5/28/09 - A New Journey

Does anyone know how much fun it is to move? If you could actually see my face, you would see that I was beyond sarcastic when I said that. We have practically moved everything except a couple odds and ends, which we will pick up over the next couple weeks while we travel across town to take Ally and Bran to school. Thank goodness school is only for a couple more weeks. That is a hike back and forth.

A few of us guys took two full days to load and unload the 26 footer Uhaul while Aimee packed a sea of un-ending boxes. You never know how much crap you have until you move. Ya know? It is crazy the amount of junk we tossed, let alone the amount that we still held on to. Thankfully, the rain came light which cooled the air a bit. We only soaked through a couple shirts. Yummy!

Brandon and Allyson seem to love the new place. We took advantage of the horrible market as the market took advantage of us. We found a nice rental home, well outside the city limits, allowing us to still maintain a normalcy we hoped for. Allyson was afraid that she was going to have to share a room with her brother, which isn't such a good thing since she is about to hit "that" stage. I guess turning this blog in to a diary of a Dad who is dealing with children facing puberty would be pretty funny, what do you think? lol Ouch, do I have to????

Quickly jumping to a new topic...THANK YOU ALL for pitching in to help us financially. It has allowed us to focus on our family and get back on our feet. Aimee and I feel as if God has given us something here that can do so much for so many, so we don't want to waste a single second. We have been praying and searching for a way to continue Kayleigh's legacy and help others out there full time. Whether we worked for March of Dimes, The Children's Miracle Network or build an organization of our own, we have no idea. Our brains are fried, but we would like to hear some of your ideas and maybe we could all build something together as a team.

Either way, I want to reach out to those who have given us so much strength this past year. Every single one of you have given us ideas, thoughts, questions, concerns when it came to Kayleigh's best interest, so I know we could all spark some great ideas here. The last thing we want to do is do the wrong thing and find ourselves in deep water. We love every single one of you for the support you have given us and I know we can continue to work together for a common good, in honor of Kayleigh.

So, let's start this journey off, not as a "OH Woe Me" for having lost a beautiful child, but "Praise you Lord" for Kayleigh, now show me what we can do with what you gave us so that we can honor you.

God Bless,

150 comments:

Nieman Family said...

You have the best attitude. Proof God is there right beside you!

Katie Patterson said...

YEA!!! What a wonderful, positive attitude...I wish that I could be as strong as you are.

Take care and continue to update us!!!

Jackie Metcalf said...

I have to agree that moving STINKS. We had to move 4 times within a six month period. UGH!
I admire you and your family. After everything you guys have been through, you still seem to be focused on what you can do for other people. That is truly a blessing from God.
Maybe you could start your own non profit organization in honor of Kayleigh. Maybe use whatever money to help families when they are going through the same thing. You would know exactly what they need. Whether it be money for food, a place to stay, gas cards for back and forth to the hospital. I feel that you could do more with your own organization. I guess I feel it would be something you could personally give back.
Whatever you decide, I am sure the Lord will be with you! My prayers are with you for this new journey that you are on, and the one that still has to heal. (((HUGS)))

Anonymous said...

Wow Freeman's...you never cease to amaze me. While I can't come up with any great ideas at the moment i'd like to say that because of your family and KAYLEIGH my faith has grown tremendously. I have always gone to church and prayed and followed the motions but I am growing in a new relationship because of your journey and faith. Thanks for that and just know that you are touching people already and I can only imagine what Kayleigh's legacy will carry on! =)

LinMarie..xoxo

Glad to hear you guys are almost settled & poor Allyson, I was cracking thinking about what your in for ;)

Meg said...

I'm glad you guys found a great place that is working out :D

God definitely works mysteriously, I hope he shows you soon where he wants you to continue serving!

Praying for you!

Kristine said...

As Always, Well said Adam! I will continue thinking of ways to continue precious Kayleigh's legacy!!

Love from NH!
Kristine

shelby said...

maybe you could do something to help NILMDTS. I know a lot of families do not have the information on this. I aslo know by looking at your pics that it is an amazing thing to have available. You could help give families the information to contact these people. I aslo know that it is a free service and that it does indeed cost money to do this and maybe start an orginization to donate money for them to be able to continue to do this. What do you think? Maybe promote this and help them financialy?
Shelby

any by the way...this blog could also be about another little life added into the family as well...Kayleigh needs a little sibling to look after don't you think?:P

Harper Loyer said...

Thank you so much for updating I have missed you guys and glad to hear that you are in your new place.
We are all better for knowing Kayleigh and for you sharing your own faith with all of us.
THANK YOU from the bottom of my heart!!!!
GOD BLESS your family!!

Hilary said...

