Kayleigh wanted me to tell all of you who are local (Charlotte, NC and surrounding counties) to check her out on television tomorrow night at 7:30 pm on NBC. There is a special on Levine Children's Hospital and Kayleigh's story will be one of the highlights of that show. I will record it, but do my best to figure out how to transfer it to my computer so everyone will get a chance to see it. Although, I don't see why I can't get the video file online from the television station. We'll see what I can do.
It is going to be a really special day for our family as we will all be celebrating thanksgiving, eating, watching football, passing out, eating some more and then sitting in front of the t.v., balling our eyes out.
Kayleigh is doing great. Since being off the vent, her right lung was collapsing a little and with some chest PT, they were able to correct the issue. She is now weaning off of her nitric, oxygen and medication again. Let's hope she can stay off of it all this time! They decided to increase her Viagra this time around to see if that will help Kayleigh not fall so quickly in to a pulmonary hypertension episode when stricken with some kind trigger effect. Kayleigh is gaining some good weight too. She is up to 4 lbs - 3.7 ounces right now. I think closing that VSD has really helped with her growth. It has been a week since I held her last, so that little bit of growth makes a huge difference.
Kayleigh was a little irritable this morning, but I think it was because she needed some loving. Grandma and Papa "G' came up to visit and Kayleigh slept in Grandma's arms for several hours. I showed up not too long after them and held her for a while too and she was much happier. I am sure no 5 month old child wants to lay in their bed all day long. I am sure that I would get crabby too!!!
Aimee was stricken late last night with another bout of mastitis that put her on the couch all day again with a crazy fever and very painful ta-tas. I felt so bad for her, especially when she couldn't get up to see Kayleigh and she had to focus on getting well really fast because we have guest coming tomorrow. All that resting and cabbage helped because she feels a lot better now and we were able to get the house back in order.
Well, I want to wish everyone a very Happy Thanksgiving and I want to share the one thing that I am so thankful for with you all. I am so thankful for an amazing God whose greatest gift is love. That love has brought all of you to us who care so much for Kayleigh and our family enough to support us through this amazing journey. That love has kept Aimee and I so close to each other through one of the toughest journey's we could ever face. And that love ;-) created the most amazing miracle I have ever laid eyes on. "Kayleigh, we love you so much and we wish you could be home with us on your first thanksgiving"
Allyson, Brandon and Kayleigh are the light of our lives and we couldn't be more thankful to have the most incredible children anyone could ever ask for. We are looking forward to our families sitting down together and having such a beautiful day. "But if you eat all my Momma's pumpkin bread, I am gonna whoop your tails" ;-)
HAPPY THANKSGIVING EVERYONE AND GOD BLESS!!!!
The Freemans :)