when I went in there today i thought you where probably home it saddened me to know what happened . You guys continue with your faiuth you have gone so far tojust stop know You faith amazes me and makes me so much stronger in mine . I will say a Prayer to Saint Jude for you guys God bless your baby girl and your family strong mommy you got there ...

Reyna Family In Chino, Ca said...

Please forgive me for all the mispelled words replying from work .dont have time to proof read. :) God Bless

Brianne said...

Still praying like crazy for Kayleigh!! I'm glad she has made some improvements. Just keep remembering that she is in God's hands... and there aren no better hands to be carried in! He has her hypertension,etc. under His control. I hope that you guys have a wonderful first Thanksgiving with your precious peanut!! God bless you! Much love!

Brianne

Kristine said...

Always thinking of you all, and praying for the best! Take Care!!

Anonymous said...

Sending prayers from Michigan... Praying that Kayleigh continues to grow and get stronger and praying for the doctors to find some answers to these issues.

Take Care,
Aimee Gillespie

E said...

I'm so glad to hear that she's doing better and had a good day!

Praying in Jesus' name!!

Erica

Amy said...

Hi guys! Wow! Kayleigh is getting so big and she is still just as cute as ever. (I remember the day Amiee posted to baby center like it was yesterday.) I am just so glad to see that Kayleigh is growing stronger and stronger everyday! :) Yay!! Go Kayleigh!!


Amy~
My thoughts and prayers are still with you all!

The Milne Family said...

It's my first time on your blog (found thru my sister's "Compton Corner" blog), and I only had time to read the past few posts. I wanted to say, though, that I will lift Kayleigh and you in prayers. May the Lord be glorified and may he sustain you and cover you with his love.
In Christ, Julie

zzzzzbaby from bbc said...

Slow progress is still progress! Keep it up, Kayleigh! I bet once she gets a chance to be at home, where everything is relatively quiet and relaxed, that she will be able to make even more progress than she is now. I can't imagine how hard it is on her not getting to be with her Mommy and Daddy every minute and being in a noisy, busy place.

But for now, we can be happy that she is headed in the right direction. I'll continue to pray that things keep getting better for her. She's such a little trooper!

jag said...

Praying for your family. Thank you for sharing your story sith us.

The Porter Family said...

Hi, I just found your blog, and I am praying for your sweet Kayleigh!