I guess Kayleigh has her own way of showing us that this procedure was not supposed to happen. Late last night, before Aimee and I went to bed, Kayleigh had an hypertensive episode. She dropped her sats fairly low, but never spiraled out of control like she normally does. Kayleigh must be getting used to some of the sedation medication because they had to bump up her dosage and switch over to Morphine to really get her to relax. She slowly recovered back to normal.
Around 6:30 in the morning, we got a phone call that she had another episode, but this time she spiraled out of control and needed to be paralyzed along with more sedation medication. During this episode, she was not responding like normal and she is currently on a much higher pressure control setting at 100% oxygen. The x-ray came back showing her left lung is collapsing. They have started some treatments to fix it and hopefully Kayleigh can turn things around. We are not sure if this is pneumonia coming back or her elevated pressures causing her lungs to close up. Either or is not good.
Please pray for Kayleigh and that she will keep fighting no matter what gets in her way.
Thank you and God Bless,
The Freemans
126 comments:
Praying with all my heart.
Melissa in Massachusetts
Praying really hard. May God continue touching you in a very special way. Father, you are the only one that can heal this child. Take her body and heal her. We turn everything over to you. In your precious son's name, Amen!
Praying!
Praying, I even posted about you on my blog :)
Prayers, as always, my heart is with you. Leslie in CT
We pray for her everyday. C'mon Kayleigh! Stay strong!
Extra hugs from Utah.
Father, wrap your arms around sweet Kayleigh and provide her with the strength she needs to fight for her life. Give Adam
and Aimee peace and comfort in knowing that YOU are in control of all things. YOU are amazing Lord. The miracles YOU have shown thus far with Kayleigh! Bless Kayleigh's team of doctors to continue to use their wisdom in helping Kayleigh grow into a beautiful, healthy baby.
As always, praying for your entire family.
Praying.
I cust came across your blog for the first time today. I sat here with my daughters and they looked at all the pictures as I read. My youngest, who is 2 and has been diagnossed with Failure to Thrive, kept saying "pretty baby" to all of her pictures. She will be in our prayers. My oldest is making a picture of Kayleigh and Im sure my youngest will too becasue we all know little siblings follow their older sibling :D
Oh goodness....we are praying!!!!!!!!!!!!!!!!!!!!!!!!!
Heather, Joseph, & Bailey Alyse Woollard
Wetumpka, Alabama
Prayers to your family. I hope Kayleigh pulls through this latest episode.
Praying right now for your sweet little Angel!!!
I am definitely praying for Kayleigh. May God heal her little body to fight this. She is so precious and I know God's plan for her will continue to prevail. Please Lord God lay your healing hands on her lungs and fix this problem. You are the greatest healer and can fix all things. Kayleigh needs your strength and love at this moment. Please give the doctors and nurses the wisdom to fix this problem quickly and find out what is causing it. Lift Kayleigh up in Your hands and shine Your bright light on her so she can be healed of this problem. Lord we place Kayleigh in your hands please heal her and make her strong so she can continue to make her way home with her loving and faithful family. Through you all things are possible.
God bless,
Amber Hoberg
Praying for Kayleigh..
My family is praying for Kayleigh and your family. May God heal her quick and your family have his arms around you guiding you all thru such hard times. My heart goes out to you all. My baby just spent a month in the NICU at birth and it sure has gave me an appreciation for what parents go thru when their newborn is born with complications. God bless you all. The Hatten's
Aimee and Adam:
I'm praying for sweet Kayleigh. May she recover soon from this problem with her lung so she can have her JG tube and grow strong!
Kayleigh: hang in there sweetheart!
God bless you all!
praying for Kayleigh in houston! praying w/out ceasing!
Oh, I am so sorry, have been checking all am to see if how it went. Thanks for posting even though I know you guys have got to be disappointed and exhausted.
Will continue to pray,
All our hope, M from OK
Praying for you all.
Come on sweet Kayleigh - you can pull through this!!! We are all praying for you!!
Much love,
Amanda - Spartanburg, SC
Still praying for sweet Kayleigh! Keep fighting!!!
Keep fighting Kayleigh we are all here praying for you and we LOVE you so very much. God please keep your hand on Kayleigh and heal her.
This is just Kayleigh saying she isn't ready for the procedure just yet. I just pray that she recovers completely from this last episode and that no permanent damage was done to the lung tissue. Father, wrap your arms around Kayleigh and heal her little body Lord for You are the Great Healer. Father I ask that you guide the doctors and nurses taking care of Kayleigh and lead them in the right direction to heal Kayleigh. Father, wrap your arms around Adam, Aimee, Allyson and Brandon during this time. Give them comfort in knowing that YOU are in control. Show us another miracle father and pull Kayleigh through this. I ask this in Jesus' precious and holy name,
Amen.
