12/16/08 - The Smallest, Biggest Miracle from God

After a long and tiring day, Aimee and I are currently in our "sleep in" room at the hospital. We must have walked by this room a thousand times in the 177 days that we have been here, but never thought the day would come where we would be in one of these rooms without preparing to take Kayleigh home.

I am sitting here at the desk as Aimee is trying to get a couple hour of shut eye. It was a hard decision to make, coming back to the room to sleep, but we have to do our best to not be tired for the remaining time we have to spend with Kayleigh. We don't know if she has hours or days left in her, but what we do know is her precious little body is slowly showing it's signs of slowing down.

There is no more need to go in to detail of her prognosis, and the doctors have been preparing us for what's to come. We are just sitting tight and giving her as much love as we possibly can before she takes her final breath. We know that we and everyone else in charge of her care have done everything that possibly could have been done and we are completely at peace with that. We trust that God had a plan for Kayleigh and even though her life here on earth was just a small moment, she has touched more lives than most people do in a lifetime.

My only request here is that EVERYONE please say a prayer for yourselves. Please pray that Kayleigh's Story will make your life better for knowing her and following her miraculous journey. Whether your religious walk with God has just started or has been renewed, your relationship with your husband or wife has been strengthened, your family has grown a tighter bond with each other or your outlook on life is much brighter than it was before, please remember Kayleigh has strengthened you and will always be an angel that will look over you in heaven. She is by far the smallest, biggest miracle God has blessed us with.

Aimee and I are proud to say that Kayleigh has renewed our faith in God. She has strengthened our marriage and has taught us to love Brandon and Allyson unconditionally. This past year has been one tough ride, but what we have been through has made us much better people. A lot of you ask how we are so strong through this and I 100% give all that glory to God. He is the reason we are strong because without Him, we are lost. Our Lord is the way, the truth and the light!!!

One thing that Aimee mentioned tonight that reminded me of what else has gotten us through this is all of you! Everyone is going to lose someone in their life. You may lose your parents, your children, your brothers or sisters, but what you will always have with you are your friends to support you through it all. You have ALL been there through thick and thin and we are so appreciative of everything you have done.

Please pray that Aimee and I continue to stay strong through these next couple days as we go through what no parent should ever have to endure. We have cried many tears today and will continue to cry many tears for a long time. Kayleigh has been nothing short of a miracle to everyone she has come in contact with and it is going to be so hard to say goodbye when that time comes.

She is our daughter who we will; never bring home to her perfectly painted pink and brown bedroom, never be woken to screaming and crying in the middle of the night, never change those stinkiest of diapers, never learn whose personality she gets, never find out whether she has brown or blond hair, never hear what her first words will be, never see her crawl, walk or ride a bike for the first time, never take her to her first kindergarten class, never show off her "battle wound" scars and tell the stories behind them, never kiss her goodnight every night or read her a story before bedtime, and I will never get to walk her down the aisle. Aimee and I will never hear her say "I love you Mommy and Daddy"

God, please be with us and comfort us. In your precious name, Amen.

The Freemans

273 comments:

1 – 200 of 273   Newer›   Newest»
Jennifer said...

Oh I am praying for you all......my heart is hurting.....
God Bless Kayleigh........

Jennifer
Washington State

Anonymous said...

Every effort she's made and every operation she's made it through has said 'I love you Mummy & Daddy' - you may not have heard the spoken words, but they've been said - it's just your heart that can hear it and not your ears.

You will all be in my thoughts

Anonymous said...

I don't know what to say. I've never posted on here before, but I've been following Kayleigh's story from the very beginning. I've often struggled with my faith, but I do want you to know that your story has touched my heart in so many ways. I don't have all the answers, but I do know that Kayleigh has made me realize how truly blessed I am. Every time I read a new chapter in her story, I hold my own little baby a little tighter and thank God for everything I have been blessed with.

You are such a strong family. My thoughts and prayers will be with you during this difficult time. I can't imagine what you must be going through right now. I'm just so sorry. You are very blessed to have your faith to help guide you through this difficult time.

Lisa

Anonymous said...

someday when you are reunited, she will welcome her mommy and daddy. she will always be with you in spirit.

this girl has shown thousands of people the power of prayer. she has made me cling to my baby so much more, made me hold my husband's hand again. she has taught me how much i have taken for granted and how precious life really is.

you two are brave for letting the world know your story. i feel blessed to have stumbled upon your blog one late night when i could not sleep.

i have cried like a baby reading your entries and i have cheered for all Kayleigh's good days as well.

i sent in a few pics of my daughter GiGi that you had on the blog a few weeks ago. and I am going to put it in my daughters baby book so that i may one day tell her about the sweet girl who i had hoped that we would one day be able to meet.

Kayleigh's life was never in vain. God could have taken her the day she was born but he didn't. She taught us so much. I cry tears of sadness but I want you to both know, that I will never forget her story or your family!!

sincerely,
sarah andrews

Pennie said...

It hurts to turn loose of an angel I've never met but love with my whole heart. I know I will see her in heaven, but until then I will miss her terribly.

My heart is so sad.

I love you Kayleigh.

Holly said...

I have tears streaming down my face as I am reading this. I have followed Kayleigh's story from day 1- and I pray for the strenghth in yourselves to make it through this horrific time. I am so sorry that you have go through this.
Kayleigh has touched so many lives, including my family of 3.
God Bless, Holly from Ohio

Georgia, England said...

Words can't express how sorry l am for you and your family.
Kayleigh is a real credit to you both and will forever be remembered by alot of people all over the world.
God bless you.

Anonymous said...

Hello.. uumm where do I start.. I don't know what to say... I"m at a loss for words.. I've never posted on here before, just checking in everyday, but I've been following Kayleigh's story from the very beginning when I saw the postings on baby center. I've struggled with my faith for many years, but I wanted to let you know that your story has changed my life in so many ways. I don't have a reason or an answer, but I do know that Kayleigh has made my family and I realize how truly blessed we are. Every time I read a new post in her story, I hold my 3 kids/babies a little tighter and say a little prayer and thank god for everything I have been blessed with.

You are both so much stronger than I could or would be. My thoughts, love, & prayers will be with all of you during this difficult time. I can't imagine what your going through. You are very blessed to have your faith to help guide you through this difficult time. Please understand that I am so very sorry and I will make sure I always keep you in our prayers... Love Christina

DANIELLE said...

As I sit hear crying for an Angel I never met, I am also crying for you. I will continue to pray for Kayleigh and her family. I pray that God gives you much strength and holds your hand all the way. Thank you for sharing Kayleighs story with all of us. With all my love and prayers!

Audra said...

I just wanted to say that I am sitting here crying as I read your story. I pray that God will be with you, Aimee and Kayleigh. I have a micro preemie as well...he was born at 26 weeks 4 days, he is my miracle child, much like Kayleigh has been yours. You are remarkable, and I look up to both you and Aimee. Your family will be in my thoughts and prayers always. Thank you for sharing her story with all of us.

Steve said...

Adam and Aimee,

I proudly tell everyone how much Adam shaped my life back in college and now I can always proudly tell people that Kayleigh has done the same. You two have been blessed to have brought someone into this world that has shaped so many peoples lives it is hard to fathom. Most people go through their whole lives having only lived for themselves and never truly helping anyone along the way, your little girl has helped people all over the world in just a few short months. All I can say is that is absolutely amazing! I know I personally will never take anyone for granted again and I will cherish every second I get to spend with my loved ones all because of her! I pray that you two get to spend as much time as possible with her and get to shower her with all of the love that we all wish we could give to her from all over the world. I'm going to go cry myself to sleep for the second straight night and say the most heartfelt prayer I think I have ever said in my life. Thank you again for allowing Kayleigh to be such a positive influence on so many people! God Bless you guys and you know I will always love you guys!

Steve Purvis
Taylors, SC

1 lb 5 oz Miracle Mommy said...

I have never posted on here before, but after taking the past 4 hours to read every single post of your blog, I feel that Kayleigh deserves to know how much she has touched me.
I am soooo very sorry to hear what you are going through, most of which I am no stranger to.
I, too, have a little 1 lb miracle baby - 1 lb 5 oz - almost exact same circumstances as Aimee with preeclampsia, IUGR, and olighydraminos (too little amniotic fluid). Claire was born at 27 weeks and had a plethora of problems - just like your little Kayleigh. She's had 3 surgeries to correct problems that they're STILL not sure about, and she was in the NICU for 139 days from Florence, SC to Charleston, SC... She is sleeping right now. After reading all of this, I had to go and pick her up from her sound sleep and hold her tightly just to let her know just how grateful I am for her.
It has been a long, hard journey for you and I'm just sorry to hear that it is coming to an end (in the most tragic of ways). I am very happy to hear what Kayleigh has done for your marriage, because usually, so much stress has an adverse effect on relationships. Kayleigh is a miracle and she just wanted to show the doctors and everyone who said that she wouldn't be born just how powerful prayer is. She's a fighter and she is a true hero. You are lucky to have been blessed with such a little warrior. She is lucky to have such heroic parents too. I will pray for your healing in a time of such pain and sorrow.
(oh, and by the way, i never would have found you if not for rachel (hannah and carly's mommy)'s button on her myspace)
Stay strong. :(

Carly said...

Sending you my warmest wishes and best prayer. Pour as much love as you can into your little sweet heart while you still have her.

Praying for God to give you His strength peace and love.

We are praying down here in Australia

Love Carly, Sam, Scarlett and River

xxxxxxx

Katie Anderson said...

Oh Aimee and Adam, my heart is so overwhelmed with sorrow knowing what you are going through. Please know that if our Lord is preparing Kayleigh to come home, that he is up there waiting to hold her, to heal her and to make her perfect in a way that we can never be until we are there with Him. When Michaela my little girl went to heaven I never thought I would be able to keep living, I felt as though life was ending not just hers. You guys have helped me so much in finally letting that pain and grief go. I wrote a poem when Michaela passed and thought that for the first time I would share it with someone.

Time is like a rushing wind that passes through my door;
In and out I hear it go with that gentle roar;
Time of sorrow come as the lofty wind blows;
When this time will end;
Nobody seems to know;
For every season there is a time in which we must let go but letting you go to Our Lord is still harder then anyone will ever know. (Katie Anderson 2003)

I hope that this touches you. I have never shared this with anyone else, simply kept it in my mind and remembered it when I am having a really rough day. I am not going to mention to George just yet that Kayleigh is going to see Jesus, however I will if she passes, Right now I will just let him continue to pray for a miracle. I prayed after I read your post to our Lord that when Kayleigh makes it home that he would introduce Kayleigh and Michaela and also my father George to Kayleigh. My father loved children I am the 2nd oldest of 10 and when we lost him 3 years ago, we decided when I was pregnant to name our baby boy after my dad.

