4/22/09 - "Our Sweet Little Girl"

After a long and emotional day, we were able to gather some information about Kayleigh's prognosis to pass along to everyone.

A CT-scan was completed this afternoon to determine what may be the cause to Kayleigh's shocking lack of brain functions. It appears there was a lack of blood and/or oxygen supply to the brain during or shortly after her surgery this past week. The other option is that Kayleigh had a pre-existing condition that worsened with the surgery. However, the latter of the two can be cancelled out as there were no obvious issues that can relate to the problems she is having now.

Being that Kayleigh had two blood transfusions this past week and a very low blood pressure number tells me that the problem may be with the lack of oxygen/blood to the brain, but no one is for certain at this time. The doctors still want to see how her body reacts with time, but Aimee and I are pushing for other tests to be done in case there is a reason and it could be something that may be fixed. Time may hurt us if we just sit back and wait to see how Kayleigh reacts. Aimee and I asked for the CT-scan to be done and that is why it was performed today. Even if they may feel nothing can fix the damage that is done, we at least want some answers.

If you look at the bright side of things, Kayleigh is coming down more on her settings. Her oxygen is practically at room temperature, she has been able to get the pain meds out of her system, her blood pressure is normal, and she is not desatting at all. She has woken up and moved around, but the blank stare in her eyes and the repetitive movement in her limbs quickly tells you there is something seriously wrong.

She did react to our voices and seemed to kick her legs a little more, but none of her movements show any kind of purpose. Before, she would reach for her mouth and suck on her fingers, she would grab for her toys, or she would grip your finger when you held her hand. Now, there isn't anymore of that happening and it breaks our heart to see her in this condition.

If time is to determine what is wrong and if things don't progress, we can only hope that Kayleigh's brain will allow her to breath on her own. Starting tonight, the doctors are going to wean her pressure control to see if her body can breath without the help. If she can't breath on her own, then Kayleigh's future prognosis is not going to be good news at all.

It was a blessing for Aimee and I to hold her for several hours and talk to her about many things, such as her big sisters birthday tonight and what bacon tastes like since that helped with her progress in December. We talked about playing at home one day and how fun it will be to have the whole family together. We talked for hours about everything so she could hear our voice and know that no matter what, she will be okay.

We have not lost hope and we trust that God has a huge plan for Kayleigh. He has done many wonderful things with her so far, but we would be sad to see Kayleigh go and not be able to personally share her story for the rest of her life. Although, If God has plans for her in heaven, Aimee and I promise with all that we have, we will continue to share her story to help others through their own journey.

"Kayleigh, you are such a blessing to us and we are forever grateful to have you in our lives. Your Mommy and I could not be more proud of you for the strength and determination you have showed us in the past year. We are all much better people because of you and we love you so very much. May you continue to fight this fight as hard as you can and know that our Lord is holding your hand every step of the way. We are so blessed and honored to call you our sweet little girl."

Thank you all for your overwhelming support through these difficult times. Your words of encouragement have lifted us up throughout the day to stay strong and continue to be there for Kayleigh while she fights for her life.

God Bless,

450 comments:

1 – 200 of 450   Newer›   Newest»
giraffegirl524 said...

praying for you all! i can't imagine what you must be going through, but i will continue to pray for kayleigh and all of you!

Megan said...

Fervently praying for you.

Sarah, Adam and Mercedes said...

still praying!

Abby Sokul Turner said...

Praying Praying Praying for Kayleigh and a miracle recovery!

Holly said...

We are praying for you and Kayleigh now more than ever.

KAS said...

Still thinking of you all. Your little girl is so beautiful and it breaks my heart to see such a wonderful, devoted family go through such a painful time. Much love from Quincy, IL. - Another Kayleigh Anne

Jenny86753oh9 said...

Continuing to pray for little Kayleigh....

Jennifer said...

Praying!!
Jennifer

LMP said...

Thank you for the update. I have been so worried and checking in all day. I am still worried. She has fought such a good fight and I pray that she has the strength to keep fighting. I will continue to pray for Kayleigh and for both of you.

Suzi said...

Praying soooo hard for your family and for sweet Kayleigh! Let us know if there is anything else at all we can do to help. Much love and prayers from Texas.

Kylee said...

praying, praying, praying in Dallas, Tx.

Chantal said...

Praying for sweet Kayleigh in Ontario, Canada.

Dawn said...

I've been watching for an update.

Prayers for all of you!

Amy said...

I heard about little Kayleigh for the first time today, and have been praying for her all day, and will continue to do so.

Kaleena said...

Praying for Kayleigh with all my heart! Praying for you and Aimee as well. Thank you for keeping us updated.

Anonymous said...

May God continue to bless your family, with peace, patience and the perseverance to carry on no matter what. He alone knows and He alone will carry you through whatever outcome there is. Praying mightily for your little girl!

Shelly said...

I have been touched by your story. I have been anxiously awaiting an update on kayleigh. I pray for another miracle for her. I came across this blog from McMama. I watched kayleigh's video and was just amazed at how strong she is. I will continue to pray for her. God bless you.

Connie said...

Constantly praying for Sweet Kayleigh!

4 Little Men and Girly Twins said...

Still praying! She is such an amazing little fighter... with an amazing God on her side!

Britt

Olivia (CA) said...

We are praying without ceasing.
Lord God, hear our prayers...put your special touch on Kayleigh and heal her precious body.

Anonymous said...

