Kayleigh wanted me to tell all of you who are local (Charlotte, NC and surrounding counties) to check her out on television tomorrow night at 7:30 pm on NBC. There is a special on Levine Children's Hospital and Kayleigh's story will be one of the highlights of that show. I will record it, but do my best to figure out how to transfer it to my computer so everyone will get a chance to see it. Although, I don't see why I can't get the video file online from the television station. We'll see what I can do.

It is going to be a really special day for our family as we will all be celebrating thanksgiving, eating, watching football, passing out, eating some more and then sitting in front of the t.v., balling our eyes out.

Kayleigh is doing great. Since being off the vent, her right lung was collapsing a little and with some chest PT, they were able to correct the issue. She is now weaning off of her nitric, oxygen and medication again. Let's hope she can stay off of it all this time! They decided to increase her Viagra this time around to see if that will help Kayleigh not fall so quickly in to a pulmonary hypertension episode when stricken with some kind trigger effect. Kayleigh is gaining some good weight too. She is up to 4 lbs - 3.7 ounces right now. I think closing that VSD has really helped with her growth. It has been a week since I held her last, so that little bit of growth makes a huge difference.

Kayleigh was a little irritable this morning, but I think it was because she needed some loving. Grandma and Papa "G' came up to visit and Kayleigh slept in Grandma's arms for several hours. I showed up not too long after them and held her for a while too and she was much happier. I am sure no 5 month old child wants to lay in their bed all day long. I am sure that I would get crabby too!!!

Aimee was stricken late last night with another bout of mastitis that put her on the couch all day again with a crazy fever and very painful ta-tas. I felt so bad for her, especially when she couldn't get up to see Kayleigh and she had to focus on getting well really fast because we have guest coming tomorrow. All that resting and cabbage helped because she feels a lot better now and we were able to get the house back in order.

Well, I want to wish everyone a very Happy Thanksgiving and I want to share the one thing that I am so thankful for with you all. I am so thankful for an amazing God whose greatest gift is love. That love has brought all of you to us who care so much for Kayleigh and our family enough to support us through this amazing journey. That love has kept Aimee and I so close to each other through one of the toughest journey's we could ever face. And that love ;-) created the most amazing miracle I have ever laid eyes on. "Kayleigh, we love you so much and we wish you could be home with us on your first thanksgiving"

Allyson, Brandon and Kayleigh are the light of our lives and we couldn't be more thankful to have the most incredible children anyone could ever ask for. We are looking forward to our families sitting down together and having such a beautiful day. "But if you eat all my Momma's pumpkin bread, I am gonna whoop your tails" ;-)


The Freemans :)


Living With CES After Failed Tarlov Surgery said...

Well it sounds like little Kayleigh is doing fantastic :) I am so happy for you all. I can't wait till I hear that you are taking her home :) Just get some rest now, cause you wont be able to take your eyes off of her once shes there hehe.

I hope you all have a wonderful thankgiving with your families.

God bless.


Anonymous said...

Have a Safe and Happy Thanksgiving Freemans!

mommy to 2 boys
1 whowas a 31 weeker

threeboysgee said...

I am soo glad to hear that Miss Kayleigh is doing so well now, I enjoy reading your updates to know how she is.

Chloe's Story

kristyo15 said...

So happy to hear she is doing well. Thanks for the update! Have a great Thanksgiving! We are all thankful for you and Aimee sharing Kayliegh's story and inspiring so many people to trust in God's Will.

*The Owens*
Houston, TX

annaandallysmom said...

Happy Thanksgiving to you beautiful family.

God Bless,

Anonymous said...

Happy Thanksgiving!

Anonymous said...

Happy first Thanksgiving Kayleigh. You are a blessing.

Carol Herlong
Irmo, SC

Anonymous said...

Happy Thanksgiving and God bless you all!
With love from Southern NH!

Anonymous said...

Wishing your family a very Happy Thanksgiving!! Enjoy spending time with your family and taking a well deserved break. It sounds like Kayleigh is doing great and that is awesome news!! She is such an inspiration to the power of God's love.

Sending love from Wisconsin!!!

Anonymous said...

Happy 1st Thanksgiving Kayleigh! We hope God continues to bless you so you can be home with your mommy & daddy very soon!

Karen, Dean & Ryan

Anonymous said...

You and your family have so much to be thankful for especially Kayleigh's amazing progress she seems to be making. Happy thanksgiving to you and your family. We continue to pray for Kayleigh that she wont have anymore set backs and will be home with her family very soon. Shes an incredible little fighter and such a mirable....
Baltimore, MD

Lisa said...

Is Aimee getting put on antibiotics when she gets mastitis? I had it three times (nursing twins) and my High risk OB put me something mild that was totally fine for what little bit was excreted thru my breastmilk. I would check with Kayleigh's dr's just to be safe. It just concerns me that she has had it again so quickly. They could give her something mild like amoxicillin or augmentin. Just a thought. The only other fix was to nurse and pump as much as possible. Like every 2 hours. She also need to get in the shower warm as she can tolerate it and try to massage the lumps she can feel in the affected boobie. That is the clogged milk duct. She can also massage this as she is pumping. Please let me know if you have any other questions. Lisa

Jennifer in NM said...

Happy Thanksgiving Kayleigh and of course the entire family. Aimee isn't it cool that at 5 months old Kayleigh is going to get her first turkey dinner all because of you? Man I'm jealous! Hope your day goes well and that Kayleigh has no more setbacks and that she has hurdled all the hurdles. On more of a selfish note, we haven't seen any pics of your angel in a couple of days and she has grown so.....J/K :) Will wait anxiously for another update.

With much love and prayers,

E @ Scottsville said...

Oh, I'm so glad that she's doing well right now and Praise God that she's gaining weight!!! I've been wondering what she was 'up to' now. Yeah!

Hope your Thanksgiving was wonderful!!!!