Please remember that Kayleigh does think though she can't verbalize and I am sure in her little mind she knows you love her and she loves you.

That's all for now, I need to get back to Sidney's hospital room here at Children’s however I needed to come and check on Precious Kayleigh,

In HIS Grip,

Katie, Steve, Sidney & George

caryn said...

My heart goes out to all of you.
Caryn

Gina said...

Tonight a mother in Australia will tuck her three children into bed and will say a prayer with them for your beautiful little baby.

Imagine how many families around the world in so many different countries will do the same. And why?

Because a tiny baby somewhere is fighting a battle between staying with her parents who love her and leaving to be in heaven where she will be welcomed and cherished.

You daughter has already had such a profound effect on so many lives. She has had a greater purpose and effect on so many people around the world than we can begin to comprehend.

Our thoughts are with you....

Melanie said...

My thoughts and prayers will continue to include you and your family. Peace be with you. Let the Lord be your strength when you feel you have no more.

With love and sympathetic hearts,
The Hills

Erin said...

I've never Commented because I always said my prayers for you and I thought that would do better than anything I could ever say, but tonight I sit here crying not knowing what to do. Tonight I pray that God opens his arms and holds all of your family in his embrace, so that you can truely see Kayleigh as the ANGEL she has been and always will be. Your whole family will be in my thoughts and prayers as you have been for awhile now. Please take care of yourselves and know God is there with you to always walk beside you, and if you can not walk he will carry you.
HUGS

Christine said...

I'm hurting for you right now. You will all be in my thoughts. I'm so sorry.

Mrs Redboots (Annabel Smyth) said...

I am so sad for you; you will be devastated but not, I think, destroyed. And, as I said yesterday, I know that when God welcomes her into his loving arms, his heart will break for the sadness that has been left behind.

I am glad that you have had these months with Kayleigh; despite everything, I am sure that you are glad, too.

My prayers are with you today.

jlwgator said...

I am devastated. You & Aimee continue to amaze me with your strength, courage, grace, and enduring love. I cannot begin to imagine how hard this past year has been, but especially since Kayleigh was born. She was definitely brought into this world for a reason and I feel honored to have been allowed to know her story. I hope you continue to have the strength to help her make her life something hugely meaningful for others. Thank you.

Andrea said...

I can't find any words........your strength and faith in God continues to amaze me and know that you continue to be in my thoughts and prayers. Thank you for sharing Kayleigh with us. We are all better people for knowing her and your family.

Anonymous said...

I have only commented 2x before. But I have checked in everyday since your beautiful daughters birth. You are in our prayers and I am overwhelmed with sadness for you and your family

mrspuddin said...

I'm in tears, Kayleigh has touched so many people in her little time here. People from all over the world are praying. Love you guys, even though I don't know you.

Anonymous said...

My love and prayers to you this morning. I have read and seen the pictures you have posted. Your little girl loves you Mommy and Daddy, no doubt. Your love for her is incredible.......now imagine how much more you Father in heaven loves you and Kayleigh. It's hard to fathom. You and Kaleigh are in the hearts and prayers of many and I hope this will carry you today.

With love...a sister in Christ.

Keri said...

As you turn the corner and head down what must the darkest stretch of this long road you have traveled with Kayleigh...please know in your hearts that your daughter, your family, your story, and your untiring strength and faith in our lord have touch so many people. It has renewed my faith in God and made me to strive to be a better parent. Thank you. I pray for you and your family as you enter this painful part of your 'story'. May you find peace and support in each other, in your family and the even larger 'cyber family' you have created by sharing your story.

Michelle Jamie said...

But now thus says the LORD,
he who created you, O Jacob,
he who formed you, O Israel:
"Fear not, for I have redeemed you;
I have called you by name,
you are mine.
When you pass through the waters, I will be with you;
and through the rivers,
they shall not overwhelm you;
when you walk through fire
you shall not be burned,
and the flame shall not consume you.
For I am the LORD your God,
the Holy One of Israel, your Savior.
I give Egypt as your ransom,
Cush and Seba in exchange for you.
Because you are precious in my eyes,
and honored, and I love you,
I give men in return for you,
peoples in exchange for your life.
Fear not, for I am with you;"
Isaiah 43:1-5a

Chase said...

God Bless Baby Kayleigh. There is nothing I can say to take away your pain, but I can tell you that I find comfort in knowing Trey is in a big rocking chair in Heaven, with my Grandmother who I love dearly. He has no more pain, no more needles, no more pokes and prods by doctors and nurses. All he feels now is love. No matter on Earth or in Heaven, Kayleigh will always feel your love.

God has a plan for everyone, some day, you will understand.

I have been in the room you are in now, please email if you want some support. I will understand if you want to be left alone right now, but know that I am here, whenever you need me.

Thank you Kayleigh for being the tough little girl that you are so you and Mommy and Daddy could bond for so many months. You have touched so many lives, people from all over feel as though you are a part of their family, we've all gotten to know Mommy and Daddy so well. I'm sure you have given Mommy and Daddy a whole new appreciation for life and shown them what in this world really matters. I hope Mommy and Daddy know it takes a VERY special couple to make an angel, and you certainly are one.

Amy and Adam, If Kayleigh finds her way to God, I hope you can find peace in her new found comfort.

I want to keep talking, hoping I say something to give you comfort, even though I know how impossible it is.

I will pray for strength for the entire family. Thank you for being such loving parents.

God Bless~Heather

Anonymous said...

I am going to believe that God is going to heal your little angel so that she can be a testimony to the world! No matter what the outcome, she has already touched my life and made me appreciate my little boy so much more! My son had a VSD repaired on Nov. 20, but I cannot even begin to imagine what you are going through. May God give you peace!

momof4beautifulbeauties said...

I type this with tear-filled eyes. I never met Kayleigh, but I love her.
I could not imagine what you guys are going through, but pray for you and Kayleigh daily. I still hold out hope that God will perform a miracle for Kayleigh............
Through your story you have helped me and my family become closer to God. Thank You for that. You and Kayleigh will always be in my heart <3

Danielle said...

you guys have touched so many people with kayleighs story. she really is an angel and im glad i had the chance to read her story =]. stay strong ♥

kristyo15 said...

My heart is breaking for you and your entire family. I can't imagine your pain, and I just pray for God to blanket you in peace and help you thru this.

God Bless,
The Owens

Brianne said...

As I sit here and read this, my heart breaks for you. I have prayed for your family starting the second I read about Kayleigh's story, and have never stopped since. I'm sorry that you have to go through this. No parent should ever have to go through this. But, it's God's plan. And His plan is the best plan there is. I hope you find peace in knowing that you will be reunited with your sweet girl again in Heaven. And, when you see her, she will have a healthy heart, and won't have to suffer through everything her poor little body has been through the last 5 months. You are being uplifted in my prayers so much, and I pray that you will continually feel God's amazing presence with you during this time. I wish that I could hug you, cry with you, be there for you, and tell baby Kayleigh what a precious angel she is to everyone. Please just know that you have touched so many people's lives. It has been an honor praying for your baby girl, and getting to see the pictures of her beautiful little face. Your baby girl has shown what a true fighter is, and has inspired so many. May God's peace be with you.

*Hugs* and Love,
Brianne

For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11

Kayleigh's future is holding hands with the most amazing being ever. That in itsself is amazing!

GiGi said...

Please God be with the Freeman family in this very tough time and hold Kayleigh in your arms as we know she is so special and we all love her very much.
Help us to understand. AMEN

Anonymous said...

What an amazing little girl Kayleigh is... She has brought total strangers from across the world together to pray for a common cause. In her short little life, she managed to make complete strangers renew their faith in God, strengthen marraiges and help countless moms squeeze their children a little tighter at night.

Although I live hundreds of miles away and have never met you, I have been forever touched by Kayleigh and not a day goes by that I haven't thought about her and your family. Thank you so much for sharing her with us.

Praying for comfort and peace for your family.

Blessings,
Aimee Gillespie - Michigan

Toni Conrad said...

Just know that you did everything for Kayleigh that you could. I already told my little Kendall to look for Kayleigh when she is in heaven and to play with her. You will have a beautiful angel looking out for you for the rest of your lives. You will see her again... I know she loves you both and will be definately talking you up to GOD. I am praying for a miracle... With Love

Jessica Gautreau Rochester NH said...

My heart goes out to your family. And I am sorry to hear that things have turned. Please know that ypur family is in my prayers. Kayleigh sure is a beautiful little girl and she will make and Absolute gorgeous Angel in Heaven.

Evie's Story said...

Hurting with you. Knowing a taste of what that feels like and beseeching the Lord to be a strong source of comfort in a crumbling world. THank you for your example of faith.

Love and prayers
Mandy

Joja said...

I am deeply sorry! You all have taught us not to take things for granet, to love our kids & family even more. I look at my 10 month old daughter and I cannot imagine the sorrow you are expierenceing. All the things a parent takes for granet we soon forget to realize what a burden to us is a blessing to others who will never expierence them situations. I came on here every morning to check on sweet Kayleigh and I pray she find her way home. I am in tears and I know you both will make her proud. She will always be your little girl.

Anonymous said...

My heart goes out to you. I have been following Kayleigh's blog pretty much from the beginning and it has given me even more strength to get through my life. I don't have children myself, but I don't wish this on any parent. Please know that I am praying for all of you, and hoping God continues to give you the strength to get through this difficult journey. You are right about Him being in control and He knows what's best even if we have to suffer here on earth.
In His Name,
Michelle

Jennifer Williams said...

pls 4 give me if this comes out messed up, i cant stop balling mye etes out!!

i am so sorry that you have to go through this, just know that you have a great support system here, i cant tell you how sorry i am but i can tell you that i know its hurtful i have lost a baby in 2005 i cant say i know how you feel, because i dont just be thankful for the time u have had her with u. i am so sorry!!
ill be praying for god to keep you and amy strong for the other kids they will need u just as much as u need them.

Carol Ann said...

