Before I update you on Kayleigh and show you a few new pics, I wanted to let you know about something real quick.
Remember our guest blogger, Brent Riggs? The guy who twisted my arm Monday and put up that wonderful post for us? He’s been working on a book on for over four years, an incredible story he told me about when I went to stay for a week at his home. The book is called “Terrorist to Evangelist: The True Story of Kenneth McClinton”. I was talking to him last night and he mentioned it will finally be available today. Here’s what Brent wrote me about the story:
“Ken was a terrorist. He killed people, bombed things and lived a life of violence and hate. In solitary confinement in prison, all alone with an old Bible, God transformed Ken. It is a modern day “Damascus road” conversion that took a man from being a killer to a believer, from violence to love, from terrorism to evangelist. Ken’s life is a fascinating story and it is nothing short of miraculous that he even lived to see that day of conversion.”
Brent has put up a couple of free chapters on his website for people to preview. We really hope you’ll check it out. You’ll love the book, and you’ll be helping us say a great big “THANK YOU” to Brent for what he has done for us over the months. Check it out here at:
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There was not a whole lot of news today with Kayleigh. We met with the Neurologist and he really didn't have anything to offer that anyone else has talked about. No offense to any neurologist reading this post right now, but I have never seen anyone skate through their answers more than this guy today. There was never a yes and no answer and the guy just seem so nervous to talk to us.
According to Dr. Brain, there is no cure or procedure to help with this issue and our odds are (worse than) next to nothing. Not the cooling pads, hyper-barometric chambers, replacing stem cells, or anything else you can possibly think of for many underlying reasons. Because of Kayleigh's bad health in other, such as lungs and heart, the procedures would only be detrimental to her. As you can see, we have NOT given up hope if you can tell by the never-ending questions or research we have been doing lately. We do not want Kayleigh to go, and if there is a chance, there is a will, but unfortunately, we can't find the way. We will continue to pray that God makes this decision for us.
On a brighter note, Kayleigh had a wonderful day today. As I held her peacefully in my arms, she didn't cry or thrust heavy breathes the whole time we were there. She seemed to be content and just plain comfortable. Ya know, whether or not she can understand something that her brain does or does not tell her, move in a direction that is purposeful, act normal as any other child in this world shall act, she is still by far perfect in God's eyes and ours.
Our goal is to bring her home as quickly as the doctors will allow us. Being that she will continue to have nursing care at home, it may take a couple weeks before she reaches the normal max feeds that it will take to make that glorious journey out of the NICU. We are so thankful for everyone who has been there for us through this trying time and we continue to ask for prayers of strength and of course, another miracle.