Just look at that smile!!!
I am just overwhelmed with the love we have gotten over the past two days. All the wonderful emails and comments have muffled all the bad ones out. It has lifted us up and given us new strength to just turn our backs and to never have to explain ourselves to anyone again. Thank you everyone who donated to help us out financially. I am emailing every single one of you to get your address to send you something special. GOD BLESS YOU ALL!!!
We apologize for having to explain ourselves, but we felt like God wanted us to lay it all out there for everyone to know what is going on. You ALL are our family because you have cried with us when we were sad, you have cheered with us when we were happy, and you have prayed with us every step of the way. We felt our loved ones needed to know us through and through. God has blessed our family with love and that is worth more than anything in this world. We may be struggling financially, but we are rich in love. Thank you!!!!
I also want to apologize if I didn't respond to every single email that was sent. We read through every email and comment, so not a single one went un-noticed. We have taken a lot of ideas that people mentioned and we are running full steam ahead with them. We have appointments being set and we have changes being made, so thank you so very much for giving us the ideas to make a difference. We found out quickly that insurance (for our family) shouldn't be so expensive and we are shocked that no one at the hospital mentioned some of the programs to us. We are on top of it now!
See, this is what everyone needs. This kind of support should be everywhere and available to anyone. That is something worth telling the world and sharing with everyone you can possibly know. It is not for self gain, it is or knowledge to make the right decisions in life. If I didn't have you all to begin with, Kayleigh probably wouldn't be here. With the knowledge you have given our family, you have saved our daughters life and that is what drives me to save other lives while sharing the greatness of our God.
JUST LOOK!!! Look again at her smile!!! She is happy because we ALL did what was right. We ALL did what God wants us to do. We ALL helped each other through thick and thin and We ALL can do that for so many others who need the help too!!!
No more negativity will find it's way to this site because this site belongs to God and His children. We are going to stay on track for now on. This site's main focus is to bring people closer to God, fill their hearts will love and give them hope in their own lives while Kayleigh leads the way. Nothing more than that! Praise God!!!
Now I am all fired up with joy and excitement! Kayleigh is hanging in there. We are waiting on an x-ray to come back to see what is causing her belly to be loopy and full. I think they started her back on full feeds too soon, but we'll see. She is currently weighing 6 lbs - 12 ounces. She was up to 7 lbs the other day, but I don't think it was true weight as they started her back on Lasix(diuretic) after the procedure to reduce some swelling.
I was nervous the other day when I was sitting with Kayleigh after her procedure and the nurse walked away. I had never put her trach back on when Kayleigh pulled it off, so I immediately started to sweat and pray that she wouldn't pull it off. Well, guess what??? She did! My heart sunk right away, but I put my big boy pants on and got the job done. Now I am a champ at it because she pulls it off every other minute. It is hard to see her struggle to breath when the trach comes off, but that is something I am going to have to get used to. Hopefully soon, she will learn that she turns purple and all the alarms start blaring when it comes off and she won't pull it anymore. Ha! Kayleigh?? Miss Attention Getter?? Yeah right!!
Thank you all again SO VERY MUCH for everything! We are truly blessed to have a great group of friends and we are forever in debt to ALL of you. THANK YOU! THANK YOU! THANK YOU!