12/28/08 - Set in Stone!!!



Since Kayleigh weighed in at 6.4 pounds yesterday, one of Kayleigh's friends mentioned doing a comparison with her (Webkin) bestfriend, "Brittany." To learn more about who Brittany is and how she is such a special friend to Kayleigh, go back to the post on 7/5/08. As you can tell, Kayleigh is much bigger now. Hopefully it won't take her six more months to grow six more pounds. Let's pray for weight gain!!! (When are you going to pray for weight gain ever again??Ha-Ha!)

The jg-tube procedure for tomorrow is set in stone! That is if Kayleigh continues to stay at the same prognosis as she was tonight. Aimee and I are to be there a couple hours before so we can walk her down to the operating room. She will be under sedation and possibly paralyzed before she goes down so we do not risk the chance of her having a hypertensive episode. Making sure she was as relaxed as possible was our biggest concern about this whole procedure, but after mentioning it to everyone we come in contact, I am pretty sure we are all on the same page now. Kayleigh will also be under anesthesia. The doctor is going to insert a tube through her stomach and into the small intestines. This will allow them to feed Kayleigh directly to the source without the stomach having a chance to reflux and give off micro aspirations, which are tearing up the lung tissue and not helping her progress with this pulmonary hypertension.

Even though this procedure is considered a small procedure, we all know how Kayleigh acts. The cardiac cath procedure was suppose to be small too, but it nearly took her life and it took her a week to recover from it. She still has a discolored blemish on her right shin because of the artery that was damaged, causing her whole leg to turn a nasty shade of purple. Kayleigh does things backwards when it comes to everything and she doesn't do anything by the book. She handled the open heart surgery perfect, but nearly dies when she has a urinary tract infection. Hopefully tomorrow we can break the bad streak and come out of this procedure with flying colors.

Again, the procedure is at 12:00 noon (EST), so please say your prayers as we are all well aware that our answered prayers are what got Kayleigh to this point so far. Thank you so very much!

God Bless,

The Freemans :)

43 comments:

Kristin0821 from BBC said...

So excited to see the picture of her with Brittany! :) Thanks for sharing. It's amazing just how much she's grown. Hard to see it as much when you follow her day-to-day.

I will be saying a prayer tomorrow at noon for Kayleigh that her procedure will go smoothly and she will breeze right on through it.

Blessings,
Kristin0821 from BBC

E said...

Oh my! Seeing the comparison of how big she WAS next to her puppy ~vs~ now is amazing! Keep on growing, little Kayleigh!

jag said...

My thoughts and prayers are with you as you prepare for the JG surgery.

Owain's mommy said...

Sending lots of prayers Kayliegh's way!

Amber

Amber said...

Wow... she sure has grown it is hard to see that when you are focused on praying for her to continue down her amazing path to victory. I know Kayleigh is going to do great I truly feel that in my heart. I have been praying all day today and tonight when my little boy went to sleep we said a special prayer for Miss Kayleigh to have God and all his special healing angels around her during her procedure tomorrow. I know she will do great she is just so beautiful. Give 100% of your faith to God and he will lead her and you guys through this. God has big plans for Kayleigh. This is the next step in the plan and once this is complete she will just grow, pack on weight, and the pulmonary hypertension will just fade away. She is a special little girl to so many and God will be there with her through each step of this special plan. Keep your head up, have 100% confidence in your decision, and give God all the glory and let him lead the way. You guys are truly amazing and inspiring to all who follow this blog. I will continue to pray for Kayleigh today and always.

May God continue to grant you the courage and strength. And provide the doctors and nurses with wisdom and the healing touch during her procedure tomorrow and all the days of her stay in the NICU until she is home with her loving family.

God bless,
Amber Hoberg

Stephanie said...

Six times her birth weight. So if a term baby is about six pounds, then they would have to be 36 pounds at 6 months to top Kayleigh's growth. Way to go Kayleigh!

With all that Kayleigh has been through, that is truly amazing.

Many prayers for tomorrow. Will be checking for an update, cause we all want to hear things went well. I believe they will go well.

Valeri Knight said...

Good luck tomorrow, and don't give the doctors hell Kayleigh. You look so darn cute in the sleeper we sent you(last picture) and look forward to seeing you in more of the ones we sent.

Hang in there, be strong, and be brave for mommy and daddy. They will need your strength for tomorrow K. We all know you have lots to go around.

Erin said...

