4/25/09 - We Are Lost

First off, I want to apologize for not posting a newer update lately. I am sure you all have been itching for an update and quite honestly, we are having a really tough time right now dealing with this.

Kayleigh had a repeated EEG this morning and the results on her brain waves have not changed. Kayleigh remains in a state of a flat reading and besides being able to breath on her own and maintain a stable position otherwise, she shows no other signs of improvement.

It breaks my heart to say that we have no idea where this recent news will lead us, but the doctors feel with the unchanged brain wave diagnosis, Kayleigh will not recover from this traumatic incident.

The CT-scan showed that the lack of blood/oxygen loss happened within the last 12 days somewhere, so this happened either during or shortly after the surgery. We will continue to see if there are tests to tell us if she had a stroke or something else to give us some kind of answer and understanding.

Aimee and I are in complete shock as we continue to read about others who have come back from a flat reading within a 24 hour period, but no success story goes as far as several days. We know that God can do anything He wants at anytime, but the more time goes by with no improvements, we may feel He has decided this is just the beginning of Kayleigh's triumphant journey to heaven.

As Aimee and I are strong in our faith, there are still questions about our precious little girl's state right now. We question if Kayleigh is in heaven already since her mind is no longer here. Just because she has a beating heart and the ability to breath, with no brain functions, is she already playing with all the other beautiful children in heaven? We don't know and it is a very tough position to be in.

We fear the doctors will soon be asking us the dreaded question to no longer give her the support she needs. We are lost and we need your help, not from an opinion point of view, but of what the Bible teaches us. Over the next week, we are going to be faced with uncertainty, so we beg of all those who are preachers to contact us to pray over us and to help us through this difficult time in helping us come to make a decision that God would want us to make.

We pray that no one should have to go through this in a million years and all we ask if for your prayers of strength. We have cried many tears and are completely lost and need guidance from our Lord. We honestly don't know what our Lord would want us to do here. Our lives are shattered.

All preachers, please email me at Adam@TeamFreemanProperties.com and leave me your contact information so we can call.

All of your prayers have been so amazing and we are so grateful to have everyone supporting us through this unbelievably difficult time.

Thank you so much and God Bless,

374 comments:

1 – 200 of 374   Newer›   Newest»
MapleCottage said...

It is so hard to read this.. My heart goes out to both of you.. Prayers will continue and I will share this request with as many people as I can. Kayleigh is such a precious sweet girl.

Anonymous said...

Praying for your sweet little angel

Sarah J. said...

Oh. My heart is just breaking for you. I have been in prayer almost constantly since this news came about. we love you and are standing beside all of you.


Sarah, Chris, Helaina and Ava J.

Anonymous said...

Just wanted you to know that I am praying for you and your family.

Suz said...

I'm so sorry that you find yourselves in this difficult place. Sending love from Australia xx

Busy Momma said...

it is amazing to me that the first thing you do is apologize for not updating sooner.
my heart is with kayleigh, and your whole family.

Ronda said...

I am so saddened by the new as I have prayed for months for your little sweetheart. I have no medical expertise, but I will pray that she will have brain activity. There are such things as miracles. Please gather as many opinions as you can from doctors (as I'm sure you are). I pray that preachers out there as well as medical professionals will contact you for support and advice. I will keep praying, please do not give up hope. We love you!

crittyjoy said...

Praying. For you. For Kayleigh. For peace and for comfort...and wisdom.

Jess said...

I am so sorry. I will pray for this precious baby girl, and for you her amazing parents. I am in total disbelief. I pray for the strength to get you all through this.

avbernat said...

My tears pour over your beautiful baby girl. I am at a loss for words, I wish I wasn't angry right now, I wish I could have the strength of faith that you do, but I'm sorry... Kayleigh belongs here on earth in YOUR arms. Its not fair... I'm sorry, I just don't know how else to feel.

My heart goes out to you and your family. Whatever decision you make or HAVE to make, know that we are all here to support you.

We love you sweet Kayleigh, you will ALWAYS be in our hearts, you will ALWAYS be loved, you will ALWAYS be a part of our lives.

Aimee and Adam, if there is anything you need, please let us know.

Kristie said...

Praying that God can speak to you and Aimee as to do the right thing. How are your other two kids taking it? I pray that God will wrap his arms around the three of you right now.

Kayleigh We love you sweet girl~~

Anonymous said...

I am at a loss as what to say. All I can say is I am praying for your family and that precious Kayleigh. God's will be done so you do not have to make any decision. Whether it is for a miracle or for him to bring her home to him. Lisa from Texas

Mama Notes said...

I am so sorry. :( Praying for you

Ruth @ Bookish Ruth said...

I'm so sorry. Lifting you, your wife and your precious baby girl up in prayer.

melanie said...

my thoughts and prayers continue to be with you guys. I hope that you will find peace in this time of uncertainty.

Holly said...

It breaks my heart to read this!! Please know that my thoughts and prayers are with you and I am hoping for a miracle. Kayleigh has overcome the impossible before so please don't loose hope. God has showed us how powerful he is before and maybe he will do it again. Please know that my heart goes out to you and your family!! Sweet little Kayleigh you are loved and will always be in my heart!!

God Bless

Chris, Hannah and baby Henning said...

We are Praying...begging the Lord.. and I will be talking to and praying with my preacher hubby over this situation. May the Lord do a might mighty work in Kayleigh!

alexandrea said...

i am so sorry to hear this. will continue to say a prayer for you

marie said...

just a short note to let you know my prays and thoughts are with you and your little girl god bless

Joanne said...

I don't know what to say except I'm so very, very sorry and will continue to pray for you and that precious little girl.

Konnie said...

I don't know what to say other than We Love You guys! and we are Praying for Kayleigh and your Family. I am calling My brother who is a Baptist Preacher and also My Pastor. I know that they would both be Praying for you guys.

SSBenjamins said...

Oh man, my heart is aching for you. NO words can express my sorrow. I am SO SO SO sorry. I have enjoyed following along and reading the inspirational messages. I am heartbroken for you both. Thanks SO much for providing all of us information on your sweet girl and for allowing us to be a part of your lives. I continue to pray. Takce care.

Anthony's Mommy said...

I've been checking all day for an update and you guys have been in my thoughts all day. I am just so sorry this is happening to you guys.

I know I'm not a preacher so I can't give you the words you are maybe looking to hear, but i just wanted to offer one thought that has helped me deal with the loss of my daughter Hailey. As you know I lost her in utero while pregnant with Anthony. And because of this I had Anthony 3 months early. For a long time I couldn't stop asking God WHY? Why didn't he just give me Anthony if Hailey was going to die? Why give me both only to take her away? Why give me that heartache? I think sometimes God sends us an Angel. They come to us in ways we don't always recognize at first. They touch us and change us in ways we could never imagine. Hailey opened my eyes to the world around me. Made me see things I would of never seen if it wasn't for her. I know Kayleigh has been an angel for you! I bet you and Aimee are closer then ever and your family stronger then before all this started. Kayleigh hasn't just been loved by your family, but by the world and that is special! The world will never be the same because she has touched so many people.

You know whatever your choice is with Kayleigh's care the world will back you guys! We don't just love Kayleigh we love you guys as well and our hearts are breaking right along with yours.....

Kim

karen said...

Praying that God will give you the strength and wisdom that only he can. You are all in my prayers. God Bless

Beckett said...

Sweetie, you do not need a preacher to tell you what to do. you need to follow your heart and do what YOU and Aimmee feel is right. Kayleigh is YOUR child. Take your time. Don't feel rushed by the doctors to make a decision right now. You can always take your child home in a ooma like state, without removing support until YOU are ready to make that difficult decision.

I would kindly suggest that you might look into taking her home..so that you and your whole family can spend some special memories with Kayleigh in HER home, her crib. She deserves to go home and be surrounded by love and family at a time like this.
God bless you and the family. We will lift you up in prayer. xox

Jennifer L said...

I'm so sorry that your little girl is going through this. I'm praying for your family.

Anonymous said...

Please consider donating her organs..so that she may help save another baby/babys' life. Let Kayleigh live on ! Please don't take her organs with her, Heaven knows we need them here on Earth.

Anonymous said...

I am sad you are struggling with this. I am confused though. You say she is on some sort of life support? If she can breathe on her own and her heart is working fine, what kind of support is she on?

gigi said...

I agree.

