5/1/09 - "I'll Praise You In This Storm"

Look at your hands right before you. I am looking at mine. You see hands that are soft, gentle, caring, loving, but powerful hands that you use to hold your child tight while also using those same hands to lift up to our God in prayer. These hands of mine, they hold my family's hands every chance I get. They touch the face of my beautiful wife, right before I kiss her. They cradle my sweet Kayleigh's tiny body, while she sleeps comfortably and peacefully. These hands fit perfectly together when I kneel at my bed, praying the Lord will heal our child and fix her sick body.

As you type or click at your mouse tonight, look at your precious hands. Know that your hands can do so much for others that you love. What are you going to do with your hands tonight? Are you going to walk in to your child's room and brush through their hair, feeling blessed that your child is alive and well? Are you going to sit next to your husband or wife, and hold their hand, comforting them with your love? Are you going to praise God with your hands, asking our Father to forgive you and others for their sins, and lift up someone special to you in prayer?

Tonight, I am going to hold Aimee tight with both of my hands, comforting her poor soul from a tough day of bad news. I am going to have my phone in my hands, praying that it doesn't ring, praying that the doctors don't call me with more news we don't want to hear. I am also going to be praying that our Lord will comfort our sweet precious daughter through these current difficult circumstances. I will also pray with these hands that my heart will stop breaking.

"Lord, with these hands, I'll praise You in this storm"

Kayleigh is not well right now. Her injured brain is swelling and is deteriorating by the hour. The damaged brain according to the scan today, caused by lack of oxygen and/or blood flow, is showing excess edema/swelling and deterioration of the injured section. Praise God that her fontanelle (separation in skull/softspot) separates to relieve the swelling in her brain or unfortunately her spinal cord would be crushed, causing Kayleigh to have a bradycardia (drop in heart rate) that will not be salvageable by a full resuscitation. Depending on direction of swelling, this may still happen at any minute and I am only praising God because this has not happened already.

Our time with Kayleigh may be short, but we are still praying for a miracle. God is amazing and He can do anything at anytime. However, we have also been praying that God gives us a sign to direct us in a path that allows us to understand His plan. It seems that God's plan may be telling us Kayleigh is on her way home to Heaven soon. She is such a precious Angel here on Earth, so I can't imagine how beautiful she will be in the presence of our Lord.

Aimee doesn't usually post much, so when she asked me to post tonight, I would more than thrilled to let her open up to all of you. She is by far the most amazing person and I am so blessed to call her my wife. Please lift her up in prayer and give her words of encouragement as a Mother's love is far beyond the reach of any words well written on a piece of paper.


What does a mother say? I have wanted to write for the blog, for my therapy, & to document my feelings lately but I can never seem to find the right words. Tonight I feel that I must discuss how I am feeling so please bear with me. By the way, it has taken me 29 minutes to come up with this paragraph.

The last few weeks have been the most difficult weeks of my entire life. It is hard to explain the feelings that I have been having. When we first heard the news that Kayleigh was "brain dead" I was in complete shock. I mean, if they would have said that Kayleigh had an episode or 20 other things I could have believed that I think. But, brain dead? Never.

As you know, it has been a very emotional roller coaster filled with doctors giving grim outlooks. Adam & I have always stuck to our guts & we have always been right. So, what did I feel that night? I don't know. If I was forced to pick a word I would say emotionless. I couldn't even find the strength to be sad, mad, confused, etc. I was just stunned, quiet, & emotionless. I think that I cried once that night. There just weren't any tears to let out. I woke up the next day with my usual denial, determination, & strong faith that I used to have after bad news from the doctors while I was still pregnant. I thought this would carry me, but I was wrong.

The first time that we saw Kayleigh with her eyes open after the news was very hard to take. I think this was the worst feeling that I have ever had involving Kayleigh. To look in my little girl's eyes & feel like there was nothing there is heart breaking. She will always be my beautiful princess but you could tell that she was no longer Kayleigh. Her eyes would roll back & lock into position. She just laid there for two hours staring at who knows what. Feeling comforted in my arms or feeling nothing at all. To feel no bond at that moment was ripping me apart. I always try to stay strong around her but it was time to let that go. I just need to hurt & to be sad. All I could think was, "God, please give me Kayleigh back. Please don't take my little girl's mind."

As the days went on Kayleigh's eyes would start to settle & she would appear to be looking straight on. Two days ago I had the most fabulous visit with her. I have tried my very hardest to remain very hopeful. Not naive, just positive. God has worked miracles on my precious baby before & I was not about to give up on the idea that could happen again. Yes, I realize that we have had 3 EEGs & a CT scan saying that there is no hope but my gut said that it wasn't true. Since my gut has always been right I decided to follow it again.

I played with Kayleigh & talked to her the whole time. I felt that there were times when she was really seeing me. Not just looking in my direction. I kissed her over & over & even played with her cheeks trying to get her to laugh. I honestly felt like she wanted to smile. The doctors tell me that she doesn't feel emotion but I felt her emotions in MY heart. I felt like she was comforted & happy. When we put our hands on her head she instantly responds by relaxing & closing her eyes. When I tried to hold her hand she would open her fingers. I don't think I am going crazy yet. I know that this happened. To feel our bond again was unbelievable.

The thoughts of bringing Kayleigh home to spend time with us all as a family is what has kept me going. I love the staff at the hospital & I appreciate everything that they do for us. However, I just want my baby home, in my arms, in her room, undisturbed, taking naps with us, & going for a walk. I want more than 20 minutes of true family time.

I want Brandon & Allyson to know her, to love on her, to see how cute she is in real life & not just in photos. My heart aches thinking about how they must feel. Losing a sister that they really only met a handful of times. They have been cheated out of a huge part of the most amazing person I may ever know. The kids have been so supportive, loving & patient this past year. I owe them so much. I hope that they will be able to see Kayleigh soon. The RSV ban should be lifted on Sunday. It will be a glorious day. I am so looking forward to our 2nd family photo. Oh Lord, how I wish for many more of those to follow.

Tonight we received a phone call that I was not ready for & has devastated me. Kayleigh's brain has started to swell which is not a positive direction for things to go. It sounds more like the beginning of the end. I think they actually used the words brain deterioration & liquefy. If I try to focus on those two words for too long I can actually feel my heart tearing. The doctors don't think that she has very long left. It could really just be days. Here I was living in this little bubble of safety. I thought we would bring our princess home, play with her, have family time, & then God would let us know in this magical moment that it was time to let our baby go to Heaven. I feel like I see the light but it is just a train heading right for me. I feel like time is running out & I don't know what to do.

My husband would describe me as strong & if he were being honest with you all he would through in control freak as well. (This is something that I am working on but that is for another day) What does a control freak do in a situation like this? I feel like my brain is in overload. I am a person who LOVES to sleep. I could stay up until 3am but then I want to sleep until 1pm. I feel like I don't want to sleep at all. My mind is always going & I can't make it stop. Even when I go to bed I feel like I am awake all night. Yet, I wake up rested.

I can't tell you the last time that I yawned. I have started to feel a little light headed the last few days. Adam is worried that I am just going to come crashing down. I am worried that he might be right. By the way, I am not drinking caffeine either. Just water. I want everything to be perfect for Kayleigh & I feel like even though I am not ready to let her go or even the idea of letting her go, I have to make plans.

I am sure that many people could help me with this but I feel like I have to do it. So, what happened tonight? I had a mini freak out in my head because I don't own a black dress! Who needs this? I don't even like to shop much less for this reason. Fortunately for my family who also hates to shop we were right next to a Dress Barn. I went in & found three black dresses that were decent. I tried them on & luckily one fit pretty good. I told Adam that I didn't want to look great & I didn't want to love it. I will never wear it again. I won't want to.

I never thought that I would see the day that my own babies could go home before me. I never visualized buying a dress for my daughter's funeral. I never imagined that I could feel this pain inside of me. This has been the hardest year of my entire life & the hardest moments aren't even here yet. I know that my gorgeous little girl will be safe in Heaven but I just can't imagine not holding her in my arms, feeling her against my skin, making her first sounds, & taking her first steps. I can't imagine her not coming home to see her perfect room. I can't handle the thoughts of what this is doing to my amazing husband. He loves her with everything in him. We are not just dealing with this pain individually. We share in everyone's pain. Our other children, our parents, our siblings, our friends, & all of you. Our hearts break over & over.

What keeps us going? Our faith. I have only been really close to God for a few years & I can't imagine how I would have handled this before then. Knowing that Kayleigh is going to a better place where we will all meet again gives us strength. Knowing that God gave me the most amazing husband in the world to pick me up when I am down, hold me, love me, & wipe away my tears.

Knowing that even though there will be many tough days for us & the kids, they will help us get through it. They actually made us laugh a few times tonight. If it weren't for them being home with us we both would have just closed up & stayed miserable & depressed. They will bring us joy & remind us everyday of the good things in life. Knowing that we have an unbelievable support system is indescribable. Thank you to all of you. Adam & I could NEVER express what you have done for us spiritually, financially, & emotionally. There are many days that we felt like we couldn't have made it without all of you.

I do not know what the next few days or weeks will bring for us. I am afraid. I am nervous every time my phone rings right now. Please continue to pray for us & have your friends & family pray for us. Your prayers have worked miracles in the past & I know they can do it again. We love you all & we feel terrible that you are hurting as well. Please know that we will all take care of each other & we will all get through this together. We may not "know" each other in the normal sense of the word but we will certainly all meet again one day. When you all meet Kayleigh she will look more amazing than she ever has. She won't have any pain, will be whole, & will welcome us all with open arms. How glorious will that be?

With Love,

Aimee


"Kayleigh, we love you with all of our hearts. You are such a blessing to us and we are so grateful to be your parents. Our faith and love is stronger because of time we shared with you.

We know how powerful our Lord is and how He can do anything He wants to do. I feel in my heart that He is deciding to bring you home with Him. Your body will be made new. Your brain, your heart, your lungs, your eyes, and your tummy will be healthier than you ever imagined. You will be so happier in your new home.

As we all prepare for eternity here on Earth, I want you to know that you have touched thousands of lives with your strength and determination. You are the strongest person we have ever known and we are so proud of you for fighting so hard. It is evident that Jesus has laid His hands on you and created a miracle in so many ways. His love is so great! We continue to pray for one more miracle.