Good Luck tomorrow! I'm sure everything will be fine, she seems to be progressing :) I will still continue to pray. xoxo's to Miss Kayleigh. Keep us posted and the chins up.
The Polleys

Christy said...

Good Luck with the surgery! What a little miracle you have on your hands. May God Bless her and watch over her tomorrow.

Anonymous said...

I know others that have done similar comparisons and it really amazes me to see the growth in the little ones! I will be praying for Kayleigh today that she handles the procedure well and is able to keep calm. And then hopefully the pounds start adding on. I tell my baby now that her chubby legs are so cute, and I know this in once in a lifetime that being chubby is cute!

God bless and we'll be praying!

Thank you for the update and pictures!!

Elizabeth

ACMills said...

Good luck Baby Kayleigh .. we'll be thinking of you and praying for you =)

Michael, Amanda, Jules & Chase

Sarah said...

I'm still here and still praying...as tomorrow noon approaches I will be praying all goes well as well as your nerves as you wait it out.

Anonymous said...

You must be so proud of your beautiful Kayleigh, she is a remarkable and gorgeous little baby girl.
prayers and thoughts with you all for the jg tube procedure.
Lindsey, Australia

Anonymous said...

I will be praying for sweet Kayleigh to come through this procedure beautifully. Stay strong!

Andrea in OH said...

Good luck today sweet baby girl! So many people are rooting for you!

Many prayers, mine included, are going to be said for Kayleigh and the Freeman family today. I truly believe that God will bring her through this. Hugs!

Anonymous said...

I feel like a cheerleader right now chanting for Kayleigh! My prayers will be with you all day and extra ones will be said at noon!
With love from Southern NH

Amanda-The Family News! said...

I will be praying for you all - and extra thoughts and prayers at noon....
Amanda

aimee gillespie said...

Praying from Michigan for Kayleigh to come through this procedure with flying colors! Extra prayers for comfort and peace for mom and dad as they wait for the results.

Aimee Gillespie

Shelly and Jacob said...

I will say I just heard of Kayleigh's story and spent about 3 hours Sat. Night reading it. last night I logged in to read some more. My son Jacob saw what I was reading and started crying. I asked what was wrong and he said "he loved that Baby and her name" He then started crying even harder and turned into sobbing. He wants "Kayleigh to not be sick" so he started praying for her. He kissed the computer screen. (Tear in my eye)He gets up this morning and asks to see Kayleigh and sure enough there are new pictures. He was so excited. Hope you know how much a "one pound gift" has touched our lives. You have some prayers from our corner. He wants to make her a card. Can we just send it to the Hospital. If you get a chance please let us know. Hope you can feel our prayers tomorrow. Take care and we will be checking back everyday.

Anonymous said...

Sending prayers for a very successful procedure and speedy recovery! Your in our thoughts!!
The Santagata Family,
Anthony, Beth, Angelina, Julianna & Victoria
BBC Sept 08

Sara said...

Look how big she is getting. I will pray for weight gain - for Kayleigh, not me!

I will be praying for you all during her procedure. God will take care of Kayleigh and watch over you as well.

I have been following your blog, but I don't comment much. Please know I pray for your little girl daily.

Katie Anderson said...

Heavenly Father we thank you for the many wonderful things that you have given all of us, and even more then that we thank you for Baby Kayleigh, you have given her to all of us as a blessing in disguise. It has taken this tiny little miracle to help so many of us get our eyes back where they belong which is on You. We thank you for all of the miracles you have performed in her life thus far and pray for yet another miracle this morning. At 11 AM, we will all be praying as the surgeons prepare to work on baby Kayleigh and as Noon comes, we pray that you have everyone ready and you have Your hand on Kayleigh holding her, so she does not get scared and spiral out of control. Be with Adam and Aimee as they watch their little miracle once again go through another scarry procedure. We thank You for all that you are and Who you are. In Jesus Name - AMEN

Adam & AImee,

We are here for you, and everyone I know is praying for you. My whole church, my family Steve's family. A whole convent of Nun's is once again on prayer alert for baby Kayleigh, even though I am not Catholic, I know that those prayers will be heard just as ours will so, why not get them to pray as well. Please let us know if there is anything we can do for you, and we will anxiously await word letting is know that Kayleigh is doing just fine.

In HIS Grip,

Katie, Steve, George & Sidney

P.S. I emailed you a picture of George praying for Kayleigh on Christmas morning.

