2/2/09 Post Tracheostomy Surgery





The surgery went well today and Kayleigh was surprisingly wide awake shortly after she made it back to her room. The nurses had to administer some pain medication because Kayleigh was starting to get a little irritated throughout the day. The procedure took less than an hour to complete and everything went without a hitch.

Kayleigh is currently coming down on her vent settings and heading back to a normal state. She is doing such a great job through this and we are so proud of her. It was quite overwhelming at first to see Kayleigh with the trach, but I think it really got to me when she was wide awake so soon. We thought she was going to be out for at least the first full day, so when we saw her wiggling around and getting irritated, of course the first thing you think of is that she is pain. But, with her blood pressure looking good and her heart rate not shooting through the roof, she was doing fine. It was good to see nothing in her mouth or the tape strip under her nose that goes across her face.

Thank you everyone for all of your prayers early this morning and throughout the day. It means a lot to us and there is no doubt that with all the prayers delivered, God received them because Kayleigh and the surgeon did one wonderful job through this procedure.

Praise God!

God Bless,

98 comments:

Mommy of a miracle said...

I am so glad she is doing well. She is such a sweet little girl. I am praying for her!

Nutty mom-- said...

I am so thankful that she did so well. I was praying for ya'll quite often today. Those photos are overwhelming, I can't imagine how ya'll must feel. I am so happy she's doing well! She is going to be one tough teenager, you better start preparing now :)

Karen said...

I am praying that this will be the next step on the (very short) road to bringing Kayleigh home for you all - God Bless and Kayleigh looks adorable with her mouth showing! She's such a pretty little girl - I am still praying and waiting to see what Kayleigh will do next!

Kelly Alexander said...

Kayleigh is absolutely the most beautiful spirit that has been sent down from heaven by Heavenly Father! She has endured so many things. She is a very strong girl. The love that she has for you is so plain to see in her face! I hope that you can go home soon and treasure all these moments and many more as a family!! I hope that you keep growing stonger as a family and in the Lord's love!

Alison said...

Yay for Kayleigh! Way to go sweetie! She is such a trooper, you are all in our thoughts and prayers =)

mommaof4wife2r said...

so happy and thankful that i can see that precious face and her little mouth smiling!! i think it's a smile, i'm just saying!

there's many prayers for you from me...so i'll just keep right on praying. praise god for a good recovery so far!

Island Girl said...

Thank you for the update! I've been thinking about her (and you all) all day! So glad she's doing well and can't wait to see her go home SOON!! :)

Trish said...

She looks fantastic! It's so great to be able to see that sweet face without the tubes and tape in the way! She's amazing! (Her strong mommy and daddy aren't too bad, either!) Keep up the progress, Baby Girl!

Praying all the way,
Trish

ArmyTwins said...

Glad to hear that everything went good. Reading this post and waiting for the news that it went well, sent me back when my twins got trachs last summer

Mommy 2 A Miracle said...

she amazes me!!! Praying for a fast recovery and that she comes home soon!!! ~Jennifer & Baby Amanda

Anonymous said...

Good job Kayleigh! She looks so cute!

Anonymous said...

Glad to see your post before going to bed. It is very clear that God had a hand in what took place today and for the days ahead. She is a true miracle. Only good things to come!

She IS one tough cookie!! It is amazing the number of comments just shortly after you post! I know i speak for everyone here tonight, she is part of our family. We are so touch that you allow us to continue to be in your lives. We all should take notes!!

much love and prayers from Texas-kristi

Val said...

She's beautiful. I've prayed and thought about her all day. I'm glad she's doing well. Now she can start getting stronger and healthier to come home. Praying always.

Allison said...

Glad to hear the good report. God Bless you all and may she have a good night!

Marissa said...

Such a sweet face!!

I am continuing to pray.

God is good!

Alicia

The Carpenters said...

Oh, I'm glad I can go to sleep knowing that Kayleigh is a trooper and came through the surgery so well! We've been thinking about you ALL day, Kayleigh, and I was waiting for a new picture of beautiful you! :) Look like prayers are powerful, but we all knew that already, didn't we? We love you, little miss.