In Christ's Love,
Amy S in KS
Hello my name is Yolonda and I am praying hard for Kayleigh. I gave birth 2 a 23 weeker 3 years ago who made it home free of developmental and physical issues. However, she had BPD (lung disease) and Pulmonary Hypertension. She lived with these diseases for 3 years before developing pneumonia which elevated her pressures and she went went into complete heart failure and died. My daughter died from her very first pulmonary hypertension episode. Kayleigh has had a few and yet she fights her way out of them. I am praying with everything I have in me for Kayleigh. She is my light right now. She is my light at the end of the tunnel and I know she will overcome this episode too.
God Bless,
Yolonda
Praying in West Babylon New York
We need a New Years Miracle too!!!
Hang in there Kayleigh, you can make it through this, sweet girl. Precious Heavenly Father, please lay your hands on this family and give them the strength to make it through yet another hurdle. Please be with her medical team, and give them the wisdom to help her pull through this.
Freemans, you are all in my thoughts and prayers. Kayleigh has been a blessing to my life, in so many ways, and she has really touched my heart.
Prayers....
Meg
Praying real hard for Kayleigh and mommy and daddy. Keep your head up to heaven and your heart on God and he will see you through.
Please remember this: God will not put anything on you that he doesn't think you can handle!
Praying for you sweet Kayleigh
Love the Goss family :)
Still Praying for Kayleigh!
With love from Southern NH
Adam and Aimee~ I want you to know that I am praying for your sweet Kayleigh. May God put His hand on her and give her the strength to perservere.
I know I don't know you both personally however I feel so drawn to the journey of your daughter. I will pray everyday for you and your little one.
God Bless You.
Kristy
Ventura, CA
Praying extra hard today! you all are in my thoughts
Katie
Baltimore, MD
Praying for all of you. We love you! Keep fighting little girl!
This is the confidence we have in approaching God: that if we ask anything according to his will, he hears us. And if we know that he hears us--whatever we ask--we know that we have what we asked of him.
(1 John 5:14-15)
Lots of prayers &love for Kayleigh. We have to believe she wasn't meant to have that procedure today and this was God's way of showing that to us. Hang in there, someday this will all be a distant memory...
Oh no...she was so close to getting this done. I will be praying for her to heal so she can have this procedure she desperately needs.
Kayleigh, you are proof that there are truely angels among us. YOU... little one have opened my eyes to so many things. I pray that you get well and go home to your amazing family.
Freemans I also pray for god's peace for you.
God bless you all.
Lisa
Nebraska
I was reading today about strength and I came across this verse.
I immediately thought of Kayleigh and prayed to God thanking him for speaking to me through His word.
fear not, for I am with you;
be not dismayed, for I am your God;
I will strengthen you, I will help you,
I will uphold you with my righteous right hand.
—Isaiah 41:10
We are still praying here in Northern NY. We will continue to lift your little girl up in our prayers multiple times a day for as long as it takes! Our church and ladies prayer meeting are also praying for you. We love you guys...never thought I would say that to a family I have never met, but you guys mean alot to us!
Julie, Ellie and I are praying. Most of all we hope the best for you guys no matter! Love and thoughts all the time.
Continued prayers comming your way!
Rachel
I will be praying- for you and your family- I already know God has your precious child in his hand! But I will pray for your peace. Remember Weeping may endure for a night, but joy comes in the morning.- Psalms 30:5
I printed the blog picture and a sweet picture of Kayleigh to put on our refrigerator so we will always remember to say a prayer for you all when we see it.
We are standing with you all in this time of great need. God has created us for unity such as this.
Blessings!
bri TX
Don't give up!! You can fight this Kayleigh!! Adam and aimee don't give up either. Kayleigh is strong! God is stronger and we are all praying she fights this!!! God Bless you Kayleigh!!!!!
Praying for Kaleigh and your family!
God, you have brought little Kaleigh so far in these six months. Continue Your work in her body and through her life. Touch her family in this time of need and stress. We love You for it. We thank You for it. We praise You for it! Amen!