Adam and Aimee, there are no words. All we can do is let you know we are here for you. If we can do anything at all please let us know. We are praying for all of you. God bless you all. Your beautiful daughter will forever remain in our hearts.
The Nadeau Family.

Anonymous said...

There is another precious KALEIGH to welcome your precious KAYLEIGH. There are so many unexplained things of this life which reinforces the need to concentrate on getting to the life that makes sense. God has used Kayleigh in such a mighty way. Faith has been renewd, marriages have been strengthened, friendships have been restored, God has been glorified....please feel the arms of SO MANY around you especially in the lonliest moments...God in heaven understands, loves and weeps with you.

Anonymous said...

Praying for your family!! She has touched the hearts of many, many people whom you probably do not even know.
There are mother's who have been taken from their lives too early and have left their children behind. Those mother's will hold, love and mother your daughter until you can be reunited.
Much love and prayers to your family during this hard time.

The Miller Family said...

Not only has Kayleigh touched many lives but you two have touched even more. Your strength is beyond words and is what has given Kayleigh all the strength she has needed through this. It seems like there are so many "nevers" but there are also so many moments you have shared with her. Moments that most of us don't get to experience in a lifetime. You really KNOW your little girl inside and out and appreciate her for who she is. You have been blessed beyond what is believable. I am thinking of you and wishing you LOTS and LOTS of strength.

-Tiffany Miller, Blacksburg, VA

Anonymous said...

Never did I think I could love a baby whom I never met so much. Kayleigh has been my cyber baby and I love and pray for her so many times a day. The tears pouring down my face right now are more for you and Aimee as I know that Kayleigh will be "whole" in heaven as she dances among the stars with my two angels.

God bless you all and may Kayleigh go peacefully when the time comes. Whether that be soon or by some miracle a lot later.
With love from Southern NH

annaandallysmom said...

Kaleigh has changed my life. I found the post on Babycenter and read them all on the day that Kaleigh was born. I had just been told that I was pregnant with twins but one had passed away and that I should prepare for the other baby to do the same. I got on the computer looking for a shred of hope, and found Kaleigh Anne Freeman. She gave me something to think about other than my own situation and showed me that no matter what the doctor's say that God has the final word. In that time I was sent home with pain meds and told that there was no hope for my baby. But praise be to God I have a beautiful little girl now. Thank you Kaleigh for giving me hope and reminding me what faith is. I love you and your family so much even though we have never spoke or met. Maybe you and my little girl that passed away can play in heaven together. I bet she probably has blonde hair and blue eyes like my other babies. I am sure she will love you!!!

We Love You So Much,

Monica, Anna, Allyson, and Autumn Knighten

Anonymous said...

I am at a loss for what to say. I am so sorry that your family is having to go through this but Kayleigh will always be with you. Kayleigh has taught me to cherish my children more each day and to also give them an extra hug and kiss to let them know how much I love. I will praying for Kayleigh and your family.

Anonymous said...

Kayleigh has touched so many of us that don't know her as I sit here and cry, I know that Kayleigh has done her job here on earth she has helped more people then she knows, don't worry she will always tell you in her own angel way that she loves mommy and Daddy, May God be with you through this hard time, and help you understand his reasons for why things happe.

Anonymous said...

I'm continuing to pray as hard as I can. Both for Kayleigh and for you and Aimee. I was one of the people from Babycenter who followed Aimee's story from the very beginning. Please tell her that I truly admire her (and you) for NOT listening to the doctors and giving Kayleigh a chance at life. It seems not many people these days have the guts to stand up to those in the medical field.

Kayleigh and your family are truly an inspiration. If God does decide to take Kayleigh home, Heaven will be 1,000,000 times brighter because of her. God bless you all during this most difficult of times.

With Love,
Sarah in PA

Anonymous said...

I have been following for quite sometime now, but don't typically comment. However, I was moved to tears as I read your post. My heart hurts for you in ways that I can not express. I am still praying for your beautiful daughter and your family during this time. God bless...

Andrea (Fort Wayne, Indiana)

Shannon K. said...

I sit here and I just can't believe it. I've been following Kayleigh for so long...your blog is the first I check each morning and the last I check before I go to bed. I feel attached and I'm so, so sad. I can't help but to still have faith. We love you Kayleigh.

Anonymous said...

God bless you sweet baby Kayleigh.

Adam and Aimee, over the next few days I will be praying continuously for you and your family. Know that time will ease your pain, God will provide you strength, and every memory with Kayleigh will become a treasure.

-Lorna
(Mom to Tyler and Addie, and my own angel Hayden)

Natalie said...

What a prescious prescious gift she is! My heart is breaking for you. You are in my prayers today and everyday.

Madame Squid said...

What an extraordinary experience you guys have had with Kayleigh. I came across your blog through Carly's and caught up on your story yesterday. I AM/WILL BE praying for you guys. These are the hardest, snottiest (is that a word?)teary(est?) most bittersweet moments in your life. God bless little Kayleigh on whatever journey she takes in her life, on this earth or above, may He hold her in His perfect arms in peace and love. May you both be showered with peace. Our worst fear can be that our child's life, so precious to us, may be forgotten or made light of as time passes. I will remember Kayleigh. If she so happens to go and live in the Lord's House, I hope my little Zoe is there..ya know...to show her around =)
My heart is with you....M.S.

Sarah said...

I have been praying since day one that this day would never come...apparently God had other plans. I'm having a tough time with this so I can only imagine what you guys are going through right now. I'm praying for you guys...give Kayleigh a kiss from us...

Anonymous said...

Reading the blog this morning was rough, and I have to say that your strength is amazing and I know that you have your strenght from God. I've been praying since the very beginning when Aimee posted on BBC and my heart is so sad with this news... I'm continually praying that God will keep your family strong and still praying for a huge miracle! Keep the Faith and God Bless!
Beth Santagata
Long Island NY

Angie said...

my heart is with you and your family...u should b so proud that u have such an amazing little girl...she truly is a little angel.

Anthony's Mommy said...

I wish i could reach through this computer and hug and cry with you two! I also lost a child (Anthony's twin) and I have to say it was the hardest year of my life. I know the pain and I'm glad you and Ammie are so close you can hold each other and greive together.

Kayleigh is a miracle. She fought hard to get here because she wanted to meet her mommy and daddy. She knows they lover her more then life itself. She has such a strong soul! Kiss her, love her, tell her all the dreams you had for her. I never got to say those things to my daughter. And give her a kiss and hug from all of us!

Kim

Robyn said...

Such heart heavy news, I'm at a loss for words. I'm keeping all of you in my thoughts and prayers.

Julie said...

I just only learned about Kayleigh yesterday, but I read your entire blog, crying for the tough stuff, cheering for the good stuff, and Praising God for the whole thing.

I don't know how you feel, and I don't know what to say, but I'm praying that whatever God's will is in this situation, that He will hold your family close to Himself and that you will know without a doubt that Kayleigh was (and is) a miracle that God sent here to change your lives and the lives of those who hear her story.

Your sister in Christ.

Dalila from NJ said...

Words can't express how sorry I am. I'm here crying for an ANGEL I have never met. My heart is hurting for you and your family. Please know that Kayleigh's journey has taught me a lot.

God Bless you all.

Anonymous said...

I have followed your story from the very beginning when Aimee posted on the baby center board. but never posted. You have been in our prayers every day. Your little girl has touched our hearts and lives. Just wanted to say that we will continue to keep you in our heart and prayers.
God Bless,
Carol in Prescott Valley, Arizona

Kristin said...

I stumbled upon your blog a few weeks ago and have been checking in on Kayleigh every day since. I am so sorry for your loss, I can't imagine what you are going through. But your family is such a testament to Jesus, to see how in the midst of tragedy you continue to have a thankful heart is just amazing. May the Lord bring you peace and strength. We are all praying for you.

Amanda-The Family News! said...

My heart and prayers go out to you. I have followed your story when I first found you on Angel Annabelle Lynn. I have to agree with some of the comments above.. You may not hear Kayleigh say the words I love you - but she does deeply. She will always love you for being here with her and loving her. Tears just flow as I read and type. Please tell Kayleigh we all love her very much and she has indeed touched our lives.
Amanda - Spartanburg, SC

Anonymous said...

God Bless all of you and baby Kayleigh. She is a miracle from God in so many ways. I am going to put my favorite picture of Kayleigh you have posted in my mind, the one of her not too long after she was born where she is laying under the lamp sunning herself with a pink blankie covering the lower part of her body. She looked so happy!!! Thank you for sharing her story as it CONTINUES to touch the lives of so many others in so many ways.

Prayers for all of you!
Terresha in KC

Head Nut said...

I have been reading for some time now but never commented. You are all in my thoughts and prayers. May the Lord give the two of you strength to make it through this difficult time. May He also make Kayleigh's passing as peaceful and painless as possible.

AL VIENTO said...

I have been reading the blog since september, your daughter has been an angel since the day he was born. My prayers are with you and I am sure she will be near God forever. God bless you.

astrid monzon
Guatemala City

LMP said...

My heart is heavy with this news. I had been praying that this day would not come. Her story has touched my heart and I think of her often throughout the day even though I only know you through this blog. What an amazing impact she has made on the lives of strangers. It is an amazing gift to be able to do that. I am reminded of just how fragile our lives really are, so in our family we will strive to love more and worry about the little things less. I am still praying for all of you. God bless you.

DaSheka Williams said...

Oh goodness! This breaks my heart. I know there is nothing to say in this situation. Only that I am sooo sorry and your entire family will be in my prayers. Everything you said in this last post is true. Kayleigh has touched the lives of so many people, myself included. To be so little she has changed my life so uch and helped me through many hard situations.

God Bless!!

DaSheka

The luckiest Wife and Mom in the world! said...

You guys are truly amazing parents! God could not have picked better parents for Kayleigh!Your story has touched me and our family in many ways! Being a Mom of a 28 week baby who made it out fine in the end. Makes me realize how blessed we are to have her. I look at my kids everyday different and cherish the things I might have before following your blog. Kayleigh has made a difference in our life! I thank you for sharing your journey with us. And I pray that God continues to give you guys the awesome strength he has already given you. Just think one day you will get to hear her say I love you Mommy and Daddy! The best things in life are worth waiting for!! God bless you guys.

Anonymous said...

I just want to let you guys know you and your family are in my thoughts and prayers. You are going through what no parent should ever have to go through and yet you seem so strong. I know if it were my daughter I would not be as strong as you guys are. Just know Kayleigh's story has helped me through some tough nights with my daughter. I lover her dearly and can't not imagine how you feel. Once again I am praying for you guys!!!!
Ashley

Anonymous said...