Thanks you so much for your update. I continue to check in and I have been praying for your sweet little girl and for the rest of you as you wait to see what the Lord has in store.

cookfam said...

Praying and thinking of your family from St. Simons Island, GA!

Kelly said...

(((HUG)))

Stacey said...

I have been praying like crazy for you guys. And for sweet Kayleigh! We will definitely keep praying. Thanks for taking time out of being with your little princess to update us.
Lifting you up,
<><

MommyLovin2 said...

I have been checking in all day and THANK GOD that she at least woke up some!! We will all be down on our knees at bedtime tonigh to pray for your sweet baby Kayleigh!!
Love,
The Fullers in Houston

dg darling said...

Words can't express how very sorry I am that Kaleigh has taken this turn. I have been praying fervently all day and will continue to do so. Give her a kiss from all of her "fans" and tell her we love her!

Patty said...

This is the first time I have commented on here, but I wanted to let you know I have been praying for Kayleigh and will continue to!! She is an amazing little girl!!!!!

Rosie said...

I've been looking for an update all day. I'm praying for a miracle recovery for your sweet little girl. You've got a lot of people praying for you. Hold her and love her as much as you can.

aaensons said...

i am praying for your baby girl and your whole glory. God has a plan for her no one knows what it is yet but he has a plan

Kareena Brown said...

I am standing with you and believing for a miracle!

Joanne said...

Thank you so much that despite all you are going through, you took the time to update us on this precious little girl.

I thank God you and Aimee were able to spend time holding her and talking to her. She's surrounded by your love and of course the love of our wonderful heavenly Father.

I will continue to pray for dear Kayleigh and the whole family.

Brandy said...

Thank you for the update. We are praying here and thanking our Precious Jesus for the lives she Kayleigh has touched, and those she will continue to touch.

Much love to you all,
Brandy in Pittsburgh

The Mama said...

We are praying! Thanks for sharing!

sarah said...

we are still praying like no tomorrow for kayleigh.we and others of our family have added her to our church prayer list. last count 7 differnt churches. I figure the more people praying the better. Hugs and prayers to you all.

Ali said...

Continuously praying for sweet little Kayleigh!

Cristi said...

Heartbreaking news. Praying for Gods strength to cover you.

Anonymous said...

Have been checking for your updates all day! Been praying all night and day. Stay positive, at least shes still moving a little. Youre right, God is able to do anything. I cant even imagine how you are holding in there, especially trying to celebrate your older daughters bday at the same time. I wish I could do something for your family in this hard time. Lots of prayers!

Anonymous said...

She is beautiful.

Diane said...

We will be praying for your precious Kayleigh and the rest of your family. God bless you!

Diane

The White's said...

We are still praying for Kayleigh's complete recovery. Rest in God's complete peace in this difficult time.

God Bless,

The White's

The Rowe Family said...

I have been thinking of you all day! I am praying! My heart breaks for your family! Emily, PA

Michelle M. said...

Praying for your sweet little girl. She has been on my heart all day!

Amber said...

Kayleigh is so lucky to have a mother and father such as you guys. I know you love and care for her so much and I know Kayleigh can feel that love today. Remember the doctors have been wrong in the past and you guys are her advocates so push for those tests if it can offer any information to correct this situation. I know God has great plans for Kayleigh and I pray that it is to be with her wonderful family her on Earth. She has made this world a much better place because of her fighting spirit and with you guys in sharing her inspiring story. Thank you for updating which I know is difficult after a day like today. Remember God holds the key to when things are truly over. I will always believe in Kayleigh and continue to pray for a miracle.

Megan McGory said...

Thank you so much for the update! We were checking all day and will continue to send our prayers.

Lis. said...

I am so, so sorry.

I am praying.

The Lane Family said...

What difficult news. We will pray for God's strength for Kayleigh and your entire family. She is a beautiful, precious child of God.

Anonymous said...

You don't know me so you may think I'm a total nutcase, but I have a friend in neurology at Duke who is doing work with cooling blankets to lessen the effects of brain injury. You might want to discuss this with Kayleigh's doctors.

I am praying for you.

Heather said...

My heart is breaking for you :( Sweet Kayleigh has come so far I am just so sad right now. I am praying for a miracle, and strength for you all. She is such a little fighter I pray that she keeps fighting!
Hugs and prayers,
Heather~ On the Homefront

Katrina said...

Been praying all day long. So glad you got a chance to hold her and talk to her. I am praying she comes out of it.
God Bless from Northern, Kentucky.

Anonymous said...

You know, as I was praying for Kayleigh today I thought of something... I wonder how many people will be in heaven because of the seeds you have planted through the miracles of Kayleigh's story. She is such a tiny little girl, but her reward in heaven must already be so great already! Her life certainly has a purpose and I know that our Lord is holding her in the palm of His hand. WE might not be able to see purpose in her movements, but she might just be reaching out to play with the angels sent to comfort her through this. I'm praying for a big miracle for Kayleigh and comfort for your entire family!

Anonymous said...

Praying for you both as you make decisions during the difficult time..Praying peace and rest for you...Praying for your other children...Praying for wisdom for the doctors and Praying a Miracle for Sweet Kayleigh...God is good and may He continue to bless you with many more miracles...Praying from Dallas....

Susan said...

I don't comment often, but follow closely and when I checked the blog last night, it took my breath away. I was so shocked and sad to read of her condition worsening.

I've been anxiously waiting all day for an update. Thank you for taking time out from your sweet baby girl to keep us updated.

