After a long and tiring day, Aimee and I are currently in our "sleep in" room at the hospital. We must have walked by this room a thousand times in the 177 days that we have been here, but never thought the day would come where we would be in one of these rooms without preparing to take Kayleigh home.
I am sitting here at the desk as Aimee is trying to get a couple hour of shut eye. It was a hard decision to make, coming back to the room to sleep, but we have to do our best to not be tired for the remaining time we have to spend with Kayleigh. We don't know if she has hours or days left in her, but what we do know is her precious little body is slowly showing it's signs of slowing down.
There is no more need to go in to detail of her prognosis, and the doctors have been preparing us for what's to come. We are just sitting tight and giving her as much love as we possibly can before she takes her final breath. We know that we and everyone else in charge of her care have done everything that possibly could have been done and we are completely at peace with that. We trust that God had a plan for Kayleigh and even though her life here on earth was just a small moment, she has touched more lives than most people do in a lifetime.
My only request here is that EVERYONE please say a prayer for yourselves. Please pray that Kayleigh's Story will make your life better for knowing her and following her miraculous journey. Whether your religious walk with God has just started or has been renewed, your relationship with your husband or wife has been strengthened, your family has grown a tighter bond with each other or your outlook on life is much brighter than it was before, please remember Kayleigh has strengthened you and will always be an angel that will look over you in heaven. She is by far the smallest, biggest miracle God has blessed us with.
Aimee and I are proud to say that Kayleigh has renewed our faith in God. She has strengthened our marriage and has taught us to love Brandon and Allyson unconditionally. This past year has been one tough ride, but what we have been through has made us much better people. A lot of you ask how we are so strong through this and I 100% give all that glory to God. He is the reason we are strong because without Him, we are lost. Our Lord is the way, the truth and the light!!!
One thing that Aimee mentioned tonight that reminded me of what else has gotten us through this is all of you! Everyone is going to lose someone in their life. You may lose your parents, your children, your brothers or sisters, but what you will always have with you are your friends to support you through it all. You have ALL been there through thick and thin and we are so appreciative of everything you have done.
Please pray that Aimee and I continue to stay strong through these next couple days as we go through what no parent should ever have to endure. We have cried many tears today and will continue to cry many tears for a long time. Kayleigh has been nothing short of a miracle to everyone she has come in contact with and it is going to be so hard to say goodbye when that time comes.
She is our daughter who we will; never bring home to her perfectly painted pink and brown bedroom, never be woken to screaming and crying in the middle of the night, never change those stinkiest of diapers, never learn whose personality she gets, never find out whether she has brown or blond hair, never hear what her first words will be, never see her crawl, walk or ride a bike for the first time, never take her to her first kindergarten class, never show off her "battle wound" scars and tell the stories behind them, never kiss her goodnight every night or read her a story before bedtime, and I will never get to walk her down the aisle. Aimee and I will never hear her say "I love you Mommy and Daddy"
God, please be with us and comfort us. In your precious name, Amen.