I have followed your story since BBC, and you are in my daily prayers. I am so sorry things are not looking so good right now. I have my enitre family praying for you during this hard time. Miracles do happen, but if God chooses to bring Kayleigh home just know she has touched so many lives. You and Aimee are so strong and your belief is truly inspirational. Thank you so much for sharing your journey will all of us.
M.

Christy said...

My heart goes out to you all.. Kayleigh is an amazing little girl.. May God's hands be with you all through these rough times...

Shannon and Stella Grace (Former 26 week preemie) said...

I'm am so very sorry to hear that Kayleigh has taken a turn for the worse. I can't even begin to imagaine what your family is going through right now. Just take comfort in the fact that you have spent the past five months with the most amazing little angel. She has touched so many people during her short life. Thank you for sharing the story of your beautiful little miracle.

Anonymous said...

Your family and little Kayleigh have all of my prayers!!

Julie said...

Be joyful in hope, patient in affliction, faithful in prayer.
Romans 12:12

<3 The Flood Family

Natalie said...

I really don't know what to say. I feel so selfish worried about my daughter's diaper rash, and if she's crying at day care. Kayleigh has touched me in so many ways. I just looked back in your blog at those days where she was so strong and we were all so hopeful. She has been such a blessing from God. She has overcome so many obstacles and grown into such a wonderful baby, I can't imagine having to let her go after all you've been through. As you well know though, you will gain your strenth through God and through prayer. One thing I will do to remember Kayleigh, is something that you mentioned earlier, I will thank god for every sleepless night that he gives me with my daughter, every time she cries out, and is frustrated, I will thank god for it! I will be praying for you in the days, weeks, and months to come as I have been praying for Kayleigh.

Anonymous said...

Adam and Aimee, I have been reading Kayleigh's story since Aimee was first posting about her pregnancy on BBC Pregnancy worries and complaints. I have grown to really admire and love you guys through your struggles and hopes. Kayleigh has had so much love from you and her whole family and I know she has felt that comfort and love. God has used you to bring so many people together in prayer, hope and support for Kayleigh ad your family. I am so sorry. I know God is with you. Hold on to his hand.
Heather

Tracie said...

Many, many prayers coming your way. We're still praying for a miracle from God.

May God walk beside you and comfort you.

Brittni said...

I've read Kayleigh's blog from day one and I would pray for you, Aimee and Kayleigh every night. I still to this day continue to pray and hope that God gives us a miracle for her.

You and Aimee are so strong and I admire the strength and love you guys have towards God and Kayleigh.

My heart hurts for you as a family right now.

The Shumards said...

There are no words to express my sadness for you. Kayleigh is a miracle and has touch the lives of all of us. Never forget that without her you would not have helped so many people with their faith, including myself! God will be with you through the rest of this journey and He will never leave you. I am so sorry for what you have endured and will endure. You will be in my prayers and thoughts and because you chose to share your story with all of us, Kayleigh will not only be missed, but NEVER forgotten!

bri said...

There are truly no words. The heart can feel much deeper than words can reach. We are here praying for your peace and comfort!

Father be with the Freeman family and all that surround and support them. Please bring those involved closer to your throne Lord. Bring them on bended knee to reveal the true hurts behind the scars God. Remove the scales from their eyes that they may see you in a new light.
Lord I pray that you would carry the Freemans through this valley and lavish upon them the love and peace that they so desperately need right now!

IN your precious NAME AMEN!

Anonymous said...

Praying so hard for all of you right now.

Becky said...

I am hurting for you. When my Gabrielle passed I took comfort in knowing that she was in Heaven with my great aunt, who was like a grandmother to me. Losing Gabi was the hardest thing I've ever experienced in my life.....I hurt knowing that someone else may have to go through it.

I'll ask Gabrielle to keep a look out in case Kayleigh goes to God. I'm sure they'd be good friends.

Love and prayers,
Becky

Jenny said...

Praying, praying, and praying some more! So many people (including myself) take so much for granted. May the Lords will be done and may he continue to wrap his arms around you guys so you can feel his presence. I was so sad to read what I read this am, but Kayleigh's story has helped me realize I have so much to be thankful for.

Jenny, Cola. SC

B said...

Like I said before, when Kayleigh dies, part of me feels hurt and dead because I know what it feels like to lose a tiny loved one because my little brother is with Jesus. I am crying tears of joy for you guys because I know she will be with my little brother. She can save your spot in heaven. She will be up there cheering you guys on "look at me now mommy and daddy, no more pain!" I have grown to love that little angel :( I am so sorry for your loss, just know my brother Mario is in heaven with her. May their souls rest in peace. I hope that for the rest of your life, you guys see this as a blessing in disguise because if you don't it will trouble you forever. For a while, my brothers death made me angry, then I realized he was with the Lord our savior. Remember, please Adam and Aimee, that this pain will not be so bad in a few years. It has been 10 years since my brother has passed and I am doing so much better now. He was only four months old. Sorry for rambling on its just that I am crying, I feel your pain. I see the hurt behind your eyes in your pictures. :( When Kayleigh goes to heaven, I will tell my brother Mario to hold her hand and tell her how much you guys loved her and that you guys never wanted her to feel any pain. I miss Mario. I am sorry I will go now. You are in my prayers, I can truly say I love you my brother and sister in Christ. I love Kayleigh, I love all of you. My best wishes to your family.

Adam and Sherry said...

My heart is aching to give you all a big hug. I don't know what else to do but tell you to cry and hold her as long as possible. I have lost 2 babies also but none that I was able to hold and love like you have been able to hold Kayleigh. Just hold her and love her for as long as you can. You are in our prayers.

Adam and Sherry said...

My heart is aching to give you all a big hug. I don't know what else to do but tell you to cry and hold her as long as possible. I have lost 2 babies also but none that I was able to hold and love like you have been able to hold Kayleigh. Just hold her and love her for as long as you can. You are in our prayers.

Adam and Sherry said...

My heart is aching to give you all a big hug. I don't know what else to do but tell you to cry and hold her as long as possible. I have lost 2 babies also but none that I was able to hold and love like you have been able to hold Kayleigh. Just hold her and love her for as long as you can. You are in our prayers.

Anonymous said...

Words cannot express how much that Kayleigh's life has affected so many. Your faith even in the midst of these times is encouraging to those of us who know you. My prayers are with all of you as you prepare with walk this road. Know that God has promised to be there with you.

(((Hugs)))

Gina

Anonymous said...

You guys and your beautiful daughter are in my thoughts and prayers right now.

Misti from BBC

janellec2003@yahoo.com said...

OH my this is far the saddes post, I have had Kayleigh in my prayres and thoughts 24/7 Im so sorry to hear she is coming to the end of he road. I would like to let you know that there is a company that will cast Kayleighs hands feet she can beholings you finger it is a very nice peice for sweet memories to have (I lost a son at 6 weeks and wish I had known about this) so i'd like to have the information its www.weepiggies.com
you can search your area for a local rep. I know this is the most difficult time you are having I will continue to pray for Kayleigh and the Family I just wish for her to have another miracle happen ether way she will be at peace and always loved bu her family and many others. She has made a HUGE impact on my lofe and hs made me value more each and every day to be blessed for all we have and have lost.


Thinking of you during these difficult times.

janelle in az

ERICA said...

FIRST OF ALL I AM NOT GIVING UP HOPE! THERE IS ALWAYS A CHANCE AND THAT IS WHAT KAYLEIGH HAS BROUGHT TO ME AND MY FAMILY! MIRACLES HAPPEN AND THERE IS ALWAYS HOPE.
SECOND OF ALL I WANT TO SAY "THE FREEMANS ARE THE MOST AMAZING FAMILY I HAVE EVER MET! THANK YOU THANK YOU SO MUCH FOR LETTING MY FRIENDS, FAMILY AND I INTO SWEET KAYLEIGHS LIFE AND YOURS!
THIRD I AM PRAYING SO HARD FOR KAYLEIGH RIGHT NOW! ITS SO AMAZING HOW THROUGH YOUR WORDS I HAVE GROWN TO LOVE KAYLEIGH! GOD BLESS YOU KAYLEIGH!
FOURTH I AM PRAYING FOR YOU ALL!GOD BLESS YOU! YOU ARE ALL AMAZING!

:*( <3
ERICA
MOMMY TO 2 BOYS
1 WHO WAS A 31 WEEKER

Heather Marie said...

My heart aches so much to read this post. This story has touched many lives and has helped me seek a better relationship with God. I will pray for you and your familiy and for Kayleigh. She truly is a miracle from God :)

Nikkie said...

I just came across your blog yesterday so I barely know anything about your little girl or the struggles that y'all have gone through, but my heart breaks for you. I am the mother of a baby who was born at 1 pound 7 ounces, so I know of some of the struggles you have faced, but I can't even pretend to understand what you are going through now.

I am blessed to see the strength of your faith. Like you I have a strong faith in Jesus Christ. My husband I would not have made it through Brady's journey without that. I will be praying for your family. It's amazing to see the sorrow that had been spoken of from people who most likely don't know you personally but know you b/c of your little girl. I am sure someone's faith has been strengthened because of you amazing story of your little girl.

Theresa said...

I am so sorry. We've been praying for you guys and more than ever praying for a miracle. I appreciate you sharing your journey with us, as it has taught me to appreciate life more, and to never take one moment with my baby for granted. Thank you Jesus for Kayleigh and for showing Your love through her.

Anonymous said...

Just imagine. . . little Kayleigh at the gates of heaven being asked "What have you done for me child" and she answer's "Precious Daddy, you already know, through my story so many are closer to you." What an amazing thing that can happen from such a little child and in such a short time. Your family is in my thoughts and prayers through this difficult time. Your faith is a testimony to all. Thank you for sharing your journey.
Wendy in SC
A friend of the Joye's.

Lisa said...