Most certainly, we'll continue praying for God to work yet another miracle in Kayleigh's life. May you all continue to feel the peace that passes all understanding, no matter what Gods' plan is for Kayleigh.

Much love and Many Prayers!
Susan in Indiana

Sarah J. said...

Praying.

Sweet Kayleigh, we all love you so much little girl, and we are holding your hands and lifting you up to the Father in Heaven. He knows his plan for you, and we pray that, that plan is for you to live and flourish on Earth.

Adam and Aimee, thank you so much for updating us. I can't begin to imagine the pain that your hearts are in right now. Kayleigh is an amazing little girl and so blessed to have the two of you for parents. Your unending faith and testimony of your love for Jesus have touched my heart.

We are kneeling beside you in prayer and praying for peace for all of you.

Happy Birthday Allyson!

Sarah, Chris, Helaina and Ava J.

Karen said...

I was afraid to read today's blog for fear of what it might say.... still praying in Austin, TX....

Julie said...

Praying for you all....

Julie

Anonymous said...

thank you for the update. i am still praying for you and your family

Anonymous said...

I have read your blogg for the first tome today. And I just wanted to let you know I will be praying for Kayleigh and your family.
You are all in my thoughts
Em
from Australia

Anonymous said...

We are still saying prayers for you here in Madison, Wis. May God be with you and comfort you.
--The Thomas Family, Madison, Wis.

Following Him said...

On my knees in prayer for Sweet Kayleigh Ann!
~Elyse~

Lisa said...

Let me first of all introduce myself... My name is Lisa and I live in Ohio. This is only my 2nd day following the story of your sweet girl Kayleigh. I am sorry to hear about everything that you and your family are experiencing now. My heart goes out to you... I have been praying for little Kayleigh to recover and I will continue to pray that she comes out of this and is able to go home and lead a normal and healthy life.

God Bless!!

Blessings,
Lisa

Arianna'sMommy said...

She woke up!!!! That's great news! I will hold on to the image of her waking from her slumber while I continue to pray for her and for you all during this trial.

Brittany said...

Thank you so much for the update. I am praying for Kayleigh! You and your family have constantly been in my prayers all day! Sending prayers and lots thoughts from Holland, MI. God is in control. He is holding Kayleigh in the palm of His hand. God bless you all!

Jeanette said...

SO SO sorry!! Our family will be praying here in AL!!
Jeanette

Beth said...

I heard about you guys today from Nate L. and I've been praying since I heard. Stay strong! God has a plan for these hard times

Susie said...

G-d bless you all.

Shelby Hawkins said...

Adam and Aimee,

I can't imagine what you are going thru, but your bright side...is WAY brighter than you may think. Just because the drs call her "Brain Dead" doesn't mean she is. Someone who is "Brain Dead" won't open her eyes, kick her leggs, or respond to your voice. Kayleigh has gone thru alot in the past couple days and she may just need some time to heal. The reason I feel so strogly about this is because my mother had this happen to her. She had a scan show brain damage and then she got off her phenobarb and then the scans were normal. This was unexplainable, but the fact of the matter is that it happened! Just don't give up.
Shelby

Pati said...

I am praying for your beautiful daughter Kayleigh, and family.

patricia

The Pirsein Family said...

I'm so glad for the update. I have been praying heavily for baby Kayleigh. She will remain in my thoughts and prayers for as long as we need. Do not give up hope, even if you feel like there is none left. She is an absolute fighter and has the will to live. Praying for your family in these hard times.

Kirsten: said...

Thanks for the update! Kayleigh is AMAZING!!! I'm still hoping and praying for her recovery and your family's strength, wisdom and love!

Happy Birthday Allyson!

Anonymous said...

still praying from WV.

Anonymous said...

We are Storming Heaven with prayers for all of you!
May God continue to bless you and give you peace, comfort and strength.

MJ said...

We are still praying for sweet little Kayleigh.

jag said...

Thank you for the update. I know it must be difficult for you to find time for your blog followers with all that's happend. Please know that I am in prayer with you.

Anonymous said...

My heart is so saddended by all your little angel has been through. Please know you have soo much support and prayers comming your way! Thank you so much for updating durig this terrible time.

Kylie said...

You don't know me...I followed a link from another blog, and have just skimmed Kayleigh's blog - what a beautiful testament to your daughter's journey. I just wanted to let you know that I am keeping your precious Kayleigh Anne in my thoughts and prayers. From across the miles in Brisbane, Australia. Kylie

anorthern said...

Most definitely praying for your family. My heart is broken by this. God will provide.

anorthern said...

Most definitely praying for your family. My heart is broken by this. God will provide.

~Chel~ said...

Will continue to pray for your family and Kayleigh during your difficult time...I'm not a big commenter on your blog--but I have been following and praying for you. You both are so strong and such an inspiration. Thank you.

Praying in Mesa, AZ

Nana2four said...

Praying for your family and especially for your little one! I pray that God continues to hold each of you in His arms!

Anonymous said...

Still praying and asking God to be in control. Also praying that He will give you, Aimee, Allyson and Brandon the peace that truly surpasses your understanding and the strength to face the outcome.

Danielle Banks said...

I just stumbled upon your blog and can't imagine what you must be going through. Your precious Kayleigh will be in my thoughts and prayers as well as both of you!

Julie said...

Oh how my heart aches for the Freemans right now. Sweet little Kayleigh is in our prayers. May God give her and your family strength, comfort, and peace.

Love, The Flood Family

The Burgess Family said...