We look in to your eyes, Kayleigh, and we cry because if you must go to heaven, we will miss you so much. We just wish you could share your story with millions, personally and help so many others with your own voice. We just wish you could stand with us in front of every single person and pour our hearts out together, holding hands, but we know you will be there looking down on us from heaven. We hope you are proud of us as we did everything we possibly could to save you when no one else believed you could be saved.

We love you so much."


425 comments:

1 – 200 of 425   Newer›   Newest»
Suz said...

You are such brave amazing parents. My heart is with you from Australia as you hug your precious Kayleigh. Sue x

Sky said...

You all have my hearts prayer, its hard sometimes for me to read your pain, but again its comforting to hear your faith. I pray for a miracle, healing, compassion, continued faith and most of all love and comfort.

Kathryn @ Expectant Hearts said...

Aimee & Adam, I am praying for you. For a miracle, for God's strength, For peace that surpasses all understanding.

Kayleigh is a beautiful blessing. She is a miracle in your lives!

Mama Notes said...

I'm praying for your sweet Kayleigh. May God be with you during this time.

Megan said...

Thank you for sharing your heart, Aimee. Your love for Kayleigh shines through. God bless you in this incredibly difficult time.

Kathlynn said...

Adam & Aimee,

My heart is breaking for you. I wanted to let you know that I have prayed more in the last week than I have in my entire life. Your trust in God has renewed my trust in God. Your story and your daughter have brought so much into my life. I have followed your story for more than 6 months, cried with you when things were bad and smiled with you when you posted your pictures. I feel so attached to your story and I am hoping and praying for your family, both for a miracle and for god to give you two the strength that you need to get through this. You are truly amazing people.

Catherine said...

Every day, at least a couple of times, I come here, waiting for an update, and tonight I just can't quit crying. This is not how its supposed to end. This is not what we have fought for, praying for...through all of the miracles Kayleigh has had, this feels so incredibly difficult. I know if its hurting so much for me, I can't imagine what you are going through. I am such a spiritual person, and I know God will do what is best for her, and it has been an amazing gift for Kayleigh to be on this earth for this long, but it doesn't stop my heart from breaking tonight.

C said...

Praying for Kayleigh harder than ever. God please bless us with her presence for longer

Kerley's Kreations said...

Absolutely Amazing. All i can say is that your daughter has had an impact in my family's life both from here and from the middle east. She has impacted as my husband said and brought grown men to their knees. Your strength is unbelievable and having been in your shoes here where you are but not as long your faith and Love and HOPE for Gods Miracles to happen is unbelievable. We will continue to lift your family in our prayers and pray for you all even your other children I can't imgine how hard this is on them. I pray you can bring her home even for a short while but that you get to have that alone time with her for as long as God provides it. Many blessings and prayers for you. THe Kerleys

Anonymous said...

God Bless all of you.

Sarah J. said...

We are on our knees in prayer for you tonight.

Kayleigh-sweet sweet girl. You ARE a miracle. You have impacted my life in ways I never imagined possible. You amaze me, even now. Though we don't know, we love you and are lives are better because of it.

Sarah, Chris, Helaina and Ava J.

Dani said...

As I said in my email, She is Beautiful and there is no pain, wires or tubes in Heaven. You will make it through this and Kayleigh will watch over you and your other children and wait for you to come to her. For when all is said and done, this life is a blink of an eye when you consider the eternity you will spend with her in Heaven.

Elisabeth said...

My heart just breaks for you guys. I will be praying for you this weekend. Remember He is the great comforter.

Melody said...

I am so so thankful for the time I've gotten to you "know" you all. Kayleigh has become a daily part of my life, and I am so thankful for the gift she has been. I am in tears thinking of the pain you guys are in, and I will not stop praying for a miracle. ((hugs))

Paula Lahar said...

Adam and Aimee,
Oh how my heart goes out to you both. I just went to visit Miss Kayleigh and she looked so peaceful, like a sweet little angel resting there. My heart fell as I read your latest update. I cannot imagine the emotions you are going through. It is so hard for me to grasp, I know it's so much worse for you. Kayleigh is such a strong little girl and has shown some serious determination. She follows her parents. You both are such an inspiration, NEVER losing faith. I only hope I can be half the person and be as strong in my faith as you both. Kayleigh has taught me so much. Thank you, for sharing your daughter, and your life for the past 10 months. I continue to pray for you and Kayleigh, and am here fir you if you need ANYTHING, let me know.
Paula L. (NPCN)

Anonymous said...

May God be with you all always. May that sweet little girl continue being that miracle that we all know she is. You have made me realize that so many people take life for granted and don't even know it. This update made me cry more than anything else in this whole entire world. Oh I just keep on praying to God and hoping that He is listen to everything we send up. We are pulling for you little Kayleigh here in Manhattan, Kansas!!! You are always in my thoughts and prayers!!!

Katie and Baby Kadence

Analiza said...

Adam and Aimee,

For the last few weeks, I have refreshed your blogsite every other 15 minutes, I have forwarded all tweets to my cell phone, I hold my breath when I see one from you.

Tonight, you asked what we did with our hands tonight. And I have comforted my crying children, I have held my hands in prayer with my husband and children for Sweet Kayleigh, I have wiped the tears that fall with ever word written by the two of you, I have shaken from uncontrollable heartache for a child that I will NEVER meet, and now I am reaching out to you both.

When there is absolutely no words to type to comfort you both during this terrible time, I am assured that you will be glad to know that Kayleigh has engraved herself into our hearts beyond what we can describe. Adam and Aimee, you have impacted our lives in such ways to better ourselves as parents and believers of our almighty God.

We want you to know that we will always love Kayleigh and all of you. NO MATTER WHAT HAPPENS, you will always have us to share the good and the bad times, we are here to help you, to love you, and pray for you all.

Thank you for sharing Kayleigh with the entire world, we are honored to have witness love at it's best, a miracle born, an angel in true life.

We love you Kayleigh and Freeman family!

You're extended family,

Analiza and the Bernat family

Lisa-MomDot said...

Praying for you all as these next days come ahead. I know Kayleigh did something for me that I was looking for , and that was faith! I have now found a peace in my life knowing that I have the lord to look up to.

I think you all for that, God Bless You ALL

Tara S. said...

You and Aimee are the strongest people I think I know, most people would be angry with God, but you know His plan. I lift you and your family up in prayer. The video was beautiful and I am crying as I type. I have lifted Kayleigh up in prayer ever since I have been following your story. God bless!!

Grandma~rella said...

May God always bless your beautiful family...thank you for sharing your precious little Kayleigh with us. Still praying and always believing, in miracles. (((HUGS)))

Shari said...

Adam and Aimee:

I know it's your faith that is getting you through. It's not fun going through the refiner's fire knowing the Lord will use this situation for His glory through Kayleigh and her precious parents. Please do not feel bad that we are hurting with you! Dear ones, we are commanded as Christians to help you carry your burden! Kayleigh has taught me many lessons I will not forget. I love you folks and I wish I could do more! Much love from Oregon!

dragonflyz in June said...

What a beautiful tribute to Kayleigh! You are my heroes, you have endured so much, more than any parent should ever have to, and shown faith, love and trust. I pray that God shows the doctors that HE is still in control, the author of our lives. Kayleigh has already overcome so many odds and shown doctors that there is a higher power. I pray that He shows them again, miraculously, that HE IS! SHOW YOUR POWER, LORD!!
All our love and prayers!
God Bless

Suzan said...

I would love to be able to say soemthign thoughtful and profound at this moment but nothing seems right or good enough for Miss Kayleigh. So all I will say is that Kayleigh and your family will continue to be in my prayers. May the Lord be with you all during this most difficult time.

Tammy Doorn said...

The video is absolutely beautiful. She is such a beautiful child and I have been praying for all of you. I can only send prayers because right now I don't have anything monetary to send I wish I could. You are all in my thoughts daily. You are the strongest most amazing people. I will say a prayer for Kayleigh tonight as I do every night. I wish there was more I could do for you.

Anonymous said...

I have never read aything more beautiful than that. Tears are pouring out right now as I use my hands and pray that your family will be comforted at this time. Kayleigh is the luckiest little girl to have such strong, faithful, loving, AMAZING parents. She is VERY proud! What a blessing it is that we Christians have the knowledge of Eternal Life. I pray my guts out for you at this time.
Macy from Nevada

Anonymous said...

Lots of love...can't say anything more. So sad and speachless. Lots and lots of love!

Debbie Blincoe said...

Amiee & Adam, I pray for you every second of the day...I really hope that the scrapbook we are working on will help you remember this hard but amazing journey Kayleigh is taking...Lots of hugs and prayers from New Zealand.

Mary said...

Praying for you! I cannot even begin to understand what you are going through, but as a pediatric nurse, I have seen these situations and wish that they would NEVER happen! I am so touched by your family!

Lindsay Norsworthy said...

I'm so very sorry. My heart breaks for your family.
God is near to those who are hurting. Praying for you.

The Hootens said...

The lump in my throat is so large. Tears are pouring down my cheeks. I don't even know you, but with every update my heart has hoped with yours. My tears have fallen with yours. Tears for your family are raining down my face as I type this. The only thing I can give you is my wholehearted wish for peace. Dearest Aimee and Adam, I truly wish angels to surround you and carry you through an unimaginable trial. Know that the Lord loves you beyond any capacity of our understanding of love. It's impossible for me to say why you were chosen to go through this trial. What you have done with it though, is - inspirational doesn't even begin to convey what you have done. Your beautiful Kayleigh is an inspiration of faith to thousands. So few touch so many in so little time. I will hold my eight month old that much tighter tonight. I will thank the Lord for my children so much more deeply. God bless all of you. I truly wish you lasting peace, cradling comfort, and every blessing our Father in Heaven can possibly give you.

Kelly Bennett said...

My heart goes out to you. Your love for your daughter amazes me and makes me want to be more. Thank you for sharing her.... You are in our prayers...

The Carney's said...

Aimee and Adam, I wish I had words to describe how much you and sweet little Kayleigh have touched my life. I sit here, tears streaming down my face and my heart is breaking for someone I have never met before. You are always in my toughts and prayers and I pray for a miracle, for healing, for comfort. May you continue to have the strenght that amazes me every day.God Bless!