Please think about donating her organs before removing life support. It will help you in the long run make some sense of things and know that your baby girl gave life to others.

Melody said...

Hi Aimee & Adam,

First of all, please don't apologize for not updating! ((hugs)) Of course everyone is waiting and is anxious, but your first priority is your daughter and you need to be there with her, and be there for each other. We will all wait. ;)

We are praying for you constantly!! My kids are constantly praying for Kayleigh and we are praying for both of you (as well as the kids). I am praying for your guidance and comfort, and the peace that surpasses all understanding. I am forwarding the link to your post to my pastor and I hope he is able to call you guys and pray with you. Please know you are always in our hearts and we are praying without ceasing for Kayleigh. ((Hugs)) God bless you, Melody (CA)

Hector and Chrissi said...

I don't have answers for the situation you are in and I'm not certain that the Bible will give you a clear answer on this. I encourage your family to pray this out and do not make any decisions until you are at peace with that decision.

God can still ignite the spark in Kayleigh's brain and this will be number one on my prayer list. I am still begging God for Kayleigh's life. I am also praying for you and Aimee to make wise decisions with God's guidance and to be at peace with the path He leads you on. Please find comfort in knowing that you and Kayleigh are so loved by God. I pray that you continue to be sustained by His great love and your deep faith.

Erica said...

NO.....NO....NO.....I just don't know what to say or think!! Not Kayliegh!! I am in tears!! I have been so woried about her and you all! I know things are not looking good right now! Just know one thing...Adam and Aimee you both are amazing people!! What ever happens just know we support you in any decission you make!!

As for me I will not give up hope!! I am praying!! My family is praying!! Please Dear Jesus..Bless Kayleigh with health!! We love you Sweet Kayleigh!!!

Erica
Mommy of 2 boys

April said...

This is absolutely heart breaking to read that she hasn't shown improvements. As difficult as it is to be the family that God has chosen to work through - His work has not been in vain. She has touched SO many lives, has brought me closer to my Maker. If that was God's intentions for Kayleigh, she has succeeded greatly. If this is where God has chosen Kayleigh's earthly life to end, know that your daughter has proven that God works miracles. We are all so amazed at her strength and her ability to beat the odds. Kayleigh's story will be a new benchmark for other babies who will/have experience(d) a similar situation. God chose YOU two to be the parents of this child because of your strong and unwavering faith. If Kayleigh is in heaven playing with God's children, she is no longer being held back by straining medical equipment, no longer being poked with needles, no longer recovering from invasive surgeries, no longer being in pain or having fear. She is smiling, laughing and knows that she IS loved. Sweet baby Kayleigh - no one is ready to say goodbye. You are in my prayers everynight.

Jennifer W. said...

I am so sorry for what you are going through, and what you have yet to go through. We will pray for God's peace with whatever God reveals to you as His will for Kayleigh's life. I only wish there was something more to say. We are thinking about you and your family, and praying for you, and your beautiful Kayleigh.
Praying in South MS,
Jen

Anonymous said...

If Kayleigh can breathe on her own..please take her home to be with her siblings. Let everyone love on her, call a photographer and cherish those memories without being in a sterile hospital. GOd loves your little girl.

Michelle said...

I am SO sorry. Thank you for sharing your little girl with the world to love. You have been on my heart and in my prayers as you go through this!

Anonymous said...

Oh no--I'm so sorry to read this. Well, I don't really have any religious advice for you, but I think Beckett's idea above that you take her home is a good one. I'm still praying for Kayleigh and your whole family.

Cara

Kim said...

Adam & Aimee,

Please do not give up hope. I am praying so hard that things will turn around and that Kayleigh will soon open her eyes and smile again. She is such a beautiful angel. I truly want to thank you for allowing all of us to come into your lives and for sharing this journey with us. Kayleigh has touched more lives than you will probably ever know. Kayleigh is such a fighter, she has overcome so much already. I will continue to pray for you & keep the faith that she will get better.

Anonymous said...

First of all let me say how sorry I am after reading this post. I strongly agree with Beckett, I believe you guys should take her home and have her live what perhaps may be her last days here on earth and share her life with all of the complete family that love her and have waited so long to meet. I think this can at least give you some time with her at your own privacy with no doctors, beeping machines, no more poking her and all that stuff they do at the NICU. Please do consider taking her home, I think its time. Once again I am deeply sorry to hear this.
Erika from Texas

PastorMac's Ann said...

Praying for God's Mighty Hand of guidance and comfort on you two tonight.

with sadness.

Kelli said...

I am so sorry, Adam and Aimee. So very sorry. I am not a preacher but just recently (last November) dealt with a brother's death due to massive stroke at age 29. He was on a vent but unresponsive. After a week, the decision was made to turn off the machines and allow God to carry him home. Though terribly heart broken, my family knows that they made the right decision.

I agree that no one should ever have to do this. I'm so sorry that you are now walking down this road. I wish I could be there with you now, but know that I hold you in my heart and prayers.

I'm sure Brent and others will email you with their Biblical views, as you asked. I greatly respect you for seeking godly counsel, and I pray that whatever decisions are made, that you will know the peace of God that passes all understanding.

God bless,
Kelli Bosarge
ugottafriend.com

Anonymous said...

Contact this non profit organization ASAP.

www.nowilaymedowntosleep.org

they will arrange a FREE photographer to photograph Kayleigh's last moments with her family. Trust me you will want that later down the road for priceless memories of your little girl and her family.

littlemommmy4 said...

i have been praying for your baby girl and my heart is breaking for your family right now. Our God is mighty and wonderful are his works.I know Kayleigh has touched my life. I will continue to pray for her.

mommy to Kaden, Brody and angel Ava said...

I am so sorry and my heart breaks for you. This is the hardest position for a parent to be in. My thoughts and prayers are with you all.

Amy

Amber said...

My heart goes out to you and your family. Your family is in my prayers. Although I do not know what exactly the Bible would lead us to do, all I can say is give it to the Lord. He will guide your way. God bless...

Christi said...

Adam and Aimee,

I'm from bbc, and have never commented in the blog before. I wanted to say, I can't help but think there is a reason Kayleigh isn't needing the vent and meds anymore. I have been and will continue praying for her healing.

Shari said...

I wish I had the right words. I continue to pray for your family. How my heart breaks and aches for you right now. And someone mentioned the photography of Now I Lay Me Down to Sleep. Please contact them.

Joelle said...

Contact Pastor Rick. He is located in the OBX of NC.
His son has the blog www.cfhusband.blogspot.com/
He will pray with you. Just ask him. He is quite familiar with the NICU situation when his granddaughter was there for 3 months.
Contact him here..
www.nagsheader.blogspot.com/

Valerie said...

This post has brought back so many feelings for me. My brother was 17 when we were faced with the same kind of questions, emotions and just feelings of loss. Not knowing what to do. Crying and crying. You do need to get all the pastors and people you know to gather around you in prayer. After about three days of praying and asking God's will be done, my whole family got this feeling of peace. Like no other peace I have had or known since.

I am so sorry that you and your family are having to go through this. God does still perform miracles. I believe that with all of my heart. I am hoping and praying that he touches Kayleigh and makes her whole. God bless you and your family!

Kristin said...

i agree with other!!! IF kayleigh ever does pass on and go to heaven [which were all praying dos not happen] then donating her organs would be an amazing thing to do to let kayleigh still give hope to other babies!! it would be a great way to let her legacy live on!!

The Leighton Family! said...

Sending Prayers from Portland,TN!

Anonymous said...

Please go to your church tomorrow and seek out your pastor's support. They will help lift you during this difficult time. But, no one can make this decision for you.
Take your time, don't let anyone rush you.

Think about taking your baby girl home to her pretty nursery and crib. It's time that she got to enjoy that. And spend time with her sister and brother too. No more hospitals. Let Kayleigh go peacefully at home surrounded by loved ones. And definitely contact Now I Lay Me Down To Sleep to photograph for you. Bless you ALL!!!!

Jill said...

my heart is breaking for your family and your little girl. no one should have to endure this much. i hope for a miracle and your strength in the upcoming days. giving you my strength....

petra said...

Please donate Kayleighs organs so she can live on forever and continue to make a difference and change lives that she has all along in her very short life.

Anonymous said...

Praying for strength for you all.

Praying for a miracle aswell.

Em
from Australia

Megan said...

Continuing to pray for Kayleigh and the both of you. My heart truly breaks for you. I pray for God to surround you completely during this difficult time... I pray you feel his arms carrying you all through this.