On bended knees praying for you and your sweet little girl. Thank you for the update on her condition so that we know what to pray for. I am so glad prayers were answered that she woke up and will now direct my prayers towards recognition and movements with a purpose.

Because He Lives by William Gaither... just thought that I would share:
"But greater still the calm assurance, This child can face uncertain days because He Lives!"

He is always by all of your sides!

Wendy said...

I also have been checking in all day. So many of us feel like Kayleigh is a part of our family. Thank you for updating. Kayleigh IS amazing!! i pray she continues to shock and surprise everyone with her God given recoveries!!

Anonymous said...

Nothing I can post seems like it's enough...the only thing I can offer besides my prayers (most certainly) is a qoute that I have clinged to through some of my worst times and offered to friends in theirs..."Everything is ok in the end and if it's not ok it's not the end"

Staci said...

Praying hard for sweet Kayleigh! Also praying for you and Aimee that you feel God's love surrounding you at this time.

kace said...

praying sooo hard for sweet kayleigh

Mama2aMiracle said...

Praying and praying hard!

Love,

Lori in TN

Jenn said...

Praying for you guys.

Colbert Family said...

Thank you so much for the update. I have been praying all day and you guys have been on my heart and mind constantly. God is able to completely heal her and I am praying and trusting that will be the outcome to all of this. Keep your strong faith and know that you are loved and prayed for by many who don't even know you. Please keep us posted..... I will be watching for a miracle!

Carla said...

Praying for a miracle! Praying fervently for your sweet daughter and for all of you.

Love,
Carla in Maryland

Girl Child said...

Kayleigh changed my life. She brought me closer to Him and is so inspirational to so many others. I will pray extra hard for her recovery tonight.. Happy Bday to her big sis.. So sorry for your ache.. =( ((((hugs))))

dragonflyz in June said...

You are in my prayers! My heart cries out to see her have a full recovery, to one day stand in front of people and tell her own story and fight for other infants going through the same thing! I can see it in my minds eye. I know that surely if you look back and only see one set of footprints, it is because Jesus is carrying all 5 of you!

Sara said...

I don't really know what to say. I just caught up on your last two posts and I am speechless. My heart aches for you both - I wish I could wrap my arms around you.

I will continue to pray for sweet Kayleigh and her healing.

Melanie said...

Many thoughts and prayers to you guys during another difficult time. Big hugs.

my2girlz2004 said...

I have just begun to follow your story from another follower. What you all have gone through, more importantly what Kayleigh has gone through is just amazing. I am praying that she recovers from this because it would be such a shame that she did not get to share her story herself. May the lord heal your daughter completely and you can finally bring her home so you all can be a family together.

Anonymous said...

Praying for Kayleigh and your family

Mari said...

praying for kayleigh, you all, and the medical team.

Debby said...

Praying for Kayleigh's recovery, and for peace, comfort and strength for the family.

Adam and Sherry said...

I can not say enough that you are amazing people. Your love and devotion are unbelievable. I truly feel the lord sends us blessings for a reason and Kayleigh is a true blessing that the lord had for you!! Our prayers are with you and sweet Kayleigh.

Anonymous said...

Saint Theresa's Prayer

She is represented by Roses

I am sending you a Rose and my prayers for your little girl.
This prayer helped me through very difficult times


May today there be peace within. May you trust God that you are exactly where you are meant to be. May you not forget the infinite possibilities that are born of faith. May you use those gifts that you have received, and pass on the love that has been given to you. May you be content knowing you are a child of God. Let this presence settle into your bones, and allow your soul the freedom to sing, dance, praise and love. It is there for each and every one of us.

avbernat said...

I pray that the Lord holds Kayleigh in His arms and protects her with all His might. I pray that He will heal her precious frail body and that all of her movements will slowly but surely return. I pray that you and Aimee will continue to be the loving and supportive parents that you are and continue fighting alongside Kayleigh.

May you know that your strength and inspiration through this trying time, blankets all of us with hope and optimism. If there is anything that you might need do not hesitate to ask, we are all here to love and pray for sweet Kayleigh.

With all of our love and prayers,

Analiza

Hannah Leigh said...

just heard about your blog today. wanted to let you know i am praying hard for little kayleigh!

Christie O. said...

I pray that you will have answers and comfort while you are waiting. And I pray that Kaleigh comes through all of this and will finally be able to go home with you and your family. I will pray and pray and pray and when we walk this Saturday, we will think of you. Blessings to you all.

King J's Queen said...

My heart is just breaking for you. I cannot imagine the uncertainty you are facing right now. I am praying for you and your precious Kayleigh.

One Hot Single Mama said...

Adam, you are so good with your words. Thank you for letting us understand a tiny bit of what you go through everyday with your little miracle. Thank you for allowing us to pray for your family and for Kayleigh. I am praying for good news tonight and tomorrow.

Rhonda said...

praying for you all...Just Know that God knows his plan for Sweet baby girl Kayleigh and your family..

Sabrina said...

I am heartbroken reading this latest update on precious little Kayleigh. You are all in my prayers for strength, healing, and hope!

Allison H. said...

I have been checking all day for an update. I am optimistic that Kayleigh will be healed. God is the creator of miracles, and Kayleigh certainly is one. We are praying hard that God continues this baby miracle!

Amanda said...

I pray that God continues to give you strength. That he will give wisdom and guidance to all those who are taking care of Kayleigh. May he give you peace in the midst of the storm.

Kayleigh is a fighter! And she has two advocates who are speaking for her! Follow your gut as you have already and push for those things in which you feel are important!