Georgia, England said...

What a heartbreaking but beautiful post. You are amazing people and have the most beautiful daughter who will be remembered by so many people.

God bless you all

Melanie said...

My family is with you all in prayer. My husband and I just sat and cried together we hugged and are reminded how much we love our children and how different our lives could be right now. Thoughts and prayers with you!

wicker0407 said...

There really are no words tonight I would not even know what the
"right" words may be. I cry every time I see a new post. I cry like she is my own child that is how much she has touched my life and how much I love her. She has truly made such a difference in my life. Adam and Aimee you are the most amazing parents in the world. If I can be half as good a parent as you two are I will consider myself blessed. Please know you are all in my prayers always and I am still hoping for a miracle. God Bless.
Summer and Family in California

Catharine Wingate said...

May the Lord Bless you and Keep you, may He make HIS face to shine upon you and be gracious to you, May the Lord lift up His countenance upon you, and give you peace. What joy to know that Kayleigh is a covenant child and the Lord has a perfect plan for her life! I will sit down and pray for y'all right now and for your families as well, that a peace that surpasses all understanding would guard your hearts and your minds and also that the phone would stay silent tonight and y'all would sleep long and hard. I want you to know too that Kayleigh is fearfully and wonderfully made and she was "intricately woven in the depths of the earth," she is absolutely PERFECT, you are right! Kayleigh is Jesus' precious jewel and what a gift to be a witness to the incredible miracles in her life. I love y'all, even though I have no idea of anything about you and I just heard your story 3 days ago, you are on my heart and mind and I am praying for you with all my heart!

Carrie said...

My heart breaks for all of you tonight. Kayleigh is such a special soul who has touched my life. I will hold my children tighter and not take a moment for granted. Still praying for Kayleigh.

Ellen said...

Aimee, you are an inspiration to me. The way you wrote about your feelings was incredible. Kayleigh knows her mommy, that's why she reacted the way she did. I am thinking of you ....
Ellen from California

Belle's Blog said...

You are in my thoughts several times a day and Kayleigh is precious ! My heart breaks for your whole family. Praying for you! So many people praying for miracles in her name! God bless!

Holly Mckinney TEMECULA CA Liptricky_2@hotmail.com said...

I came across this blog accidentally.. and I to had preemie babies twins actually no where near as early as your sweet baby. 36 weeks. I was givin an emergency c section and was told they would be fine "36 weeks is practically term"..I guess we never really know what life is gonna bring to you, Because they were all wrong come to find out c section was not needed and my two precious lil boys were transported to a NICU due to Premature breathing and "failure to thrive" in CA where they spent there first 6 weeks the longest and hardest 6 weeks ever .So many times we thought they would come home, the ups and downs made me feel like a mad woman.. i know im rambling through my tear filled eyes right now. Just seeing the word NICU brought back such RAW emotion.
Your Daughter is Beautiful such a lil fighter .... Im so sorry that you have to go through this....I hope my small donation can help out in some way....

I greatly admire your faith in god I dont think I could have been as strong as you ....Kayleigh is truly blessed to have you

Sorry if this just sounded a mess like i said just seeing the word NICU brought me to tears and I am unable to articulate the emotion that hit me reading your story....

Anonymous said...

I am so sorry, so very sorry. Standing with you in sorrow and prayers now, with the sure and certain knowledge of the joyous homecoming that waits for you because of the love of our Lord.

Jennifer in Seattle said...

I wept tonight, as I read this post to my husband. We have been praying deeply for Kayleigh and your family. I can honestly say that no "stranger" has ever had such an impact on my life. I know it's probably little consolation to you right now, but your little Kayleigh has made a huge difference in so many people's lives. I have a 10 month old and I treasure her. But, I now treasure her more than ever. I hold her more tightly. I thank God for her and realize what a blessing she is. Just know that Kayleigh has taught the world to love deeper, to treasure each other and to always have faith that God is at work in all of us. Aimee & Adam, from one parent to another - please know we grieve with you during this unimaginable time. We will pray for you that the Lord will wrap his arms tightly around you and give you much peace. Kayleigh KNOWS how much you love her and your devotion to her is beautiful.

Kayleigh, we've never met, but someday, we will have the honor to thank you - a beautiful, precious gift from God, for everything you have given us!! WE LOVE YOU!!

The Lindsay Family
Kenmore, WA.

Michelle said...

You wrote beautifully tonight from your heart - I'm praying for your family during these very emotional days ahead.

Kayleigh is a beautiful little girl who is blessed to have two beautiful parents like you.

God Bless your family during this difficult time.

April said...

I just found this blog earlier today, and I have been reading up. I am so sorry for what you are having to go through. I just read this most recent post, and I am crying my eyes out. I pray that Kayleigh truly knows how much you all love her. Aimee, you are not crazy. You do know in your heart that she knows you are there, comforting her, kissing her. She is so lucky to have such great parents. I am praying for you all. God Bless You!

mrs. mari said...

praying for kayleigh, you and your family, and the medical team.

Shazza911 said...

Aimee and Adam,

This is a beautiful video. My heart though, just breaks for what you are going through. I was so sad to read that things are getting worse, not better. Kayleigh is such a little sweetheart, and it's so hard to hear that things are not going well. I am glad you have your faith. I'm sure God is doing what is best for Kayleigh, but it's still so hard for you guys. Sending you positive energy!!

Lea Ann said...

Adam and Aimee, I cannot even begin to find the words to say. All I can do is cry...I have never felt my heart hurt like it does now. Your family is going through something that no parent should have to experience, yet you both have done it with such strength and grace that I have never seen before. Man...I want to say so much but just don't know how so I will just close with this...

It is our Christian duty to share in this with you Romans 12:15...thank you for allowing us to.

The Lord is close to the brokenhearted and saves those who are crushed in spirit (Psalms 34:18)

As always, thoughts and prayers go out to your family.

NewfieMoma said...

I am sitting here tears pouring down my face just... I can't really form words... I want to say that I am sorry, but I don't think its enough... I can not form the words to say how I am feeling. I am praying my heart out for you both, the bravest people I have ever'met'
Please know that you and your family are in our every thought and prayer!
Love, hugs and Prayers Rochelle,Jeff,Chelsea and Melissa

Jen said...

Aimee, Thank you for opening up your mother's heart to us tonight.

We share how much we cry because we desperately want you both to know how YOUR daughter has blessed us and brought us joy, smiles and love. Her life has the attention of a much larger audience than had she been born completely healthy.

Your daughter HAS used her "voice" in her own way through you to proclaim God's mercy and faithfulness just by being here and fellowshiping with us for as long as she has.

I can't imagine remembering my own pregnancy and birth of my daughter without remembering Kayleigh and her updates, the good AND the bad right along with it. We rejoice in her triumphs and all that she overcame. My husband and I who for whatever reason rarely prayed together outside of mealtimes, began praying together and it was Kayleigh who was the reason for it. We both love her so much. We will continue doing so even if the Lord takes her to our eternal home.

Thank you for sharing her with us. Thank you for allowing us to know your pain and suffering. Thank you for continuing to praise Him in the storm.

Carolyn in NY said...

Aimee and Adam,

My heart is breaking for your family. Poor sweet Kayleigh. I am crying here after reading your posts and watching the video. I am still praying for sweet baby Kayleigh that there will be a miracle. Please God heal little Kayleigh, heal her body and her brain, let her wake up and smile. Please help her parents and her siblings, give them strength for all they are going through. In your name dear Jesus we ask you this. Amen

You are so loved Kayleigh by so many and you have touched the lives of people all over the world.

Anonymous said...

Kayleigh will never be forgotten, she is a miracle, no matter the outcome of the current situation!! She has blessed so many lives, and without you as parents we would have never known her. Thank you so much for opening your lives and sharing your precious miracle with us. You are in our thoughts and prayers. Please don't quit sharing about your family on the blog no matter what happens, you have grown dear to many of us. Our heart breaks for your entire family, and we still pray for a miracle, and His Will.
Your family has been a blessing, we have grown to love sweet Kayleigh, my 11 yo and I call her "K-Bear" when we talk about her....We love you little Kayleigh!!
Thank you Aimee for bearing your heart....
Love and Prayers,
Jenny in KS

Anonymous said...

I love you guys. You are amazing.

Mama.Sienna said...

Aimee,

Thank you for sharing your feelings I hoped it helped a little bit just to write the words.
I have been reading this blog for only 2 weeks but I have been forever touched by your story.
I am a mother of myself of two wonderfully amazing boys. They are God's miracle Angels put here on Earth!

Aimee, we are forever connected because as my own mother says we are in the "sisterhood of motherhood". A very special and rare bond only we can share.

Prayers and Blessings,
Sienna

P.S. I LOVE my sleep tooo!! :)))

Kelly said...

I will pray for Kayleigh.

HighlandGhillie said...

♥ and prayers.

MissingLandan said...

First, I must say that is one of the most beautiful videos I've ever seen!

I check your blog multiple times a day for updates on sweet Kayleigh. I've just been so shocked at the recent evens unraveling. I'm truely heartbroken & sorry for what your experiencing.

Aimee - Your part in the post tonight spoke directly into my heart. While our child loss experiences are different, the emotions you've described in your blog can well be understood by someone that has also lost a child. I understand the "shock", not being able to comprehend the information your being given about your child, the shopping for a funeral, & realizing that one of your children has/will go before you. With your words, you've probably described those things better than I ever had. I admire your's & Adams faith in God. I too have faith, but I've questioned alot of things since my son has passed & I'm trying to find my way back on the path. Another thing you said that I've said myself is "They have been cheated out of a huge part of the most amazing person I may ever know." While Kayleigh is your youngest & Landan was my oldest & only child at the time I feel the same about his younger siblings. It always seems to be the most precious, influential & beautiful people in life that return to Heaven young. They came to this earth with pure love & a purpose to fulfill.

Sorry I've made this so long. I just wanted to let you know that someone can understand your pain on a level others may not. I'm still praying for a miracle for your miracle girl!

-Lacey-
http://missinglandan0306.blogspot.com/

Anonymous said...

