"GOOOD MORNING EVERYONE!!!! I am feeling so great this morning. They took that thing off my forehead that tells everyone how much oxygen my brain is getting. They are also taking me off more of the medicine that I have been on because I don't hurt as much and my blood pressure is much better. They clamped one of my tummy (PD) drains because it is not pulling out anymore fluid. So that means they will take that out soon if it doesn't back up. I will be so happy when all of these tubes and wires are out of me. I have some really cool news. I overheard my Daddy asking the heart surgeon what the smallest baby he had ever done open heart surgery on and the surgeon said... ME!!!! Can you believe that??? I am glad Mommy and Daddy didn't know that before I had surgery or they would have really flipped a biscuit!!! Well, I better get back to sleep before the Doc yells at me. Here's Adam...Bye - Kayleigh:)"
Aimee and I are about to go for a walk down to the park to enjoy the nice weather we are having. Thank you all for the wonderful emails that are coming in. I appreciate it so very much!!! If you haven't done one yet, look back at the "Sign + New Order + New Project" post. It is truly awesome to sit there and read everything everyone said. We are truly blessed to have every one of you!
God Bless,
The Freemans :)
35 comments:
The picture above brings tears to me eyes. She looks so healthy and alert - God Bless.
Wow Kayleigh,you look great this morning :)
Hope I'm not too late, but we've been out of town and just saw the request!
Dear Kayleigh's Caretakers,
We stumbled upon Kayleigh's story while on Parents.com, a picture of her little arm in her Daddy's hand. She, along with her family, is so blessed to have each and every one of you cross her path. She has touched so many hearts and God made this possible through each of you. So, a big THANK YOU for simply doing what God had planned for you so Kayleigh can go on to do the great things He has planned for her.
Stephanie, David and Riley
St. Charles, MO
Kayleigh -- you are adorable and make me smile every day! Thank you for those smiles you bring to my face every time I read your Mommy and Daddy's blog and see your pictures!
You are so blessed!
With love, Karen - mommy to four,
Cincinnati
Goodmorning Kayleigh, You look great and super cute today. I'm so glad your feeling better. God bless you today and everyday.
Good Morning Kayleigh!
Oh little lady, you look amazing! So glad you're feeling better and more and more of the tubes are coming out. Before you know it there wont be anything holding you down! Tell your Mommy and Daddy to enjoy their walk and bit of time alone because soon you'll be home with them! Have a great day, we'll keep the prayers up!
Love,
Betsy
Kayleigh you look so awake and happy. Those beautiful eyes are just beaming up at Dad and Mom. You even look like you have a smile on your face. Well GOOD MORNING TO YOU SUNSHINE!!!!! Hope your day goes well!
Jennifer
So precious - she is in our prayers!
Kayleigh, you look great this morning sweetheart!! I'm hoping that you get to head to the NICU and then home soon! Keep up the great work, you're doing awesome! We're all still praying for you!
Such a beautiful baby! Eyes are so wide! Lots of love to you all!
I prayed for you this morning during mass and then when I got home I saw what you had to say and thought wow! God works fast!!! May your heart keep healing fast! Because mommy and daddy have a room at home for you better than any that you have been in yet! I cant wait to see a pic of Kayleigh soaking in the sunshine on a walk with mommy and daddy! ANd by the way Adam the page looks GREAT!! It matches Keyleighs room and her first onesie she was wearing!
Crystal in CT
I want to apologize for this extremely random comment.
I found out about Rachel's sweet little Hannah passing away through your blog and I just wanted to let you know that I am starting a candle light HOPE vigil for her and Ryan. I don't know them personally in fact I live on the opposite side of the world down in Australia but their story has really touched my heart.
If you would like to, please light a candle for them and take a photo, please know that there is no pressure whatsoever to particpate, I just want this family to know that there are people thinking and praying for them all over the world. If you would like to do this you can email me the photo along with your first name and what part of the world you are from. My email address is twenty_six_stars@hotmail.com
Thank you for taking the time to read this and may God bless you and your family.
Carly x
P.S
What a gorgeous little miracle you have :)
That picture brings tears to my eyes! Adam you should write a book about your experience, you have a real talent for putting words onto paper. I would love to read it and I think you could help so many other parents to know that through prayer, hope, strength and a very tiny miracle we are all capable of anything ! Thank-you for sharing Kayleigh's story with me.
Karen Smith
Calgary, AB
PRAISE GOD!!
What a great news and such a cute post! The statement ". . . would have really flipped a biscuit" just cracked me up!!!
Kayleigh, you look adorable today!! Glad to see you're feeling better too. Here's a biigggggg hug and kiss from me to you!
Write again when the doctors and your daddy turn their heads.
Oh Kayleigh I am so happy to hear how well you are doing! Keep it up little one!