Adam and Aimee- I have been following Kayleighs story since Aimee first posted about Kayleighs diagnosis on babycenter.. I swear God lead me there so I could be one of the thousands of people who got a chance to "meet" and fall in love with Kayleigh! Your little girl has touched my life in so many ways- I want to thank you guys and Kayleigh for everything you have given me and taught me. I can not express how sorry I am that she is not going to pull thru this last obsticle.. but with a heavy heart I am so thankful that I had all these months to get to know the Freemans. You are both such wonderful parents and inspire me to be as wonderful as you are. I could never understand how someone who was going thru the toughest thing in this world could remain so positive and I think now I am realizing that Kayleigh is why- you are so blessed to have had her for these last 6 months, so blessed to have been able to hold her in your arms and so blessed to have been able to touch so many lives thru her ups and downs. I continue to pray for you and your family always.
With love
Lisa

The Woollard Family said...

I'm speechless. Kayleigh's story has touched my heart and my life in such a way that I cannot explain. To read this post brought tears to my eyes and a shortness of breath. Your family has more strength and faith then anyone I have ever known. I pray that God takes Kayleigh in His arms and when the time does come for her to go to her eternal home in Heaven, that she goes peacefully with you and Aimee right there with her. We are praying for all of you. God Bless...

-Heather, Joseph, & Bailey Alyse Woollard

Anonymous said...

Aimee, Adam, Allyson, Brandon and Kayleigh, God has done so many amazing things through all of you. Personally your story has made my faith stronger and taught/reminded me of so much about prayer, faith and how amazing God is. Keep trusting in him and know that there are so many people out there praying for you. I pray that God will bless you in the future in ways that you can not now imagine and that he will comfort you and give you strength.
Trust in the Lord with all your heart Proverbs 3v5

Amber said...

Kayleigh has been such a miracle child and by reading all the posts I feel so lucky to have gotten to know her (not personally just through your heartfelt writing). She is a true testiment to God's faith and that the power of prayer has changed her life and yours forever. She has done more in her short few months than most people do in a lifetime and for that I can have peace in knowing she will be in a place where there is no more pain or suffering. I sit here crying because most people do not realize how having a healthy child is such a blessing from God and how much is taken for granted each and everyday. Kayleigh has taught me how to love my child more, not to be so selfish and to give of myself, be a better wife, and a follower of God. Just like many others she has changed my life forever which I think was part of God's plan for this little precious angel. I am sad that God cannot heal her this time but sometimes it is just better to leave it up to Him and trust that He knows best because He has the ultimate plan. Remember we are not ever promised tomorrow but we should rejoice in today and the time we have had with her here on Earth. Adam and Aimee you are an inspiration to many because your faith in God and sharing your little angels story has been very powerful and I think God has blessed you with such a special gift because he knew you would share her story and lead others to Christ. Thank you Adam, Aimee and little Kayleigh for giving so unselfishly to me and I pray that she will find peace and love in His light forever.

May God bless you and your family at this difficult time and wrap his Powerful arms around Kayleigh.

Amber Hoberg
From Texas

Anonymous said...

Oh, Aimee and Adam - I am so, so sorry and my heart is truly hurting for you. I have never posted anything before, but I've been following your story for a while now. I am praying for you during this difficult time. Please now that your precious little angel has touched our lives so much & even though it's hard, I kind of feel like what better Christmas present to God than to have His precious Kayleigh back into His safe, loving arms.
E. Fuller
Houston, TX

Brittany said...

My heart literally is aching. Following this story from the beginning up until this point has been nothing short of a miracle in mine and everyone elses eyes. Kayleigh has done nothing but beat the odds in everything she has done and it breaks my heart into pieces that it has come to this. I will keep hoping and praying for another one of our lords wonderful miracles. Kayleigh has changed my life and I never even met her... but she has made me so much closer to my lord. I can't thank you enough for your beautiful daughter and thank you for sharing your story. Please don't lose hope. And know we are all praying for little Kayleigh.
<3 Brittany

craig said...

I, like many others, have been following your story. Just wanted you to know that my heart, thoughts and prayers are with you today and in the coming days. Your daughter is beautiful and I am glad you have each other to lean on for support.

mommy2aje said...

My hear just aches for you all. I came across this blog and have been following this journey. No one ever knows what path you will take you just need to leave it out of your hands and know that there is a plan. Very hard to do! God Bless You!

Samantha said...

I have followed your story since the very beginning, and my heart hurts to read your latest entry. Please know that I am thinking and praying for Kayleigh, you, Aimee and your whole family. You are both such wonderful, inspirational people and I really feel that you have brought God closer to me, in my life. Thank you for that.

Kayleigh is much loved and thought of within my heart, as well as the countless people around the world whose lives Kayleigh has touched in the most extraordinary ways..

May God be with you and your family during this difficult time.

Sarah J. said...

My heart is breaking for you, for everyone who has had a chance to know Kayleigh and to be blessed by her. I hope that you are able to find some small comfort in the number of lives that have been touched by Kayleighs amazing spirit. We are all sending you our strength, love and prayers. I was talking to my husband about Kayleigh last night and he said, "honey, just think Kayleigh's life has already had more of an impact then yours or mine, thats her story, thats her purpose" how true that is. Kayleigh will be remembered always in my house and in our hearts.

Lord please hold Kayleigh tight in the coming days. Let Adam and Aimee feel you all around them.

"My grace is sufficient for you, for my power is made perfect in weakness." 2 Corinthians 12:9

Sarah J. said...

have you thought of calling Now I Lay Me Down to Sleep? I saw their link on your sidebar and had heard of them previously..they really do do beautiful work.

Jennifer said...

Kayleigh is a miracle and she has touched so many lives. I personally will never forget that she has been an inspiration to me in a really hard time in my life. She has tought me to not take for granted the time we have with the people we love. You all our in my prayers through this difficult time.

Desiree said...

Freeman family-
I have never posted here, but ever since Aimee's time on Babycenter I have been following your updates and blogs every day and praying for a miracle. I'm still doing so. Whatever time Kayleigh has left, be it hours, days, or even years, she will bask in the glow of your voice and touch and know she is loved. Never doubt that. As a NICU nurse myself, I know the power of touch on a sick baby.
If the time comes to make this choice, remember you can ask to hold her without machines and cuddle her peacefully and quietly on her way to heaven.
Hold on to her precious memory in your soul. Find a way to live in her honour. Your faith in God is inspiring, and I thank him that your family is so close to him-he will get you through this. Your sweet little girl has touched so many lives, and become a part of their everyday lives, even here in Canada. My heart is breaking for your family, and sweet Kayleigh. I am so sad, but not giving up hope for a last minute miracle. The support and prayers will never end.
God Bless,
the Lockhart family
Calgary, Alberta

Anonymous said...

I'm at a loss for words. I have been following Kayleigh's story from the beginning. Every morning when I get into work, I jump right onto your blog. Some days I've cried, some days I've laughed and everyday I've prayed. I hope that out of every ounce of strength Kayleigh has, that she leaps through this hurdle. She has proven to each and every one of us that through God, anything is possible. She has shown me just how blessed I am. Please know that she does love you, more than anything. Even though you can not hear the words, you feel it in your heart everyday. I wish that you and your family cherish your memories with Kayleigh forever and always remember her time here on this earth. She is truly loved by many.
Sincerly,
Ashley

Tammy said...

Like many others I have never posted a comment before. I wish, I could find the right words to ease your pain, other than I am I will prayer for your family.

Anonymous said...

I like the others am at a loss for words. I read this post this am and tears started streaming. Bless her sweet sweet little heart. She has touched so many peoples lives and will never be forgotten by any. Big hugs and lots of prayers!

Addisyn Grace said...

I am so sorry you are going through this. If it means anything, her story has certainly helped me with dealing with my own preemie and her ups and lately, her downs. My hope is that a miracle happens and Kayleigh will be OK. You just never know.

Melissa said...

Adam and Aimee -

With lots of love, kisses, and long distance hugs.....we are thinking about you every moment of every day. Please please please please please let me know if you need ANYTHING.

Betsy said...

I sit here with my heart breaking for all of you. Know that you all are in my thoughts, prayers and heart. Kayleigh is an AMAZING little girl and I will never forget her.

Love to you all!
Betsy

davejakesmom / bbc said...

We love you Kayleigh! You have touched our hearts so deeply. Stay strong Adam and Aimee. You two have truly inspired me and my family. My September baby and I have been hoping and praying for you all.

Melissa said...

Kayleigh has touched so many people. We will continue to pray for her and your family. The power of prayer works miracles!
~There is no foot so small that it cannot leave an imprint on this world~

Melissa
Gardner, KS

Ali said...

I shouldn't be the one crying, but I am. And, of course, I am praying. I continue to learn so much from you both. You are the strongest parents I know. We've never met, but I love you and Baby Kayleigh with all my heart.

Anonymous said...

Im praying for you and your beautiful sweet girl. Kayleigh has shown me what love and strength are and that i should appreciate all I have and love my family and my children every second everyday.

Anonymous said...

Praying for you and your family and especially little Kayleigh.

Kelly Andrews said...

I have read your story from the beginning and I can't imagine what you are going through but know your little girl has changed me in ways I can not explain. I hold my boys a little closer and hug a little longer because of your beautiful daughter. I am in awe of your faith in God and know my faith has been renewed in him as well. I pray for Kayleigh everyday and for your family to have the strength to get through this.

Kolby said...

You all are in our thoughts and prayers during this trying time. I cannot imagine the pain your family is going through right now. Kayleigh is a beautiful little girl and has touched many hearts. I am also a preemie mom. My son was born at 26 weeks and will be a year old on January 9. He has horrible lungs because my water broke at 16 weeks gestation and his lungs developed with no fluid. We are truly blessed to have him at home with us where he is growing and slowly progressing. My heart goes out to you. I cannot imagine your pain. Just know that God has a perfect plan and purpose for all of us, even if we cannot see it right away. He is with you always. God Bless.
Justin, Kolby, and Baby Tage
Bozeman, Montana
www.tagenator.blogspot.com
www.caringbridge.org/visit/tagedaniel

Anonymous said...

I sit here feeling the love of strangers for you and Aimee, and your children...it is GOD, I hear him speaking through the eloquent words of all these people, I hope you feel it too...he is here with you, with us...I hope I will always feel this, Kayleigh's journey has taught me so much, my heart is breaking, but I feel so deeply blessed, for the Freeman's have opened my eyes to the glory of GOD. Peace, Kayleigh absolutely knows your love for her, as someone said, listen to your heart, she says "I love you Mommy & Daddy".
Leslie J. CT

Heather and Travis said...

I do not even know what to say. I can't even begin to imagine what you must be feeling or going through. Please know you are in my constant thoughts and prayers. Your strength and courage in amazing and I pray that it will continue. I know that God will keep you all in the palm of his hand.
Heather
Irmo, SC

Sherry (E_Squared) said...