My hearts breaks for you. I eyes cry tears directly from my heart. As they fall, I pray that it does not end this way. I Pray that both of you are filled with strength and will peace....I pray that Kayleigh feels no pain, that she is comforted and whatever her road is, that it is traveled with the love of her parents, family and most of all God.

Crysm said...

No parent should ever have to outlive their children.

I am so sorry for your pain and the tragic turn of events that has lead your sweet Kayleigh to this point.
I remember you spoke about organ donation once. I wanted to share my story with you. When my son was born critically ill due to a heart defect, I didn't know if he would survive. He was placed on the transplant list but continued to get sicker and it just didn't seem like a heart would come in time.

Then the call came. Almost a day too late. But it came. And now my son Noah is about to celebrate his 2nd bday.Someone took their loss and used it so another mother wouldn't have to lose their baby too.

I truly don't mean to be insensitive. I understand your pain on a very personal level.

And while I know Kayleigh can't donate some organs, please consider donating what she can. Her last act in life can be to give it.
I believe that knowing part of her went to save and help someone else will bring you great peace.

Whatever you decide I know will be the right choice for your family. I pray for you and for beautiful Kayleigh everyday.

Stay strong and God Bless!

Crysm

Anonymous said...

Aimee and Adam,

I'm not a great writer like most of your blog readers and I don't know quite how to eloquently tell you how my heart is breaking for all of you. I cannot imagine what you two are going through and have endured the last 10 months or so. I sit here AMAZED at your faith and at how STRONG you two are. It's truly inspirational. I really don't even know what to say. No parents should have to go through what you two have endured. No child should have to endure as much as Kayleigh did. I read your words and feel your pain but yet, I know that I really don't know what your going through. It's unimaginable what you two are enduring right now. I PRAY FOR GOD TO CONTINUE TO GIVE YOU STRENGTH AND COMFORT AND FAITH. I PRAY FOR SWEET SWEET KAYLEIGH TO HAVE PEACE AND COMFORT AND NOT BE IN ANY PAIN. GOD BLESS YOU ALL!!

dana said...

When reading this all I could think about is what to say. You two are so strong and your Faith is something everyone should have. Kayleigh is so fortunate to have had you two as her parents. I can only imagine the wonderful stories she will be telling about you to all her Angel Friends! I will continue to Pray hard for you.

Anonymous said...

with a sad heart we are praying for you and little Kayleigh! God is full of miriacles! Wishing for a miriacle and no pain..

Anonymous said...

I have been following your blog and Kayleigh since I had my daughter at 26 weeks in Sept 08 and I have cried with you guys and smiled with you guys at how beautiful your princess is. I can not find the words to say right now for the lump in my throat and the tears running down my face.. I have prayed for your family and Kayleigh since I started reading your blog. I pray that you remain strong through the days to come.. You all will remain in my prayers..
Karla and Agigail in Louisiana

Jess said...

Aimee, Adam, Brandon and Allyson

My heart is shattering into a million pieces for you all. What a terrible hard journey you are enduring.

I admire you more than I can put into words, you are all amazing people and I thank you for sharing Kayleigh's journey with us all.

I am sending you as many warm wishes and as much strength as I can muster, I will continue to hold you all very close in thought and prayer.

Take care and thankyou for keeping this blog updated throughout this extremely difficult time.

Kayleigh is looking as perfect and gorgeous as ever.

Jess
xo

Jess said...

Aimee, Adam, Brandon and Allyson

My heart is shattering into a million pieces for you all. What a terrible hard journey you are enduring.

I admire you more than I can put into words, you are all amazing people and I thank you for sharing Kayleigh's journey with us all.

I am sending you as many warm wishes and as much strength as I can muster, I will continue to hold you all very close in thought and prayer.

Take care and thankyou for keeping this blog updated throughout this extremely difficult time.

Kayleigh is looking as perfect and gorgeous as ever.

Jess
xo

hannahg said...
This comment has been removed by a blog administrator.
Anonymous said...

you guys are amazing.

I didnt have any religious views until i met you guys. know i am praying for your sweet baby girl, she is a little angel , a little princess who has been through so much.

hugs to you all and i love you all so much, rest up sweet KAyleigh and let God work his miracle once again.

xxxxxxxxxtake care

Janice Henderson said...

We raised money with our scout troup's recent fundraising event for a trip overseas, and we all voted and would like to donate it to you and your family instead. The total is: $8,457. I saw the donate button on your site for paypal, but would you accept a check from us instead? Please let us know. Thank you.

carrielynn said...

Praying always, for your pain, and your joy, and faith. God in heaven looks down on us always, may he be with you on this journey, to guide and protect all of you.

Babs said...

Each second precious and a gift from God for all of us, but right now even more so for the Freeman family.
I still have hope for Kayleigh, I cannot help it, but I saw in those eyes the same thing you wrote about Aimee.......
Praying for you all and wiping my own tears

Kim Smith said...

Sweet Freeman's,
We are lifting up each of you to our Father and pray for a miracle, peace and comfort that only He can give. We love you guys as brothers and sisters in Christ!
Love,
Nate, Kim and Evan Smith
www.caringbridge.org/visit/evannsmith

Melissa said...

Oh God, please let the Freemans feel your arms around them.

Melissa said...

Aimee,

I am a new mother and I can only imagine the pain you must be feeling as you watch your sweet Kayleigh and see her future change directions so quickly. I cannot begin to imagine how you feel. If the pain in my heart is so great, yours must be insurmountable. Your daughter is precious, beautiful, unique, strong, amazing...truly a miracle of God. You must know that when she looks down, and as you and Adam continue to speak about your journey, that she is and always will be intensely proud and grateful for your belief and determination that she would survive.

The bond between a mother and child knows no limits. Whether her eyes "see" you, her heart and spirit surely know you are holding her...both in your arms and in your heart.

I don't understand why this is happening, and I ask God for forgiveness for being angry and doubting his will. I wish that his will wasn't at Kayleigh's expense, or causing you and your family pain. I pray that God restores Kayleigh's mind and body and refreshes yours and Aam's spirit and fatigue. You three are ALWAYS on my mind and in my prayers.

Please give Kayleigh an extra long hug and kiss for me. She has a special place in my heart and I continue to pray for her...you...and Adam.

Michele said...

I am praying so hard for you both. Aimee, As a mom who lost a baby...watching them work on Nick and not being able to be a "mommy" and help him be alright, I know what you are going through. I had this whole post planned out to write you, but no words CAN describe the pain, frustration, anger, sadness and emptiness that this causes. The toughest day was the day I had to say goodbye to my Nick...the second hardest, was the day I had to bury him. Please know that you will not be alone in all of this. You have so many people who love and care for you and your family. There is one thing that you should do though, if she doesnt make it...when they told me that there was nothing more they could do for Nick, I held him, smelled him, kissed him, talked to him...just have your time with your little baby. If the time comes and she does have to go home to Jesus, whisper in her ear that a little boy named Nick will be looking for her. Please take comfort in knowing that you both have so many people that care so much about you and about Kayleigh...she is a miracle...she DID beat the odds and live this long, after the doctors told you otherwise. Keep the faith, love eachother, be there for eachother and know that if Kayleigh does have to go, she will be your guardian angel for your family and will no longer be in any pain. God bless you both...I know how hard this whole thing is.

Hope said...

Aimee and Adam,
I don't know what to say. I know words are just words to you right now. My heart is aching. Kayleigh represented so much to me. I've been praying for her faithfully and will continue to lift you all in prayer. I'm still praying for one more miracle for your sweet girl.

fional said...

i'm sorry to say that I only discovered this blog just one week ago. I came asross the little ring picture and had to investigate. I have read nearly everything on this blog and I am so sad for your situtation. My husband and I have 18mth twin daughters. Born at 31 weeks, we are extremely lucky to say that we are blessed with healthy children, just needing to grow and fatten up in NICU. I cant even comprehend what you are going through. I have cried so much this morning reading your recent posts. I hadn't checked it in two days because its just heartbreaking to read. I wish you strength for what's next to come. All my thoughts and prayers. I have a candle lighting for little Kayleigh.
Fiona, Ireland.

Erica in PA said...

I AM HEART BROKEN FOR YOU!!! I have never CRIED SO MUCH for a child I didn't know.... but I am a PARENT and the thought of what you as parents have/ are going thru BREAKS MY HEART!! You have such AN AMAZING FAITH and I WISH I HAD the eloquent type of faith you have! You just take it to a whole different level! I pray CONSTANTLY throughout my day for you both to have strength and for Kayleigh to feel at peace. I have told everyone I run into about your story as well.
Aimee--reading your words totally broke my heart!! You have been such AN INCREDIBLE/AMAZING MOTHER and I KNOW Kayleigh knew it was you as you played w/ her that day.... "brain dead or not"
I WILL PRAY W/ ALL MY HEART & SOUL for you all today! If she does got to be with Jesus then she will be the MOST BEAUTIFUL ANGEL the Heavens have ever seen!!!
May God Bless you and Keep you close in His care!!!!!!
HUGS!!!!!
Erica in PA

Amber said...

Do not ever give up! I am typing this for my dad who lost my little brother 20 years ago tomorrow. Do not ever give up he says. Hold her in your arms and love her until the Lord calls her home. Stay strong for her. Tell her how much you love her and have loved her since you knew she'd be coming into the world. Kiss her a million times and tell her that it's ok that she goes home, that she's going to be safe there. Never stop looking into her eyes, even if you know with 100% certainty that she can't see you. Never stop making eye contact. Continue to pour your love into her just as if she were home, and you'd have the time to do it with privacy. You never want to regret what you didn't get to say. My dad regrets not letting go and telling his son SO many things, just so he could stay strong for the parents around him in the NICU. I'm not giving up, and neither is my family. The mommies on the Oct 08 baby board on MyMommyTime.com aren't giving up either. We aren't letting go of the thought that God still has a chance to lay his healing hands on Kayleigh. His decision may already be made and he may already be taking her home, but we're not going to stop praying. Ever. She's touched my life in a way I never would have expected. To take this journey with you has opened my eyes and my heart. There's not enough "thanks" in the world to tell you how grateful I am for telling your heartbreaking story. I smiled and applauded for the good times, and my heart has broken and I've cried during the bad times. God doesn't close a door without opening a window.