T said...

It is a very difficult position to be in and you've described it quite well. I went through something similar with my 24wk 500g son who was resuscitated multiple times in his first weeks but his brain no longer functioned and we struggled with medical decisions at the end of his life. I read the same passages over and over then, especially Romans, Philippians 4 and posted much of Psalm 71 at his bedside to focus my faith through the tears. We made him DNR and God quietly took him before we had to make the decision to withdraw the ventilator. I prayed for peace and my prayers were answered, those last hours were the most peaceful time of his short life.

I pray you find peace, peace in the waiting, peace in answering all the questions ahead of you, peace in understanding what Kayleigh's message is here on earth.

Anonymous said...

yes, i agree, donating her organs would be a true blessing indeed! Kayleigh WILL live on in others!

Anonymous said...

Praying for peace and understanding. I pray that Kayleigh leads you in making your decision easier. Please let her come home and be with her whole family.

Anonymous said...

Praying for you and your sweet baby, she is luck to have you as parents. Looking for hope? Please , please, please go to www.mormon.org I KNOW that whatever happens, you can be with Kayleigh FOREVER! Love you guys, and I pray for your daily.

Just an ordinary woman said...

Aimee and Adam,

I have sat here with my fingers on the keys without typing.. I am heartbroken for you and your baby girl..

I pray that you find the answers and strength you need to do what you believe in your souls to be right.

It must be such a terrible weight to carry, and I pray The Lord will help carry you through it.

Praying for you constantly

Kerren
South Africa

Anonymous said...

I have not followed your blog from the beginning but came upon it a few days ago through a link on a friends blog. My heart is breaking for your family. When my nephew was born he weighed 16 1/2 oz. and was 10 in. long so you can see why your story touches me so. I will continue to pray that you will find peace in whatever decision you make while also praying that He might heal this baby girl.

Please remember that He is the same God through dark times that he is in happy times.

God Bless and sending up prayers in Alabama

nicole_dib said...

Praying for your family and for a miracle for Kaleigh. Know that you all are cared about and that we are praying and praying.

Jennifer said...

Praying that the Great Physician has his arms wrapped around Kayleigh. Yes, miracles happen every day...and your precious Kayleigh is a Big miracle already.

Praying for comfort as you prepare and make some HARD decisions in the upcoming days. Kayleigh has taught me so much in how fragile life really is. Thank you for sharing this journey with me....I will continue to pray for your little angel.

wicker0407 said...

All I can say is I am SO sorry. My heart is completely broken.I am so angry and sad. I am really struggling with my faith right now but I know this has all happened for a reason. I hope that whatever decesion you make you find peace and I just want you to know how much little Kayleigh has changed my life. She has brought me closer to the Lord and made me truly apprecaite what I have. I am a better Mother and a better person because of Kayleigh. Please take her home it was always your dream and I think you should do that ASAP. May God guide you to the right decesion and wrap you in his arms. Kayleigh will never be forgotten.I will continue to pray for you all.
Summer

Carla said...

I have never commented before, but have been following for a little while. I am so sad for you guys, I can't imagine how broken hearted you both must feel.

Hopefully you will ignore the anonymous commenters who always feel compelled to find a difficult situation and find a way to make it worse. It is pure evil.

Just know you are loved and prayed for by so many--and I pray that our God, the God of Comfort will comfort your hearts and minds in Christ Jesus.

"Fear not, for I am with you, do not anxiously look about You for I am Your God, I will strengthen you, surely I will help you, surely I will uphold you with my righteous right hand."
Isa.41:10

I pray that His grace will sustain you, and strengthen you so that you can continue to put all your anxious thoughts over what to do at the foot of His cross--and that through this, He will reveal a clear answer that will bring your broken hearts some peace.

(((((Hugs)))))

Anonymous said...

The world loves you baby girl... please come back to us.

The brain has an amazing ability to heal... Kayleigh has an amazing ability to overcome every odds ever thrown at her... I won't give up hope!

XOXOXOXO Kayleigh

WendyCarole said...

I am so sorry, praying for you

Anonymous said...

I'm so sorry about this.
I will keep Kayleigh in my thoughts.
I hope that she will improve soon.

KAS said...

I am so, so sorry and I can only hope that this is not the end of her journey here. She has fought so long and so hard, as have all of you, and it seems surreal that there is even the slightest possibility that this is the end. My thoughts are still with your family and your beautiful little girl, and I know that if and when the doctors ask that dreaded question, you WILL have the right answer, no matter what it is. You will find it, you will be led to it, you will be shown it - whether the answer is to let her body here go, or to continue your fight. I still have hope that some sort of miracle can and will happen. - Another Kayleigh Anne

Colleen said...

I just started following and I will be praying for your miracle baby.

Shazza911 said...

My heart goes out to you guys. I cannot even imagine how difficult things are right now. I've been keeping Kayleigh and your family in my prayers and will continue to do so.

Anonymous said...

I am so sorry, Our church prayed for you and My family has been praying for several months, we will continue to do so. You are such wonderful parents, Kayleigh is blessed to have you. As long as her heart beats there is hope, and you all deserve to have her home, even if it is for a short time....
Love and Prayers,
Jenny in KS

Mary said...

I just came upon your blog thru Carly at Love Reign Over Me. I do remember hearing your story on the news when Kayleigh had the heart surgery. At the time I was touched, I was pregnant with my first child, Lukas. I could not imagine being in your shoes. As I read your blog on Kayleigh and watched her video over and over again, so many emotions came over me as I too had to make the decision. I since have been praying that God give her another chance to be with you, her amazing parents. I pray that you don't have to make the choice. I just have no other words. My heart is breaking for you all but I will continue to keep you in my heart and prayers.

mommyandthethreeboys said...

My heart is SO broken for you right now. I am, of course, at a loss of words to express my sadness for you. All I can say, (as I have said many times before) I will be ETERNALLY grateful to Kayleigh and your family. She has changed my life forever. No one on this earth has ever touched me the way she has. I started praying again,I started appreciating my children and My life again. I know that I am not the only one. So If her journey here on earth is over, I would say that she has done what God wanted her to do. She has done so much in such a short time. I would say she has done more to change lives than anyone could ever hope to do. She will continue to do the same thing even when she is in heaven. Thank you for sharing all of this with us, even in your darkest hour. God has so much in store for your family.
Much Love,
Amber (Las Vegas)

"Kayleigh has given me so much"

The Smith Family! said...

I am AMAZED!!! You and your wife are SO strong! My baby was in the hospital for 9 days and I thought the world had come to an end. What an inspirational story. I pray that you will have comfort and baby Kayleigh will not be in pain. How beautiful it was when you said she may be in heaven even though she is here alive and breathing. God knows what is right and will bless you and your family. I love Kayleigh, she is so gorgeous! Thanks for letting the world into your personal lives. We are certainly praying for your family.
With much love from UTAH:)

Holly said...

I'm so sorry to have to read this. I cannot imagine how difficult this must be for you.

~Chel~ said...

I'm sorry you guys are going through this difficult time...We will continue to pray for you all and will tell people about Kayleigh so they can pray for her as well...I hope you find peace and answers in this time of uncertainty....

Praying in Mesa, AZ

thegilbreathfam said...

I'm so sorry. (hugs) After reading your posts for months and months, I feel like I know you guys. My heart is aching for you both and all your children. I pray the Lord guide you to know what is right for you and your family. Only you can know. I have been touched by Kayleigh and your dedication to eachother and your family. if there is anything else I or any of your other followers out here can do please let me know. I wish I was closer to be able to bring your family meals, or help take care of your other little ones. Is there anything I can do. I will continue to pray for you. The Gilbreaths

Sarah Lulu said...

Oh dear Lord please help these sweet and loving parents to accept Your will for their baby, whatever that may be.

Bless them and keep them and give them hope for a future free of grief.

In our Father's name.

Sending loving and light from Australia,

Sarah Lulu

Anonymous said...

Aimee and Adam, You two are such amazing parents and I pray for God to give you strength to get through this difficult time. I pray for sweet little Kayleigh. I will not give up hope and will continue to pray that she will be healed. God Bless all of you!!

Furious Mom said...

I am so very sorry. Kayleigh is a miracle, she has made an imprint on the earth and affected so many lives. She has lifted me up and brought me even closer to the lord. She is so precious and her journey is just beginning. Love and hugs from your friend in Calgary, Canada. God Bless Kayleigh and the rest of yoour family. My prayers are with you at this time and always.
-Stephanie Singleton

kathleen in TX said...