I have been following Kayleigh's journey since Aimee first posted her prayer request on the Babycenter September 2008 board. There's so much I want to say, but all I can muster is I'm so very sorry.

Many times when I hug my Sept. baby, my mind flashes to Kayleigh and I say a silent prayer for all of you. You have touched my life very deeply and reminded me not to take ANY of my child's moments (the good AND the bad) for granted. Gods ways are not our ways, but He can give you the peace and strength to keep going.

Anonymous said...

My heart is breaking for you. I have been following you all since Kayleigh was born and she has truly touched my heart. I pray that you find comfort in knowing that you all have touched so many lives. God bless you all.

Anonymous said...

We "met" Kayleigh thru Brinsons blog, What a courageous family you are....
May God grant you peace and comfort.
dy

Sarah Weber said...

I can only agree, in prayer, with the comments left by your friends and family. Thank you for sharing Kayleigh's story...I am changed.

Elkins 5 said...

I prayed so hard yesterday. I thought I needed Him to keep her here with us in order for me to believe in Him. Not only has Kayleigh helped me believe without seeing but so have you and Aimee. I feel selfish thinking I cannot accept these turn of events. Why do these things need to happen for us to take a step back and look at all the things we have, to hold onto our family tighter. I am greatful to your family for sharing your story and changing my life but not sure its fair. I am still praying for a miracle....but if I think about it there have been so many miracles.....Kayleigh IS a miracle! Kayleigh has given me so much and I will return the favor by never stop praying for your family. Please don't give up on your family or your future.
WE LOVE YOU KAYLEIGH! You are so precious and your mommy and daddy are so lucky to have your love! GOD BLESS!
Susan Elkins (CA)

Denise in CA said...

I am praying for you!! I am almost hysterical with tears and can't even begin to tell you how sorry I am. Kayleigh is such a special little girl and she has definitely blessed so many people across the world.

Please know that I (and I am sure everyone else) am embracing you and holding tight. Even though it isn't IRL, I hope you can feel the force around you. We are all here for you two. (((HUGS)))

Denise in CA

Nikki Morton said...

We love you guys. Our family has been where you are, and it is so hard. Only God can bring the comfort and peace that you need, and He will. Kayleigh completed the task that God had for her here, and now she is going home. Know that you are being thought of and prayed for by so many around the world. If you need anything, please let us know.

Los Bianchi Carrillo said...

I admire you and you have definitely been our inspiration and have given us hope so many times. We asked for payers for Kayleigh in our blog today (www.agustinabianchi.com). God Bless you and Kayleigh!

Love,
Los Bianchi Carrillo
Guatemala

Los Bianchi Carrillo said...

I admire you and you have definitely been our inspiration and have given us hope so many times. We asked for payers for Kayleigh in our blog today (www.agustinabianchi.com). God Bless you and Kayleigh!

Love,
Los Bianchi Carrillo
Guatemala

Denise said...

Hey Guys,

I really have no words right now. Everything I want to say seems wrong or insensitive or just so "typical".

Just know we have loved you since we met you and found your blog. We will always be here for you. I am thankful that I got to be a very helpful part of your life, even when ours was turned upside down.

We are praying for you guys and pray that you can truly enjoy these last few precious days with a beautiful angel!

Love,
Andrew, Denise and Parker

Megan R. said...

I hope you don't mind, but I quoted part of your post today on my blog. Your story has really made me thankful and grateful for all that I have. You can read what I wrote at http://www.newlywednewlybredinne.blogspot.com

I am praying for your family.

Cherilynn from British Columbia said...

Sometimes God works so mysteriously ... it just doesn't seem fair for Kayleigh to be losing this battle after fighting so hard. Of course we've all been blessed with her life and her story for a reason and though none of us want Kayleigh to leave us so early, He must see how beautiful and perfect she is and want her to come home with Him. I am, of course though, praying for yet another miracle to pull her through this. :)

My heart is absolutely breaking for you and your family. Who would have thought that I could love a little girl so far away from me and whom I've never met so much. I pray that God strengthen you and Aimee & Allyson & Brandon too as you face this most horrible of situations. Her life has truly blessed so many people and I'm sure she's proven a lot to the medical community as well.

~ An angel in the book of life wrote down our baby's birth, and whispered as she closed the book...too beautiful for earth.... ~

God bless you,

Cherilynn

Anonymous said...

Aimee and Adam,
I am a Sept. 08 mommy who has followed your story since the beginning. I can't express to you how I am feeling right now. I am in awe of your strength and trust in God. Please know that Kayleigh and the rest of your family are in my prayers. You have forever changed my life, as you have countless others. God bless you.

Lisa

Jennie said...

Wheres the navigator of your destiny?
Where is the dealer of this hand?
Who can explain life and its brevity
cause there is nothing here that I can understand

You and I have barely met
And I just dont want to let go of you yet

Chorus:

Noah, hello, goodbye
I will see you on the other side
Noah, sweet child of mine
I will see you on the other side

And so I hold your tiny hand in mine
For the hardest thing Ive ever had to face
Heaven calls for you before it calls for me
When you get there, save me a place

A place where I can share your smile
And I can hold you for more than just a while

Chorus
"Hello, Goodbye"-Michael W. Smith

I'm still praying for a miracle.

Anonymous said...

I've been keeping up with this for awhile now. everyday that i read that is good for ya'll makes me so incredibly happpy. but on her bad days i feel for your family. It must be so had but ya'll are taking it the right way. Give it to God and he will handle it, i know thats the hardest thing to hear but it's all part of his plan. God has blessed you both with a beautiful little girl and maybe her purpose in life was to help others and teach them. Just keep praying. My family is praying for you guys.

From thomasville, Nc.
Emily.

~The Kargs Family of Six~ said...

Dear Adam and Aimee,

I cannot say that I know how you feel. Though I have been through the loss of one of my twin girls, and almost losing little Veiyah numerous times, there is no comparison. I do know the fear it caused us, and still causes us to this day. When we buried Aderah, we felt both sorrow and joy. Sorrow for not having her in our arms, but Joy that she is in Jesus' arms. I'm praying for strength for you all today and through this season of LIFE for Kayleigh. She is still Alive. Hold onto her as long as you can. But get your rest as well. Such a fine line, I know. Remember there is no condemnation for those who are in Christ Jesus!!!

All our love and prayers,

Karg Family

Lexie Loo & Dylan Too said...

I just found your blog the other day, but just wanted to say that I am deeply touched by your story and will keep your family and your beautiful baby girl in my prayers.

Tam said...

Adam and Aimee,

I am crying along w/ you guys and so is everyone else who reads your blog or knows you! How come you guys didn't tell us sooner? I think yesterday's post was the first we heard about it that she is not doing as well anymore.

I just read an article yesterday about cardiac asthma. Could it be possible that she has that? It can be fixed w/ heart surgery.

I will hope/pray for a miracle for you. The doctors have been wrong before. You are right; we will lose our loved ones eventually, some sooner than others. I lost my best friend who died of a heart-attack in 2005.

It is the people we love that hurt us the most!

take care and God Bless you and your whole family! God will carry you through.

ps- Sometimes I think it is a shame that micropreemies have to go through so much suffering (sugeries and medications, needle-sticks, etc.) to make it, that I wonder if it is worth it for them to go on or not. I guess we can ask them when they are able to speak.

Anonymous said...

My heart is heavy hearing this news. I would give so much of my strength to keep her alive for you. Our family is praying for you and that God takes her into His arms lovingly and she is an angel for all of us. I will hold my daughter extra tight tonight when we sit down to do prayers. I never thought this is what we would be reading. I was waiting for her visit home. Just know that He has better plans and has found her worthy of being an angel for all of us.

All our love and thoughts,
The Kurtz's (Jay, Chris, Dec & Abi (9/08)

Anonymous said...

I was raised Lutheran, but have been not believed in God, in a Christian, sense for many years now. I am a practicing Buddhist. I have been reading your blog for many months now...my own daughter was born April 24th. Many times I have sent out good thoughts to your family and especially to Kayleigh, but have never written. My heart aches for you now and I really want to go home and hug both of my kids tight. Kayleigh had a special role to play in her short life and she has touched many. Quite a lot of good karma has been generated through such a tiny girl...she will be a very bright light in the next world :) I just wanted you to know that she has touched others who may not share the same religious views, but share in your grief and wish you strength and love to make it through the difficult time to come. You remain in my thoughts...

Celeste from Phoenix, AZ

Julie said...

I've never commented before. I'm so so sorry. Life is so hard but God is still so good through it all. I will be praying all day for you today and will continue. Praying for peace and strength, "that surpasses all understanding". Kaleigh has touched many.
God bless.
Julie, Vancouver, WA

Leigh Anne said...

Lots of tears and a heavy heart right now after reading this. Having followed Kaleigh's journey from the beginning, prayed daily, I am just devastated.

I'm still praying for the last major miracle that she will turn around. She has already touched my life in a an amazing way!

MissingLandan said...

Like many others, I've been following this blog since I saw Amy post on the BBC Ultrasound board.

I've often times been so amazed at the progress that Kayleigh has made, & would share in your excitement with you! Which is why your last two posts come as a shock & surprise to me. I'd been wishing, praying & hoping that you wouldn't have to go through this.

I have a child in Heaven. His name is Landan & he was 3yrs old when he passed away from Meningococcal Meningitis. But I have to tell you that he has an absolute passion for babies! I'm going to ask him to keep watch over precious little Kayleigh during the time she has left on this earth & that he meet her at the gates of Heaven if it's decided that it's her time to go Home.

I really pray that another miracle is granted & that Kayleigh has many, MANY more years here with you!

You'll be in my thoughts & prayers, and it has been my pleasure getting to know Kayleigh & the rest of the family.

-Lacey-

Amber A said...

I'm at a loss for words right now. I have tears streaming down my face right now for this little miracle I've never met.She has truely touched alot of people. This is the one post I prayed all along I wouldn't have to read. I am so extremely sorry.

Babyksmom05@yahoo.com

Anonymous said...

All of us had a hard time reading the posts--I can only imagine what it felt like as a father writing the words. My keyboard is covered in tears for the 2nd time today. My prayers our with you both and for Brandon and Allyson as they mourn the loss of their very special sister. I will always treasure the words you expressed and the inspiration you gave me each day. Kayleigh bless your heart little one.
Wendy
Illinois

Anonymous said...

