4/18/09 - Post-Operation Update

Just wanted to thank you all for the great comments on the videos. It was a blessing to bring you all in a little closer to our family. If you missed the videos, check out the last post and watch how our day (yesterday) went down.

Kayleigh-bug, little munchkin, petunia, little miss thang, heart attack giver is doing better and better as the hours go by. I didn't want to alarm anyone, but last night was scary as all get out. Just after I posted the "first/failed attempted" videos, we got a call from one of the nurse practitioners telling us Kayleigh's body was not accepting the crazy amount of pain medication they were pumping her with and she had a pulmonary hypertensive episode to where they could not get her sats back up without putting her on the Nitric Oxide. If you all remember how "December" went down, you will remember NO2 all too well. Basically, NO2 was a life saver.

Needless to say, with her oxygen and vent settings up as high as possible, enough pain meds for 3 grown adults and the Nitric Oxide flowing through her body, Kayleigh was saved from disaster. Besides having to get two blood transfusions already, and several doses of Lasix to remove excess fluid off her body, she's recovering slowly but surely.

The biggest scare was her blood pressure though. The median number was creeping in to the 30's and that is not a good sign, especially when she has pulmonary hypertension. The normal median number for her should be in the 60's, so half of that spells bad news. On the other hand, the swelling in her abdomen is the cause for this by putting pressure on her lungs and heart. With the Lasix pulling fluid off, she has been peeing quite a bit and is probably half the size she was yesterday. Aimee and I were beyond shocked to see how blown up she was from the surgery. Kayleigh's belly can get big sometimes, but damn WOW it's HUUUGE!!!

So right now, Kayleigh is not being bothered by anyone so she can rest and get herself recovered fully before another attack hits. The more she is calm and the more the swelling goes down, the better she will get. Please pray that happens quickly.

Sorry, I have to interrupt to tell you something funny. The doctor just called and of course every time you see the hospital number come up, your heart drops. Anyhow, we joked about this today with her at the hospital, but she normally is the same doctor who can't catch a break and calls us every time there is bad news. Well, she just called to prove a point that she doesn't always call when it is bad news and told us that she is looking at Kayleigh right now, satting at a 100% while sleeping peacefully with a much better blood pressure number. We laughed pretty hard and it felt good to laugh.

Okay, so please pray for Kayleigh to pull through this as she seems to slowly be doing. We have made it too far for something like this to get in the way and bring her down. She is a true fighter and has shown us that so many times. Can you imagine, she has been through so much more than 98% of all humans, in less than 10 months. Goodness gracious.

Praise God for His amazing gifts. We are so blessed to have Kayleigh show us how precious life is and how awesome your love is. Thank you Lord!

I didn't get to show this other day when I wanted to, but this was the first newborn outfit Aimee and I bought when we found out we were having a girl :) I am so proud and emotionally touched that I finally get to see my sweet little girl wearing it.



God Bless,