We are following your blog and check it every few hours! Hang in there! We're praying for you and for Kayleigh!
my prayers are with her
God bless,
Monica
We are praying every day for you, waiting patiently on the Lord to heal this precious little sweetheart. Sweet baby girl - be strong and keep fighting! You are amazingly special and we send lots of love and hugs to you from Utah! We give all glory and praise to the Lord for you Kayleigh!
We are praying for sweet Kayleigh in California! Please Lord bless this child and help her pull through!
Love Desirae Jason and baby Chase
I pray that God continues to Bless Kayleigh with his healing hands.
Praying in California.
Hello Adam & Aimee ~
I emailed a poem to you guys that I wrote for Miss Kayleigh and I dont know if you guys got it or not but here it is again.
Kayleigh Sweet Kayleight
Rest easy sweet angel as God has come to heal
He's holding Mommy & Daddy's hands tightly as the rest of the world prays nightly
Keep those pretty eyes open as your work is so far from being done
You are still so little but yet so brave and mighty
Before long Allyson & Brandon will say our little sister is fiesty
Keep fighting sweet little one as we all continue to pray
Kayleigh Sweet Kayleigh for your journey to Mommy & Daddy's home is not far away.
Still praying in Germany
Jutta, Solingen, Germany
former Coconut Creek, FL resident
Kayleigh-I am praying very hard for you! You have showed us for so long how strong you really are. I pray that God may give you the strength to overcome these tough moments that you are having. You are so tiny, but yet so amazingly strong. I, as an adult, really admire your strength. May I be as strong as you are one day!
God Bless,
Elizabeth
I was hoping to come and hear good news about Kayleigh. I will be praying for your family. I am so sorry this is happening to your family.
Come on Kayleigh! You're such a tough little cookie. You can fight through this! Continuing prayers from Michigan...
Aimee Gillespie
Praying and sending all of you a big hug!
Prayers coming your way from GA!!
I'm sorry Kayleigh is having problems. Hang in there, girl!!
Prayers from Canada,
mlpinky
Praying. Always praying for sweet blessed Kayleigh.
Kristin0821 from BBC
I spread Kayleigh's story on the community of moms and dad at www.babycenter.com so we're all sending more thoughts and prayers yall's way!
My heart is aching with the pain you must all feel with this current set back. I hate how familiar and frightening this all seems...
I am praying for your sweet baby - and all of you.
Ada in Ft Smith, AR
Praying hard for little Kayleigh!! Stay strong and keep fighting!!!
Come on girly you can do it and beat this hurtle. I did and I know you can too. I'm hoping and praying she'll be ok. When she has a rough night or day. It seems I have a rough day and night too. When she has a good night or day. I have a good day and night too.
May the Lord be with you and your family. Our family is praying so hard that it hurts. What a beautiful little girl you have.
I am praying for your Kayleigh! She will pull through this just like she pulled through everything else :) Just believe and let God keep control!
Heather
Oh Baby Girl - I know its hard but fight on little one!!! The world is praying hard for you - take all the strength you need from us and the Universe to get through this.
prayers and love for all of you from the Gold Coast Australia
Maxine XX
Stay strong little girl! Prayers to you and your family from Iowa.
I'm so sorry Kayleigh faced so many challenges today. Praying for a better tomorrow.
We are all praying for her! She has proven everyone wrong in the past and we are just praying this is her way of saying she does not want that procedure yet. God Bless all of you!
She WILL pull through this. Best...
Kayleigh is such a fighter - she will make it threw this.
We love you baby girl, you hear our prayers.
Praying for beautiful Kayleigh and her family.
Love & Prayers,
Carol H.
Irmo, SC
May God heal Kayleigh's body and give her Doctors and all medical staff knowledge that surpasses all understanding.
Kayleigh continues to be in my thoughts and prayers.
I have a question...
I know that Kayleigh is intubated, but I was wondering if she could have bronchialmulasia (sp??). This is when the bronchial tubes collapse making it difficult to get air to the lungs. I know my son with through this, but he wasn't intubated at the time we found out. He did have pulmonary hypertension and was diagnoised with chronic lung disease from being ventilated for so long on such high settings. However, he has out grown the bronchialmulosia and the docs don't mention the chronic lung disease anymore. Well, I was just curious if this could be causing Kayleigh's episodes (they sound a lot like Kaden's).
My thoughts and Prayers are always with your family.
I'm praying for Kayleigh {{hugs}}
We are still praying we have not given up on her yet nor will God! We just got to keep our love hope and faith burning bright for her!!!
God bless you and keep you always Freeman family!!
Come on Kayleigh Girl! Special prayers your way from SC...Nana C.
