4/18/09 - Post-Operation Update





Just wanted to thank you all for the great comments on the videos. It was a blessing to bring you all in a little closer to our family. If you missed the videos, check out the last post and watch how our day (yesterday) went down.

Kayleigh-bug, little munchkin, petunia, little miss thang, heart attack giver is doing better and better as the hours go by. I didn't want to alarm anyone, but last night was scary as all get out. Just after I posted the "first/failed attempted" videos, we got a call from one of the nurse practitioners telling us Kayleigh's body was not accepting the crazy amount of pain medication they were pumping her with and she had a pulmonary hypertensive episode to where they could not get her sats back up without putting her on the Nitric Oxide. If you all remember how "December" went down, you will remember NO2 all too well. Basically, NO2 was a life saver.

Needless to say, with her oxygen and vent settings up as high as possible, enough pain meds for 3 grown adults and the Nitric Oxide flowing through her body, Kayleigh was saved from disaster. Besides having to get two blood transfusions already, and several doses of Lasix to remove excess fluid off her body, she's recovering slowly but surely.

The biggest scare was her blood pressure though. The median number was creeping in to the 30's and that is not a good sign, especially when she has pulmonary hypertension. The normal median number for her should be in the 60's, so half of that spells bad news. On the other hand, the swelling in her abdomen is the cause for this by putting pressure on her lungs and heart. With the Lasix pulling fluid off, she has been peeing quite a bit and is probably half the size she was yesterday. Aimee and I were beyond shocked to see how blown up she was from the surgery. Kayleigh's belly can get big sometimes, but damn WOW it's HUUUGE!!!

So right now, Kayleigh is not being bothered by anyone so she can rest and get herself recovered fully before another attack hits. The more she is calm and the more the swelling goes down, the better she will get. Please pray that happens quickly.

Sorry, I have to interrupt to tell you something funny. The doctor just called and of course every time you see the hospital number come up, your heart drops. Anyhow, we joked about this today with her at the hospital, but she normally is the same doctor who can't catch a break and calls us every time there is bad news. Well, she just called to prove a point that she doesn't always call when it is bad news and told us that she is looking at Kayleigh right now, satting at a 100% while sleeping peacefully with a much better blood pressure number. We laughed pretty hard and it felt good to laugh.

Okay, so please pray for Kayleigh to pull through this as she seems to slowly be doing. We have made it too far for something like this to get in the way and bring her down. She is a true fighter and has shown us that so many times. Can you imagine, she has been through so much more than 98% of all humans, in less than 10 months. Goodness gracious.

Praise God for His amazing gifts. We are so blessed to have Kayleigh show us how precious life is and how awesome your love is. Thank you Lord!

I didn't get to show this other day when I wanted to, but this was the first newborn outfit Aimee and I bought when we found out we were having a girl :) I am so proud and emotionally touched that I finally get to see my sweet little girl wearing it.



God Bless,

56 comments:

Anonymous said...

praying that kaleigh's belly gets smaller and less swollen by tomorrow. poor lil girl has been through a lot of surgery in one day, it will take time for her body to readjust to the trauma it has been through. swelling is a natural response to the surgery. hope her pain is better controlled now. i love that outfit she is wearing. i was curious, i see the G tube dressing and the new central line, but what is the bandage on her neck and right below it on chest for? thanks and will keep praying for her full healing. we anoint her in the name of our Father.

April said...

So SO glad to hear they Kayleigh is pulling through. Even through the scares she her body puts you through - she's saying..."See Mom and Dad, I can do anything" I will pray for her blood pressure to stabilize, for her pain meds to stay in control and for her smile to reappear on her face real soon! What a miracle from God!

Kelli said...

Bless her Lord...I pray she gets better each and every day.

Shanda said...

Oh my goodness I fought back tears when I saw Kayleigh's belly. Poor baby. I am so glad to hear she is doing better and will continue praying that she will get well enough to come home soon......and before she can legally sit forward facing in the car (video clip pre surgery comment). In my thoughts and prayers.

Anonymous said...