Aimee, my parents didn't wear black to my brother's funeral. They wore baby blue. They didn't want him to see them sad. It's going to be a sad day, and black is the color of mourning, but it will be her homecoming day in Heaven.

I'm still praying in Camp Lejeune, NC. -Amber

Anonymous said...

Dear Adam and Aimee,

I have read your blog religiously over the past few months when a request for prayers was posted in the Sept 08 BBC board in December. I really can't imagine what you are going through. I'm not even sure what I should say but I felt I had to write when I read Aimee's comment about the dress. When I lost a baby in 2007 I remember having thoughts exactly like that. On one hand you think to yourself "How could I think something like that when my child is so ill?" but on the other hand, your brain is so numb, those kinds of concrete thoughts are about all that are processed. I think it's your mind's way of protecting you from the terrible things that are happening.
I really feel awful for you. I'm not one to ever comment on blogs, nor do I read them on a regular occasion but for some reason I have followed yours. Your daughter is really and truly beautiful in all senses. I wish you the strength to deal with things over the coming months.

The Reyes Family said...

My prayers continue to be with you thru this difficult time. That was hard to read and brought tears to my eyes but it was so nice to hear your faith. I pray for a miracle for you and baby Kaleigh. God Bless you

~*Joni said...

Aimee and Adam, I have followed your blog but have not commented before. Instead I read over the posts and comments, cried, prayed, and smiled, felt hopeful,joy, peace, sadness, but always wanting Kayleigh to join your family at home. As I read this post I feel your heart ache, I can sense the exhaustion, and yet the incredible faith that you both have convince me that He knows you both have done an amazing job with His beautiful Kayleigh. I am an eternal optimist, and while I continue to pray for beautiful Kayleigh and the countless lessons she taught us all, I pray that whatever decision He makes is one that will bring you peace. With all my love and prayers~
Joni Wilson

Anonymous said...

Sending more thoughts and love. Praying for strength for all of you. Praying for beautiful Kayleigh.


Tears
Carol H.
Irmo, SC

Carrie said...

I can't even imagine your pain - I'm so sorry. I will be praying for your family.

Stacy and the girls said...

We are praing in PA, you are such brave curageous people, God will lead Kayleigh where he wants her, she will be such a beautiful little angel, her eye lashes are so long and pretty.
We are on knees praying for the Lord to listen and keep her here on this Earth, she has touched so many people.

Elaine said...

Adam,Aimee and Family,
My thoughts and prayers are with you and your family at this time. Treasure your time with Kayleigh and know that she is in good hands. She is beautiful and will always be with you.
Elaine from MT

Wendy said...

aimee and adam, trying to find the words to express how i am feeling. i am still praying for a miracle and from one mother to another, my heart aches for you. but i also know that if kayleigh goes to heaven, she will have spent 10 months here, being perfectly loved, adored, wanted, lifted up in prayer, and cared for by you and 1000's of others. who can say that? not many. she is the most loved little baby i know! i pray that the love she has received from so many comforts you right now!

Abby Sokul Turner said...

Praying for God's strength and a miracle for beautiful Kayleigh!

Sheila said...

Oh Adam and Aimee, my heart bleeds for you. I am praying day after day for a miracle for sweet Kayleigh. I feel so blessed to get to "know" you all, and I wish that just for one moment I could take away your pain. God bless you and your family.

The Carpenters said...

I don't even have any words. As my face is covered in tears, I continue to pray for God to hold her tight...you and Aimee tight...and just allow you to feel His peace.

Jenn said...

Oh Freeman family-there are no words. My heart aches. I am praying for you now and for always. God bless.

Jennifer Jordan

Hayley, York, SC said...

My heart breaks for you guys. I sit here and cry like I have been doing the last week since you all received the horrible news. I like you never thought something like this would happen. I pray that you find some sort of comfort in that she will walk hand in hand with Jesus in a place that has not hurt and no sorrow. I am praying for you constantly!!!

Anonymous said...

I'm praying god gives you and your wife Aimee the strength to face the next days and weeks to come.Your faith is a lesson to us all.
God blee you family.....Kayleigh is an angel.

Sujheiry from Puerto Rico

Jade said...

its so nice that you are able to open up here to friends. i have never felt so close to a family i dont know but i do know. this has sent us all sprialing to the extent i needed to talk to my therepist about it all, you guys are amazing, i love the new video. im praying for you all and peace. i never thought by reading thi story it would actully redefine the way i see god but it really has. i remember that was one thing you all wanted was for kayliegh to inspire to god. and let me just say she has touched so many lives.

4 Lettre Words said...

What an amazing tribute.

Please know that God will contiue to help you. Trust in Him fully, no matter how difficult.

Still praying...
Dina

Anonymous said...
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Nichol said...

I don't have any words to say to you. You both are very brave and wonderful parents. My face is filled with tears right now. What you both just wrote is truly amazing. I am praying for a miracle GOd bless your whole family. We love you Kayleigh!

LisaMc said...

My prayers are with you and I can feel my heart break as I read about your beautiful little girl. Your faith is so strong and wonderful to hear about. God has blessed you with Kayleigh and He will continue to hold you in the palm of His hand.

Anonymous said...

We are praying hard for you guys. God will see you through. My heart breaks for you...I have a little June baby girl and I cannot imagine what you are going through.

Stephanie said...

It's not fair...really that's all I can say right now. I'm angry..I'm mad and it's not fair! Tears are flowing down my cheeks right this very second and I am heartbroken. You will never know how many times during the day that Kayleigh goes through my mind. I am praying for your entire family and I just pray that you can feel how many people genuinely love you,adam and your precious little girl.

Elizabeth said...
This comment has been removed by a blog administrator.
Cathy said...

My heart hurts for you and what you're going through right now. But know that Kayleigh has truly served a purpose in her short life and touched so many people. We will all be better because of her strength.

MOMof3inVA said...

Aimee, your comment is truly AMAZING. I so wanted to know how you were doing...as a mother, I can't even begin to imagine. I just want you both to know, my faith has been renewed through Kayleigh. Both you and Adam are true examples of what faith is. I will continue to pray for a recovery for Kayleigh, but I know in my heart that even if that doesn't happen she will be in God's hands and will be waiting for us all. I will hold my children closer every day and praise God even more for my many blessings because of Kayleigh.

We love her!

Jennifer said...

Aimee- I'm so sorry for what you guys are enduring. I buried too of my kids in one year with one of them being my micropreemie twin son. You and Kayleigh have honored God and done what all who go through your journey hope- and that is to give God all the credit and give God all the glory for he created kayleigh with a purpose and a plan before you even knew her name.

Don't wear black at her funeral! Where white or pink and brown and honor the live she lived and not the death she died because you know she is with Jesus! You can rejoice in our sadness because you know where she has gone. And you can honor the life she lived by wearing a color that doesn't symbolize the grief that others who have no hope experience.

We have prayed for you and will continue to do so. You are in our thoughts often!

michele said...

My heart is broken for you. I am in constant prayer for your family for peace and comfort.

Hugs,
Michele

The Leighton Family! said...

We love you Kayleigh!!!! Praying for a miracle and comfort. God bless this sweet princess.

Rebekah said...

She is truly beautiful. I wish I could understand this and why this is happening. Im so sorry. Please know that prayers from Colorado are going up for your family.

Rebekah

Toni :O) said...

My heart is broken for you, the tears are just flowing here in Michigan. I'm just so saddened for you and the fact that things just turned so drastically so fast for this sweet little girl. I never would have thought this would happen. I fully expected her to get home and start enjoying life in your family. I continue to keep you close in thoughts and prayers and I'm sending you hugs (( )) (( )) for strength and support. I can only imagine your pain but God most certainly will continue to guide you.

Daniel, Anna, Emma, Kylie, Duncan, and Kellan said...

This is such a beautiful video of Kayleigh…she is truly a miracle. We’re praying for ya’ll and will continue to pray everyday…

Anonymous said...

I'm so sorry, my heart breaks for you, I will continue to pray!

A said...

It's my first time commenting, but I've followed your blog since August. I am heartbroken with you and lifting you in prayer. I pray you will feel God's comfort and grace right now.

Holly said...

My heart breaks...

Anonymous said...
This comment has been removed by a blog administrator.
The Erickson Family said...

I can't even begin to imagine what you are going through. I am so sorry and my heart just breaks for you. All five of you are being lifted up in prayer out here in Oregon!

Beautiful photo tribute

Anonymous said...

May His hands carry you now and continue... you're Faith will always be your connection to Kayleigh. Talk to her always, she will respond, she will be listening, she will answer... even if it's in your heart.

Amy R said...

Aimee,

You are one amazin woman and mother. I cried as I read your post and again as I fed my own miracle baby breakfast this morning. God is powerful and is truly with you, holding your hand. I am still praying for another miracle for sweet Kayleigh.

Lisa said...

My heart continues to ache for the both of you. I lost a child back in 2004, but my child was never here on earth. I personally can't imagine having a child here on earth with me and then losing them and I would hope that I would never have to experience it. I don't think anyone should have to experience that pain. I have been praying for your sweet Kayleigh and uplifting you and your wife as well. I am sure that God is just wanting one more precious angel up in Heaven, but I pray that he will grant you some time to be able to take her home and enjoy a couple days with her, if not longer. I pray for you all daily. May God grant you peace, comfort and understanding as you continue to face this journey together.

God Bless,
Lisa (Ohio)

Mommyof3gifts said...

I'm not sure what to say... my heart breaks with yours. Praying to the God of comfort to hold you both.. to wrap His arms and hold you tight.. to give you amazing strength and the peace that passes all understanding! Eph. 3:20-21
Kayleigh is a miracle... and has touched so many. You both have honored God through all this and will be blessed for your faithfulness. What great parents you are.. what a precious family.
Using these hands for prayer...
Michelle

Winter said...

Your video was so beautiful I already had tears streaming down my face but it made them flow harder.
I have been following your journey for several months and I have prayed when the road got bumpy smiled and cheered when it seemed to be flying smoothly along. I have been praying constantly for your family and Kayleigh the last few weeks at times I have struggled with that it just doesn't seem fair that a loving God would do this but then I think how many lives little Kayleigh has touched in her short ten months...more then most in a lifetime. Your faith makes me want to grow even more, you all are just beautiful and although we will probably never meet in this lifetime I look forward to day when I will see you playing with beautiful Kayleigh in the streets of heaven with no pain.
Aimee I agree with some of the others and you shouldn't wear black Kayleigh will want to see her mommy and daddy celebrating her life not sad..although your hearts will be broken..there is no changing that. Thank you for selflessly sharing your story. Praying hard in Indiana.