She wants bacon! You promised and if she gets that J tube she can not taste the bacon.
Please God heal Kayleigh's lungs and make her strong so she can eat bacon.
Kayleigh is such a Great soldier of God and is doing a Great Job of bringing people to you.Help her to grow so she can continue to spread your love.
May your will be done. AMEN
I have been following Kayleigh's story for quite sometime as my daughter was born on 6/23/08 when I was only 24 weeks pregnant. MacKenzie weighed 1 pd 4 ounces and was 12 inches long. Unfortunately, she only lived for 9 days as she had developed a level 2,3 & 4 brain bleed and she also had complications from having to have her PDA closed at 5 days old. We had to make the decision to take her off life support or let her be in pain and suffer. We knew that God was watching over her and us and made our decision with peace. We miss our little girl but I believe that she is up in Heaven watching over us all and watching over Kayleigh. I will continue to keep your family and Kayleigh in my prayers and pray that she recovers completely and is healed by God.
~Shawna
Mommy to Angels Allyssa 8/13/05 & MacKenzie 6/23/08-7/2/08
Praying!!!
I'm praying for her extra hard tonight. I will also ask the intercession of Saint Jude, who is the patron Saint of lost causes, as well as the Blessed Mother to pray for her.
Whatever happens, know that God is there. And we are all here, too, praying and hoping, and loving her from the internet!
Just checking in to say goodnight and I hope to read some good good news tomorrow! I will be praying for precious Kayleigh!
Karen
cincymomof4
I am so sorry that Kayleigh had a bad day!! I will be praying that she is NOT getting pnuemonia again!! I pray that she will get stronger every day!!!
Mark 11:22-24
"Have faith in God," Jesus answered. "I tell you the truth, if anyone says to this mountain, 'Go throw yourself into the sea,' and does not doubt in his heart but believes that what he says will happen, it will be done for him. Therefore I tell you, whatever you ask for in prayer, believe that you have received it and it will be yours."
Love in Christ,
Cole’s (Caring Openly, Loving Eternally) prayer team
Have a blessed New Year!!
Sandy Daron
Our prayers are with you
Kathy
God Bless your little girl, along with you and your family!! I will keep you all in my thoughts!!
Jimi Freeman- Newkirk
NV
Like Kaden and Angel Ava's Mommy said I too was wondering about Tracheal / Bronchomalacia my twin grandsons had a journey not unlike Kayleighs and at about 8 months old were diagnosed with the Malacia and Hyper IGM - an immune disorder - we used to wonder if when they were sitting in heaven waiting to come to us if they had a medical library and decided they would present with everything and anything that could be prefaced with "This is extremely rare but ...." They had a 'Syndrome' named after them 'Collison-Hughes Syndrome' I pray every day that no other babe will get told they have that!
Still sending out those prayers wee Kayleigh keep up the good fight!!!!
I hope everything works out with Kaykeigh and she gets stronger. She is in my thoughts and prayers. From Kim and family
Praying in NC
Checking in before I go to bed - I just read this on another site - and wanted to copy it for you here to read - Am still praying and will check in on you in the morning to see how she did today - Hugs to all of you!
Walk though today with joy and peace-
for God is by your side.
Step into tomorrow with confidence-
for God is already there
working for your good in all things.
http://www.caringbridge.org/oceania/tyson/index.htm
Sorry for the third post today but you are all so much in my thoughts!
The link above is a VERY VERY abridged version of the roller coaster journey with my twin Grandsons.
Maxine XXX
oh no poor Kayliegh, Thinking of her and praying for her
Adam and Aimee,
I've been a silent follower of Kayleigh's story ever since the first time Aimee posted on the old September '08 birthclub on Babycenter.com. This little tiny angel who was supposed to be a little younger than my almost 4 month old son, Rory inspired me and touched my heart from the very first hurdle she jumped, still inside her mommy's tummy. I kept up with every update, cried tears of joy and tears of worry, and waited with bated breath for more news. All the while, I've been rooting for Kayleigh and not a day goes by that I don't think of her and wonder how she's doing. She has fought so hard...someone has made it perfectly clear that Kayleigh was meant to be here and was meant to touch so many hearts. I just wanted to say that every day I make sure to send good thoughts and good energy to little Kayleigh and your entire family. I have no doubt in my mind that Kayleigh will pull through this whole ordeal and I wish I had half the strength you all possess. I probably would have fallen apart long ago. Keep holding tight to one another and never give up hope!
And Kayleigh, for all the trouble and worry you give Mama and Daddy you better be one saint of a Teenager! You keep this up, Missy and they're gonna be gray-haired before you hit Kindergarten!