O man...i'm sorry to hear you guys had a scare last night..although I have a feeling Kayleigh is going to be just fine getting through this. She is sure one TOUGH COOKIE!! I pray for ...Kayleigh-bug, little munchkin, petunia, little miss thang, heart attack giver (LOL) that was to cute not to include..to get through this quickly.
You guys are truly inspiring =)
LinMarie

Aimee and Adam said...

Anonymous - The doctor had to make three incisions to insert the newest central line. It was a tricky procedure, since this was her third line inserted and the other two sites were not available to access again.

The doctor was worried mostly about the blood vessels surrounding this site, but thankfully, he got the job done with no problem :)

She had too many incisions yesterday, but more scars to share her beautiful story.

God Bless,

Adam

Adam and Sherry said...

I am so relieved to hear from you tonight!! I have been worried all day long. Worried that something had happened. I am so glad she is getting better. Those pictures broke my heart for her. I am so amazed at you and Aimee's strength. You are truly amazing people and your video's prove that. We are keeping your sweet Kayleigh in our prayers and we hope for a great report tomorrow.

Leslee said...

Your brave little girl is an inspiration as are the two of you!

I follow your blog and pray for Kayleigh and your family daily!

Thank you for sharing your videos as it brought us so much closer ~

Kira said...

Good Lord, her poor swollen belly... This little girl would bring an athiest to prayer! She's precious.

We believe in miracles, and Kayleigh is a miracle: Therefore we believe in Kayleigh. :) You can do it baby girl!

She is in God's shirt pocket for sure.

avbernat said...

Kayleigh's belly looks painful, I couldn't pull through something like this, you've truly got a fierce fighter there. I'll be praying everyday until she gets to be home with her entire family. I'll be praying that her belly starts to swell down (I wish I could take some of that pain away - poor girl).

May you and Aimee find peace these next couple of days and trust in Him and the awesome knowledge that the doctors have been blessed with.

I'm LOVIN' the onesie, and I'm sure it's exactly what she's thinking.

Can't wait to see Kayleigh look up at the camera again and listen to her coo and watch her smile on the VLOG.

I forgot to mention in the last post how much I have fallen in love with Kayleigh and in the first video when she is smiling in her sleep sealed the deal for me. BEAUTIFUL. MIRACLE. INSPIRATIONAL. FIGHTER! GO KAYLEIGH!

Analiza

Kristen and Andy said...

Thanks so much for updating us on Kayleigh today - she was in my thoughts/prayers all day. Those videos from yesterday were so touching - the strength and courage y'all have is so inspiring. Thanks so much for letting us join you in this journey with your amazing little girl. She is such a strong little girl - absolutely beautiful. Praying she continues to get healthier and stronger with each day so she can finally get to go home with her family!

Shari said...

Such a sweet baby. She is such a fighter and a true testimony for the Lord's grace, love, and goodness to us. She's beautiful in the outfit!

Lisa said...

I watched your videos yesterday and I cried. Im so happy that Kayliegh is done with that journey and on her way to coming home! God Bless you all.

Jacinda said...

I am so happy she is doing so well. A friend of mine told me about your amazing little girl and I keep checking the blog. I hope she goes home someday. I would love to meet her someday and tell her how amazing and strong she is. You all as well. You deserve to be happy. Your family is beautiful. I will continue praying for you all.

janice said...

The good thing is lil Kayleigh won't remember all this when she grows up. Praying for her speedy recovery! Just curious, I notice her nose is very flat and has no bridge at all. Is that from her syndrome?

Gayle said...

It's wonderful that she is sleeping peacefully tonight. The more rest she can get the stronger she can become. Best wishes.

Kirsten: said...

Praying that Kayleigh keeps fighting!!! We wish nothing but the best for her and your family.

XOXO

Praying from Katy, TX

Just an ordinary woman said...

I just watched all your videos and it was so great to get such a personal touch from your family - it really added some of the emotion and love that surrounds you constantly.

Kayleigh is constantly in my thoughts and I pray that she is doing even better today.. I look forward to seeing more pictures of her as she goes from strength to strength.

Kerren
South Africa

lisapooh98 said...

