Ha! I was having too much fun with the camera.
First of all, I wanted to let everyone know that the NBC News Affiliate (WXII Channel 12) will be airing our story Wednesday night at 5pm est. They will be putting the feed on the website for all of those who are not local to the Winston Salem/Greensboro area. We are one of those people, so they are going to mail me a DVD of the story and I will also post it to the blog when it comes in.
Kayleigh has been doing awesome over the past couple days. She has gone up on her feeds and her belly is not so bloated anymore. Yesterday, she was enjoying our company with tons and tons of kisses. It was perfect as every time we would give her some smooches, it was almost as if she was closing her mouth and puckering up for us. She is so sweet when she is not in any kind of pain or discomfort, so we are overly excited about her progress right now. The stress level is almost instantly lifted and we get to enjoy spending time with her like normal parents should. It is unfortunate that we haven't had many days like these and the ones we did, were short lived and practically forgotten.
Speaking of great days and spending time with our children, a lot of you asked how Brandon and Allyson are doing through all of this. From the outside in, I can imagine thinking "How do Adam and Aimee have enough time in a day for everything that is going on in their lives, especially time for Brandon and Allyson?" Well, we don't have all the time in the world! But, with the time we do have, our major focus is to be the best parents we possibly can to each of our children on a daily basis.
Our schedule goes a little something like this: We wake up around 7:00am and work until we have to take the kids to school at 9:00. We then come back and work some or go straight to the hospital until we have to pick the kids up from school at 3:45. We then work some more, do homework then dinner. After dinner, we give the kids full attention to do whatever they want. Whether it is board games, TV shows, a movie, computer games, or video games. No matter what it is, we have a blast and we make the best of our time together so they feel as they are 100% loved. When they go to bed around 10:00, Aimee and I work, blog or spend some time with each other until 3 in the morning every single night.
They are handling this whole situation like champs. Honestly, their lives have not changed one single bit. The hard part is they are not able to go see Kayleigh because of RSV season and that has been going on since September. They saw her once passing in the hall as they took Kayleigh to the Cath lab, but then again, that has been a while now too. Every time they hear she is doing rough, they are sad because they see us sad. Although, they are very excited to hear when Kayleigh is close to coming home. Hopefully the next time around their hopes aren't shattered. They think it is the coolest thing when we talk about having 24 hour nursing care in the home, but they are just kids and I am jealous I don't look at the world the same way they do.
Overall, they both are doing amazing. Allyson made the A-B Honor Roll and Brandon received Wolf of the Day over 5 times, which rewarded him with his handprint on the school hallway wall. They are both two amazing children and life is such a wonderful experience, just watching them grow in to their own personalities that continue to make us die with laughter every single day. I can't say enough good things about them, but I do know for sure that I am One Blessed Dad to have a family like this.
When Kayleigh decides to finally make the journey home to our house, we have an idea that I wanted to ask your opinion about. I am planning on creating a whole different blog that will allow you all to continue to follow Kayleigh's journey at home, but also follow our family as well. We will leave the hospital journey (old blog) and start the home journey (new blog) from then on. This will allow Kayleigh's story to remain just as it is on her blog for those who want to learn all about the NICU experience to educate themselves and help give them hope through their own journey's. The final post (When she comes home) will direct everyone with a link to the new site if they want to continue following in her story along with the rest of us. What are your thoughts about that? Would you care to hear about our crazy family? LOL
If you think it is a good idea, we need some help!!!! We can't think of a blog title! So, I am asking for EVERYONE to pitch in their ideas for our family blog title and we will award the person with the best idea with a huge.........uummmmm..........A huge...........and I mean a huuuuuuuuuugggggeeeeeee..........................A VERY HUUUUUUUUUUUUGGGGGGGGGGGGEEEEEEEEEE.........Thank you :)