Aidan's mommy said...

Kayleigh - you just get more beautiful in each picture!! It is so nice to be able to see your face without a breathing tube in your mouth. You are gonna be a heart breaker when you get older!! Hope you have a wonderful night :)

Mrs. Dwiggins said...

I just ran across your blog and I have to say I've been reading about sweet Kayleigh for 2 hrs now! I've prayed, laughed, cried & smiled...She is a Blessing! Your and your husband are strong and God knew your faith was strong {He doesn't give us anything we can't handle!} Then just now I realized your in Charlotte! I live 2 min from South Park mall here in Charlotte and if there is anything my family can do besides pray please let us know!

God Bless your sweet family!
Adam, Amanda & Garrett Dwiggins

The Pyrat Family said...

how wonderful to see that beautiful face again unobstructed! I am so happy she is recouperating well!

Anonymous said...

Glad the surgery went well. I hope Kayleigh is on the fast track to coming home. She is a strong little girl.

adrianna york said...

I was just wanting to know why is Kayleigh look so purple and in the other pictures she don't. I am glad that she is doing good I wish you all the best and you all are in my thoughts and prayers.
From Kim

Paula71 said...

Praise The Father!! HE has proven once again that it is all in his plan. My gracious;) She looks great. She is a trooper and I am going down on bended knee to thank him for what he has done for Kaleigh once again. Your little Miracle has a forever chunk of my heart. Grow, get better, get out of those hospital little girl. Home is getting nearer.
PAULA

Jacqueline and Michael said...

We're so glad to hear everything went so well today! And how amazing Kayleigh was so wide awake so soon. I can see why it was overwhelming to see her with the trach at first. It was a bit for me so I can't even imagine what this has been like for mommy and daddy!

This may be a really stupid question that has already been answered somewhere but is there any estimate as to how long Kayleigh will have to have the trach?

Kate's Mommy said...

aren't you so excited to be able to kiss her sweet little lips??? I was awake early this morning and prayed for Kayleigh while she was in surgery. I'm so glad that you have Godly surgeons and docs working with Kayleigh; I know that comforts you! Blessings!

Jennifer said...

Praising GOD as this sweet baby recovers from surgery. Glory to God..that Kayleigh is on her way to getting home and on the road to her COMPLETE EARTHLY HEALING.

Thank you so much for taking your precious time to keep us updated.

~The Kargs~ Family of Six! said...

YAy! Comments are working for me now. I just wanted to let you know we've been praying for Kayleigh. I'm so glad things went so smoothly. I am going to do some research on a trach, because I guess I thought it was inserted inside her. So you will always see this? Anyway, always praying. Be Blessed~

Ani

Konnie said...

We are Happy to hear that Little Kayleigh did Great through her surgery and is doing great this evening. We have been Praying for Kayleigh and the rest of your family. We serve an AWESOME!!! God.

Robyn said...

She looks wonderful! What a strong, determined and beautiful little girl! I hope this is the road to home and it's soon! All my prayers!

MickeyMommy2Kylie said...

PRAISE YOU JESUS!!!!!! THANK YOU!!! She is such a beautiful baby girl and so amazing. We will continue to pray for your precious baby girl. Hopefully she will be on a road to home soon. Grow baby Kayliegh. GOD BLESS YOU MOMMY AND DADDY AND BABY GIRL. Thanks for the post was thinking of ya'll all day long. Mickey Mommy 2 Kylie born on the same day.

Aimee and Adam said...

Thank you all for your prayers. To answer a couple questions, Kayleigh does have a little bit of jaundice still, but I guess it shows more in some light then others. Also, her purlish color tonight could be from swelling/Adema.

The amount of time Kayleigh will have the trach is unknown. It could be a year or it could be for life, but let's pray she outgrows the bronchialmalacia and can get the trach removed as soon as possible.

Thank you so much and God Bless,

Adam

Nathalie from Toulouse said...

I am so glad that everything went well, I hope she just gets better and better and that she can finally go home.
it's great to see picture with nothing in her mouth! we get to see her full face and just as I thought she is really beautiful.
I keep the 3 of you in my prayers,

Anonymous said...