The Five Pennies said...

Thank you so much for the update..I have been checking all day. Just know that you are all in my thoughts, prayers and hope that Kayleigh will pull through this very tough set back once again. What a very blessed little girl to have you both as her parents. God has sustained her through so much...he can again. Much love..Nana C

Simonsen Family said...

My thoughts and prayers are with you and with Kayleigh. I have just fallen in love with her and your family. Your strength and faith for both you and Amiee is wonderful and such an example to so many of us. I pray for another miracle and that Kayleigh will pull through but like you said if she is needed in heaven - she will never be forgotten and has already touched SO many poeple. My thoughts and prayers are with you and your family and Kayleigh

Much Love!!!!

The Simonsen Family

THE MARTINS said...

Kayleigh we are praying you...stay strong sweet angel

Luanne said...

Peace be with you...

love from Grand Rapids, MI

Kathlynn said...

I was trying to think of something to say that might help, but all I can think is you are my heros. I cannot imagine going through everything that you have gone through and not waivering in your trust in god and his plan for your family. I know that he will guide you through the next few weeks and give you the strength both of you need to get through. I hope all of the best for you.

Elkins 5 said...

She's already made GREAT strides since last night! This is amazing and we all prayed for it! Thank you GOD and keep it coming! So she might not be sucking her hand or grabbing at toys yet....give her a little bit she just needs a little more time to recoup from whatever it was that happened. If you believe she will breath on her own...she will...just for you. Babies cant stop making their parents proud of them...now make her proud and believe in her!!!

Praying like never before.
Susan

Tanya said...

Praying for Kayleigh.

Melinda said...

Oh my goodness ... I hadn't seen your post yesterday, and was shocked when I read a prayer request on Gage's caring bridge site. I gasped aloud, and said, "Oh no!!!!!" Please know that Kayleigh is in our thoughts here in Wisconsin ... we'll see about sending a picture like we did for Stellan. Please be strong and advocate for your daughter ... I am sure you will do everything you can to make sure they do all they can for your little girl.

Hugs,
Melinda

elteescat said...

I'm an RN student and I just learned the other day in physiaology class that the brain is capable of growing new connections around damage. It can rerout itself. Look at all the survivors of car crashes and gun shot wounds! A day or two ago was the 10th anniversary of the Columbine HS massacre and that boy who crawled out of the third floor window with two bullest in his head learned how to walk and talk again and is a lawyer now! Brain damage patients learn these skills again because their brains formed new connections around the damage. Kayleigh can, too! Keep her stimulated by talking to her and playing with her and you'll give her a really great chance!!!

Cindy said...

My heart is breaking for you and Aimee. I am praying and praying for Kayleigh. I do rejoice in the fact that you and Aimee are Christians and completely relying on God for your strength. He will see you through this difficult time.
I thank you for allowing us to share in this journey with you and giving us the opportunity to pray for such a precious little girl.

JanaBanana said...

She seems to be still fighting to please dont let those doctors take that from her :( Miracles have happened in the past with her so they can continue. She is a precious gift from GOD and she needs you as much as you need her.
Im still praying

Jennifer said...

Praying for your little girl.

Kathy Hardison said...

Thank you for the update. Stay strong and be her advocate....insist on answers. Try and lean into God's arms and He will guide you. Thinking and praying for you!

Melody said...

Praying CONSTANTLY for Kayleigh!! As soon as I got a notification from Twitter that you had updated, I called my husband at work (I was driving) and told him to read the post to me! ;) I am believing with all I have that God is about to perform a HUGE miracle!!

jenn said...

praying for baby kayleigh and both of you!

thanks for the update!!

THE SPIVEY"S said...

You and your family are in my family's thoughts and prayers. We think about Kayleigh every and ask the Lord to look after her each night when we are praying before bed. Remember that he is with you every step of the way and just as you said he has a plan for her and it is a powerful, bright, brilliant, wonderful and special plan. In God's name we pray...

Praying for Kayleigh in Lexington, South Carolina.

The Spivey's

Brandon, Andrea and Emma said...

We are praying so hard for a miracle!

Dara in Colorado said...

We are all Praying for your baby girl. God is watching over her. Remember miracles DO happen!

e. said...

Praying for a miracle! Stay strong Freemans and insist on the tests and care that you want for your sweet daughter! She's a fighter.

Anonymous said...

Hang in there Freemans, I was so glad to hear Kayleigh had woken up, even if she is not acting like herself! She is an amazing little girl and I am very confident that she is no ordinary miracle and God will take care of her and all of you. Keep fighting for answers and hang in there sweet Kayleigh!
Prayers from Kansas City!!
Terresha :)

The Traynums said...

Praying, praying, praying!

Anonymous said...

Keep praying! It has worked for Kayleigh before and it can help again!
Wendy in Irmo, SC

Renata said...

Praying for every glimmer of hope and God's comfort and peace with you all. Come on Kayleigh! You can do it!

6hebrons said...

We are praying for you in South Bend, IN.
God loves you all!

4 Lettre Words said...

We are on our knees in Georgia.

MamaB said...

We are praying for your sweet little Kayleigh and for God to send you comfort in this difficult time!

Mistelle said...