No words are sufficient...


You guys are in my prayers as you travel this journey.

Anonymous said...

I can't believe it yet :( Kayleigh is a fighter, she has pulled thru so many times before. I am not giving up hope. She is in my prayers.

Denise said...

I have no words other than my heart is breaking for your family. Kayleigh is a true miracle and God must have plans for her in heaven. She and you guys have truly been an inspiration for me and you all have made my walk with the Lord more real! Thank you for that. Please enjoy whatever time you have left with your daughter (it is hard to even type those words)! She is beautiful and I am praying for you and her as she goes home to be with her Savior!! I picture her smiling and dancing on the streets of gold, the full picture of health and beauty! Please know my prayers will be with you in the months and years to follow. God will never leave you!!!

Emmeline said...

I have followed Kayleigh's story from the beginning at September 2008 babycenter boards. I am so very sorry to hear the troubles she is having now. I am praying very hard for all of you.

Anonymous said...

Adam and Aimee: I was so praying to read something this morning about her getting better suddenly. I have been following your story since Day 1 on Babycenter and have read about Kayleigh and loved her ever since. She is a part of my heart and she has made me more appreciative for everything in my life -- especially my children and my faith in God.

I pray every day now -- I have always been a Christian but this past year have gotten a bit lazy in my faith, but I can honestly tell you that your Kayleigh has brought me back to a stronger relationship with God. I can't tell you how much that means to me.

Your little girl has touched so many lives. I just feel humbled that you have shared your experiences with all of us and just know that we all love Kayleigh so much. Please give her a kiss and a hug from all of us out here.

My heart aches for you all. Your family has taught me more about love and faith and courage than you will ever know. Thank you for sharing Kayleigh with us and I will continue to pray for a miracle for her.

Kayleigh knows you love her and if she could say it she would say that she loves you too. You have been able to give her so much love -- Kayleigh has accomplished so much more than even one person could if they lived to be 100. Do you know how many lights will be on her crown? She has brought a countless amount of people to God and one day you will see that by the lights in her crown in Heaven. She is truly a miracle.

I hope you are having a better day today and please tell Kayleigh we all can't wait to meet her one day.

Karen
cincymomof4
Cincinnati, Ohio

Newman Family said...

I have been following your blog for awhile now. I too have a micro preemie who was born at 26 weeks. You are all in my thoughts and I am happy I have had the chance to read about Kayleigh during these last few months.

Breanna and Dave said...

I am so very sorry. Kayleigh and your family are in my prayers. I have been following you guys since BBC. Kayleigh is So loved, and she has brought god back into my life.

thank you

Love,
Breanna, dave, DJ & Reagan
(CA)

Anonymous said...

Never have I loved a child so much that I have never met. Your journey has been a part of my daily life since Aimee first posted on Baby Center long ago. I find myself praying longer and harder each day because of your beautiful little girl. May God bless you with continued strength and may Kayleigh know in her heart how many people will always consider her "their" little girl. Thank you for sharing your ups and downs, laughter and most of all your honesty. You have forever impressed your lives upon mine and for that I am truly blessed.

Much love always,
Beth (Houston)

Anonymous said...

My heart aches for the pain you must be in. We all prayed so hard for your darling little girl to fight. She is such a fighter and her story will continue to touch many people. She brought hope and strength to thousands and thousands of people without ever having to meet them.

I continue to pray for Kayleigh and all your family to provide you the strength and support you will need in the days, weeks, months and years to come. She has been a symbol of hope and strength and will continue to be.

Hope M.
Ottawa, ON

Tam said...

DECADRON!!!! Decadron......
Adam/Aimee,

I just searched through your blog and there was never any mention of decadron (steroids). Can you ask the doctors to give her a big dose of decadron? It might help her if she has more steroids in her body to fight. They will have to wean her off the decadron over a few weeks or longer.

Rebekah said...

I am so sorry to see this. :( I really hope that she does not pass and that you get many years with her. I am hoping and praying against hope.

In any case, you are in my thoughts. I can only imagine what you are going through.

Lori from TN said...

Your Smile
By Janet Gresham

My child,

Your smile tightens our heartstrings,
pulling our love into a great big bow.
Your smile streams like sunshine through trees,
sprinkling laughter in the shade.

Your mind may never ponder metaphors.
Your eyes may never follow clouds.
Your feet may never scamper barefoot.
Your fingers may never pen a letter.
Your voice may never say "I love you."

Yet, my child,

You are granted power to teach patience,
hope,
joy,
grace,
sacrifice,
unabridged love.

To those who pause their world
long enough to know you,
you give yourself and smile.

I found this poem while on the net and it made me think of your Kayleigh! From one micropreemie parent to another, Enjoy every single min. you have with your baby girl. She is a beautiful child that has shown the world soo soo much within the 5 months shes been on this earth. I will NEVER forget her!

-Lori (mom to a 25wker)

Alex said...

I don't think there are any words of comfort I can give. I'm sending so many prayers your way, for strength to get through this difficult time. Little Kayleigh's story has helped to change my life for the better. I realize that nothing should be taken for granted. Life's too short.

The Hollimans said...

I'm crying with you and praying for you. May God bless you so much.
Love in Him,
Astrid Holliman
Chattanooga, Tn

Melissa said...

Well, I hope you are reading all these comments. It is proof that Kayleigh has done the ONE thing that God wants us all to do! She has gone into ALL the world to prove He is THE MOST HIGH GOD...and all without ever taking a step. What a miracle THAT is! Praise God for His awesome work in creating Kayleigh! And I will continue to pray--because until she actually DOES breathe her last breath, be it in a day, a month, or 75 years from now--God is still working through her! Freeman family, well done, faithful servants--you have impacted us all so very much! We love you--even if we've never met you--and we will continue to pray for you and for Kayleigh! Praying in Bama...

Jennifer said...

May God give you peace and may God provide you with your heart's desire.

Jess said...

Its always hard to have to come face to face with what we dot want to have to deal with. Its not right that we should have to bury our children before us.
The 5 months that Kaleigh has been here she has come so far! I believe that God put her on this earth for how ever short or long it may be for a special purpose. She has touched so many people who have never met her and strengthened the lives and relationships of those who have met her.
One thing I wonder though, have they thought about putting her on a transpant list? I know its a major thing to go through but she has already been through so much already that wouldn't this be considered a last ditch effort instead of relying on drugs that aren't helping her?
My families thoughts and prayers are with you and Aimee during this time.

Jessica (mom to a 34 weeker and son born with severe anemia and liver problems)

The Finnans said...

I have been reading your blog for awhile now but this is the first time I've posted. My heart is so heavy right now, and I can't stop crying for little Kayleigh and your family. The only thing thats comforting is that she will be happy and pain free when she does go home to be with God.

She was definatly put on this earth for a reason, as I know that she has touched many lives. She surely has touched mine. I will definatly be praying for you and your family during this time.

God bless,
Erica

Anonymous said...

Quietly praying for you and your family.
Heidi

Erika said...

I dont want to give up hope yet!!!!! Still praying for our sweet little Kayleigh. (((((HUGS)))))

Jennifer said...

I am sitting here in a puddle of tears...I just don't know what to say..she is so special. I don't know why, but she has touched me more than any other NICU baby I have read about. She is beautiful, and will no longer be in pain as a little angel in the arms of our maker.

All of my thoughts are with you. My prayers are with you, and my heart is with you. I am so sorry this happened...but I hope you remember that everything happens for a reason.

I love you guys, and thank you for changing my life by sharing Kayleigh's story. She is truly one of a kind, and such a fighter!

Kayleigh, I hope you have a safe, painless journey home. You are one amazing little girl, and you are surrounded by people who love you! We'll miss you here on earth, but we all know you'll be in a better place in heaven, with perfectly pressured lungs, and a healthy heart. I love you!

Kristin said...

I'm so sorry that you had to write this post. I'd sure hoped you'd never have to. Because of Kayleigh, I'm now praying again, which I hadn't done in years. I make a point of reminding myself to be grateful for everything that I have.
I'm praying for all of you, and that these next few hours, days or weeks can be the best time you've spent with you wonderful miracle, Kayleigh!

The Traynums said...

Praying hard!

krueth said...

I am praying for Kayleigh and for the rest of your family too. Wendy

Anonymous said...

I just read part of your story and I want to extend my deepest sympathy. I can't imagine facing what you have with such grace and strength. God is amazing and I am praying that he gives Kayleigh many more years as an earth angel. I am sending you lots of love and support and prayers. May God continue to give you hope and strength.

Natalie said...

I have been crying off and on all day just thinking of your tremendous journey and not understanding why it might be ending so soon. I keep going back to the picture of you on the 11/13/08 post, what a beautiful picture your parents left of you for us to see!! You look so beautiful, strong, healthy, and happy, which is what makes this so much more puzzling for all of us. I'm continuing to pray, and I will not give up hope for you!! We love you Kayleigh!!

Anonymous said...

I just wanted to let both of you know that your whole family is in our thoughts and prayers. My husband and I went through the micro preemie journey with our twins and we lost our precious baby girl Madelynn. She fought hard for 3 months but in the end she was called home to God. I know how hard it is to hold it together and I commend you for trying to stay as positive as you can for Kayleigh. You are right about Kayleigh making an impact on the lives of many. I know Madelynn did the same for all those who went through our journey with us. If God does decide to call Kayleigh home, know that Madelynn will be waiting for her to show her the ropes.

Cheri

Anonymous said...

May God hold you in his hands through this difficult time.

He is calling home this most beautiful of angels.

May she watch over you forever until the day you will all be together again.

Thank you for helping me grow in faith. I will never forget you.

Anonymous said...

I will pray for your family. Kayleigh is just such a special baby ,even if I have never meet her. I feel like I do ,and love her so much. Just as a mothers love. I will hugs my children tonight thinking of her. All my love to you.
Julie
Dunedin Florida

Anonymous said...