I moved last year and remember how much stuff my hubby and I accumulated in a tiny 1 bedroom apartment. It was insane! Glad to hear (read) you guys are doing well. Question: will u still be keeping this blog or starting up a new one? Take care!

Hugs from Hilary and Addison

Jenny said...

So happy you are back with a great attitude and wonderful heart! God bless you all!

Ms. Sarah said...

We are praying for your family.

Anais said...

I came across your blog a couple of months ago and Kayleigh's story is one I will never forget. May God continue giving strength to you and your family to live each day. God bless!

Georgia in KC said...

I'm glad to hear you like where you are at, and it's nice the kids don't have to share a room. Have fun with that puberty thing. We're dealing with that with my stepdaughter right now.

One idea would be to do something to help other NICU parents. Maybe through a brochure or something. Let them know what to expect emotionally, as well as things they need to know financially. I know the hospital social worker is supposed to help with all of that, but it seems there were several things that you learned late in the game that could have helped you out from the beginning.

The Carpenters said...

"The blessings of the Lord have no sorrow attached to them." It's a verse that I heard tonight but have NO idea where to find it! :) But I thought it was perfect and sums up your last paragraph. How perfect!
I'd be all for helping you spread Kayleigh's story. You know that. How can I help? :)
Welcome back, blogger! We missed you.

Debbie said...

Adam & Aime,, if there is anything at all I can do even from down here in New Zealand you have my total faith and support.

Jules said...

If you do start an organization let me know. I am a mom of two preemies and I help out with the March of Dimes but I'm always looking for ways to help others especially during the NICU roller coaster. I have thought of writing ( co-authering with other christian preemie parents ) a book with just our stories. Encouragement and information. A way for them to see God still does miracles and His hand is over every situation. Your faith could really be a great testimony and help to others. It's just an idea that I don't even know how to act on. email me and let me know what you come up with and if there's a way I can be involved from PA jcruz116@gmail.com

JoAnn said...

I found Kayleigh's blog in the last several weeks of her beautiful, brief life. I know that the Lord has His plans for you, that He will use you and all that you have learned in this past year to touch others....I will continue to pray for you and your family, as you move forward into your new life. God bless you!

KK said...

So glad you are back online and doing as well as can be expected. Still praying for your family.

Misty Rice said...

You all have been on my mind so much. I even spoke about Kayleigh while visiting the hospital that I photograph for now. Sort of like NILMDTS program, but here in Florida.

I am not going to stop praying for you guys.

God Bless.

E @ Scottsville said...

Praise God for you SPIRIT! I just smiled at that last paragraph so much, Adam!!!

I want to still be able to keep up with your family, so don't you dare stop blogging, okay?

=0)

Anonymous said...

congratulations on finding a place that will fit your needs. im so sorry that this has all hit you at once...but still you press on in service of our Lord. thank you for your example. have you contacted the march of dimes to see if you guys could possibly be spokespeople for them? i think your story could be very compelling and since they are established it wouldnt leave the brunt of administrative work on you guys, (unless that would be a good way to keep your mind busy and then a organization of your own would be great too) sending love and hugs from indiana
rachel and ryan
isaiah,matthew,nilam,anya,aiden,and josie

Maria said...

I really love the March of Dimes idea. :) Being a preemie myself, I know how much they along with other organizations help!

Glad you're all moved and somewhat settled in the new place. You all are in my continued prayers.

Unknown said...

I hesitate to comment because I'm never sure I'll say just the right thing...but please know that I'm praying for y'all...and I hope you find the direction you're looking for and are able to carry on Kayleigh's legacy. I admire y'all for being so strong and faithful in such a time.

teacheroftwos said...

I am personally a big supporter of The March of Dimes. I would love to see them become much more. More publicity. You don't hear about the organization much until the walks come. I think they need more. I have personally raised money for the organization and walked twice for my local organization. I would love to be a part of the organization on a more permenant basis, but don't know how. Maybe with your families help I can acheive that goal?

Misty Rice said...

By the way I have never said this before....but I look at Kayleighs hand in the pictures often...its seriously the most perfect little hand ever.

Today, while visiting the hospital I was on the PICU floor and there was this little tiny baby. I have never seen one so tiny in person before...and it gave be a deeper glance on just how tiny Kayleigh was coming into this world.

Katherine said...

I pray that your move gives you and your family a new beginning while continuing to praise God for Kayleigh and for the road that has led you here. I know that whatever you do in the future will be done to Glorify God. I would love to see you start your own organization that will help others in similar situations as yours.

Niecey said...

I am so inspired by you both. Incredibly inspired.

Sarah S. said...

Wow, your strength to move on just astounds me. But our God is great and so much bigger than anything we face in this life. Praise be to Him who strengthens us day by day.
I think that allowing Kayleigh to live on through your actions is a great idea. Not sure what the answer is exactly, but just to bring hope and joy to others who are going through what you went through is probably the best thing. I'm more of a person to person "impacter," seems much more personal to me. Hopefully you get some good feedback on the whole idea.
God bless you in all that you do!