With love from Southern NH!
YAY For Kayleigh!! WOO HOO!! Keep up the wonderful work your doing Sweet Kayleigh! God Bless You!!
Erica
Mommy to 2 boys
1 who was a 31 weeker
Hey there little cutie Kayleigh! You've made soooo many people around the world proud with how well you've done with this surgery! Those VSD's are nasty things to have. But now you're all better and ready to go home with mommy and daddy & play with your sister and brother! What a wonderful life you are going to have!.
Kim
Look how alert she is! God is good. :)
She is looking so awesome!!! Way to go Kayleigh!!
Oh Kayleigh, you look so adorable with those big brown eyes wide open! I know your Mommy & Daddy are ever so anxious to get you home but you just tell them not too much longer. This is going to be one special Christmas isn't it? God Bless!
Karen, Dean & Ryan
I was forwarded Kayleigh's blog a couple days ago by a family member. I just wanted you to know that you all are in my thoughts and prayers. I have twin girls that are now 17 months old. They were born at 28 weeks. Lily spent 2 months in the NICU at CMC main and Isabel 3 months. Reading Kayleigh's story brings back a lot of memories and emotions. My heart goes out to you during this time. I'm so glad to hear how well Kayleigh is doing now, post-surgery.
Luckily, our daughter Lily had an "easy" trip in the NICU, but Isabel had quite a journey. The way Kayleigh is fighting reminds me of how Isabel fought and persevered. They told us Isabel wouldn't make it through her first day in the NICU, but she did and she continued on through constant opstacles, including 2 brain surgeries, several life-changing diagnoses, etc. and here she is today - crawling like a big girl (when they thought she never would) and working her way toward walking, which now they all think she will be able to do!!
I think it will continue to amaze you how much Kayleigh can fight and overcome even when she is so tiny and faced with so many challenges.
I always said Isabel and Lily went through more in their first few months of life than most adults ever have to go through, and through it all they were such an inspiration, and so is Kayleigh. Our girls have taught my fiance and I not to take life for granted; to celebrate all of the small things. From reading your blog I can see Kayleigh taught you and your wife the same thing! :)
Kayleigh couldn't be in a better hospital or in better hands. They have the most amazing and supportive doctors, nurses, and specialists at CMC main!!
Take care and know that our family is rooting for you all and can't wait to read about Kayleigh getting to go home!!
Kayleigh, I check on you every day, and I must say that today you are looking fabulous! What a pretty, strong girl you are!
Becky from Washington state
I just love your beautiful big brown eyes! What a cutie you are! Have a great day today!
I'm so happy to see Kayleigh doing well! I've missed reading your blog several days this week because I've been in the hospital on bed rest, but you've been in my prayers. I woke up early (4:30 am here) on the day of Kayleigh's surgery to pray. Amazing to see what God is doing in her life!
Please keep praying for our baby, Zephaniah. On Friday night, my water broke. I was already in the hospital on bed rest trying to stop preterm labor. I'm about 30 weeks pregnant. Now we're just waiting for labor to start and hoping baby gets as long as he can have in my belly.
What a beautiful, bright-eyed little girl! She looks soooo alert! I love the picture of her!
Love,
Rhonda and baby Luke
OH! this precious picture took my breath away, You are so beautiful an full of life you look so happy and peacefull
Bless your little heart
Aimee and Adam,
What a beautiful sight to see! She looks great! It's so wonderful to see Miss Kayleigh looking like her little "Miss Priss" self again, I can't wait for her to get back to NPCN so I can spoil her a little bit! But really, I am so thankful everything has gone so well, the power of prayer works wonders, doesn't it? You guys have been thru you know what and back and have come out stronger, all because of your little miracle girl. I hope you get to be transferred to NICU soon, and then you guys can come on over to see us!
Take care,
Paula L. (NPCN)
WOW!!! kayleigh you look so great. I have been following your story for about 3wks now(11-9-08) and again WOW you are a little fighter you go girl.
Melissa,Mom of 2
I have been reading your blog for weeks & I am thrilled to see such wonderful updates about Kayleigh!
We are praying for you!
Meg
Look at those big beautiful WISE eyes - this little girl is wise beyond her years - and will be such a joy to raise - Keep going Kayleigh - you are still in my prayers!
She looks soooooo good! Oh, I sure hope it's all uphill from here! It's so overdue! Congrats, guys - it must be so awesome to see her looking and doing so well so shortly after this surgery! Yay!!!
I am so happy to see that she is doing so well. I also want to thank you for posting this blog. Our little girl Addisyn was born on October 7 at 28 weeks and your blog has helped tremendously.
Kayleigh, you look absolutely amazing. I am so happy that it finally seems the worst of your challenges have been surmounted. Have a wonderful week!
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