Today was a special day as we spent one last day with Kayleigh before she goes in to surgery. I call this time period the calm before the storm. It almost feels that every time Kayleigh has recovered to the point she is acting and feeling her best, she is then put through another procedure or surgery that sets her back again.
I look forward to the day that I can worry about no more procedures, no more wires, no more tubes and no more monitors. I look forward to the day that Kayleigh will be so healthy and she will smile and giggle until she wears herself out. The day where Kayleigh can run around the house chasing the dogs and pulling at their tales. This time will come for sure (I know), but it just won't come fast enough.
Seeing Kayleigh play with her mobile for the very first time was a sight to see. Beyond the noise she was making while sucking on her fingers, she was moaning in such a way that really exemplified how good those fingers tasted. She was so happy and it just kills me to know after tomorrows procedure, it is going to be a while before she is that happy again.
However, I do know this trach surgery is going to be the best thing for her and I am so excited to see her progress once she recovers. It is just such a tease to spend 10% of this whole journey seeing Kayleigh happy and joyful, and 90% of the time not. The one thing I crave more than ever with Kayleigh is to one day be able to just nibble on her soft skin, tickling her to no end, and sending shouts of laughter through her voice. And that day is going to come, I just know it!!!!
Surgery starts at 7:15AM and they are going to take her down at 6:30. The procedure takes about an hour, so please keep us and Kayleigh in your prayers during this time. Pray that God will guide the surgeons hands to do a perfect job. Since Kayleigh is so tiny, and there are blood vessels in the throat that are in risk of being cut, the world renown surgeon is going to cut from in the inside out. He will do a broncoscopy, which will send a microscopic camera down her throat to make the incision at the trachea from the inside. He has performed thousands of trach procedures, so I am very confident in his abilities. When he is not working, he is on missions doing wonderful things to glorify God. We know God will be there guiding him through with safety and skill as God is perfect in everything.
Pray for Kayleigh!