CONT......3:30AM - PLEASE PRAY!!!!!

I just finished posting the last post over an hour ago, so please read that post first. My gut was right, something was wrong with Kayleigh's breathing tonight! The doctors and nurses have moved Kayleigh back to the NICU because Kayleigh's breathing has become erratic, her temperature is dropping and she is desatting. They did a blood gas, but have not gotten those results back. They have put her on the high flow cannula and depending on the results from the blood gas, they may have to put her on the vent.

The doctor's fear is that these are signs that her heart is causing these problems.

Please pray for Kayleigh right now!

God Bless,

The Freemans

62 comments:

Angie said...

sending u prayers and good thoughts...

Michelle Jamie said...

Praying!

Martha Compton said...

Saying a prayer right now.

Anonymous said...

Praying for sweet Kayleigh in Georgia...

Jennifer said...

We are sending our prayers....

Anonymous said...

Sending prayers and love.

C. Herlong
Irmo, SC

Mama Shelley said...

Oh, Lord Jesus, I lift up this precious baby girl to you this morning! She and her parents have been thru so much! Please rain your grace down upon them. Pour out your peace, your love, your mercy! Please, please dear Jesus, bring a complete touch of healing to little Kayleigh's body! Help all of her body to come into perfect working order. We do indeed pray that this would be YOUR will to heal her completely and allow her to come home and be the "miracle" child that her Mommy, Daddy and every last one of us are hoping for! We know she is in Your hands, and take comfort in that. We just pray that You, Who are the Great Physician, would give wisdom to the doctors here on earth, and ultimately would just bring about a miraculous healing today! We ask this for the glory and in the name of Jesus Christ, our Lord and Saviour. Amen.
Sending my prayers and love your way, Kayleigh!!!!
MamaShelley
(Mommy to Hannah Ruth, 5/7/07-5/8/07) www.babysites.com/sites/bubbajoe

Joseph said...

sending love, hope, and prayers your way -
meg

The Plis family said...

lifting Kayleigh up in prayer now!! and echoing "mamashelley's" beautiful prayer!
lots of love in Him!

Erika said...

Lots of LOUD prayers for Miss Kayleigh!!! Hoping for a quick fix to stop this rollercoaster. Lots of Love Erika

Anonymous said...

My prayers continue and I pray for you and Aimee for the strength to face yet another hurdle! Hang in there and lean on God. Kathy from Orangeburg, SC

Ali said...

Lovin' on you and praying for you Baby Kayleigh.

Anonymous said...

I already sent up one prayer and will send up many more as the day goes on.
With love from Southern NH

Grace said...

Crying and praying for Miss Kayleigh. You will be in my prayers all day long.

Anonymous said...

Sending up prayers for Kayleigh. God bless you and your family.

Anonymous said...

Praying lots for Kayleigh in Iowa!!

Anonymous said...

Praying for Kayleigh up in Ohio!!

Betsy said...

Praying for you all! Hope today brings a better day!

Elkins 5 said...

Come on Kayleigh, you can do it.....again! Sending extra, extra prayers to help climb this hill. We love you!
Susan & gang

Anonymous said...

Praying big ol' Texas prayers for Baby Kayleigh!

Dalila from NJ said...

Praying for Kayleigh...

Stacey~Gabriella Grace's mom said...

Gabriella is only 15 months and when I brought her to the computer screen to see Kayleigh's video she hummed and tilted her head toward mine - I cried even more...she recognizes her own pictures from her 5 month hospital stay as well ( we have a screen saver slideshow) She knows...I just knew when she reacted the way she did at Kayleigh. We used to pray every night in the hospital for all the other babies near and around us so I believe she feels it. We just both stretched our hands out toward the screen at Kayleigh and prayed that Jesus would heal her just as he took care of Gabby...She'll be in my prayers throughout the day, Our love to you all for continued strength,
Stacey & Gabby Grace XO

Dana Duggins said...

I saw the post last night and prayed; I am praying even more now. Lord, this tiny miracle has been hope to so many; show your power again in a mighty way. Her life has always been in your hands and will continue to be. Comfort her, heal her, comfort her parents. In Jesus name, Amen

Erica said...

God Bless You Kayleigh!! Your always in our thoughts and prayers! Your family (WE) want you home! Stay strong sweetie!!

Erica
mommy to 2 boys
1 who was a 31 weeker

bri said...

I am in prayer right now as I read this. OUR GOD IS GOOD! And He will bring you ALL peace.

