Look who has a big girl bed!!!
Kayleigh is doing great! Aimee and I both were beyond excited to see Kayleigh looking more like her normal self today. She is recovering really well from the Tracheostomy procedure and her belly is starting to come down little by little.
They still have her on 3 mls/hr, but she is tolerating it very well, so they may increase that a little more soon. I was shocked to walk in today with the respiratory nurses giving Kayleigh a workout with the CPAP, which is a step up from the vent. They were trying her out for fifteen minutes to see how she would do without the vent and she did great. I believe they are going to try it everyday and increase her time off the vent. It would be great if she can come off the vent completely and go home on CPAP. They both hook up to the trach, so it really isn't a whole lot of difference on the exterior, just different when it comes to pressure controls.
Overall, Kayleigh is making good progress. Depending how her belly is and her ability to tolerate her feedings, will determine whether or not they try feeding her a bottle or put in a g-tube directly in to her belly. After that, the doctors are debating whether or not to start weaning her off the Flolan for her Pulmonary Hypertension. The ECHO that was taken the other day still showed her pressure in the high 60's, but she is not having and nasty episodes so the doctors are pleased with the results.
Honestly, I don't see what else needs to be done. I just hope these minor hurdles don't take forever and we can start planning on bringing her home. Let that be our prayer request for the next week or so. Pray that things will continue to progress in a direction that will FINALLY bring our little miracle home. What a glorious day that is going to be!
Thank you all for your wonderful comments. They are so uplifting and they certainly keep us smiling day after day. Everyone has been so incredible and I wish we could go around and give you all a huge hug for the love you have given us. Thank you so very much!