Well as many people have said, there really are no words to express how many of us are feeling right now. My heart truly is breaking for Kayleigh and her family. I can't even begin to imagine what you all are going through right now. I too, came across this on babycenter and have been following it from the beginning. We have been praying and pulling for you guys ever since. She truly is a gift from GOD and has definitely served a meaningful purpose here on earth. So many people who have never even met her love her so much and that in itself is the best gift anyone could ask for. LOVE, faith, and prayer are what gets us through tough days....just remember that, there are many people who love you all too.......you are surrounded by love and prayer. You guys will get through this, take it one step at a time and know that your miracle HAS changed many many lives and thanks from the bottom of my heart for doing such a good job with this blog keeping everyone updated and such, I'm sure it hasn't been easy. I also do not complain about my baby (7 months old now) sleep habits or crying in the middle of the night or anything becuase I never take for granted what I have and am so very thankful for all of that. There are many many people who would give anything for that and things could always be worse.....Kayleigh's story just reminds me of that daily. I share that with everyone I know who thinks their kid crying in the middle of the night is the end of the world. I'm sure I get crazy looks when I say "Mine does too, but I am thankful for that and blessed." God bless you all!!

Anne
Cheyenne,WY

Lindsey said...

I am so sorry to read what you are going through. I will certainly keep you and Kayleigh in my thoughts. Stay strong and take care.

Jennifer said...

I have followed your story from the beginning on BBC and then on here,I have felt a special kinship with all of you because I, too, was a NICU mommy with my first, so I knew the emotions you were going through. I am so sorry that you are going through this, Kayleigh's story has touched me beyond words and the story of your love for one another is something that will remain with me forever. Please know that I am praying for all 5 of you during this time. May God bless you and keep you in palm of his hands.

Barbara said...

Thinking of you and Kayleigh with warmth.
xxx

Angie said...

Aimee & Adam - thank you for sharing the story of your miracle baby with all of us. I thank God that I found your blog and have had the privilege of praying for sweet Kayleigh each and every day. My heart is so heavy, but I am inspired by the outpouring of love for a baby most of us have never met. I pray that the impact she's had on our lives will endure.

May God give you strength and comfort in the days and weeks ahead.

Anonymous said...

Tears rolled down my cheeks as I read your blog today, all I can say is that I am so sorry for you and your family. I have followed your blog everyday and have shared the rollercoaster of emotions you have had. Like many, I am so emotionally invested in Kayleigh's story and read your blog everyday. As you said, Kayleigh has been such a blessing and has changed your life in so many ways. I want you to know that your journey has touched so many people in so many positive ways. We will continue to pray for your sweet angel. Thank you for sharing this with all of us and helping us appreciate all the people we have in our lives.

Dalila from NJ said...

Thinking of Kayleigh..

Lindsey Wolfe said...

I can barely type this though tear filled eyes. Each morning my little guy and I check in on Kayleigh and see how she is. We took his picture with Kayleigh's bracelet last night, but now I don't think it would be the best to send to you.

As many others have said - your little girl has touched my life. Like others she has made me hug my NICU baby a little tighter and give him a few extra kisses each day. But most importantly - she has strengthened my relationship with God thus making my marriage better thus making my ability to be a mom better. It is amazing to think such a little person can do so much. But with both of your's help she has done just that.

We are going back to church each Sunday and finding great comfort in our Lord once again.

Thank you for sharing your beautiful daughter with all of us. Much love to all of you.

Lindsey, Nathan and Logan

Kelly said...

Words cannot express the way I feel after reading the blog entry today. I have been thinking of Kayleigh all day. As I went to get my kids from school which I do every day I heard the song "The Dance" by Garth Brooks and a lot of the lyrics seem to fit life and I just thought of Kayleigh the whole time the song was on and cried. Here are the words:

Looking back on the memory of
The dance we shared 'neath the stars above
For a moment all the world was right
How could I have known that you'd ever say goodbye

And now I'm glad I didn't know
The way it all would end, the way it all would go
Our lives are better left to chance
I could have missed the pain
But I'd have had to miss the dance

Holding you, I held everything
For a moment wasn't I a king
But if I'd only known how the king would fall
Hey who's to say? you know I might have changed it all

And now I'm glad I didn't know
The way it all would end the way it all would go
Our lives are better left to chance
I could have missed the pain
But I'd have had to miss the dance

Yes my life, it's better left to chance
I could have missed the pain
But I'd have had to miss the dance

This is so true in life. I know that now that I have come to meet Kayleigh through your blog, that I will not take my kids for granted for one minute or the everyday job that comes along with raising them. Kayleigh has taught many people all over the world, many good life lessons and just think she is and will always be your daughter and you can be proud of what you have done.

May God bring your family and sweet little Kayleigh peace now and always..... Give her an extra hug and kiss from our family in Wisconsin. God Bless you.

Anonymous said...

I've never left a comment, but i have followed this for quite some time. I'm only 15 years old, but this story has touched me so much. Earlier this year I began my journey in being confirmed in the church, and at that point I wasn't sure if I still had any reason to believe in god or if i even did. this past year has been a tough one for me, not nearly as tough as yours, but for me it's been a long road. I was having one of my bad days when I happend to stumble upon this blog, and read about Kayleigh. I read every update and have looked at the new ones every day since then. Kayleigh has renewed my faith in god and has touch my life in more ways than I thought possible.

My prayers are with you.

~Susan

Vicki Fields said...

I am so sorry that this is happening to your precious daughter. Though she is tiny in size, her fight to live has been enormous. I understand your fears and pain, from losing my son just 6 short months ago. Please know that I am holding you all close to my heart and praying for Kayleigh's comfort.

Love and hugs,

Vicki Fields (Jayden's Mommy)

www.caringbridge.org/visit/jayden

wiebke said...

praying so hard for Kayleigh that she makes it through this. *hugs* to you all

Anonymous said...

Adam and Aimee-I was crying as i read your post today. I have followed your blof from the beginning and made it part of my daily routine to check in on Miss Kayleigh. I am so sorry that you are going through all of this. Kayleigh's story has touched so many lives of so many people that have never met your family and that is amazing to me. You have so many people thinking and praying for you and your family on a daily basis. We will continue to pray lots in Iowa for Miss Kayleigh and your family. You guys will get through this in just taking one day at a time.

Rich said...

Adam & Aimee,

I have read your heart breaking story. My love and prayers are with you and I would like to share something wife you. By the way my name is Rich and i'm the husband of the woman of this blog. www.h-r-ourfamily.blogspot.com (read my story and be encouraged)

I understand God is in complete control of all our situations and nothing is allow to happen with out His knowledge and ok, just like the attack on Job. But I also believe in the power of prayer and the presence of an Almighty God to keep up safe in His hands. And no doubt many have been touch and changed by your story, but I feel God has a word for you both.

That word is DON'T GIVE UP! JUST BELIEVE!! TRUST IN YOUR FATHER!!!

"But when Jesus heard what had happened, he said to Jairus, "Don't be afraid. Just TRUST ME, and she will be all right. When they arrived at the house, Jesus wouldn't let anyone go in with him except Peter, James, John, and the little girl's father and mother. The house was filled with people weeping and wailing, but he said, "stop the weeping! She isn't dead; she is only asleep." But the crowd laughed at him because they all knew she had died. Then Jesus took her by the hand and said in a loud voice, "Get up, my child!" And at that moment her life returned, and she immediately stood up!" Luke 8:50-55a

Jesus is saying to you both "there are many who have already called it quits on this child but I have not. Trust me and all will be well. Don't allow the words (negative) of family, friends, or even the doctors to shake your faith, just Trust in Me and I will take care of her."

You need to step back away from those who don't believe and surround yourselves with those who have unshaking faith. You can still respect those but don't allow them to cause you to doubt or give up. I believe Kayleigh's work is not done yet.

My prayer for you:

Father I ask you to give peace to Adam and Aimee. Holy Spirit comfort them in this time of need and strengthen and encourage their faith. Use this for your glory and honor today.

I speak to kayleigh right now and in the name of JESUS i command every cell in your body to heal, every organ and tissue to be made whole. I say to you Kayleigh, GET UP! IN Jesus' name. Father place a hedge of protection around little kayleigh as you work a miralce in this child. For your love and compassion go forth to your creation, especially your children. Thank you Father for hearing our prayers. And thank you for answering.


Just remember Adam and Aimee, it is not over until GOD (not the doctors) says it's over. Trust in Him and your hearts will be strengthened. Christ has already got victory over death.

Love you both,
Rich (from IL)

if you need to talk or need specific prayer email me @ faith2raisethedead@hotmail.com

Sarah, Adam and Mercedes said...

My heart is breaking! but you are wrong about 1 thing. . . when you get to the gates of heaven Kayleigh will be waiting there for you and the first thing you are going to hear her say is "I love you Mommy and Daddy". So it may not be as soon as you had hoped, but you will get to hear her say it!

Katie said...

Aimee and Adam: I have followed Kayleigh's story from BabyCenter to now, as I'm also a September mom. I was so close to delivering early and having a micro-preemie, and this story just hits home. Every night when I hug my daughter, kiss her goodnight, wake up to feed her...I feel so blessed. It's a privelege, and I know that Kayleigh has helped me to see just what a gift my daughter is. You two are already wonderful parents, and your wonderful daughter is so blessed to have the two of you. Please know that you have absolutely touched me and my family, and we will NEVER forget Kayleigh. I am praying that God's will be done, and that you have the strength to make it through your difficult times. I pray for your comfort and for God to bless your family.

Regan from Missouri said...

I am crying as i sit and read this. I dont know how i came across your blog, but I have been reading for several weeks and have been touched by your story. I am so sorry and hope and pray for a miracle for Kayleigh. I have a 4 month old daughter and have read your blog while holding her and just been brought to tears. You have made me realize how blessed I am and how precious each day is. I am amazed by your faith and strength and pray for your continued faith during this hard and awful time. Thank your for sharing her story with us all.I will be praying for your whole family.

Michele said...

You are perhaps the most amazing family I have ever come across. May God's grace, comfort and peace be with you. I just learned of your plight 15 minutes ago, and yet you have touched me profoundly. I will hug and kiss my daughter and son a little more today. Kayleigh has undoubtedly changed the lives of many. I will share her story with everyone I can. She truly is an angel.

I send love, prayers and blessings.
Michele G.

YVETTE said...

Wow Amimee and Adam I am sorry to hear of these dramatic turn of events for Kayleigh. I will be praying for her miracle on earth.

C.M.S. Academy said...

I am sitting here crying right now. I know that nothing I say to you on this comment can comfort your hearts. I read your entire blog just last week after seeing your link on another site. I checked in again today and I am heartbroken for you all. It is Wednesday and I am going to church to teach a class full of preschoolers. We will lift your and Kayleigh's name high to our Lord and Savior. I pray so hard that this is just a patch in the "broken road". God bless you all.

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