We have lost 3 precious babies all after birth and still I have known HIS intimate peace in the midst of it all, He offers it to all who call on HIM.

I am praying right now for your little miracle to continue growing and responding WELL to her new heart. I am asking God, that you would bring ultimate peace to this sweet family and help them to CRY out to you in the MIDST of the uncertainty! Bring Kayleigh to a place of ultimate healing so that she may come home and flourish as only a daughter can in the presence of her parents.

Thank you Lord that you have brought her this far! AMEN

Denise said...

Praying right now!

The Duncan Clan said...

Saying many prayers for Miss Kayleigh that she gets through this hurdle like she has all the others.

Los Bianchi Carrillo said...

Hi Adam & Aimee,

First of all, thanks for the answer to my comment a few days ago.

I don't if this may have anything to do with Kayleigh's breathing troubles, but I noticed everytime Agustina had her bottle (or tried to) she would start having paused breathing... turns out that since she is still very small she still has trouble with the whole, sucking, swollowing, breathing thing. Mayby that is not the case for Kayleigh but because of her heart condition, sucking on a bottle can be very exhausting, so try gavage for a little while until she is fully recovered and give her all the time she needs.

Regarding her weight, I know it's very important for our preemies to gain weight fast so they can be stronger... I know I'm no doctor and no preemies are alike... but try cangarooing Kayleigh as much as possible, I kid you not when I tell you that Agustina just gained half a pound in just two days, and she doubled her birth weight in two weeks... all this because we started to cangaroo her... they wanted to wait until she was off the vent to start this important care, and though we waited for two months to hold our daughter, this has done wonders for her... so ask you doctor if you can do it, I tryed to do it at least three times a day for a couple of ours, it takes time, but half a pound in two days?!?!... It works miracles!

We are praying for Kayleighs recovery!!

Lots of Love,

Lorena de Bianchi
Guatemala

Erika said...

Still praying...Please update soon..I know Iam selfish. Just want to hear that she had a good night :0)

Jennifer said...

Just another thought but could it be fluid and she need more of the lasix? If her weight went up and she is having problems breathing fluid retention may be the booger that bothering her. Still praying for Kayleigh!

Anonymous said...

God, you have brought us all this far in the journey of one of your miracles.

Please stretch out your loving arms and hold Kayleigh safe in them that she may continue to teach us the power of faith and prayer in this little one.

Please do not take this little one home to you, but leave her here with us to remind us of your love.

June

Shalyn said...

We are praying for Kayleigh's breathing to come back to normal so she doesn't have to work as hard at it and can rest and recover from her surgery. I feel the same way about Babies R Us, I always had a gut feeling that something wasn't right and Gavin was going to come early, I just didn't feel right registering for him like it was to good to be true.
Once Kayleigh is home you can shop till you drop at Babies R Us until then I would just shop elsewhere. Get well soon Kayleigh!

Anonymous said...

Praying hard for Kayleigh!
-Jenni, Kentucky

Sarah J. said...

praying, praying, praying. lord please please please heal Kayleigh. Kayleigh, keep fighting little girl! Amaze us all again. We all LOVE you and are sending our strength your way. anxiously awaiting an update.

Sarah, Chris, Helaina and Ava J.

Carol Ann said...

Our prayers and thoughts, as always, are with you and your family. Before too long this will all be a distant memory. Kayleigh is a fighter. She has proved it time and again.
I'm sending a box of gifts on Friday so be on the look out. (Nothing from Babies R Us :)
Love The Nadeau Family

Anonymous said...

Sending up prayers from Mississippi right now!

Stephanie
BBC Preemie mom

Carly Nicole Elliotte My Micro Preemie said...

I'm so sorry. I pray that God lays his healing hands on kayleigh and provides much needed strength for you and Amy!

In Christ,
Rachel

Molly said...

Praying for you all.

Sheka said...

OMG!! This breaks my heart. I know there are no words that will make anything better. I send all my love and prayers to her. May GOD bless you throught his rough time once again.

Love,
Sheka

Anonymous said...

Still praying for Kayleigh.

Rhi
BBC Preemie mom to Sutton

Nicole said...

Praying for little Kayleigh, and family.

Camille said...

we're praying for you from Minnesota!

Kelly said...

Many, many prayers from Wisconsin....

Mad said...

A thousand prayers from Portugal too.

Shannon K. said...

Lots of love and prayers from Texas!

Anonymous said...

Sending prayers from houston and hoping for a joyous post today.