I am praying for your Kayliegh here in Finland, a small remote country in the Northern Europe.
We are praying for you and beautiful Kayleigh - The Lord bless you and keep you...the Lord make His face to shine upon you and give you peace!
Love,
The Peskirs in Charlotte
Prayers are lifted up even more right now for Kayleigh. I pray that God will continue to show us miracle after miracle with Kayleigh, in hopes that we will all become closer to God.
Faithful follower,
Michelle
Hoover, AL
Praying hard!!! Hang on Miss Kayleigh!
Praying for Kayleigh. I added your button to our blog. I hope it can bring in a few more prayers for your sweet baby girl.
Love from Louisiana,
Jaclyn
god bless you little angel. lord,give her family the strenth they need at this difficult time in their lives. and bless the caregivers of baby kayleigh. amen
Thinking of Kayleigh constantly...what an impact she has made on my life.
little angel. lord, help baby kayleigh threw this difficult time, give her parents the strengh they need. and help the caregivers of kaleigh do all they can for this angel. amen
god bless you angel
go girl go!!
We are thinking and praying for all of you. I hope things are getting better. I always worry when I nwake up and there is not a post. I am praying really hard for all of you. God Bless.
My wife and I are praying for your little bundle..
Jim and Laurel (Independence, Missouri)
We are still praying as always we love you very much and look forward to a positive blog telling us all that you just needed to tell us you weren't ready and that you are just sleeping peacefully being a good girl for mommy and daddy. George says get better soon, he loves you.
keep fighting Kayleigh girl...
we're all praying for you.
love and hugs,
dy
Thinking and praying for you Kayleigh.. Keep strong.
I have been praying so much over these last 24 hours having 100% faith in the Lord that he will heal Kayleigh. I think I went to bed praying, prayed in my dreams, and woke up praying this morning. She is the light for so many and she shines bright for our Lord and Savior. Over the past few days I get on the computer and look up the bible verse of the day. This is what it is for today and I believe God is going to continue His work through Kayleigh. Trust in him for he is all powerful.
For God, who said, "Let light shine out of darkness," made his light shine in our hearts to give us the light of the knowledge of the glory of God in the face of Christ. But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us.
-2 Corinthians 4:6-7 —
Dear Freeman Family:
As I read all the 109 blogs already posted for today and say the prayers written for Kayleigh I am reminded about how mighty God is and how his Grace will see you through this. God has chosen you to give us all a message of faith and his love for us if we will believe and trust in him. Kayleigh is a true angel sent to show us the way. You are the messengers for her. You have put your lives and Kayleighs life in God's hands and he will hear all our prayers for you and bring you all safely home here on earth until he brings you home to him.
God's Peace
June Charlotte NC
Dear Freeman Family:
As I read all the 109 blogs already posted for today and say the prayers written for Kayleigh I am reminded about how mighty God is and how his Grace will see you through this. God has chosen you to give us all a message of faith and his love for us if we will believe and trust in him. Kayleigh is a true angel sent to show us the way. You are the messengers for her. You have put your lives and Kayleighs life in God's hands and he will hear all our prayers for you and bring you all safely home here on earth until he brings you home to him.
God's Peace
June Charlotte NC
I have come across your blog from another one.... what caught my eye is the picture on the top of your blog. I too have a premie. She is 18 now . She was born at 2lbs, went down to 1 lb 8 oz.(she was born at 22 weeks) She had a hole in her heart, which surgery was needed to close. She had numerous bowel issues. She was constantly on & off her feeding tube. I know your roller coaster your on. There was nobody for us back in 1990 that had gone through this.She lived in a NICU unit for 3 months. I just want you to know, that God will take care of all of you. Its so hard to really believe that when your in the situation, but with prayer and continued prayer for those doctors to use everything in their power, your little girl will come home. I will pray for all of you, everyday. I have fought through the tears while reading your story this morning, but for some reason , I turned right to it. Please keep positive and please keep praying for your little miracle. We are firm believers in them too!! I will quit rambeling on, Im sure you have heard so many of these stories.
May the New Year bring blessings to all of you,
Stephanie
Sending prayers your way...Keep fighting Kayleigh!
Debbie
Columbia SC
As always, we are praying for your beautiful daughter.
Love, The Nadeaus
Kayleigh Hey parents, we will distance us from praying for his beautiful baby, we are in the same position of not having our baby in our arms because it is in the hospital trying to get ahead, but we have great faith that God will allow They soon ease and are with us. Never lose faith God will not abandon us.