I have grown to love sweet Kayleigh as well as the rest of your family. I've followed her entire journey...thus far...and I am praying steadily for God to heal her little body and help her to breathe on her own again. I am so looking forward to being able to continue to follow her story...to see her grow up and continue to touch lives for our Heavenly Father. Stay strong, Freemans...you are clearly not alone. My heart breaks for you all tonight, as it has in the past. I pray that this is yet another one of Kayleigh's difficult hurdles! Love and blessings to you all. Thank you so much for introducing the world to your precious little angel. :)

Rachelle said...

I have been praying every second. Please please please let her be ok. She has touched SO many around the world...
Praying so so hard....

Stephanie said...

I've been thinking of Kayleigh all day today. I'm still praying and will continue to!!!!!

Kayleigh-hang on sweet girl. I know you're fighting with all you've got and you are the strongest most amazing little girl I have ever seen. I'm so thankful that I've been allowed to follow along on your journey!!! Sending hugs to you tonight!!

Anonymous said...

Kayleigh is absolutely beautiful! It's heartbreaking to hear of the latest turn of events. Your daughter sounds like such a fighter with a will to live! Her story is so inspiring! I will pray for her to recover from whatever trauma has caused this, and for your family to receive the kind of peace that only God can provide.

Hugs,
Kathy Lang

MoziEsmé said...

What an amazing girl... Praying for her and the family...

Blessed Mom of 8 said...

All I can say is THANK YOU JESUS for the day Aimee and Adam had with Kayleigh!

Father, grant wisdom to every doctor and nurse in her care. Shine light where the darnkness is trying to hide. Shine Your love all through her precious little body. Give hope to all those around this family - as they watch them cling to You no matter how the circumstances may look. Father, give them peace, joy and above all comfort as they wait on You!

Father, bring others around them to be the hands and feet in their home and fill them with an abundance to meet their every need now...so all of their focus can be on You and Kayleigh. Father, hold them tightly in Your loving hands and allow them to feel You like never before!

I ask these things in Your Son's most Blessed name! Jesus Christ our Lord! AMEN!

Hugs and love,
Jill
Who is so thankful to hear she is still with you!

April said...

She has more fighting power than a troop of soldiers. She is amazing and everyone is so proud of her. Through her story, so many people have been touched and encouraged to strengthen their relationship with God... myself included.

I will never give up hope for Kayleigh. She has pointed me back to the light. May God's will be Done.

Fer said...

Many, many prayers for Kayleigh!

Leslie said...

She's a fighter, we're continuing to pray for Kayleigh and healing.

Rose Haven said...

We continue to pray for Kayleigh and all of you...that the Doctors do whatever they can to help her and answer all of your questions.

May the Lord surround you with HIS love and comfort.

~Blessings,
Jan & Tom

Anonymous said...

I am praying that God gives you strength, and that your beautiful little girl will be ok. Please know that she has touched so many lives. Praying for you all!

Hope said...

I'm remaining hopefull that she'll get through this. I don't think God would've saved her so many times only to bring her to Heaven now. (Or I'm chosing to believe this b/c it's heartbreaking to think of the alternative.)

Lots of love and prayers for you and your beautiful family.

Misty Rice-Baniewicz said...

Please do keep pushing for test and answers..... baby girl doesn't have her own voice, YOU ARE HER VOICE. I am so sad about this and I cant stop thinking about her. Waiting for all the info you can provide us as you get it.

Praying my heart out...

God Bless.

Rach52886 said...

I have totally, utterly, and completely fallen in love with your little angel.

You should put a bigger disclaimer on your blog that there is no way to not fall in love with Kayleigh Anne :)

She is, no doubt, the definition of a miracle. I'm spreading the word everywhere I go. Soon, my whole college community will be praying for your baby. My African American Lit class is taking a picture tomorrow "praying for Kayleigh" and I'll send it along immediately. Give her an extra hug and kiss for Rachel.

Xoxo,
Rachel

Krystal said...

My heart is breaking for you! I am making supplication to God on your behalf, praying for His will but also that His will will include Kayleigh's healing.

Jason said...

My wife and I are praying for you. You have such a precious blessing. Hope, Grace, and Peace to you both and your little girl. My soul cry's out for your situation and for God's healing.

Anonymous said...

I have followed you for months. I pray for a miracle. God loves her and you. Dearly.

Skye said...

I am heartbroken to hear this news, I will be praying for you more than ever. I'm so sorry.

Lindsey Barham said...

Freeman's
I am keeping to my promise and praying harder than ever for Kayleigh and you and the kids. I pray ever chance I get, for Kayleigh never leavs my mind nor the brokenness my heart is feeling. I can see already how God is working (she has woken up) we will jsut pray for her to start responding.
Lord, I come to your right now asking you to reach down and hold kayleigh and let her breath on her on as she needs to do and to contuine to heal her brain as only you can. I know you are a wonderful mighty God and I jsut have a feeling that Kayleigh can and will overcome this. Please Lord I cry out with everything to heal Kayleigh and comfort Adam, Aimee, Allyson, & Brandon like only you can. Amen
Keep us posted as you can. I am not giving up faith and hope. I can see no one else is just look how many people have left comments who are praying for Kayleigh's healing. Fight Kayleigh Fight. Don't give up baby girl. We love yall.

Stacie said...

praying for you (in fletcher, nc). i have been following your story for a few months now (found you from the riggs family blog) and have added your button to my blog, so my (few) readers can pray for kayleigh, too.

mkdsmall@gmail.com said...

my first time here - stopped by from CF Husband's blog. Kayleigh is a beautiful little girl and I will say many extra prayers for her and you that she continues to be the miracle that she has been!

Michelle said...