Melissa's Thoughts said...

There are no words, but many prayers.

Amy said...

Oh how my heart is breaking for you both, as I sit here wiping away the tears all I can say is I am praying so hard for your wonderful family and precious, precious Kayleigh.
Aimee, you spoke beautifully from your heart and as a mother myself was deeply touched by your words. I cannot even imagine the pain you are feeling right now and am deeply sorry you are having to go through this. Down on my knees praying for peace and strength for you and your husband in these coming days.

Anonymous said...

What a beautiful tribute to your lovely daughter. May God bless you during this most difficult time.

Pennie said...

I am right beside you both in prayer and in your pain. No words can suffice.

The post from both of you tonight is beautiful! God will give you grace and everything you need at just the right time. He will never leave or forsake you!

Anonymous said...

You guys are the most awesome example to everyone who reads your blog - you are open and honest and praise God for everything, good and bad. You have challenged me to deepen my faith and to trust God when things are hard. Your daughter is the most precious thing ever - and I am astounded by the number of people her little life has touched. She is such a huge blessing --- as are you guys! I feel like I know you, yet I have never even met you. My daughter is 4 months old and as I held her last nite I praised God for her and that she is healthy, and prayed that He would comfort Kayleigh and let her enjoy her time here on earth with her family. I hope and pray she gets to go home so your other children can spend quality time with her as well - they will need that. Take LOTS of pics and make albums for them to remember what a sweet sister they have. I am still praying for a miracle - God is in charge! I agree you should all wear bright colors to the funeral (if there is one, that is) - to represent that she is in heaven, happy and healthy.

God Bless you and thank you for posting through all of this - you are a blessing!
Kim in Kansas

Dalila from NJ said...

My heart just breaks for you. I cry tears directly from my heart. I have no words to say but I'm sorry. Praying for Sweet Kayleigh.

Love you baby girl.

Sara said...

Aimee, as I read your post just now I just wanted to wrap my arms around you. I only got to experience my son for 5 days before we had to say goodbye, but I know that pain you are experiencing. The shock of being told that there is nothing that can be done, the reality of needing something to wear to your child's funeral - it is an out-of-body experience. Know that you have so many people holding you close. So many people that love you all and pray for you constantly.

Sweet Kayleigh, God has big plans for you.

Mama4Real said...

I don't understand the ways of the Lord. I don't understand why good people suffer. But I know, beyond reason, that our God is faithful, and He is compassionate. I have no words of comfort...there just aren't any.

The biggest thing I have learned through struggles (though none of this magnitude) is that it is ok to be weak, and to fall apart. He is strong in our weakness, He is our defense, and our shield.

I will pray that you can ride on His strength, and find yourselves protected in His shadow, and that He will wrap his arms around your family tightly, comforting and protecting you from all harm and pain.

Anonymous said...

I am so sorry for you little Kayleigh, and your two beautiful parents. I can't stop crying about this last post. May God protect your sweet little soul, precious baby girl.

April said...

Truly, I am at a loss for words. I watched the video with tears down my face, rocking my 6 month old son in my arms. God has a way of making strangers feel connected and I am so drawn in to your pain and grief and your overwhelming need for hope and strong faith. Kayleigh will always have a place in my heart whether she is lives here on earth or lives in heaven - she has lifted my eyes up to the hills and I know where our help comes from! She is so amazing...

Jenny said...

My heart breaks for your family. Prayers.

Anonymous said...

Freeman Family, My heart is breaking for you. Kayleigh has fought the good fight. What an AMAZING little girl she is. As I type this, the song Amazing is playing from the playlist, and couldn't be more fitting. I am praying for a miracle for Kayleigh. I pray that she will be healed, but if that is not what Gods plan is, then I pray that she has a peaceful journey home. Also praying for some peace for you. I also wanted to share that maybe pink she would worn in celebration of Kayleigh. It just seems so fitting for a precious little girl. Hoping and praying for a miracle from Connecticut

Lara said...

Praying for you. You both are so very strong. I'm a Mother and my heart is breaking for you.
Praying for you all!

traceylynndel said...

What a beautiful post. My heart cries out for you. I lift you up to our Father in heaven and ask him to comfort you and strengthen you in these difficult days ahead.

M J said...

I don't know if I have ever commented, but I am praying for you and Kayleigh.

Becky said...

Wow! Amazing video, my heart is touched and breaking for your wonderful family. I pray everyday for people who do not know our God, that he will put something in their lives that will open their eyes and hearts to him. I believe that God gave us Kayleigh to do just that, as she has touched so many lives, many of whom have been saved because of her story. I will continue to pray for your your family. Remember that HIS will be done. Our God is faithful. He understands, as he gave his only Son to die for our sins. Imagine how that must have felt, probably much like you (Adam & Aimee) are feeling now. God must think very highly of you two to want to do his works through your sweet little Kayleigh. God Bless you and Keep you during this difficult time.

Anonymous said...

My heart breaks for you.

My heart breaks everytime I read your updates. And I cry. I am terribly terribly saddened.

Thinking of you and your entire family.

Anonymous said...

My prayers are going out to Kayleigh and your family. Through The Lord anything is possible!

Carole said...

you are loved and Prayed for everyday. Thank you so much for sharing your Little Champion with us.

carole
xoxo

Lauren said...

I dont have much to say other than my heart goes out to you guys. I just lost my four babies 8 weeks ago, and this is so heartbreaking. Just know that so many people are praying for you.

Misty Rice said...

No words can say what I am feeling, and it doesn't matter because my feelings in this do not matter...

I am just so sad.

So disappointed.

So heartbroken for WE are all a family in this together, through Christ. I not only watch my brother and sister lose their precious daughter.... I also lose someone too.

I love that last picture of the three of you where Kayleigh is looking and there is light on her face. She looking after you two just as much as you are looking after her.

I pray for you every day.

I pray that God wrap his peace and understanding around your aching bodies, minds and hearts. And give you the comfort only HE can bring.

Thank you for this post, for the update, for the transparency and for your beautiful love and faith in our God and your daughter.

A lot of hearts are hurting with you.

God Bless.

Cindy W said...

I pray daily for your family. I can't imagine the pain you are going through. I cried when reading what Aimee had to say. I am a mom to 3 healthy children and I'm so blessed. Thank the Lord you have the older children to help get through these times.

Kim (BBC Mom 9/08) said...

I dropped to my knees...sobbed, prayed, yet once again for a miracle. I prayed for strength for all of you, Kayleigh, Adam, Aimee, and the rest of your family. Please hold her and love her and kiss her as much as possible for as long as you can. Praying for your healing.

Joanna said...

i keep coming to your blog praying that there is a positive update. my heart is totally broken right now. you should be enjoying kayleigh in your home like i am enjoying my little one in my home.

i know God has bigger plans for kayleigh right now...she has done more in her short 10 months on this earth that people have done in 100 years. just look at the "kayleigh counter" on the bottom of this blog. look at how many comments and how many people are on their knees and hugging their LOs a little tighter tonight because of your sweet girl. if that is God's plan, IT WORKED.

still praying in florida for a miracle..

joanna, trey and reece
nov bbc mama

Christie O. said...

i don't know how to comment but i feel i must, if even just to let you know that i am thinking of you and praying for and with you, praying for comfort, strength, courage, support, answers. my heart broke into a million pieces reading this and i can't even begin to imagine the torment you are all feeling. you and kayleigh are in my heart and my prayers.
my blessings to you,
christie o.

Anonymous said...

How blessed are you, Adam and Aimee, to be Christians. To know that "to die is really to gain." To know that you WILL see your little girl again, you WILL hold her again, you will smell her sweet little head again.
PRAISE GOD that He has given you this assurance. This will be what helps you get through the possibility of losing Kayleigh.
God can do anything, but if He is bringing her home, she cannot to in better Hands.
Still praying
Love you guys

Anonymous said...

God Bless ALL of you! You are amazing parents with an amazing daughter who has touched so MANY lives.I continue to pray that God holds ALL of you gently in His hands and sends His angels to surround you with love, comfort and strength. Continuing prayers from Batavia, Il.

Lindsey Barham said...

Freeman's:
I had to leave my desk at work and go the bathroom and cry my heart out. Amy your post was amazing and so uplifting to hear how faith is and will be the only thing to get you both and the kids through this. AND YES KAYLEIGH IS SO VERY PROUD THAT YOU HAVE FOUGHT FOR HER!!! I am at a loss of words right now. I love you and I promise I am praying all the time for Kayleigh. I just so wish I could meet you both and Kayleigh and express how my life is forever changed. Lord please put your arms around Adam and Aimee and Brandon and Allyson and comfort them like only you can. Give them peace for whatever the outcome will be with Kayleigh's life. Thank you for allowing them to have this time with her and I only pray that it will be longer but let your will be done. Amen
Kayleigh baby girl I love you and I am sending you a kiss and hug right now. My qustion is to everyone IF KAYLEIGH DOES GET CALLED HOME DO YOU KNOW FOR SURE IF YOU WILL SEE KAYLEIGH ANNE FREEMAN ONEDAY?
I love you guys.

Jessica said...

I wasn't even planning on checking up on Kayleigh this morning when I came home from my crazy night working as a NICU nurse. But something told me I had to check on her before I went to sleep for the day.

I don't even know what to say anymore. Kayleigh has touched my life in a way I never thought possible. Working as a NICU nurse, I see miracles every day. I even get to take part in them at times. But nothing ever prepared me for how Kayleigh's journey would affect me. I know I am a better person, a better NICU nurse because of her.

Aimee, Adam - my heart goes out to you right now. I can't even imagine what you are going through right now. No parent should ever have to go through what you are going through. You are some of (if not the most) strongest parents I have ever come across.

As I sit here with tears rolling down my face (again), I can only say that Kayleigh has a whole lot of NICU nurses (and some parents) praying for her up in Chicago right now.

