After we got all that great news yesterday, the NICU roller coaster is at it again. We have not gotten official results back from all different tests, but Kayleigh started to go downhill yesterday and quick! They have not idea why this happened and they are taking all measures to figure it out.
The only test that has come back yet is he RSV and that is negative. The ECHO showed Kayleigh's pulmonay pressures were elevated and her heart's right side was not functioning as strong as it normally is. The cardiologists are getting together for their weekly meeting on Thursday to determine whether or not to do another heart cath procedure to determine what is going on with her heart. Their fears are the heart may be causing this vicious cycle.
To explain what happened, yesterday Kayleigh was doing great and then all of the sudden, she was coughing, spitting up and having mucousy drainage out of her nose and trach. Her sats dropped quickly and they had to increase her oxygen and pulmonary pressures to get her sats in the right position. After a few hours of controlling her stability, she started to struggle again with the same problems.
The Gastroenterologist came in and felt like Kayleigh's liver and spline were enlarged, so they will be doing an ultrasound on those to determine what may be causing that. With problems rising and multiple tests being performed, hopefully the doctors find something soon.
Please stay close for updates and pray that whatever is causing this issue will be discovered and taken care of quickly. Please pray it has nothing to do with her heart and we can move on from the nightmares we had with her pulmonary pressures being high. Unfortunately, with all this going on, it does postpone the upcoming surgeries for this week.
Please pray for our sweet Kayleigh and I will update as soon as I hear something.