What a little fighter she is! Amazing! Now you can see her little tongue hanging out - so cute :) It must so weird for her to not have anything stuck in her mouth, but I'm sure she loves it! Thanks so much for the updates and pictures. AND, she's on her back and not upset I see. I'm guessing she'll have to spend more time on her back in the coming days/weeks due to the procedure.

God Bless!

Elizabeth

Boston

mommyandthethreeboys said...

I am so happy that everything went the way we all had been praying for!!
I can't believe I am looking at the same little girl who had us all having heart attacks not too long ago!! She is such a special baby, God must have some more major plans set for her. I can't believe such a tiny little girl has made such HUGE differences in all of our lives. The greatest gifts come in very small packages!
I Love You Kayleigh!!
Amber (Las Vegas)
P.S. If everthing goes smooth, do they know how much longer she might have until she comes home??

mommyandthethreeboys said...
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Anonymous said...

Can you please explain to us what the 2 different tubes in her nose are for?

BLess this precious Kayleigh girl, so glad her surgery went well!!

Erica said...

I am so glad things went well. You've been a constant discussion in our family! YAY for her being such a strong little one!!! Her heavenly father is taking such good care of her. Thanks to everyone who has been praying! Prayers make things happen!

The Orner Family

Debbie said...

Kayleigh, you continue to WOW me...Praying for you everyday (for Mommy and Daddy too!)

xoxoxo,
Debbie
Columbia SC

Stephanie said...

Bless her precious heart..she is so incredibly adorable!

I am so relieved that she did well and made it through the surgery!

I tell ya..I've only recently found you guys and your little girl is unbelievable. It's amazing how quickly she grabs hold of your heart and I don't even know her!

I'll be keeping you all in my thoughts and prayers as always.

April Alcorn said...

Adam and Aimee your daughter is simply amazing!!!! I can not put it into words how incredible she truly is!!!!! I am a photographer and a mommy to 3 little ones as well and I have Kaleigh's story link under a tab for things that inspire me! She is an inspiration to put it mildly!!!

You two are such strong, incredible parents!! No parent should EVER have to endure even a 1/4 of what you two have dealt with!! And instead of letting it tear you apart and away from God, it has drawn you two closer and closer to God!! That's beautiful!!

Just know that I check this blog DAILY and follow you guys on twitter as well!!! Kaileigh has big prayers and hugs coming from Michigan!!! If I were closer I would do anything to help ease the burdens on your family through all of this!!

hjg said...

What a trooper...she has such amazing strength. A true work of God!

aimee gillespie said...

I'm so glad to see that the procedure went well. We're continuing to pray in Michigan.

Sam said...

awww you can see her pretty little face! I'm glad the surgery went well.

Kala Family said...

So glad to hear such wonderful news! Can't wait to see a picture of her first smile!

Tammy said...

Please don't let the anonymous posters bother you. That is the devil working. They don't have enough courage to leave their names. I am sooo proud of little Kayleigh and so amazed by God's spirit working through her. She is a blessing to everyone! It never matters when you are saved as long as one eventually realizes who is the Savior and accepts him into their heart. May God continue blessing you and your entire family. He chose such wonderful people to be Kayleigh's parents. Thank you for sharing her with us. I am very thankful her procedure went well. I will continue to pray for her and your family. Keep up your spirits. God loves you and we all do!!!!!!!!!!!!!

lmt1073 said...

I'm so happy she is doing well. At times it is hard for me to read your blog because I sit at my desk and just cry, pain and joy at the same time. Your family will remain in my prayers and I will continue to read all your new posts! Thanks for sharing this precious bundle with us.

Anonymous said...

I've been following your blog for months now and your sweet little girl never ceases to amaze me. Her story has touched my heart in such a huge way. My little boy, Will, and I pray for her every night. I'm the one who wrote months ago to encourage you when she had her heart surgery. My son & I have spent several mths in the NICU so I can somewhat relate to what you're going through. Your strength and love for each other is also very inspiring. I pray for you as much as I do for Kayleigh. She's such a little trooper and has such a strong will. I pray that this is the 1st step in getting her home to her family. Hang in there. The world is praying for you.