Praying for you both and for your precious Kayleigh.

Anonymous said...

You write: “this difficult time in helping us come to make a decision that God would want us to make.”

Be still and KNOW the decision you two, sweet wee Kayleigh’s parents, make, IS the decision God has made!

Be still and listen.

You two, the two people who love Kayleigh more than does anyone else in this world, KNOW the answer to the decision God has ordained you to make.

Do not listen to the voices of others; God has already spoken directly to YOU – hear Him, for it is through YOU that HIS will for Kayleigh will be manifest. God has entrusted you with His decision.

Be still and hear Him.

Be still and KNOW the decision YOU make, IS the decision God has already made! Listen and hear Him with Grace and Peace. Listen and hear HIS decision with Love.

Gayle said...

God Bless Kayleigh.

Ambrosia said...

Thinking of you and your little Kayleigh.

terri c said...

I am so very sorry that you are facing this profoundly difficult decision. I hope that preachers from your own tradition are offering the guidance you seek. Prayers of course continuing.

Anonymous said...

Prayers are not ceasing for the child that the world has taken into their hearts....Kayleigh.

In your post you mentioned, "We fear..." and "making right decisions". Remember Psalms 27: 1-3 "The Lord is my light and my salvation, whom (or what) shall I fear? Though a host encamp against me, In spite of this I shall be confident."

You also mentioned "knowing what to do and when." Ecclesiastes 8:5-6 says, "...a wise heart knows the proper time and procedure. For there is a proper time and procedure for every thing, when a mans troubles is heavy upon him."

You also talk about a breaking hearts. I hope the following will help you and Aimee....

Wenever I am troubled
and lost in deep despair
I bundle uo my troubles
and go to God in prayer.

I tell Him I am heartsick
lost and lonely too
That my mind is deeply burdened
and I don't know what to do

But I know He stilled the tempest
and calmed the angry sea
and I humbly ask if in His love
He'll do the same for me

And then I just keep Quiet
and think only thought of peace
and if I abide in stillness
my restless murmurings cease.

written by...Helen Steiner Rice

I pray that the scriptures and poem will help you both.

Ann Stegall
Wake Forest, NC

Anonymous said...

For those of you encouraging the Freeman's to donate Kayleigh's organs, please understand that she is most likely not a candidate because of her extreme prematurity.

Adam and Aimee,

As difficult as I know this time is for your family, I encourage you to seek the answers to EXACTLY what happened with Kayleigh. Please do this BEFORE you make any decisions regarding her life and her care. If you decide as a family that Kayleigh is already in heaven, I STRONGLY encourage you, if her body is stable, to take her home with you. Spend some time with her there and do this at your own pace. Only let her go when you are at peace with your decision. She can go home with you on life support if need be. I've seen it done many times, so don't let anyone tell you otherwise.

I wish I could offer you more, but I know from experience that there are no words to comfort you right now. Just know that there are people who have been where you are and we are thinking of you every single day.

Anonymous said...

Thank you for the update. No one even knows or can imagine what you are going through right now. God is your rock and your salvation, whom shall you fear???? God has already made your decision about Kayleigh. Praying that you can accept that decision and let her go. She may be breathing on earth but she is free and playing in heaven with Jesus.

Thank you Jesus for this family, for the faith and growth that they have gained and learned from precious Kayleigh and their journey with her. May they know and feel you this moment and realize that they may never understand or receive the answers that they are looking for. Lord only you know the answers and understand what, why and how this has happened. Help them to accept this and rest in your loving grace and peace.

The Rowe Family said...

Much love to you!

Kira said...

Dear God,
Please help Aimee and Adam to be at peace with what will be. Guide and hold them with the same hands that cradle and care for Kayleigh, and fill them with surety of your love and infinite wisdom. God grant them clarity in the incomprehesible, strength through the uncertainty, and faith through the unfathomable. Kayleigh is as much a miracle now as she has ever been, and I pray you continue to manifest yourself in her incredible life so that she may continue to share your extraordinary presence with the world.
We pray this in your son Jesus' name,
Amen.

Maxine said...

I am so feeling for you right now - if you read my Max's story from Tyson's site (you have the link on your side bar) you will see i have been exactly where you are now. All I can now is offer is my love and advise you to draw whatever strength you need from God and all the many people here who are offering it to you from all over the world. xxx Maxine

C.J. Bergmen said...

My dear God, mercy, mercy, mercy. We will pray. I have contacted someone I trust. I beg God to send you answers. You are His beloved, His children. You are dear to Him, He shares Your suffering, and is ever present.

C.J.

Breanna said...

Aimee & Adam,

I am so sorry you have to go through something like this. I have been following your blog since the beginning and have been praying everyday for kayleigh to get better.

you and your family will be in my prayers durring this difficult time.

Breanna

Anonymous said...

As a parent of a preemie, I believe in miracles. I pray everyday that sweet baby Kayleigh's brain will start showing activity. Adam and Aimee, you are amazing. I've watched your NICU journey and you're both so strong. Kayleigh couldn't have asked for better parents. My prayers continue for the Freeman family and baby Kayleigh. I have linked your blog to myspace and facebook. The more prayers the better.

Brandi
Nashville, TN

TAMMY CORDES said...

GOD WILL PROVIDE U WITH ANSWERS AND WE DONT KNOW WHY THINGS HAPPEN THE WAY THEY DO , BUT GOD IS GOOD. MY HEART GOES OUT TO YOU BOTH AND I WANT TO HOLD UR HAND THROUGH THIS TERRIBLE TIME IN YOUR LIFE. I'VE BEEN WHERE U 2 ARE AT NOW AND I KNOW FIRST HAND THAT ITS SO HARD BUT HANG IN THERE AN IM HERE WITH AND FOR U BOTH.

Kristi said...

I am so sorry for your pain and suffering. Please know more prayers are being said for your sweet girl and your family from Los Angeles, CA. May you be guided and take comfort in all the decisions you make. We will pray for wisdom for you and your doctors. God bless you and Kayleigh.

Mark, Kristi & Luke

Paula L. said...

Adam and Aimee,
I don't know what to say. I feel so much pain inside for you and what you must be going thru, and I am in shock over what I have been reading from you about Kayleigh. She has been such a strong little girl from day 1, overcoming so many things that many didn't think she would get thru. Kayleigh truly has a purpose here, I fully believe, and that purpose is to strengthen everyone's faith in God and the fact that miracles really do happen. I know she has made me realize how wonderful and powerful prayer is and that God is with us and showing us that thru little ways that we take for granted. I know you both are going thru hell right now, I can't imagine. Just know that all of us out here are praying so hard right now for Kayleigh and your family. You are our family in a way, as many of us have had the joy of following your journey for quite a while. Know that we are there for you, and Miss Kayleigh, during this time, and let me know if I can do anything at all.
Paula L. ( NPCN)

Jen said...

I'm so sorry you're going through this, how heartbreaking. Praying for you and for sweet Kayleigh.

louise said...

I truly believe that God values Kayleighs life the same exact amount right at this very moment with her lack of brain function as He did before she went in for her surgery when her brain appeared to be functioning normally. He values her equally as He values every single one of us. His value of her has not changed, regardless of her brain function. My prays will not change for her, I will continue to pray God's perfect will for her life.

The doctors have been administering life saving support from the moment she was born, why take it away now? Millions of people on this earth live this very moment with lack of brain function, require 24hr around the clock care and some may ask what the point? That is not for us to decide God is the giver and taker of life! He has chosen to sustain Kayleigh's life even if her brain isn't functioning as we all would hope. Her life is valuable to Him (regardless of what level her brain is functioning) and He is, can and will be glorified for His great love for Kayleigh!

If she is breathing at this very moment, she is still with us here on earth. Her spirit is here with her on earth. She is not in heaven with Jesus and the angels, she is alive here on earth. Though brain damage is so hard to wrap one's mind around, her life is still just as great of value as it was before she sustained the brain damage. No more no less!

I have read your blog from the first week of Kayleigh’s birth, I have wept, rejoiced and called out to the Lord on Kayleigh's behalf. My pray will now be, that as your trial has just been increased ten fold with this turn of events in Kayleigs health, that you will feel His presence and truly believe that His grace is sufficient. That He will give you the strength and the grace to raise a child with severe special needs. Be it for one week, one year, etc. God will sustain you through this.