What a beautiful face with NO tubes! How awesome is that!

Love,
Lisa

Babs said...

Thanks so much for taking the time to tape everything, I wish I could help out in some way, you guys looked ready to drop. I'm so glad Kayleigh is on the mend, I'll be a prayin'.

Stephanie said...

I am so relieved to hear that Kayleigh is improving. I'm praying for her belly to go down quickly and for her pain to remain controlled so that she can heal and recover quickly! Praying you all have a wonderful weekend and Kayleigh improves by leaps and bounds!

Kimmy B. said...

Love the adorable little shirt!!
Kayleigh will pull through this... she and Stellan are definitely going to have to meet when they get older!

Tina said...

So glad to hear Kayleigh is doing better....

Still praying for this sweet girl to recover 100% and go home and be with her family!!!!

Shelby Hawkins said...

Adam and Aimee;
I'm not sure how to ask this but i was wondering if you guys knew how everything Kayleight has been thru will affect her in the future? Do the Drs know if she will be able to do "normal" things or will she have some restrictions? Again i don't mean to sound negative by any means, i just didn't know.

The Carpenters said...

By the way, it's AWESOME to see her without anything constricting the view of her beautiful face! I bet that was a big adjustment and wonderful feeling when you first saw her like that. I heard Aimee say something about it on the video. :)

Momofsix said...

Aimee and Adam
I wanted to share with you how much you precious gift of life has truly stolen my heart... please read
www.helpmeettosam.blogspot.com

Thank you for sharing her with us!
Angie

Brittany said...

Thank you for the update on Kayleigh. The picture of her in the onesie is so cute! I have been contantly praying for her. I pray that the swelling would go down and the pain would subside. She is a fighter. She is such a beautiful gift from God. I pray that she continues to recover. You and your family are in my thoughts and prayers. I enjoyed the videos. You and your family are an inspiration. I pray that she gets stronger and healthier so she can finially go home! God bless you all!

mlpinky said...

Hi Freeman Family,

I've been following for almost the 10 months of Kayleigh's life. I do not know how you guys manage to go on.... actually I do. I am also a born again Christian and have been through tough times. God is so GOOD. Been praying for beautiful Kayleigh to heal and to finally come home. (How is the home situation anyways?)

Blessings to you all,
Mlpinky in Canada

Sarah (rochester) said...

Thinking of Kayleigh today and always!

Anonymous said...

Tears well up once again, for your story, the little onesie, just everything. I can't believe this baby girl and the fight she has in her, time after time after time!
I also can't believe the strength of her beautiful family. So beautiful. Praying as always, for all of you, Leslie & Family in CT

Tinika said...

Love the shirt and tickled that she finally gets to wear it! And it looks absoutely adorable on her.

sarah said...

she has our thoughts and prayers. We are thinking of you all. I hug my kids a little tighter everyday thanks to your story. Prayers for safe recovery and able to join you at home soon.

Erica said...

Prayers coming your way! We pray for Kaleigh and are always thinking about your family! HUGS to you!

Erin said...

Praying for your angel more than you know. I know she can pull through this. May God give the doctors wisdom, give her strength, as I know she has the courage. Give her xoxo when you can. Also know Freeman family all of us are standing behind you. Keep the chins up. Again, praying for your miracle to continue her work here :)

Lindsey Barham said...

Freeman's:
I am glad to hear that she is doing better since the scare. I think she is being a trooper considering all she went through in one day. This is just such a blessing that slowly but surley she is helaing. Kayleigh take your time and heal well and get home soon. I know your family can't wait to get you home. I remember Aimee saying in the video about taking her out the doors on the net trip out of the NICU and I can't wait to see that!!!!!! What a blessing that will be and such a special day. I pray Kayleigh is having a wonderful day.

Anonymous said...

Praying for Kayleigh and trusting in the Lord that He will bring complete healing. I am so glad to read that she is doing much better.
God Bless.
Praying in New Braunfels,TX

Brandon, Andrea and Emma said...