Lindsey Barham said...

Freemans,
I am so glad she did so wonderful. You can see her face now and she is truely a beautiflul little girl. So, what will the next step be to get her home with you guys?

Anonymous said...

Kayleigh looks so good....thank God! We will continue to ask God to lead her through her journey. I pray and look forward to reading about her going home with her parents. Keeping the faith in New Braunfels, Texas

Cindy said...

So happy that the surgery went well & she is doing good. It is wonderful to see her face! Keeping you in my prayers.

Anonymous said...

So happy to read that my little cyber baby has had another successful procedure...one step closer to her beautiful nursery. It's also nice to see her little cherub cheeks without that ol' ET tube sticking out. Wishing you all a restful day today, Leslie in CT

Anonymous said...

Its no surprise that Kayleigh did so great with the trach surgery...she is such a fighter. Have faith, hopefully the trach in not permanent..my cousin had one for several years when she was a baby...and now she is a beautiful college senior who does not even remember those days...So glad to read each day that she is doing so well. Mom in Missouri

Melissa said...

Is that thing coming from her throat the trach? And if so, does she have a hole in her throat now? Sorry I dont know anything about it and cant really tell from the pictures. She looks good, really good. Hopefully things stay getting better. We love you Kayleigh!!

Anonymous said...

So glad to hear that all is going well. Your a tough little girl Kayleigh and you continue to amaze us all! Stay strong peanut!

Laurie in SD

Diane said...

Hello. My son also has had to have a tracheostomy put in. He was on a vent as well.. Actually..he still is. He's 6 months old. He's at home w/ us though and doing so very well!! My son has been thru soo much in his little life so far also. I praise GOD everyday for him and for bringing Landon home to us. Dr's say he should be off of the trach and everything by age 2. I'll continue to pray for ya'll.. God bless!

PS. Your welcome to go to my myspace page and check out all of Landon's pics! :)

Diane said...

Hello. My son also has had to have a tracheostomy put in. He was on a vent as well.. Actually..he still is. He's 6 months old. He's at home w/ us though and doing so very well!! My son has been thru soo much in his little life so far also. I praise GOD everyday for him and for bringing Landon home to us. Dr's say he should be off of the trach and everything by age 2. I'll continue to pray for ya'll.. God bless!

PS. Your welcome to go to my myspace page and check out all of Landon's pics! :)

mrsrubly said...

kayleigh, girl you look so pretty w/out all them tape strips..your true beauty is shining through sweet girl. i am so happy to hear that you did so well through the surgery and after! god is great and he answered the prayers for you and your precious family! you go girl! i hope the irritability is very minimal..til next update!

Doe-Tre'-Me said...

Kaleigh was in my thoughts all day yesterday. I kept up on the twitter comments, which helped to ease my mind, though I am so glad to hear that all is done and that she is doing so well. She is definatly being kissed by angels.

C.C. and Double T said...

Praise God!

Shazza911 said...

Go Kayleigh!! You are one step closer now to getting home with your parents!! So glad you came through the trach surgery well!!

Erin said...

I'm so proud of your little angel! But I knew she could do it all along, she has done amazing things thus far. She will be up and running in no time, and mom and dad can relax. I pray she heals fast and grows out of her trach. She is such an amazing fighter. Give our little cyber baby plenty of xoxo's.

Anonymous said...

Prayers for our sweet girl

Anonymous said...

thank you for the updates. She is so darn cute, tubes and all. Those who leave bad comments should be ashamed of themselves. If people feel that they want to give material support as well as well wishes, why should they be so envious. And I understand your desire to encourage others who may be fighting the same fight as your family. Its your way of letting them know that they are not alone. All my best to you and yours. Darrell

E said...

Goodness, to imagine her little life and how drastically its going to change once she gets to go home and no tubes or needles or pokes. I'm glad she'll have NO MEMORY of all she had to go through... But she sure will appreciate the memory book when she SEES what all she had to go through.