I never in a million years imagined that a "one pound miracle from North Carolina" would ever change my life for the better. But I am so glad that I have gotten to know Kayleigh through you sharing her story.

Kayleigh is going to a better place soon, and I know that she already has several friends up there waiting for her - a boy named Daniel in particular. I was thinking about Kayleigh the other day, and in my thoughts, I asked that Daniel continue to look out for her as I feel he has done since the day Kayleigh was born. I know that when one day you look back on the bedtimes stories for Kayleigh that got sent in, you will find Daniel's story, and then you will understand why I truly believe he is (one of her) guardian angles.

With Love,
Jessica

Shaun said...

Adam and Aimee- I don't know you at all. I came across your blog through MckMama. My heart breaks for you and your family! I am praying today that you will sense the everlasting arms of the FATHER holding you close and giving you strength and wisdom as you walk this difficult path!! Your strong faith and obvious love and devotion to Kayleigh and each other is amazing!!

Amy said...

Thank you for sharing your precious daughter with us. Your family is my thought and prayers. Will be praying that God comforts you in this storm.

lindsey kate said...

What a beautiful video. I'm praying for all of you in Arkansas and asking the Lord to hold you close during this very hard time.

Mom2GarretandRyan said...

I cried from the time I started reading today's blog, all through the most amazing video.

I wish and pray for a miracle for your precious daughter. It breaks my heart for you and Amiee what your going through and it truely touches my heart to see how strong your faith is....it's amazing and I long for that strength myself.

Michelle said...

Continuing to pray for you guys and sweet Kayleigh. She has blessed our family so much! We are asking all of our friends and family to pray as well! Praying for peace that passes all understanding! Love you guys!

Erica said...

You ask what did I do with my hands last night? I held my children extra tight! I held my husband as we drifted off to sleep. This morning I held my son and hubby as they left for school and work! Then I came here and could not wipe my tears fast enough for our Sweet Kayleigh!! My hands are tight together praying for Kayleigh and you all!! I am so heart broken and I asked my husband "Why? Why does this have to happen?" My husbands response was "Kayleigh has done more for people in her life then any other adult has done!! God has a plan for all of us and maybe Kayleigh has accomplished hers!!" What ever God's plan is we will never know but Kayleigh we do know that you will be forever in our hearts!! God Bless you Sweet Kayliegh!!

Erica
Mommy to 2 Amazing boys!!
New Mexico

The Burgess Family said...

This is heartbreaking for us so I cannot imagine how this is for your family. You are being lifted up in prayer.

Alissa said...

My heart just breaks for you all. Like you said, Aimee, we don't "know" each other and yet I feel so much for your family. Praying for your sweet baby girl.

Erin said...

Aimee--Never in my life have I been so humbled by another woman's words. Truly we will meet one day in His presence, and I will get to see your little angel smiling with love. Thank you for sharing your beautiful daughter's life. It is my prayer that by unselfishly giving of your lives, that the pain you're feeling will shared with all of us and you will not have to bear it alone.

God bless you, your family, and especially little Kayleigh.

e. said...

Adam and Aimee - I am crying as I type this (that video was beautiful). My heart is aching for you all. I will be praying for sweet Kayleigh, and that she will be able to come home with you. She is such a miracle and inspiration to so many!

erika said...

Aimee and Adam,
I don't have any words to tell you how sorry I am for you. I can't stop the tears and all I can do is hug my daughter a little tighter and tell her how much I love her. Praying for you and Kayleigh :)
Love, hope and hugs from IL
Erika and Emily

momof4beautifulbeauties said...

God bless you. I pray God will give you more comfort and peace then you have ever had before. My heart is breaking as I love Kayleigh too, but could not even begin to imagine the pain you feel inside as her parents. I am so grateful for your faith and I continue to pray for a miracle.

Laura said...

I am praying for your family and that it be God's will that you will get to bring her home.

C Sanden said...

Oh, my heart is breaking for your family today. I've cried so much this morning already. Please, please do not feel bad about how we all hurt. We only hurt because we care so much and so deeply for your family and sweet Kayleigh.
Thank you, from the bottom of my heart, for sharing your lives and your precious baby with us. She has touched so many lives in unfathomable ways. Your family and sweet Kayleigh are in my prayers all through out the day.
All our love, from Minnesota.

The Sandens

Erin said...

My hope and strength are right there with you as I continue to pray for God to place His healing hands on your sweet little Kayleigh. xoxo for Miss Kayleigh.

Anonymous said...

Wow. You all are amazing people. I'm so grateful that you know God and His love and that you have relied on Him through all of this. I hope and pray that He will do what is best for everyone and that regardless of the circumstances He helps you get through it. I KNOW He will. God bless you all.

The Drama Mama said...

Thank you for sharing your precious Angel with us! You guys are in my thoughts and prayers as always....

Anonymous said...

I don't really have words that will make any of this easier. But you are the strongest parents in the world. I know God has great plans for you and your family. Kayleigh is such an inspiration to people all over the world. You are witnesses to God's own MIRACLE! How awesome is that? God touched your little girl and healed her so many times. We have to trust that God knows what is best. He is always faithful and always fulfills his promises. My heart is breaking today but I know things are going to get better for all of you. God bless you always and forever. Kayleigh is absolutely beautiful.

Kimberly said...

My God be with you all through this horrible time. My heart is aching for this beautiful child and her parents as I read your words through tear filled eyes, but I must keep telling myself She will be whole and healthy with our Lord and how much I have learned from her and from the both of you. I don't know if I could be as strong as the two of you are.
We love you Kayleigh!!

ManyBlessings said...

Praying for you as you continue to walk this road. May God hold you close and may you feel His love as He welcomes your baby HOME.

Our hearts, our prayers, and our love are with you.

I can't wait to meet Kayleigh some day and tell her how deeply her life impacted mine.

Mommy2QTPies said...

What a beautiful post! Brought many tears to my eyes...you are right, no parent should have to go through this. I pray God gives you strength over the next few days, weeks, months and that sweet Kayleigh will never have to feel pain again. Thank you for sharing your beautiful daughter with us. Sending you all hugs and kisses XOXO Praying in Indiana!

Tanna Clark said...

Praying for you daily, Kayleigh is so blessed to have parents like you.

Anonymous said...

'The will of God will never take you where the Grace of God will not protect you.'

MissJeovette said...

Adam you are a true example of a great father! You have done so much for sweet kayleigh. there are no right words to say in this moment but that we are all praying for you!

Dear Aimee,

As a mom of preemie twins girls, your paragraph brought tears to my eyes. i'm sure many other mothers on this blog can agree to say that we are here for you if need us. i cannot fathom what you are feeling at this moment but you expressed yourself to a point that we can all feel your pain. i pray to the Lord each and every day for your family to help give you the strength, love and patience you need during a tough time like this!

sweeet kayleigh,

you have touched all of our lives!!!! It's true that no one can touch as many lives as you have baby girl! We will ALWAYS think of you day and night! Your mommy and daddy are great people! It was a true blessing to have parents like your mom and dad. May you always be by there side! I still believe in miracles because of you! love you baby girl!


xoxox,

The Abreu-Banegas Family
(Brooklyn, NY)

jlwgator said...

Adam and Aimee
You are both so incredibly brave and wonderful for opening up your hearts and sharing your feelings with total strangers. You are truly AMAZING. Kayleigh is so very fortunate that she was born to the most phenomenal parents in the world, and Brandon and Allyson are two very special children to be the light in your lives as you go through such pain and trauma. I am devastated about Kayleigh's prognosis and I wish her all the best. I wish her an easy, comfortable, pain-free crossing into Heaven. I know she will finally be at peace, and happy, and healthy. We can't wish for anything better for her after all she's been through. You are so very lucky you were able to spend all this time being her parents, and I know she is eternally grateful for believing in her and giving her a chance at life. She will have eternal life thanks to you and your faith in her. I wish a lot of love. I will be making a donation to the March of Dimes in her name.

Trav's Mommy said...

All your strength and faith in God is so uplifting. I pray daily that sweet Kayleigh will be home soon with you. I find myself upset at times because she has already made it so far. I'm mainly at a loss for words when I think that she just can't leave us all yet. She has so much more to teach us, and I believe that another miracle is in the making.

Dear precious Kayleigh, may God rest his hands on your body and heal your pain. May you go home with your family to see your 1st birthday, and many, many more after that! May you get the chance to see and feel the snow and the sand beneathe your feet. May you get the chance to dance joyfully in the rain. May you go to school and learn many of lifes greatest lessons. May you marry your sweetheart one day (with Adam's consent!) and have children of your own. May you bless so many others with your presense here on earth. Is that so much to ask for out of a beautiful little girl? I think not. She deserves the world.
God Bless,
Ashley

Anonymous said...

Aimee - Your part in the post tonight spoke directly to my heart. While our child loss experiences are different, the emotions you've described in your blog can well be understood by someone that has also lost a child. Just remember to take things one minute at at time. This is how I lived my life for many months after Jayce died....one minute at a time. Your right, your faith will carry you through but I also feel that its OK to be angry.

Kayleigh is a miracle and has brought so much to my life. I pray that together you and Adam will find peace.

Laurie in SD

Amber said...

I just cannot seem to find the words that are adequate to comfort you during this storm. I have been praying so hard since the time I have met your family and have asked for Kayleigh's healing over and over. Sometimes I feel that God does answer our prayers but not always in the way we would like them to be done here on Earth. She is so precious and I thank God for bring her into my life and etching a place in my heart that will always be there forever. I just sit here in a puddle of tears for a child I will NEVER meet this side of Heaven and for a family that is so amazing and such beautiful Christians. I have always loved reading your blog posts because they are so real and heartfelt even as painful as they have been lately. I will still pray for healing of Kayleigh's body and a miracle that only God can perform even if that means she is needed in Heaven to complete God's kingdom. As I sit here and love on my child and thank God for him, I hurt for you two and the horrible pain you must be feeling. I wish I could take it all away but I have to pray for God to pour all his blessings and mercy on you and Miss Kayleigh and that you will receive peace and comfort that only God can provide. I will always feel connected to your family and I will always be in prayer for you guys. Kayleigh is loved by thousands and she has changed so many lives for the better and for that we all will be forever grateful. May God be with you guys and may you have peace and comfort during these difficult times.