God is good and He is sovereign, He has numbered every day of Kayleigh’s life and knows it from beginning to end. The truly most Christ like actions I have ever witnessed has been that of parents, who have loved, cared for, sacrificed so much for their severely disabled child. As long she is showing signs of life (ie breathing on her own) God has sustained her life and He is perfect and never makes mistakes.

I would beg those of you who are suggesting "organ donation" to please stop. This is not the time or the place. Organ donation is a very private decision and only one that Amy and Adam can make. And only when the time is right.

Adam and Amy you have endured much and I know your reward will be great for your care of Kayleigh to this point. God will never leave you nor forsake you, His promises endure forever. If He has chosen you to be the parents of a child with severe disabilities I truly believe you will trust Him as you have up until now. You will continue to press on and walk the path He has laid before you and Kayleigh. If He chooses to take Kayleigh to Heaven none of us will be able to truly know the great pain you will suffer but, God will for He suffered even greater pain when He sacrificed His only Son in our place. Cling to Him, trust Him and may your He grow your faith greater still through this.

Praying and thanking God for you both and especially for sweet Kayleigh and her most precious life

Marielle said...

My heart is breaking for you, we will continu to pray for you.

Anonymous said...

Praying with compassion and tender words for you precious family.

In Christ's boundless love, joy, peace, patience, gentleness, faithfulness, kindness and self-control, the gifts of His Spirit.

Michal Ann

Megan McGory said...

I can't say anything else except that we are still praying.

Heather and Travis said...

I am at a complete loss for words. Please know that we are all continuing to pray for sweet Kayleigh and your precious family.

Kimmy Estright said...

I am so sadden by this news. I have been praying that Kayleigh will recieve another miracle. I know that God has his own plans and we don't understand what they may be but it angers me that he has let this little girl pull through so much and then this happens to her. Your family will be in my thoughts and prayers and I will still be praying that another miracle happens for sweet little Kayleigh.

Nichol said...

The tears are rolling down my face right now. I am still praying for sweet baby Kayleigh and your whole family. I am so sorry your having to go through this.

jenn said...

i have been following you for about a week;

i just finished watching kayleigh's video's on you tube!
wow! what a precious baby girl and she is so blessed to have AMAZING parents.

the strength you both display is incredible...it is evident that the Lord is your source of hope.
i am praying for a miracle!

we will not stop praying here in GA!! i am going to put a link to your site on my blog!!

Maxine said...

I meant to say in my earler post for you to PLEASE find out exactly what happened to Kayleigh and how she was deprived of oxygen long enough to do this to her PLEASE - I have stood in your shoes and it was such a painful place to be. Love to you all at this time xxxx Maxine

Michele said...

Our prayers are with you all. I am so sorry that you are going through all of this. IF Kayleigh is no longer with you (in spirit), Please be comforted in knowing that she and my angel son Nick are probably playing together in Heaven. I am hoping and praying, for you, that there will be a miracle and she will bounce back from this nightmare though. Hang in there...it's just not fair that she was doing great and then all of a sudden this....God bless you guys. May you find peace, strength and courage within these next days. God bless.

Anonymous said...

Praying. Sending thoughts of love and strength.


Carol H
Irmo, SC

Anonymous said...

Freeman Family,
I am so very sorry that things have not improved for Kayleigh. I pray God heals her and I pray for the strength
To get you all through. This is surely not the ending of her amazing story I am sure she will continue to touch lives even if from God's doorstep. May God wrap his arms around you all in comfort. Amy

Wendy Glosser said...

Dear Freeman family, not a preacher but a sinner saved by grace, deacon's wife, RN, who has had her sister and friend have the same EEG results. Both were taken off their equipment and in a peaceful manner, both went onto see the Lord. I struggled a bit with where they were during the waiting period and was with them both as they slipped away. I never doubted for one second we did the right thing. My thoughts have always been 100 years ago, what would they have done? As a medical professional, I struggle with our roles in the lives of others at times, wondering if it's truly God honoring. Death is so against our very nature so it's NEVER easy. I am praying for you. This is a horrible place to be. Wendy G. in OK

Anonymous said...

I am praying for the three of you.

sierrasmom said...

My prayaers are with your family!
Kathie in NY

Georgia in KC said...

My heart is absolutely broken for you. Don't doubt for one minute the impact that Kayleigh has had on so many people. God will give you the direction and strength you need and get you through this. Follow your heart and do what's best for you and your family. Have peace knowing the wonderful place Kayleigh will be, if she's not already there.

Anonymous said...

No parent should ever have to go through something like this. I find it amazing that you think of those of us reading about Kaleigh at all during this time let alone apologize for not writing sooner.

Praying for all of you.

Grandmaof6

purejoy said...

how heartbreaking. i have been checking back and back and when i didn't hear anything new, it broke my heart because this is an instance where no news is not good news.
i know what a struggle it is to wonder why kayleigh came into this world to be such a fighter and to have to suffer this much only for it to end this way.
adam, you have had such a voice here, and i am convinced that you have touched countless lives. God is and will get all the glory here. you've been faithful to see to that.
there are no answers to these hard questions. only that God is sovereign.
there are so many of us praying for you. i pray you feel each and every one.

anorthern said...

The Northern family is praying for you. God has and still is going an amazing work in your family.

Wendy said...

the bible teaches us that each life is valuable, no matter what the state. i believe, also, that with a beating heart and breathing on her own, her little soul is still here! think about all those with severe brain damage, those too, still have meaning and value. even drs. can be wrong if they are not faith filled people on this issue. the true meaning of our lives is how God uses us, and not how we are physically. God is so close to your little girl right now. only He and she know the true depth of the communion that is going on there between the two of them. i'm so sorry this is happening. don't feel rushed or pressured to do ANYTHING that doesn't feel right. she is at her most vunerable right now. bless you and stay strong. in my prayers, wendy

Lindsey Barham said...

Freeman's
I am at a loss of words right now. I don't want to beleive what I am reading. I often ask my mom (who is a devoted christian lady) why God allows hurt and to take loved ones away happen. She tells me that sometimes we find out here and sometimes it may before we see him in Heaven but know God never leaves us and is there. Words can not make this better but prayer and God can help heal. You know I don't want her journay to end but if God is ready for her how can we say no to him. All I can say is thank you sweet Kayleigh thanks for turning my like around and making me love God and my kids and my hUSband more day in and day. YOU TRUELY ARE ANGEL AND HAVE FOUGHT TO THE BITTER END TO STAY HERE WITH MOMMY AND DADDY AND BROTHER AND SISTER. Adam and Aimee if you do choose to let her go be with the Lord I know she is going to be SUCH A VERY VERY SPECIAL ANGEL TO HIM. What ever decision you two make I will support and know it is the best for her. I am still praying for a miracle.

Yah Yah said...

I am so sad. I've been praying for Kayleigh for months, and have prayed nonstop the last few days. I've rejoiced in your triumphs and cried when you've hurt. My heart is just broken for you this morning. Know that the whole world is lifting you in prayer.

Hope said...

I'm so heartbroken. Kayleigh represented so much to me. I don't have any answers, but I know God will lead you down the right path. You are an amazing family. I'm praying for a miracle.

Anonymous said...

still praying....I know you will make the right decision....I think it would be lovely if you were able to take her home....please know when God wants her with him...he will take her on his own time...not the doctors
sending lots of love

Janine Robinson said...

I am praying for you during this heart wrenching time, that the peace of the Lord will surpass all your natural understanding to give you the wisdom and perspective that you need for each day. What peace to know that your precious one is resting in Abba Fathers most loving hands, and so are your hearts. May you know the strength of being carried on the prayers and faith of the body of Christ around you.

Anonymous said...

Never apologize for not updating. Although we are all overly anxious to hear any news, we all completely understand you all have just so much going on.

I am so saddened to hear this latest update. It just CAN'T be over. She has come so far, I just don't know it's even possible.

I am completely praying for a miracle, of any sort, to come through for Kayleigh. I am just beside myself as to how you are all dealing with this. I really hope that you can feel all of us walking this walk with you and we are able to provide you with some comfort.

We are all here for your family and praying!

All my love,

Elizabeth

Boston,MA

Jackie P. said...

Whatever happens in the next few days, what is important is your unwavering knowledge that you are her parents, you love her and that no matter what you do or do not do - your decisions are the right ones. Never doubt yourselves or your love for her. I pray most of all for a miracle, but also for guidance and peace for your family.