Such a little trooper! Way to go Kayleigh!

Jennifer said...

BLESS HER HEART! GLAD EVERYTHING WENT SMOOTH.

Anonymous said...

There are so many people on your side! We're praying for sweet and precious Kayleigh everyday!

Queen Mommy said...

Kayleigh looks great! I have a feeling she'll really start to pink up and get way more active in the next few weeks. Just having the trach in place, will make it easier for her to do some of the things a "healthy" baby can, things she couldn't do with the ET tube gagging the back of her throat.

Every bit of tape and every tube that goes away...I used to get so excited about those things! It will be awesome when Kayleigh doesn't need her NG tube anymore!

I want to encourage you to consider the chain trach ties. Talk to an RT about them. The nice thing is that there are fewer issues with skin breakdown because they allow more air circulation. Also, they only need to be changed every 2 weeks, when you do a trach change. The one thing to watch for is that the clasp doesn't cut into her neck. I used to make sure I placed the clasp kind of right over the little hole on the side of the trach where you thread the tie through, and we never had any problems with it.

Kayleigh is one little fighter, that's for sure! Praise God she's doing so well!!

God bless,
Robin

P.S. To the person who asked about whether or not Kayleigh has a hole in her neck now: The answer is yes. It's probably about the size of a toddler finger (it's not very big, but big enough for the "cannula" or the tube part of the trach to fit through) that goes through the neck into the windpipe (trachea). The tube (as well as the vent pressures) help to stint her airway open so Kayleigh can breathe. Hope that helps to answer your questions!

Queen Mommy said...
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Queen Mommy said...
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Amanda C. said...

Wow! what a blessing. I remember when my son was the NICU and he had brain surgery to place a VP shunt in his ventricles...Like you I thought for sure he would be out for the day...when they let me into his pod to see him after surgery he was awake and smiling!!! all I could do was cry and say "This child is my hero." Just as your sweet Kayleigh is and she will over come all this...I know it. Then when she is 3Yrs old like mine is and has a mind of her own...you will be frustrated...but in the same breath be thanking GOD still and forever will... for allowing you and Amiee to be her parents...because Adam you and Amiee as well as your children at home are all HERO'S...I will keep praying for you all.

4 Lettre Words said...

Oh, look at her!! What a blessing!

Prayers that she heals quickly. I can't wait to see a big smile!

Anonymous said...

I thank God that everything went well with Kayleigh's surgery. I was so afraid that she would have a bad time coming out of the surgery like before but Kayleigh always surprises us.

I have a question, since the tube is in her throat will she be able to make any sounds (cry, talk, etc.)? Thank you for your updates.

Tiffany in NM

Kat Drinkard said...
This comment has been removed by the author.
Kat Drinkard said...

Good job sweet baby Kayleigh. I have been thinking a/b and praying for your whole family, you and the surgeons today. I will continue to pray for your speedy recovery. You are so strong and such a inspiration to so many!!! God bless and keep strong baby girl!!!

Kat

Elkins 5 said...

No one could look more beautiful with everything she has going on!

The Pirsein Family said...

Wonderful news. She is such a tropper and staying strong! She is such a beautiful baby girl. Thoughts and prayers continue to be with your family and baby Kayleigh.

The Pirsein Family said...

Wonderful news. She is such a tropper and staying strong! She is such a beautiful baby girl. Thoughts and prayers continue to be with your family and baby Kayleigh.

Jen said...

I look at her latest pictures with tears in my eyes. How much more does this little precious angel have to take? I pray her life is easy after all of this. She has really been through something and is the toughest person I know. Thank you Kaylee, for reminding me to be grateful for the things I have and appreciative of my family. Your life puts so many things into perspective. Thank you for struggling and fighting. You bring honor and glory to God because your life reminds me of how great and in control HE is. You truly are a tinly little powerful witness of Him.

Nathalie from Toulouse said...

glad to hear she is doing great! she must like sucking her fingers even more now that she has no tubes to bug her!

Randi said...

