We received the results back from the blood work done on Aimee and they point in the direction of hyperthyroidism and she could possibly have Grave's Disease. We have an appointment tomorrow with the Endocrinologist to do some more tests and hopefully figure out what medications they can put Aimee on to fix this issue. The problem we are facing is that every type of medication is not good for Aimee while she is breast feeding/pumping. We also found out the medication she was on while Aimee was in the hospital just before Kayleigh was born was not good for her either. We even asked the doctor several times to make sure and he said that it would not effect anything that has to do with Kayleigh or her milk. So, needless to say, we are a little anxious going in to this appointment because of the wrongful advice we were given the first time around. No offense to all professionals, but we don't have room for mistakes right now.
Kayleigh is hanging in there. Her crankiness has not gone away and the doctors are doing a couple tests to see what might be the problem. They have noticed Kayleigh coughing a little more than normal lately, so they are going to possibly lower the flow of oxygen she is getting as it may be drying out her throat. There are not tell tale signs, but I made a suggestion to test for RSV to be sure there are no early signs of issues there. It seems her throat is bothering her along with her breathing, so they are keeping an eye on that closely.
Since Kayleigh has been having a hard time keeping her sats up, which in return makes it hard for her to rest, the doctors have decided to increase her Nitric Oxide and bump up the amount of oxygen she is getting. Neither will hurt her, but will certainly make her relax more. She was sleeping most of the time we were there, but showed signs of irritability when she was awake. I noticed her cough and trouble breathing, but hopefully they will figure it out. They don't feel that it is reflux as she is not showing any other symptoms that point in that direction. Unfortunately, they had to resort to the sedation medication to calm her down.
As for her feedings, she is tolerating the fortifier so far. She is getting 35mls and 24 calories per feeding and barely having any aspirate so far. Check this out!!!! Her weight has really jumped from last night. She is up to 4 pounds - 10.78 ounces, but who knows if that is true weight because she was 4lb - 6oz yesterday. I hope and pray that is correct and not a faulty reading from the scale because 4 ounces in one day is AMAZING!!!
Keep praying hard for Kayleigh's growth and for Aimee to have some good news at the doctor tomorrow.
The Freemans :)