Island Girl said...

Aimee and Adam,

I've never posted a comment before, but I follow your updates closely, and this absolutely breaks my heart. Even though I've never met you or Kayleigh, I find myself thinking about her during the day and wondering about her as if she were part of my own family. She, and the both of you, have touched my life.

I'm not a preacher, but I believe that God works through ordinary people too, and this morning while reading your post and the comments that follow, I felt the Lord put this verse on my heart.

Proverbs 3:5-6

It is one of my favorites and find myself reciting it myself over and over during the day when I just can't make sense of what is happening.

Again, I'm so sorry. You continue to have my prayers and if you need anything, please contact me.

Nikki Morton said...

If she is already there, you know she's in good company. I'm sure that Carly and Hannah were right there waiting on her. :) We love you guys, and I know this has been a wild ride, but He is still God, and he will get you through it. I agree with the previous post about not letting anyone make the tough decisions for you. Pray, pray pray, and wait for His guidance. He'll tell you what to do. Just be still and listen. Hugs!! please hug Aimee for me, too.

stdogz said...

My heart aches for you and your family. My family was faced with this decision after a tragic accident left my cousin in the same state. His siblings made the difficult decision to give him to God.

I do agree with others and I strongly believe you should take her home and love on her there....

And I also agree that you should consider donating her organs so she can help others live.

She has been such an inspiration and has touched so many lives.

I pray for you and your wonderful family.

Shirliana said...

I am still praying for you, your family and especially little Kayleigh.

Michelle said...

This is so hard to read. I am so sorry! We continue to lift Kayleigh and your family in our prayers! We love you guys!

Barclay Kathryn said...

All I can say is I'm praying and will pray until Kayleigh is home, earthly or heavenly.

Anonymous said...

Adam and Amiee when you had not updated for awhile, I was afraid you had bad news that none of us wanted to hear, about little Kayleigh.

My heart aches for you and I pray for your comfort and His protective covering over you and your family at this time.

I have put out many prayer requests.

Continuing to lift your family up in prayer.

Blessings,
Kay
kay_fredricks@yahoo.com

Dena0308 said...

I pray that you will not have to make a decision at all.. Either God will allow Kayleigh's brain functions to go back to normal, or that he will stop her little heart on his own.
But, if it comes to a decision- it is good to ask for biblical counsel, but it is true that the bible gives no CLEAR answer on this. You have to do what is right for YOUR family- it is great that you are taking advice from ministers, but I guarantee you you'll get some divided responses on this one, even from pastors. So please go with your parents' heart.
I love you guys
still praying and believing
x

Dazzled by my boys said...

I am so sorry Adam and Aimee. I have been following your blog for a long time now. It just breaks my heart that it's all come to this. Kayleigh is such a beautiful angel. I am praying for you, your family and the sweetest angel; Kayleigh. I hope you are able to spend time holding and loving her. I am still praying and hoping for her miracle. Thank you for sharing her with me.

The McGuire Family said...

I too am deeply saddened by the news, but am clinging on to hope and healing of God's hand. If you can take her home, and feel safe doing so, I certainly would. God's will will be done rather at home, or in the hospital, rather her life be lived in you home, or in God's home, His will be done. I am praying hard, and surely hope for a miracle, again. She has shown so many God's miracles over and over again. My husband is an associate/youth pastor, and I will have him read your update and contact you soon. I will also forward this on to all the pastors on my facebook, which are many. May God give you peace with Kayleigh.
The McGuire Family

Anonymous said...

I have no words that can adequately express how heavy my heart is right now. I pray that the Lord will provide the spark Kayleigh's brain needs right now. I also pray that He will carry you both through the rest of this journey. I will continue to pray with all of my heart and soul. God Bless.

Fiffer said...

Oh. my heart. It aches so deeply for what you are going through. I don't begin to understand this but I do know this. Kayleigh has accomplished more for God's glory so far in her short life than many people accomplish in a long life. My biggest prayer is that you feel God carrying you through these darkest of days. I am just so incredibly sorry and you need to know there are many thousands weeping with you right now.

The Pirsein Family said...

I am so sad that nothing has changed. I will continue to pray that God will heal Kayleigh. She has touched so many lives and she has fought many battles. God has a plan for her, but we can only hope it's for her to stay her on earth and shower us with her love.

Mommato2miracles said...

I just wanted to say that my prayers are with you. Maybe you could talk to your local pastor about the biblical stand point? I don't really know what the Bible says. But know that we are praying and praying that God makes it clear to you what decision needs to be made.

Anonymous said...

I am so very, very sorry. My heart is with you as you travel this difficult path.

Sending you many, many gentle hugs,

Erin B.

Kelly said...

My God give you the strength and wisdom to make it through the tough decisions you are about to have to make. I pray for you and your sweet baby girl daily. I have no other words except I am sorry and that I am praying...

The Pyrat Family said...

after I read this, I spent a long time in silent prayer, then I turned on my radio and heard the words,"He can move all mountains, He rose and conquered the grave.. Jesus conquered the grave" I have been praying constantly since I read you post. I have not been praying for Kayleigh though.. because I know she is in God's hands.. I know she WILL be healed either on earth or in Heaven.. but I have been praying for you and Aimee. "Lord, I know You have the power to heal little Kayleigh, as you have done so many times before. I pray that if it is Your will to take Kayleigh to Heaven, That you can carry the Freeman family through the loss of their daughter.. and comfort them with the promise that they WILL see her again. amen."

Kristin said...

Bless your hearts...I have been following your blog and it breaks my heart. I'm praying for you!

4 Lettre Words said...

It is your decision and it will be the right one. Still praying...

Noele Marie said...

Praying for you and your family. I will pray that you get the guidance you need and feel satisfied (as much as you can) with whatever you decide.

Kayleigh's story has touched so many lives and is continuing to do so. Her strength (as well as yours & Aimee's) is an inspiration to all who read your blog.

Maria said...

I have been following Kayleigh's story for awhile but have never commented. First I want to say how sorry I am about the latest developments. I have been praying for your family for quite some time.

Please just take your time when making decisions about Kayleigh. You as her parents should listen to your hearts and do what you feel is best, not what any doctors or ridiculous anonymous commenters are telling you to do.

And for those of you already talking about donating organs, can you PLEASE show some compassion! This family has clearly stated that they are not ready to let go and have not given up hope, so please don't go there. It will be there choice, IF AND WHEN the time comes, on what to do with their precious little angel.

God bless you and your family,
Always praying for Kayeigh! Keep fighting little angel! We love you!

Sarah Joy said...

My heart is broken for you and I will pray earnestly that our Lord will show you what you should do. Only he can guide you in your hearts. We had to make this tough choice for our mom way to early in her llife and it was the hardest thing we ever did... no one can do it for you and you have to fully depend on your Lord for the strength.... I can only pray and pray and pray. I can't imagine for my child. I will still believe and pray for your miracle in Kayleigh... from the Great Physician!

Aileigh said...

I am so sorry... This just doesn't seem fair! She fought so hard for so long... I can't possibly begin to imagine the heartbreak you are both feeing right now. My heart, thoughts, and prayers are with you.
Love,
Aimee Perry

april03 said...

My heart is breaking for your family. I was praying that she would have brain activity this morning. I'm sorry you are going though this hard time. I keep praying for Kayleigh and your family.

Stacie said...

Praying that God can give you and Aimee the strength and courage to work through this and make the right decision! My thoughts and prayers are with you.

Stacie from Virginia

Hope said...

I just began reading your blog the other day and I am so sorry for what your family is going through.... prayers that the Lord gives you the strength to endure what you are going through right now and prayers that a miracle may happen for Kayleigh...

Cristi said...

I have been blessed to follow your story. I am deeply saddened at this end. It is more than difficult to understand why God allows these things. He understands our questions, frustrations, and sense of being lost. Kayleigh will be in His arms with no pain or tears. Our little Carson will be there with her. I know that one day I will get to meet her when I get to meet our Carson. Follow your heart. God bless you.

Erica said...

I can't begin to imagine what you are going through. Praying for guidance, wisdom and miracles!

Anonymous said...