Mel said...

You guys she looks great!!!
Dear Lord, Thank you so much for the progress in Kayleigh. Thanks for her weight gain and this plan to help her. Lord, please be with her today as she undergoes this procedure. Help her to feel Your strength and remain calm. Please be with her strong parents and keep them steady as they make decisions and await outcomes. Lord we thank you for this miracle that is Miss Kayleigh. We thank you for the power of prayer and fellowship, even on the internet that has united so many under Your name. In Jesus' name, Amen.
Praying today as you await your procedure!
Still praying in OK, M

Anonymous said...

Saying many prayers that all goes well for Baby Kayleigh today! Thank you for posting the new pics...she looks just precious as always!! "Weigh" to go Kayleigh girl!!

Randi in MS - BBC Aug 08

Sanborn Clan said...

Hello Freemans! Wow what a great picture of Kayleigh and Brittany; she has grown a lot. We are still praying in Oregon for little Kayleigh! What a fighter she is! God does miraculous things and this just shows you how he does it! I pray that her surgery today goes well and she comes out of it with flying colors! Go Kayleigh!
Beth in Oregon

Anonymous said...

Thats our girl! Stay tough little munchkin!!! Prayers for Kayleigh

shannon said...

praying for weight gain..? I would be glad to ship her a few of my extra holiday pounds.. LOL!
she is getting so big, 6LB 4OZ. is the exact weight I brought my little guy home at.. that was 5 years ago but it is amazing how things like that stay in your mind forever! of course when they start out so tiny... you are aware of every oz they gain and you celebrate it like a birthday!
I am praying for smooth sailing tomorrow and will be sure to stop and pray for her!

God Bless you all.

The Woollard Family said...

Her surgery is set for 1 hr and 15 minutes from now (if I have my days right) and I'm praying for her! My husband keeps his coworkers updated daily and they are all praying for her. I also read Kayleigh's story everyday to my preemie that will be 1 on January 4th. Praying, praying, praying!!!!

Heather, Joseph, & Bailey Alyse Woollard

Wetumpka, Alabama

Chase said...

We'll certainly be thinking of you at noon, and before and after *wink, wink*...Stay strong baby girl, make Mommy and Daddy proud!!!

Lots of prayers heading your way...

Love~us

Anonymous said...

Praying that all goes well today! Stay strong little peanut!

Praying for you in South Dakota!
Laurie

Anonymous said...

Prayers from Texas!!
Thinking of you all!!
Kayleigh is a strong girl!
<3 to everyone!

MrsD said...

My daughter, Kaleigh Anne, and I check in on Kayleigh regularly. She is in our prayers...as is your whole family. We pray her procedure goes well and she recovers quickly. May the Lord's hand of protection and strength continue to be upon you all.

Anonymous said...

As we near noon, I am praying for you Kayleigh!! Stay strong and CALM!!!

Elizabeth

Anonymous said...

Praying for steady hands and guidance for the doctors, steady hearts for you all, and a steady Kayleigh through it all!!!
Meg

Anonymous said...

I am praying that things are going smoothly at this time, 12:15 and that there will be an easy recovering from the procedure and that Kayleigh will get the help she needs from the JG tube. Blessings to you all!

Anonymous said...

We're thinking of you all today and praying for great results and outcome of the procedure. I'm sure, I know, Kayleigh will do wonderful. I also did go back to read the post on 7/5 and seeing how far Kayleigh has come since the beginning is absolutely amazing!!!!!! Keep up the good work girl......we're pulling for ya =).

Anne
Cheyenne, WY

Anonymous said...

praying...

Erica said...

Praying hard for you sweet Kayleigh!! I never had the chance to tell you all Happy Holidays!!

Erica
mommy to 2 boys
1 who was a 31 weeker

Anonymous said...

praying everything goes as planned for kayleighs procedure this morning, and that she can continue to grow a rapid speed.god bless you all

Lindsay from MI said...

Kayleigh has been on my mind all morning. It is now 1:00 pm and I am waiting and hoping everything is alright. Stay strong!

Anonymous said...

As it is 1 PM my mind is just set praying that all has gone well and that little Kayleigh is ready to make a Lord lead recovery as she has in the past. My prayers are with Kayleigh and your family.

Anonymous said...

Praying for strength for the whole family and all the wonderful people who have been praying for a very special girl.

Irene said...

What a beautiful miricle how precious she is, our prayers continue for the family everyday!