I am praying for you all. I have followed your blog for a few weeks and am so amazed at precious Kayleigh! She is such a little fighter and is just beautiful. Please know that you have a lot of people praying for you during this time. Certainly, beyond the shadow of a doubt, God must have awesome plans for this little angel!

Stay strong in the Lord

Aspiemom said...

I will continue praying for Kayleigh, her doctors and for you.

Happy Birthday to her big sister!

Jess said...

Thank heavens she woke up! That is a big step. Someone who is considered flat lined would not wake up. The brain is an amazing organ and has abilities beyond what we will ever fully comprhend on how to heal itself! Give her some time. Just because she isn't grabbing at things doesn't mean anything just yet. She has been through something traumatic and just because she is off pain meds doesn't mean she still isn't loopy. Someone mentioned cooling the bodies core tempature to help the brain and they have done this with stroke victems to help with recovery. Please talk to your drs about this and get all the opinions you can, maybe even from drs not in your hospital. Houstin Childrens hospital is amazing when it comes to childrens cariologists and neuro experts!
Still praying for you all and Sweet baby Kayleigh

Lisa said...

I just learned of your sweet, beautiful Kayleigh today. Praying for her and for you to have continued Strength and Hope in the Lord! Praying continually in FL!

Kerley's Kreations said...

Still Praying and continuing I have been praying all day and so glad that she is being responsive. I will pray for healing and for God to get in and touch her and you all with is hands and arms knwo that you are loved by our father and he is there watching you look at

S said...

My heart is breaking for all of you. Stay strong baby Kayleigh and prove them wrong again. Please Lord, bless this family and this precious baby girl. Please wrap your loving arms around her and heal her in a way that only you can. In God's loving and healing name.

DenniLeigh said...

Freemans:
My heart goes out to you all, I cannot begin to imagine with it feels like to have this happen to your child. Kayleigh is a very strong little girl and with lots of hard work and prayer I feel she will make it through these difficult times. I will be praying for your entire family, especially for little Kayleigh. God Bless you all.

Furious Mom said...

Praying for little Kayleigh that she will be healed. God Bless and stay strong through this uncertain time.

Babs said...

Many are praying, God is in control

The Morris Family said...

Our family has been in a similar position with our 3 yr Joel who went to live with Jesus 1/23/07. He was dx with a childhood cancer in Dec.06 and as we were at the hosp. for our 2nd round of chemo, Joel had a seizure, a tumor burst in his brain area,tests were done, but not all that could be done, the Dr's declared Joel braindead and sought to force us to take him off life support, even taking us to court. Our family stood with the scriptures that life is in the blood and with his heart beating and blood flowing, for us he was living.Joel's little heart quit beating on its own and he flew to Jesus. May the Lord give grace to stand for your sweet daughters life in a world where many times the medical society does not acknowledge truth of scriptures.
Cindy
www.weloveyoujoel.blogspot.com

Anonymous said...

Found your link at CF Husbands blog today. I'm praying for sweet Kayleigh tonight. Thank you for sharing your story and your faith in our God.

From a mom of 3 blessings
Maryland

Emily Eggebraaten Photography said...

I just found your blog today through MckMama, and my heart broke for you... Praying so hard that things take a turn for the better! Our God does amazing things, and He is using your daughter for His glory!!

Rose said...

Praying for Kayleigh in Florida. I am so sorry that you are dealing with this.

The Carney's said...

Thank you for your update! Kayleigh hasn't left my thoughts all night and day and I've been praying so hard for her to recover. I'm so happy that you are able to hold her and talk to her.

Kaycee said...

Your strength and faith are just amazing and humbling. I will continue to pray for sweet Kayleigh.

precious 3 said...

Praying for Kayleigh, your family, and the doctors.

Lisa Daniel said...

Praying for Kayleigh and her wonderful family. Adam and Aimee you do such an awesome job of loving Kayleigh with every ounce of your being. I know that Kayleigh feels your love. Stay strong and hold every second spent with her as a precious gift from God. God bless you all!!

Lisa Daniel said...

Praying for Kayleigh and her wonderful family. Adam and Aimee you do such an awesome job of loving Kayleigh with every ounce of your being. I know that Kayleigh feels your love. Stay strong and hold every second spent with her as a precious gift from God. God bless you all!!

scrappy quilter said...

Continued prayers here too.

The Hollimans said...

Praying like crazy for another miracle. I have been thinking about you guys, crying with you, and praying for you all day since I read your post from yesterday. My heart is broken for you. There is always hope. Our God can do anything! You guys are great parents for Kayleigh. God bless you.

Toni :O) said...

Wow...I've been checking all day for an update and we all really appreciate you taking the time to let us know how your sweet princess is doing. I can only imagine the pain and frustration you must both be feeling. Continue to keep the faith and I'll keep praying. She's a tough little cookie and we are all hoping she pulls through this and makes a full recovery. Stay strong and cling to each other during this incredibly difficult time. May God continue to bless you all.

Jennifer said...

Praying here!

The Mummie said...

It is crazy how reading your blog and Mckmama's blog that I feel such an emotional attachment to your sweet babies. I have tears with you as I read what you are going through. I didn't check the blog first thing this morning and when my dear friend and I were in the car together she said, "Hey, you read baby Kayleigh's blog right?" and proceeded to tell me what was going on. I gasped. And we both said...it's like we know her personally. Maybe it is because we are parents too and know the love that only a parent can know. Maybe it's because we know the Lord and connect with you all on that level. Maybe it is simply because we are emotional individuals. But whatever it is...our hearts are with you and will keep on praying you through this!
lots of love
Heather and family

Anonymous said...