While my heart breaks for you, if it is God's will that Kayleigh return to His loving arms in heaven I am happy for her. And while she may no longer be physically with you here on earth, her spirit, her heart, her courage, her beauty will live on in you, your family and all the lives that she has touched that you don't even realize. God had/has a special mission for her and a special place for her in His heavenly kingdom. I have always believed that when God leads you to it, He will lead you through it. May God continue to lead you, comfort and strengthen you. Our prayers are with you all. We may not understand God's plans but we know they have a purpose. And may God send His angels to minister to you and give you peace and wisdom. Prayers from Batavia, IL

Brittany said...

My heart is aching for you and your family. I do not even know what to say. I have been following your blog for about a month and a half now. I pray that God gives you peace and comfort in these difficult days. May God grant you peace with whatever happens. I continually am praying Kayleigh. She is an amazing little girl. She has touched my lives. She is an amazing miracle from God. You and your family are such a blessing. Know that God is always with you. I pray that God makes it very clear to you and your family what the next step is. I am still praying for a miracle. Sending lots and prayers and thoughts from Holland, Michigan.

Tammy On the Go said...

I have been following this story with you and I need you to know, this was and never will be in vain. Your kayleigh has changed me. She brought about a celebration of my loved ones called Tell Them Tuesday.
www.tellthemtuesday.blogspot.com
and you have deepened my faith.
love forever
Tammy

Tammy On the Go said...

I have been following this story with you and I need you to know, this was and never will be in vain. Your kayleigh has changed me. She brought about a celebration of my loved ones called Tell Them Tuesday.
www.tellthemtuesday.blogspot.com
and you have deepened my faith.
love forever
Tammy

Anonymous said...

Organ donor commenters need to back off!!!

you obviously do not know Kayleigh or what her little body has been through.. It is very insensitive to come her and beg for pieces of her little body.

I know you want to save a life.. so get on your knees, start praying, and you WILL save a life.. maybe your own..

Anonymous said...

We just want to tell you we love you guys and are praying for you. We have been in the position of removing support on a family member and it is a very tough decision.

For now we still pray for a miracle, though!!!!!!!

With love and prayer,
The Smiths (in TN)

Anonymous said...

I am so sorry! We are praying for you and I can't imagine how hard this time is for your family.

Rachaellh said...

Adam & Aimee,
I am so sorry for this turn of events for Kayleigh. She is truly a fighter and such a amazing little girl. Reading through the comments to this post I am reminded of just how powerful one tiny baby can be. Kayleigh has touched so many lives out here in the blog world and I know that she has changed your life for the better. She has brought people to Jesus in ways that no adult could. You all have helped moms and dads out there love their children like there is no tomorrow because you shared your story with us. You have called people to pray that hadn't prayed in so long or ever. I hope that when Kayleigh gets to heaven she is greeted by my little girl Madeline. I hope that she will be there to show Kayleigh around and that the two of them can sit at the throne of Jesus. I love to think about Heaven and all that is waiting for each of us that have accepted Christ but most of all I can't wait for the perfect reunion that is waiting. I will continue to pray for you both as difficult decisions are to be made. May the Lord surround you with His perfect love, perfect strength, and perfect time.

Anonymous said...

My heart is absolutely breaking for you and I am at an utter loss for words. I will continue, as I have since August when I learned about your precious Kayleigh, to fervently pray that God will show you the right path to be on. "Sorry" just doesn't seem to encompass my feelings. Praying for strength for you during the most difficult time you will ever have to face.

Amy R said...

I have followed this blog since it started and I must share my testimony to the power of God with you. Last year, at 15 weeks pregnant, our baby boy was diagnosed with a brain defect, heart defect, missing stomach, one missing kidney, no lumbar/sacral spine and a two-vessel cord. Doctors advised us to terminate, but we refused, putting it in His hands. We had nearly 3,000 people praying for us night and day. During this difficult time, Kayleigh's story brough me tremendous inspiration. She showed me the true power of God and that he can indeed perform miracles. Well, in the end, all the prayers paid off. Despite the medical facts, God healed our son completely. He was born absolutely healthy thanks to Him. I pray He gives you strength you need. If He must take Kayleigh, just imagine what a wonderful place she will be in. God bless you all!

Anonymous said...

We have only been following sweet Kayleigh for a few weeks, but I read your whole blog. She is truely a little miracle and she makes me even more grateful for the hand of God in out lives. She is a precious, rare gift from our Heavenly Father. My love and prayers go out to you. Thank you for being such an inspiration for oh, so many.

Kristin0821 from BBC said...

Always, always praying.

Kristin

Aspiemom said...

My heart is breaking over this turn.

I have no words and I'm not sure you need anyone's words. Just our prayers.

erika said...

I am so sad for you all right now. Praying for some clarity and answers for you. I really believe God will make something clear to you both about Kayleigh's future.

Anonymous said...

My heart is breaking for you. You guys are in my thoughts for months now. I will keep praying. Sending all our love your way.

Kimberly said...

My heart is breaking for all of you. Prayers are being said...

Cin said...

My heart goes out to you and your family. I will be praying for your little girl.

Living on Purpose said...

My heart is breaking as well. Devastating. Wisdom and peace to you and Aimee as you walk through this with difficult decisions ahead.

Dina said...

I can't even stop crying silently enough to come up with the perfect words of encouragement or sorrow for you and Aimee. My heart is just completely broken. I immediately got up and gave my two girls hugs and kisses and told them I loved them. My 4 year old questioned my tears and I will soon try to find a way to tell her all about Kayleigh.

No matter what happens, it is your family that taught me to go and hug my girls more often, tell them I love them more often, because you never know what life is going to bring you.

I will still pray with all I've got that Kayleigh will some how pull through this. I can't even allow my mind or heart to think beyond that, but I hope you find the courage and strength you need if it does come down to those decisions.

I've fallen in love with you family and pray for the best. Hang in there and don't give up...

I gave my 5 month old the middle name Kayleigh in honor of your daughter, because your daughter is the strongest little fighter in this world!

Krystal said...

Please don't worry about not posting as often as some of us would like - we care and we hurt for you, but you need to take care of yourselves first and foremost.

Yep, our hearts are breaking for you. It's so not fair, but sin didn't leave us a fair world. I, as I'm sure you are, am so very grateful for Jesus' death, burial, and resurrection that redeems us from the unfair world. Anyway, I am praying, praying, praying for you and the decisions you need to make. Of course, I'm also praying that God would heal Kayleigh, if He wills. No, heaven's not a bad place, but having to be separated from your precious girl for who knows how long is understandably a horrible thing.

Hugs and prayers!!!

Rebekah Kultgen said...

Hi Adam & Aimee, I am so very sorry to hear about what is going on with Kayleigh right now. She is such a blessing. I am not really sure what to say, but I do know God only gives to us what we can handle and that he will bring his children home in his time. I was reading some other blogs that just seemed like they needed to be repeated on todays blog.
Take care Rebekah
Now here are the blog entries from someone on a different day...Worth reading again


Heavenly Father,
We are lifting Kayleigh up before our mighty Lord right now asking HIM for a miracle . Please Lord, touch this little one. You have brought her through other difficult circumstances in the past and I know you have your hand in what is to come. Please comfort Adam, Aimee, Allie & Brandon at this time and give them comfort and peace.
Father we leave Kayleigh in your hands and ask for a miricle once more. Please guide the doctors and nurses and give them wisdom as what to do.

and here from someone else:

God is our Refuge and Strength, a very present Help in troube.
Therefore we will not fear, thought the earth be removed, and though the mountains be carried into the midst of the sea;...
Psalms 46:1-3

Hast though not known, hast though not heard that the everlasting God-the Lord- the Creator of the ends of the earth, fainteth not..-Isiah 40:28

I just felt led to let you know that the God we serve is the creator of the universe, yet He cares enough to know who we are and what we need. He is going to take care of y'all- no matter what the outcome to this plan that He has had in motion since the beginning of time.

I believe that everything that is allowed to happen, happens to glorify Him.

He never promised that the cross would not get heavy (for we are crucified with Christ) but He did promise that help WOULD ALWAYS COME in time! For He will go with you- even til the end.

Trust in Him- not in what things seem to be. He loves you and knows what is best for everyone.

Deb said...

Many prayers for Kayleigh and hope for strength for you and Aimee. I can't imagine ever having to deal with all you've dealt with and all that Kayleigh has gone through. Miracles DO happen. She's already proven that.

les said...

God will walk with you as you make any decison and comfort you in the days ahead. prayer from Spring Hill Fl.

scrappy quilter said...