Tabitha said...

Your faith inspires me. You and your wife are amazingly strong individuals. I'm sure whatever you come up with will be divine.

Jenny said...

I check Kayleigh's blog every day as a source of strength, inspiration, and perspective. It helps me realize how lucky I am to have my wonderful husband and our amazing son, and how the little things (work, stress, etc.) really don't matter.

I am very glad to see you back at the computer, and wish you guys all the best as you take this next step in your journey. Thank you for what you have done for me--providing me some measure of balance and calm in my daily life.

Still sending hugs and warm thoughts from Colorado!

Jenny

JaMean said...

I cannot get over how strong you are. You are the most amazing people. We will always pray for all of you.

And as for the puberty thing. three words: OMGoodness. Are you 2 in for some FUN (ha ha, NOT!) Just be thankful that Ally is only 1 girl. I have a set of hormonal preteens! EEEEEEEEEEEEEE!

Life is crazy fun. We love you all!

Donahue Family said...

You guy's are awesome! Your strength and devotion to the Lord is to be admired. Kayleigh's life blessed so many already. You guy's are such great parent's to keep it going. Your beautiful little girl is still doing the Lord's work. She has done more in her lifetime than most will ever do! You all are still in our prayers.

Steph said...

You guys are just amazing people and I am so blessed to have found this blog. God bless you all and I agree, something we could all do together and help in Kayleigh's honor would be wonderful. We should honor the Lord now, for sure.

God Bless,
Steph
ATL, GA

Anonymous said...

I'm SO glad that you are going to keep up the blog! Whatever you decide to write about, I know we will all love it!

I know exactly how you feel about moving- in the past 2 years we have moved 4 times and 2 of those times were cross country moves. I'm just glad that we finally decided to stay put for awhile and buy a house!

Still praying for you daily,
Christine in Peoria, AZ. =]

Wendi Taylor said...

You are so strong, and so brave, in the face of your loss. If peace is what you truly feel, then I am thankful for that. But I also want to say - that if you need to cry, or scream, or vent, then we are here for you in that also. But most importantly - God is here for you in that also, and I believe wholeheartedly that he understands your pain better than any of us ever will.

wicker0407 said...

I think a non profit would be a great idea weather helping other families who have babies in the NICU or even starting a scholarship for NICU babies who have made it and are going to college or NICU babies that need help with home care after they leave the hospital something along those lines. I check the blog often and look at sweet Kayleigh's face I miss her so much and am just so happy her legacy will live on in whatever you decide to do. I back you 100% and will do my part no matter what avenue you take! Still in my prayers!
Summer & Family in California

TheSooner7 said...

So glad to hear from you guys...love how God is always leading, and you are always doing your best to follow! An amazing family, given an amazing daughter who did more amazing things in her little life than most in a lifetime. I am so glad you guys are leaning on the Lord, that's the best thing you can do. I hope all goes well with unpacking and resettling. We love you and are praying for you.
God Bless.

TheSooner7 said...

So glad to hear from you guys...love how God is always leading, and you are always doing your best to follow! An amazing family, given an amazing daughter who did more amazing things in her little life than most in a lifetime. I am so glad you guys are leaning on the Lord, that's the best thing you can do. I hope all goes well with unpacking and resettling. We love you and are praying for you.
God Bless.

Erin said...

I think of Kayleigh every day, she has two really great parents to be proud of that is for sure!
Love and hugs from So. California!

Joanne said...

You have such a wonderful attitude. I have no doubt that God will lead you in the right direction how you can best honor beautiful Kayleigh.

Joylynn said...

Oh my goodness, Adam! I can totally sympathize with you about moving. I have moved cross-town, cross-state and across the United States. I prayed the Lord would give you guys an easy move. Praise God, you had people to help you move, as well.

About your idea to do something. Everyone keeps saying March of Dimes. And, that is a great cause. But, they do have many, many supporters already. I personally do not know of anyone who has never heard of March of Dimes! So, although they always need help and support, they are established.

If you want my idea Adam, I think it would be amazing to create the "Kayleigh Anne Foundation". I have been already thinking on this. I know you get a TON of email, but I will send you my thoughts in one. I had also sent you an email about making memorial buttons for the page. Since she is now gone now, you probably would like to replace the 'praying for Kayleigh' button. I am an artist and photographer and I like to do computer art/graphics as well. I would love to show you a couple of thing I have made, to see if you would like them? I can send them with the email as well. But, getting back to the point.. I think a Kayleigh Foundation would be a beautiful and helpful way to celebrate her life. You could raise funds to help other parents who were in the same situation as you and Aimee. To help, so that they don't have to not only worry if their baby is going to live, but bills they can't pay, as well. Goodness, I have made this long. So, I will close for now. But I will send you my idea through email. Be expecting an email in your inbox from ' Jerry and Joylynn P.' Kayleigh is so dear to my heart. So are you guys. I can't explain it, but I have such a deep love for your family. I would be blessed to help you in any way I can.

