2/21/09 - "LOOK AT ME NOW"
You could hear nothing but "AAAWWWwwwwaaaaaaAAAHHH's" going on in the room when Kayleigh was placed in her little blue chair. It was the cutest thing I have ever seen. Although, I will probably say that every single time she does something new. Can you imagine how hard I am going to ball my eyes out when she talks or walks for the first time? Oh man, someone is going to have to give Daddy a bucket.
Kayleigh is doing fantastic!!!! She was taken off her Triple Mix (IV Nutrients) today and her caloric intake was increased to 25 calories. She is tolerating all of her feeds very well. They are decreasing her pain medication 5% each day, so we are making progress on that. The less she is on that, the more she will be able to focus and her eyes won't roll around so much. She is weighing 6 lbs - 14oz, and we expect a little more growth now that she is getting back up to her max feedings soon.
Kayleigh is just moving a long in the right direction. As for an outlook as to how long before she comes home, I am not sure. I was hoping it was going to be a couple months after she had the trach put in, but that may not happen since her feeds were cut back a little. I think if she continues to progress as well as she is now, it shouldn't be too much longer.
It was such a blessing for Kayleigh to be held again. I am just so pleased that she was not as cranky as she was before when we held her. Aimee felt so great holding and loving on her. We were shocked that Kayleigh was going to enjoy it, but she was so comfortable and didn't get upset at all. It is very sad when holding your child upsets them as it is not the norm in their daily routine. There is a lot of challenges that are in Kayleigh's future, but I have no doubt she will conquer them all. She has already proven she can overcome anything.
We go through every day with the challenges that we are faced with thinking about Kayleigh and how tough she has it. Even though we are struggling, I think about how easy we have it compared to Kayleigh and how she keeps fighting the tough battles. We get our strength from her and she is such an inspiration to our family as you all mention the same for yours. She has taught us so much in life and we are two of the luckiest parents in the world. God has blessed us with Kayleigh in so many different ways and we are so ecstatic to have such an AWESOME GOD!
Thank you ALL for your love and support. I apologize if I am not able to respond to all the emails, but please know that we read them all and are touched by your words.