Praying God would give you the gift of discernment in this very difficult time.

Anonymous said...

My heart is breaking for you, Aimee, and Kayleigh. My prayers are being sent to surround you and give you peace with whatever decision that you make. May God wrap his arms around you and your family and bring you some sort of comfort in this difficult time.
Sharon

I'm the Mom said...

My prayers for your guidance and strength during this time. Prayers for a miracle! Believe, they do happen.....

lisapooh98 said...

Adam and Aimee,

I am so sorry to hear this. You will remain in my thoughts and prayers constantly! I forwarded this post to my pastor, and hopefully he can provide you with some guidance you are seeking. Enjoy that beautiful girl for all of us for however long you have her!

With lots of love, hugs, and shared tears,

Lisa Carr

The Carpenters said...

I know you check these so you do NOT have to post this, but I wanted to get this to you as it was on my heart today. This song just came over WBGL (which you can listen to online at www.wbgl.org and I've sent in Kayleigh as a prayer request). Anyway, read these lyrics, and if you have a chance try to listen to it. It's by Chris Tomlin, and I just hear Kayleigh saying these words to us.

"There's a peace I've come to know
Though my heart and flesh may fail
There's an anchor for my soul
I can say "It is well"

Jesus has overcome
And the grave is overwhelmed
The victory is won
He is risen from the dead

[Chorus:]
And I will rise when He calls my name
No more sorrow, no more pain
I will rise on eagles' wings
Before my God fall on my knees
And rise
I will rise

There's a day that's drawing near
When this darkness breaks to light
And the shadows disappear
And my faith shall be my eyes

Jesus has overcome
And the grave is overwhelmed
The victory is won
He is risen from the dead

[Chorus:]
And I will rise when He calls my name
No more sorrow, no more pain
I will rise on eagles' wings
Before my God fall on my knees
And rise
I will rise

And I hear the voice of many angels sing,
"Worthy is the Lamb"
And I hear the cry of every longing heart,
"Worthy is the Lamb"
[x2]

[Chorus:]
And I will rise when He calls my name
No more sorrow, no more pain
I will rise on eagles' wings
Before my God fall on my knees
And rise
I will rise"




Now that I'm overwhelmed, I can say, "It is well." Please, spend your day with your family. I just feel compelled to urge you not to spend your day on the phone with the pastors but with your family instead. As a few very smart commenters have said, YOU know the decision because God has already given it to you. Just listen. And accept. He's telling you...we just may not want to follow what we're hearing because it will hurt us. Think about Kayleigh. She's done SO much more...immeasurably more...than we could ever have imagined.
Having said that, we are going to ask our minister to call you just to give you a little more Biblical insight into Kayleigh's current state. Hopefully he'll call today. Spend the time you'd like on the phone, but focus your attention on that beautiful, complete family you have at this moment.

We love you guys so much. We're here if you just want to talk. I know you know that.

heartsfullofluv said...

We love you, God loves you, and He has a plan for you and for Kayleigh. I know He isn't finished yet, and He is still the performer of miracles.

I'm praying for you and I know that thousands across the globe are on their knees at any given minute of the day on your behalf!

Give Kayleigh love from all of us!

Anonymous said...

If faced with the decision you fear, I do not doubt that you will do what is right for Kayleigh, whatever that decision is. You are the people who know her and love her most in the world. You will do what is in your heart and that will be what is right for her.
Sending you thoughts of peace and love from Colorado.

Kellie said...

Readying Your Story over the past few months I have seen that Kayleigh has made her own book of ways to do things. Hold steadfast in your belief. She is a amazing little girl and you guys are wonderful parents. WE ARE ALL PRAYING OVER YOU....NOT Just the pastors of the world BUT EVERYONE. GOD is with you all. and his hand will prevail. God Bless.

Anonymous said...

As I sit here reading Kayleigh's blog, I am speechless as to what to say. I guess the best thing I can do, is lift you & Aimee up to the Lord and ask for peace and comfort for the days ahead of you. He will get you through this, even if we all can't understand why this is all happening. Kayleigh has been such a wonderful miracle to follow, and I pray that her story will continue to touch many lives.

Much love,
Michelle
Hoover, AL

Anonymous said...

Your precious baby girl has overcome the impossible many times over. I am praying for you all especially for a miracle for Kayleigh. Stay strong in your faith, it will bring you through. Praying for you all from Connecticut!

LMP said...

Even though I am a stranger I cry right along with you. I have followed Kayleighs story for some time and have come to love your sweet, little miracle so this news just breaks my heart. I am so sorry that you have to go through this. It is just so unfair after all you have gone through. After reading some of the other comments I love the idea of finally bringing Kayleigh home.
I am still praying and hoping for a miracle and that she will recover from this. You are in my thoughts.

Anonymous said...

My heart breaks for your family as I read today's post. I know with so many people praying for your family and for Kayleigh that you will make the right decision. God Bless you all.

Stacy from Pittsburgh, mother of 30 week preemie twins, one in Heaven said...

Adam and Aimee,
I am so sorry to hear this devastating news. My husband and I also had to make this heart wrenching decision. We felt that our angel gave us every sign that she just couldn't fight anymore. I know that you do not want advice, but just make sure that you are positive about your decision. Make sure that they have given you every reassurance that she cannot go on. You will know that you are making the right decision for her because you will feel it in your heart. Our angels will meet in Heaven and play and laugh for eternity. There will be no pain. And we can rejoice in the fact that one day we will all be together again as a family.

"And Jesus said suffer the little children and forbid them not to come onto me for such is the kingdom of Heaven." Matthew 14:19

Vera said...

Praying

Sara said...

I woke up this morning and, as every morning, checked your blog for an update on sweet Kayleigh. My heart broke for you both. I didn't have any words, so I left my computer for a bit to think of what to say.
I do know, to some extent, what you are experiencing. We had to make the decision to take Samuel off of life support when he was just 5 days old. It was a decision that we struggled with and prayed over. It was a decision that I still replay in my mind over and over again.
God will lead you to whatever decision you make. She is your baby girl and He will help you through this.
If at all possible, I would try to take her home. I think her siblings would like to have her home so that they can love on her and spend personal time alone with her.
I wish I had something else for you - something to comfort you. But you have my prayers. That is what I can offer.

Allison said...

This truly breaks my heart! I am continually praying for you and hope that God can show you the path he has in store for you!

Kylie said...

To dear Adam & Aimee

Despite reading your blog for only a matter of days, I want you to know that I am thinking of your precious daughter Kayleigh, now and forever. She has touched my heart, and it just seems so unfair that something like this could happen. With tears rolling down my cheeks, I pray for her. Kylie, Australia. x

Needled Mom said...

My heart is breaking with the news. I was so praying that the abscence of blogging would not bring what I have just read.

My sister and BIL had a very similar decision on their new baby. Their choice was to bring him home with a feeding tube and allow him to be loved by his parents, five siblings and extended family in his own home. We were given ten months of outpouring of love towards him before he joined the angels in heaven.

I wish you peace in your decision as I know it is made with the utmost of love.

God bless you all.

The Red One said...

We are praying for clarity for you. For time. To not be interrupted by others, that your answers are given to you.
The other day you worried if she could breath on her own...she can. She is still fighting n i believe that.
I know you havent given up hope.

We pray for the doctors and there miraculous hands to do a better job than ever before. For God to reach them in there details.
We pray for strength for the two of you, your other children and lil K. She has grown so much n is so beautiful. Hold her, touch her, speak in her ear.
I dont know all of you, but you have touched my family more than many of my own family members.

Peace be with you. Time. Clarity.
And please posters, stop suggesting donating organs.

Anonymous said...

I can't even begin to imagine... but I am praying for you and all of your family and friends that surround you...

I do hope that you will consider organ donation, should the time come. My dear friends got 2 more years with their precious little boy thanks to a lung transplant. They gave him back to Heaven last year, a few weeks before Kayleigh was born... and I know that he is now some little ones guardian angel... maybe even Kayleigh's...

Praying for healing... if not physical, than emotional.

momof4beautifulbeauties said...

I am praying for Kayleigh and your family. I KNOW that you have not lost faith, but I offer this.

Even when you are weak in your faith, I will remain faithful to you. 2 Timothy 2:13

Praying in Arkansas.

Melinda said...

I am so sorry that hope is waning for little Kayleigh. Wishing you peace and comfort in whatever decision you make.

Hugs,
Melinda

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