I am so glad that Kayleigh did so well with the surgery! We were praying things would go great!! It is wonderful to see her beautiful face!! What a precious little baby!! Just think, before we know it, Kayleigh will be going home...Oh how exciting!!

Margaret said...

Hey anonymous....shut up will ya?? The Freemans really do want prayers for their baby girl...like anyone else. They aren't using Kayleigh or her followers!!!! You know WHY they say things like that??!?! People these days beleive and do anything Oprah says...so if she says "Go to Kayleigh's site" guess where half of amreica's women are? You guessed it. Therefore, Kayleigh recieves more prayers! See how that all works?
And the Freemans are VERY sincire in their Faith...What if God gave them Kayleigh so that their true colors would show and they would turn to God? I don't know what His reason for all this is, but it doesn't matter what "type" you are...if you get to God, no one should judge you on HOW you get/got there!!
On a lighter note...
STAY STRONG BABY GIRL!! You are doing great... show this preemie disorder who's boss!!!!!!

mrsrubly said...

i don't blame for trying to pull out the tubes! that sounds like fun and then she gets attention! LMBO~go Kayleigh. i am so happy!

Sharleen said...

Praying for your sweet baby girl!

KIM L said...

MY COMMENT IS FOR THE "RELIGOUS" PEOPLE THAT QUESTION YOUR RELIGION. I HAVE A 32 WEEK PREEMIE AND IT TAKES A LOT OF PRAYER TO GET THROUGH THE EXPERIENCE. SOMETIMES YOU HAVE A SITUATION WHERE YOU NEED MORE GUIDANCE FROM GOD AND HE IS ALWAYS THERE FOR YOU. JUST LIKE THE WONDERFUL POEM "FOOT STEPS", SOMETIMES HE NEEDS TO CARRY YOU. LEAVING YOUR CHILD IN THE HOSPITAL AND GOING HOME EACH NIGHT TO AN EMPTY ROOM AND TRYING TO UNDERSTAND WHY IT HAS TO BE THIS WAY. IF YOU HAVE RELIGION IN YOUR HEART, YOU WOULD NEVER BE THIS UNKIND TO A FAMILY THAT HAS HAD THEIR LIFE TORN APART AND NEED HELP. I THINK YOU SHOULD PRAY ON THAT AND SEE WHAT HAPPENS. IF YOU DON'T WALK IN THEIR SHOES DON'T JUDGE. GOD NEVER JUDGES! BEST OF LUCK TO YOU AND YOUR FAMILY, I WILL CONTINUE TO PRAY FOR YOU.

Leigh Anne said...

Praise God! One more obstacle He has brought Kayleigh through. So, as her prayer warriors, what is now that we have to pray for Kayleigh specifically for. Besides the obvious of getting that baby home. Is the lung issue now her only major obstacle? What exactly needs to happen now?

Jasmine said...

I'm so glad Kayleigh made it through the surgery well. Her pictures make my heart melt... she is a beautiful baby girl.

Cristi said...

Praying that she wont have to have it nearly as long as they think she will. In His Name

birni said...

I'm so glad that Kayleigh is doing well. The photos that you have posted post-trach really touched me, and I can imagine how overwhelming it would have been for you. A tracheostomy would have been the only way my baby boy might have survived, but the med team would have only had minutes or seconds to accurately diagnose and perform the procedure. My baby boy was born in Sept 08, full term, and supposedly healthy, but just 45 minutes later, chanting prayers and begging God to let him stay, he was born to the angels. The cause was a rare congenital condition, only about 50 or so documented cases in the world. Lucky us.
I pray for Kayleigh's continued improvement, and for God to remain by her side, and yours.

xx

Norma said...

Precious little girl! I too think you should look into the metal chains.. just from experience. I am a home health nurse and take care of a little girl (not so little anymore 13y/o) with a trach... and they are MUCH easier and the skin breakdown factor is zero. Kayleigh is such a little fighter... and too cute! Thanks for sharing her story and keeping us updated in everyway possible! I follow you on facebook and twitter and here on the blog and was anxiously awaiting your tweet yesterday about surgery. :) What an inspiration you guys are!!! God Bless!!!

Brianne Hanson said...