Always praying and thinking about you guys,
Amber in Texas

Anonymous said...

I just ran across your website and am my aching heart goes out to you, you sure have had a long journey. Kayleigh is adorable, I smile when I see her pictures. I lost my daughter at 3 1/2 months, she was diagnosed with a heart defect TOF, had open heart surgery and was fully repaired however got a Staph infection in the hospital and we had to turn everything off and let her go to heaven. She was called to be an Angel Sept 04. Thinking of you guys and praying for strength for you all.

Michele Wallace
(www.caringbridge.org/ca/macey)

Aimee and Adam said...

Janice,

All I have got to say is WOW!!!

Please email me at: Adam@TeamFreemanProperties.com

God Bless!

Shannon W. said...

Oh Aimee - tear my heart in two. Your post is heartbreaking.

Lord, I have always prayed for your Will to be done but please forgive my selfishness today when I pray that you do not take Kayleigh yet. Please heal her. If this is not your Will, Lord, please divide the grief and sorrow among everyone so that it does not consume Adam and Aimee. Grant them peace and comfort all the days of their lives. Thank you Lord for allowing Kayleigh to be your vessel for Christian Love and Fellowship. In Jesus Name Amen

Would it be all right, in the event, for you to designate a color for all of us to wear in celebration of Kayleigh going Home to the Lord? Now I'm crying again. I have got to stop checking on you guys while I'm at work. Still praying and hoping. Love You.

Andrea said...

I am at a loss for words. My heart breaks for you both. You're being lifted up in prayer.

Anonymous said...

No parent should ever outlive their child, and the thought that this could be what you're facing is breaking my heart. I know that if that time comes my daughter will be waiting for Kayleigh with open arms. I pray peace for you, knowing that there are no tubes or wires or needles in heaven-Kayleigh will be whole, free, and healthy there. She will be your most beautiful angel to watch over you, and cheer you on in the work you have started. There is no doubt in my mind that she is proud of you, as is every person who has followed your blog. Your strength is a testimony to what God can do in us if we just give Him the chance. And if I may make a suggestion-don't wear black if you don't want to. Kayleigh's life is not to be mourned. We will be sad for you all, if this is what God choses, but not for Kayleigh. She's accomplished exactly what mission God sent her to do, and that is to be celebrated. If you want to wear pink, then wear pink!! My heart and thoughts are with you constantly.
Tammy Lister
ntrlister@hotmail.com

Anonymous said...

Thank YOU for reminding ME to always be thankful.

Sending prayers for comfort, strength and healing--for Kayleigh and for your entire family.

LAnderson said...

She is sooooo precious! My heart aches for you & your family. May God Bless you and keep you in His hands during this time of uncertainty about Kayleigh!

Laurie
www.southern-stitches.com/Threads_of_Love.html

Angie - TN said...

My heart is breaking...I wish I could say something profound, but I'm at a loss for words. You and your precious little girl may the most amazing and inspiring people I've ever encountered. I pray that you'll be able to spend some time together as a family very soon.
God Bless,
Angie

sasha's mama said...

Aimee and Adam you are such strong parents for Kayleigh and your other kids. Your faith in our God is so great! I pray for His comfort and watch over little Kayleigh and all your family. I honestly can't even begin to imagine what you're going through, God Bless You all from the bottom of my heart.

Janice - as a former Girl Scout for 13 years and a Gold Award recipient, what your troop has done is a very great thing! I don't know the age of your girls but they sound very mature and should be commended. Kudos to all of them for being selfless and helping this deserving family!

Brooke

Rebekah K said...

I am so sorry to hear the news you have received. Aimee for all you have been through, the decisions you have had to make this past year, you are a very strong person. Adam for the support that Aimee talks about you giving during this time and the decisions you have had to make also makes you very strong. Brandon & Allyson you are very strong for being kids and yet are being so supportive, loving & patient as I have learned through readings. Your whole family is strong for being able to deal with this situation as best as you can and for staying strong for Kayleigh. God bless the whole family, give them strength, bring them peace and calm any anxious feelings right now, today and every day,Amen. I will be praying throughout the day for one more miracle and that God will continue to give you the strength you need. That was the most beautiful video I have seen, she is so precious and beautiful.

Jenna said...

NOt only will Kayleigh be proud of you but God is too. May God bless you and hold you and may you feel His unexplainable peace. You are being an awesome witness for Him, whether you realize that or not. Will be praying for you.

Sarah, Adam and Mercedes said...

Adam + Aimee- can you give us all an hour to pray for kayleigh? sometime today or tomorrow or next week- whatever works best. God says when 2 or 3 are gathered in his name miracles are worked. Why not have all of the hundreds of us who follow this blog, twitter, and facebook take just one hour of our day and every single one of us spend that hour (or as much of that hour as we can) sending prayers for kayleigh. No we won't all be in the same place, but we will all be talking to the same God about the same thing. Maybe a crazy idea but I think something a lot of us would like to do! take care- as always praying hard for you guys!

the hearts of hartmann said...

I have been following your curagious story and have been praying for you all.
Im so saddened by the recent news but want you to know God loves you and hears all our prayers, God is good. Even if someday he takes her home, he always knows whats best for us. We will all rejoice with him in the end !
My heart aches for you, I too have a premie, who is 19 now. I know this struggle - in so many ways.
Please be comforted knowing so many people love you and are praying for you and sweet little Kayleigh.
Lets keeping hoping for another miracle- they do happen !
~Stephanie~

joanna said...

PLEASE add "i was here" by lady antebellum on your blog. it says everything about your sweet girl.

Jessica Moore - Charlotte NC said...

My heart is breaking for you and for Kayleigh. I have been crying ever since I read about her latest circumstance. I can't tell you how many times I've prayed for Kayleigh, and to see her finally prepare to go home to heaven is hard to take, even if she will be in a better place. I pray that you will have the strength to endure your heartache and know how much you are loved by so many people who read this blog. May God hold you tight in His arms and Angels surround your every step.

staceyrkennedy said...

Its so hard to understand why, to understand Gods will and plan.

It is amazing to know that He does have a will, and a plan. He knew when Kayleigh was born, that this would happen. He knew through all the surgerys she went through, this was His plan.

Its amazing to know, that through Him, Kayleigh will live in Heaven for eternity. Its amazing to know that you will all be together again one day. Its amazing to know that Kayleigh is so lucky to get to go home, to her Heavenly Father, where she can wait for you to join her. She can wait with no pain, and no tears.

I can not ever imagine how hard it is for your family to think of letting her go, and I pray God gives you peace and comfort through this difficult time.

Kayleigh has touched so many lives, and I am sure that was her purpose.

Thank you for sharring her beautiful life with us. I can't wait to see you all in Heaven together. God bless you all, and may He wrap His arms around you as you go through this storm.

Kemp and Remis mommy said...

I am praying as well as my family, friends, work and church... god bless you all... Ouch, this really hurts, and I know it hurts you too... I just want you to know you are brave parents... shes lucky to have parents as strong as you two, shes such a fighter... take care..

Lisa P. said...

I pray that you find peace and comfort from Christ at this time. My heart is broken for your family. I don't know what to say.

Melinda and Ken said...

Your post was so moving, I was sobbing. I am praying for another miracle....and I stepped out of my comfort zone and posted about sweet Kayleigh on my blog to ask for prayers for your family.

Renee and Brandon said...

My heart is breaking for you! I don't have the words to say besides we are praying!

Sabrina said...

As a member of the Christian faith, I share your hope, and I also share your comfort in knowing that Kayleigh will be going home to God. She will be the most beautiful angel, and I have faith that you will see her again someday, and that you will know that beautiful angel as Kayleigh when you see her. I also visit a few times a day hoping for some good news, I am heartbroken at the latest news. I'm so sorry that you are all suffering through this difficult time. I can't imagine how you are getting through, because, as a parent myself, I can't imagine surviving the loss of my child. Faith is a wonderful thing, it helps with the pain, but it does not remove it. As I sit here shedding uncontrollable tears, I realize that I, and several others are all sharing in your grief. We all have been hoping and praying that Kayleigh would recover, and that The Lord would heal her brain, and body and that you would all have a glorious future together on Earth. That does not seem to be his current plan, but you will have a glorious eternity in heaven together someday. Stay strong in your Faith, stay strong as a family, and always remember you are in our prayers.

Laurie in Ca. said...

My heart is breaking for you and I held my breath as I read your words from your broken heart Aimee. I am so sorry for all that is happening after Kayleigh's amazing fight over these months. I believe in miracles and am praying for just one more, however God is in control and has been from the beginning of her days. I won't stop praying for all of you and ask Him to carry you gently as you wait for His plan to be fulfilled. Words just won't convey how sorry I am.

Love and Hugs and Prayers, Laurie

Donahue Family said...

I don't even have words. My heart is breaking for you guys. I am so sorry about what you are going through. Your sweet daughter has touched our lives and so many more. She is a beautiful angel! You guys are wonderful parents. The Lord will carry you through this time. We will continue to pray for a miracle.

Erika in Philly said...

Kayleigh could not have picked two more amazing people in the world to call her Mommy and Daddy. Your strength and courage is beyond anything I could ever imagine. Thank you for sharing the story of your amazing baby girl - prayers coming your way for whatever HE has planned for you.

Alex(andra) said...

I'm not sure what I could say that hasn't already been said, but realized that me and all of my loved ones here are praying for Kayleigh, and also for you. Our hearts are breaking and we send many, many hugs and love.

Natalie, NJ said...

Adam & Aimee,

Words just escape me and my heartbreak takes over. I can not imagine what you are going through. What a beautiful post, and wonderful video. Thank you so much for sharing your Kayleigh with us, even in this hard time. Aimee, I must say, when I looked at the pictures of you and her the other day I could truly see you two were connected, and you would have never know there was anything wrong with her. She looked like the Kayleigh we all grew to know and love. I believe God granted her wish to have one more day with you to show you her love. The same with the pictures of Adam and her, she just looks like her sweet self loving her daddy. I'm sure she was just as sad to leave you so God did you some more special time with her. What a blessing! I will continue to pray for God's grace, love, and understanding for you. And I do hope you can take her home. And I will be praying for strenth and God to carry you all over the next few days, weeks, months, and years.

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