I am so sorry for your pain. Thinking of you all and praying.

Beth in NC said...

I'm so thankful Kayleigh woke up! I am praying.

Bless you all,
Beth

Anonymous said...

Been praying and thinking about kayleigh and your family all day. You to are really an inspiration for all parents with your love and caring for you daughter. She is really lucky to have both of you. I have been praying for a miracle and I know that God does them.
Just wanted you to know you are truly an inspiration to me as a mother that you should know people all over the world are praying for your daughter.
lots of love
in michigan

Belle's Blog said...

Lifting your family up in prayer tonight. Especially that precious angel. With men many things seem impossible, but with God all things are possible! Praying for your little angel some miracles.

memorysdaughter said...

Hello Kayleigh and Family,
My name is Sarah and I am a college student in Michigan. I have been reading your blog for a very long time and praying for you all, but I have never had the nerve to comment, to tell you how your story is changing my life.

I grew up Catholic, but I went through a period of struggle with my faith after my uncle died when I was 11. I'm now 21 and I'm still trying to find that closeness I once had with God.

Your story, your courage, and your faith - it is renewing my desire to be close to God, and I cannot thank you enough for that. You are all amazing, strong, wonderful people, and Kayleigh - you are a beautiful little girl.

Thank you for helping to bring me back to God.

I am praying for you without ceasing, and I will ask my friends to do the same.

A friend in Michigan,
Sarah

Anonymous said...

I am also a first time commenter. I have been reading everday for a few months now. Kayleigh is such a special little girl, and I have been praying for her the whole time. I will continue to say prayers for her tonight.

Ashley from Wisconsin

purejoy said...

y'all have been on such a road since kayleigh's birth. we continue to lift y'all up. thank you that no matter how you are feeling, you continue to be a beacon of hope for the lost, a tireless God-glorifyer.
may He grant you peace and comfort in these most trying times.
blessings from tennessee

CinderellaMommy said...

We will keep Kayleigh in our prayers! We'll also be holding you up as you care for her and wait for God's answers. May His peace descend upon you all.

Anonymous said...

I'm praying for your precious princess. Everything will be okay. ((hugs))

~Jennifer

wicker0407 said...

After reading your post last night I could not sleep. I love your daughter so much I feel so connected to her as if she were my own. I cannot even begin to express how sorry I am to hear what is happening. It's beacuse of Kayleigh and little Stellan that I have become so close to God. After 33 years I am going to get baptized along with my 16 month old daighter and almost 5 year old son. Today we got a true blessing as my Mom was given wonderful news in reagrds to her health. I truly feel the power of prayer does work and I will pray and get on my knees everynight to pray for a full recovery of sweet little Kayleigh. He just cannot take her from all of us now she has more work here to do on earth. Your strenth and courage is amazing and I truly admire both of you. May God wrap his arms around all of you and lift you up in this trying time.
With sincere love,gratitude,and hope

Summer in Northern California PRAYING PRAYING PRAYING!

Laura said...

I can't believe how emotionally attached I am to a family I have never met...a family who has no idea who I even am. I was so sad to read the update this morning, but I'm glad Kayleigh woke up so you could share some special time together. Your whole family is, as always, in my prayers. It's amazing how many lives that little miracle baby has touched.

Erin said...

I know your hearts are heavy right now, but I found so much inspiration and hope in your post tonight. I am keeping your sweet Kaleigh in my prayers and the family too. I know your little munckin, chunky monkey etc is a fighter and she will give her best so show us all up. I was thrilled to know she opened her eyes and has some awareness...I hope and pray it is just another Kaleigh stunt! Freemans, if you look behind you and wonder where God's footprints are, remember he will carry you. The warmest wishes of love and light. Give Kayleigh her daily dose of xoxo; the best medicine!

Vanessa said...

Standing in prayer with you for God's healing hands to be over Kayleigh!

Faith in Florida said...

My heart is aching for your family. I was holding my 6 month old daughter even tighter today and thanking God that she is healthy. I sent up so many prayers for Kayleigh throughout the day. Your story has touched me so deeply. I will continue to pray for your little girl and your family. God bless you all.
-Faith

Anonymous said...

Glad she woke up, me and my mum are praying! God can help anyone! "Worry about nothing, pray about everything."

Anonymous said...

Praise God for the little things, like coming off pain meds, coming down on vent settings, and opening her eyes, and moving her extremities. If there was some kind of brain insult, there could be some residual swelling, which may come down over the next few days, and you may see some improvement. Kayleigh has proven herself a warrior, and God has proven himself miraculous, with that combination I am hopeful, and full of prayer, that Kayleigh will return to her old self soon! Thinking of the Freeman's today, as every day, a little heavy in the heart, but filled with the belief that this little peanut will be all smiles, for her first birthday party, when she celebrates at home with Mommy, Daddy, Allyson & Brandon. God Bless, Leslie in CT

Anonymous said...

If you want answers, you need to demand to see the anesthesia/surgical/post-op documents from her most recent procedures/surgeries. I have a feeling your answer lies there. So very very sorry this has happened.

Anonymous said...

Praying nonstop over here in Lake Forest, California. Come on Strong Girl! God be with all of you and give you the strength you all need to come through this.Much Love.Mary

Jean Alvey said...

Still praying for another MIRACLE. Keep fighting Kayleigh you have a story to tell.

Anonymous said...

Praying for you all!

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