So sorry this comment is late coming to y'all but our little girl, Kaylee, was back at the hospital yesterday so I just got the chance to check on little miss Kayleigh. I'm so proud of her and so thankful that everything went well! This is wonderful news, and I continue to pray that she will come home to you soon! Keep up what you are doing, she has the best parents in the world :)

Brianne Hanson said...

So sorry this comment is late coming to y'all but our little girl, Kaylee, was back at the hospital yesterday so I just got the chance to check on little miss Kayleigh. I'm so proud of her and so thankful that everything went well! This is wonderful news, and I continue to pray that she will come home to you soon! Keep up what you are doing, she has the best parents in the world :)

Keisha (Mommy) said...

I have been reading about Kayleigh for quite a while. I agree with you that the Lord is in control and has cradled little Kayleigh in his arms since the beginning. He loves you and he will never leave you.

I have a 30 week preemie who is now going on 14 months old. She spent 6 weeks in the NICU and that made my faith more strong than it has ever been. It put my belief and faith in God in stone. I can't imagine not taking my baby home for so long. I ache for the anonymous, cowardous posters. It hurts me to see someone who hasn't found God and who has such little warmth in their heart.

I really admire you guys, and my faith takes another huge leap as I continue to read about Kayleigh. It makes me smile to see how much God loves us ALL and especially how he gives us such amazing miracles, such as Kayleigh, to bring joy and love into our hearts and to help us share it with others when they need it.

I'll be reading!

Kaytlinn's Blog said...

Thank God she did so well!! We knew you could do it baby girl!

JanaBanana said...

Bless her precious little heart. She is such a little trooper.

Amy in SC said...

I have been following your little girl's journey for awhile now...this is my first time commenting. I pray for you, your little girl, your family, and the doctors. My husband went through a life threatening illness while I was pregnant with our first, and it was the power of prayer and God's awesome grace that saved him. I am certain of it. I am writing to tell the person(s) who questioned your faith that you probably need to spend your time working on your own relationship with Jesus. Volunteer at a local hospital...see how a serious illness affects a family...emotionally, financially, spiritually. It turns your life upside down. It is our jobs as disciples of Christ to help those in need...whether it's by prayer, our time, our talent, and yes...our treasure. God told us to not hold onto our posessions. To use that for the good of others. I will start praying for you. I will pray that the burdens you carry are released from your heart so that you can see the truth.

Kayleigh! Stay strong. You are an amazing little girl and we know God has an amazing plan for you! We hope you continue to let us stay along for the journey! Thank you for letting us be a part of your story. :)

Dina0610 said...

I wish that I had half the strength and courage that sweet baby girl does. It's so great to see that she looks much more comfortable! Keep it up Kayleigh!

Anonymous said...

I will continue to pray for you guys and I am also going to say a little prayer for all the posters on this blog, good & bad, may God work in their lives. Good luck to you all.

Jean in SC

Mommy of Multiples said...

Your daughter is precious. I am and will continue to pray for your sweet baby as she develops and grows in the NICU. She looks like a fighter and I know God is going to carry you through this time. One day you are going to look back and not be able to grasp how you ever made it through this time. I speak from my own experience. I delivered quadruplets at 26 1/2 weeks. Our last one to leave the hospital after five months was trached. And I'll have you know...despite everything she has been through...she is the strongest person I know. Last summer she had reconstructive airway surgery and was finally successfully decanulated and eating on her own, no gtube. She is 3 1/2 now. I don't say any of this to scare you..just to reasure you and encourage you that no matter what..the tiniest of babies can be the strongest. Know that your preious baby Kayleigh has a special place in my heart. HUGS!

maauche said...

hi,
kayleigh's story really touched me. do not worry for the good Lord is with kayleigh all through this journey, it shall be a great testimony.
i, myself is going through the same with you, my little girl was born three months earlier, weighing ONE lb and six oz.seeing her so small yet going through some surgical operation, i cant even discribe how i was feeling emotionally then, but God showed me the reason why HE is GOD, my little one is doing fine now and so as yours in Jesus name. all is well with you.
LOVE