Glad to see Kayleigh is starting to do better! What a scary few days it has been for you. We are praying that she continues to do better and has no more episodes. Kayleigh looks SO PRECIOUS in her outfit! What a sweet, beautiful girl. Kayleigh will be in our prayers!

Jenny said...

ohhhhhh- sooooo sweet and precious! God bless your angel and help her to heal quickly!!! We continue to pray in Kansas!

Nichol said...

What a little fighter. My family is praying for a full recovery and praying for your whole family. The onesie is adorable. What a sweetie pie. In our thoughts and prayers always

Jenney said...

That little girl is such a trooper. Continuing to pray.
The Drays

Alyson said...

I'm happy to hear that she's doing better and is sleeping peacefully.....

I'm praying for a quick, full and peaceful recovery! :0)

Alyson

Anonymous said...

Continuing to uplift Kayleigh in prayer. Looking at your sweet baby girl after her surgery reminds me of my precious Kaitlyn's intestinal surgery while in the NICU. The swelling was incredible, but it does get better. We love baby Kayleigh, and your family will continue to be in our prayers daily.
Love,
Christy Edwards

dearjenn said...

My thoughts and prayers are with you and your beautiful baby girl.

Patricia said...

Hi...All..I can think of right now is...she looks like a little Angel...thank you for sharing with all of us...Jesus is craddling her in HIS loving arms...HE is right here in that bassinet with her...bless her little heart...she looks so peaceful...she is such a fighter...this too shall pass...
Have a spectaucular GOD filled day!
Patricia & Wes

Phyllis said...

Continuing to pray for your sweet girl!
Phyllis & Kristen

Nim wilson said...

I am so glad to hear our prayers were being listened to..I hope she just keeps getting better! Hugs

jlwgator said...

OMG! I cannot say enough about how great it was to see Kayleigh, you & Aimee on the videos. Your other kids are very cute, too. It was really cool to be part of your day. I am thinking of Kayleigh and hoping she pulls through!!!

Sweet Joni said...

Hello there ~ just home from the LONG weekend & came here first to see Kayleigh :)
Wow! What a day You three had! Thanks for the VLogs! I'm so happy to see Kayleigh's surgry came through better than expected & she's doing much better today :)
She's such a sweetie. God's Loving hands are all over her!
Take Care & Blessings,
~Joni

KAS said...

From one Kayleigh Anne to another - you are a BEAUTIFUL, strong, brave little girl! We Kayleigh Annes are tough ones, and it takes a lot to get us down. She's such a fighter already, and so adorable!

brittney said...

Yes, I too noticed Kayleigh's nose is missing the bridge and seems quite flat. Is she okay or will she need surgery to repair that ?

The Pirsein Family said...

So glad to hear that Kayleigh is on the road to recovery. We will continue to pray for your sweet baby girl.

Aimee and Adam said...

Shelby - As of right now, Kayleigh should only have pulmonary hypertension and some peripheral vision loss. She does have a lot of issues right now, but they should clear up in time as she grows up.

MlPinky - The home situation is currently in question. We sent off all the documentation our mortgage company needed to possibly help us out with a deal. Our foreclosure was pushed back from March 29th to April 27th, so hopefully they will wor a deal soon or we will have to find somewhere else to live.

Brittney - Good question - No one mentioned anything wrong with her nose before, so we will check in to it. I don't think anything is wrong though. She may just not have one :)

I hope I didn't miss any questions.

God Bless,

Adam

Colene said...

its soo good to see your little one doing so well. These stories just touch my heart. I actually photograph preemie babies in the NICU where i live. The familys go through so much and its just awesome to see how much they love there little ones and are there for them no matter what!

Michelle said...

Still praying for Kayleigh! I'm so glad to hear she is doing better. I love seeing her face without all the tubes. She's such a beautiful baby girl.

Shelby Hawkins said...

I read the comment about her nose and had to go back and look at some pics! I think she has a cute nose! It's a little button nose. Both my babies had a nose like that when they were born. Maybe thats why I think its so cute!

Julie said...

Oh my. This made me cry. My little girl has the same onesie.
Many prayers to you and your family. She is a lovely little blessing.
J