Atte
Family Maria Fernanda Claveria
I am new to here and just wanted to wish Kayleigh the best. I had 2 sons that were preemies but not as small as Kayleigh. I wish that I could give something besides my prayers but right now I am facing my own medical crisis with my husband. We have 3 handsome boys and things are real tight right now. I will give you all the prayers that we have thought. Have faith. I know it is hard and something that is easier said than done and it is so hard to walk into the NICU everyday to not know what you are going to find but it sounds like you all have handled things very well and now I will pray for her.
We are praying for you sweet Kayleigh, you are a fighter and you will get through this.
I just got done catching up on your blog after reading from the start for 4 days and I am so sorry to hear that the surgery was postponed. Kayleigh will pull through this. I feel it!!!! She's gone from 13oz to 6lbs...that has to something.
You guys are holding strong and Kayleigh just needs to do stuff on her own time. Keep your chins up. I'm praying so hard!!!!
Rachel
I found your blog yesterday and my Fiance and I are keeping little Kayleigh and your entire family in our prayers. God bless!
Kayleigh it is your friend Katie again and I was just home with George for a little while and he sends LOVE and HUGS to you. He also prays for you constantly. My nanny told me when I was home that quite often out of the blue he will come up to her and say pray for "Ailyee" which we all know by now is Kayleigh. (That's what you get from a 2 year old preemie who hasn't figured out his speach yet) So hang in there and know that we are all your Prayer Warriors and we are here to help you fight. We love you and will all continue praying for your complete healing.
Love Always In HIS Grip,
Katie Anderson
I wanted to add to my comment that I posted about Kayleigh on my blog today asking for prayers for her. I also posted a picture. I'm sure with all my readers too....PRAYER WILL WORK. I also copied Kayleigh's button onto my blog as well.
WE ARE GONNA BEAT THIS!!!!
Love and Prayers,
Rachel
Prayers for Kayleigh. Fight sweet girl!!! We love you princess.
Hello!
I have been following your story since Amy had problems in her pregnancy. I came across it accidentally in the BBC. I was a November mom, and I believe she was Sept. I would check every few days to get updates. I went back one time and couldn't find it anymore and I put up a comment and they gave me your blog. I have been following it every day since. I have prayed many prayers and cried many times. You family and sweet little Kayleigh has touched our family. I, like many others, feel like you are a part of our family, and when you hurt, we hurt, and when you are happy, so are we! I lost my sister, who was due the same time as me. She was in a car wreck, we were both 25 weeks. They took here baby c section, but she did not survive. Sadly, my sister did not either, leaving 3 lovely children behind. We named our daughter after the name she picked for her daughter. It is kind of odd, but between the death of her and her baby, and Kayleigh's story, seeing all of these tiny miracles of God has really given me a heart to reach out and help those women and organizations that help women choose life, even if it's adoption. These tiny babies are God's children, he puts parents in place to nurture them. You all are doing an awesome job and I thank you for all you have done for others.
May God bless you and your family!
Fams4God
We are sending prayers that Kayleigh gets better so she can have her procedure.
COLE Prayer Team - www.colesfoundation.com
www.caringbridge.org/visit/rileycook
Hugs of love, Andrea
Kayleigh you are a strong little girl!! Keep fighting! Still many prayers coming from Iowa.
Don't give up sweet kayleigh!! God is giving you everything to make this procedger happen. You need to take each and everyday and say I CAN DO IT get these things done and let GOD help you through the hard one's and you will be running with all of us soon. You hang in there you and mommy and daddy and keep getting the I scared you again out and tell the dr's your ready.
love the lorec's
I would like to begin by thanking you and your family for sharing your story. It helped to get me through the month my new son spent in the NICU.
I know you have wounderful doctors. But I have lived with a chronic medical condition for the past 10+ years. And I know what finding the best treatment can take. This is not to say that your doctors are not the best or doing everything they can. But to extend he network of medical knowledge and care for your child. If you can email every doctor in your area who deals with pulmonary hypertension.
Your family and the doctors at the hosptal may never know what other doctors are reaserching. Others may have more ideas or know of other doctors in the field in other states or countries that could help. It took years to find one of the leading doctors in my illness in the world.
You can find a list of PH doctors throught the Pulmonary Hypertension Association under find a Doctor. http://www.phassociation.org/Find_A_Doctor/index.asp email as many as you can. Let them know yor story and that you are out of options.
My family will always pray for yours.
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