Much love,
Beth

kristyo15 said...

Praying hard for lil' Kayleigh in Houston!

Karen Long Island NY said...

Praying and sending out an urgent email to all my contacts asking for prayers - God be with you all

georgia said...

Praying for you and your family xx

Kristin said...

Oh, I'm so sorry to hear this! She is so strong and will come through this. We're praying for you!

Nelson Family said...

I am so sorry to hear that there are worries in your heart and that Kayleigh is struggling some. I know with our little one that we had the same setbacks when she was just about to come home> was so glad it happened in the hospital and not in my home. Hannah, our little one started to do similiar, she was on full feed for three days.. and breathing was fine, then she started to desate a whole bunch all night and at one point did consider vent for a bit. They put the feeding tube back in. they also had to resume caffine ( am not sure if your little one is on this but it was what Hannah took to stimulate the brain to remember to breath,) they put her o2 settings up and gave her some laxics to make sure her lungs were ok... Four days of rest and kangaroo holding and no feeds by bottle... she came off the o2.. (which was a miricle and understand that both our girls have there own struggles) and returned to full feeds and went home 3 days there after. I hate the rollercoaster rides of the NICU, but as you have even stated it is having her ready to be home that is the most important, I would rather have her there with doctors and nurses and home when that kind of care is not needed.
I will pray she gets through these trials that have been given to her and your family. She just may need some time. lots of love and prayers for her to be healthy and ready to go home soon...
-Karen
Hannah 26 weeker

nathalie from France. said...

praying that she gets better soon and that she can finally come home.

Anonymous said...

All the girls in the HFS Law Firm in Birmingham, Alabama are praying for sweet little Kayleigh.

Jay said...

We're praying for Kayleigh from NJ!

Jay & Abi (Your BBC friend!)

Jennifer Settle said...

I came across Kayleigh's blog quite a few weeks ago and something about her just captured my attention. I do not know you or your family Miss Kayleigh, but I do know that you are touching so many people and changing their lives. You have a fighter's spirit and I am praying for you today and always that you will overcome the obstacles before you now and in the future. I pray for your family as they have been through a lot even prior to your birth and they need all of the strength and courage that God can give them to care for you. As a pediatric nurse practitioner, I must also say this to you Adam and Aimee - ALWAYS, ALWAYS, ALWAYS listen to your gut feeling when it says something is wrong with your daughter. NEVER allow anyone to dismiss your concerns. Parents know their children better than any healthcare provider could ever hope to. Also, thank you for allowing all of us to experience this journey with you. It makes me appreciate everyday even more when I realize how touch-and-go life can be. My prayers and best wishes are with you.

Love, Jen

Anonymous said...

Praying like crazy for precious Kayleigh!!

Brianne

GiGi said...

Thank You God for every minute you have allowed us to Love your precious Kayleigh. Thank you for reminding us to trust in your will and appreciate life and those that have touched ours. Please heal little Kaykeigh and the whole Freeman family so they can grow and do your will. AMEN

Praying in Indiana

Erin in England said...

Praying and waiting anxiously to hear that little Kayleigh is ok! Please, Jesus, let Kayleigh's mommy and daddy keep her and love her for many years to come! She is so tiny and helpless but such a powerful witness of your incredible love for us.

Valerie said...

Lots of prayers and hugs from Nova Scotia. Come on sweet baby girl, you are a fighter!

The Shumards said...

I am praying hard for little miss Kayleigh!! It just broke my heart when I read your last posts! I know that God is in control and I pray that He sends His peace and comfort through yet one more crisis! You can do it Kayleigh!!!
Love, Jamey, Leslie, Isaac, and Emma Claire (31 Weeker) In Georgetown, SC

Crissie said...

Dear little Kayleigh I am praying for you and have been all day since I popped in this morning hoping to see a picture of you with mommy and daddy. I can tell you this little one your mommy and daddy know you sooooo well! I hope and pray that this is the LAST set back so that mommy and daddy can get you home where you belong!

Adam and Aimee,

Wow. you know that little girl like no dr ever will and trusting your gut has been the way to go for each and every issue. I pray for you and your family that you may have the chance to relax about Kayleigh's health very soon and that you may get back on track to bringing you little princess home!

God bless you and know you are in our prayers out here in CT!`

Crystal in CT

Lisa said...

I have been thinking about Kayleigh and your family all morning...I'm not much of a praying person, but I will lift up a prayer for her. She has been through so much!