God bless, you guys!

Love & prayers,
Joy

LeighAnne Gregory said...

I agree with the NILMDTS idea. Or you could also help out families that are dealing with children in the NICU. When my son was born premature I was unable to afford to pay for a room at the hospital while he stayed in the NICU after I was discharged and there was this foundation that helped by paying for me a room for a few days which helped transition me from hospital to home without a total melt down. I was devastated at the thought of leaving my child, and going from the hospital room to a room that was more like a hotel room helped me get use to the idea of not bringing my baby home from the hospital like planned. The social worker at the hospital informed me of the foundation and told me depending on the circumstances they would either pay the total amount or a portion of the rooms rate. They were a God send to me in my time of need.

Mimmy said...

My prayers continue to be with you. The decisions you have ahead of you are mind boggling but there is no doubt in my mind that the ones you make will be the right ones. Please keep in touch and should you decide to begin anew blog let us know "where". Those of us who have been touched by Kayleigh need to continue to be touched by and to touch you.

God Bless,
Mimmy aka Joyce Smith

Erica said...

I JUST LOVE YOUR LAST PARAGRAPH!!! You two are amazing!!

I have been thinking of you all and praying for you all!! I still come to Kayleigh's Blog!! Just you saying that last paragraph makes me want to think in different ways!! You all are an inspiration!!

Best Wishes and God Bless You ALL!!

Erica
Mommy of 2 amazing boys
N.M.

Joni In MN said...

Blessings in your new home & that it is a happy new beginning for you! You are so amazing that you were able to get thru all this & still blog! :) You're shining God's Light!!!

Kelli said...

God bless you all in this new chapter of life. You are a beautiful example of God's grace to the world.

Love you!

Kelli
ugottafriend.com

Penny said...

I am thankful that God is comforting your family right now. I'm awed that you are wanting to minister to others, as that is the reason God allows suffering to begin with. Most of us forget that in our moments of despair.
On a different note, I just noticed Brandon's and Allyson's blogs listed on your side bar. I realized these blogs are dormant, but am concerned to see their last name and their ages displayed publicly. I know your family has been in the news and all, but you know what kind of people can find kids online that may not have seen the news broadcasts or even read this blog. With everything going on, I'm sure y'all haven't given this a second thought. I'm just a mom and stepmom to 6 girls and its a safety issue to me. You don't have to publish this comment and call attention to it. I just thought you might want to remove those links.
God bless.

Analiza said...

Your strength AMAZES me!

I would love to read a book that you and Aimee write collaboratively of how you kept the faith and stayed positive, drawing strength from each other and then from complete strangers. Turning this blog into a a book for mothers and fathers struggling with the same obstacles.

Some of the proceeds can go into March of Dimes or The Children's Miracle Network, but also help support you all.

After your first book, maybe a children's book written by your children or yourselves... keeping Kayleigh's supporters the ability to carry forth her legacy.

To be engraved in a novel can bring so much calm and understanding to so many people in so many ways.

Anonymous said...

It is so nice to go online and see a new post from you. Every single day I still think about Kayleigh and I thank God for putting such a beautiful and amazing girl on earth even if for such a short time. Her life and your faith has made me a better person and I look forward to seeing how you and Aimee will continue to touch others. Lots of prayers being sent your way from Nevada!

Angela D. said...

Dear Freeman's,

It has been one heck of a ride for your family.

I prayed and prayed that things would've turned out differently for your family. However, in the short time Kayleigh was on earth, she accomplished more than most people do in an entire lifetime.

Through you and your wife (via the internet), Kayleigh brought people around the world together in prayer and proved that people can care about a virtual stranger!

Throughout history, there have been only a few people who have been able to accomplish that.

To me, that is proof positive that God had a plan for her while she was here on earth and boy did she fulfill His plan!

Furthermore, she was loved immeasurably by two WONDERFUL parents and siblings who gave up everything to care for and give her love.

You thank your readers for giving you strength but do you realize what you have given us? Some of us, myself included, have had their faith in God restored. Some of us realized that there is more to life than just caring about ourselves and our immediate family. Some of us have witnessed the strength of two people who in the worst of times, have unwavering faith.

As far as continuing Kayleigh's legacy, I would like to put forth a few options:

Organizing a yearly fundraiser (walk-a-thon, bowl-a-thon, 5k run)in Kayleigh's memory and donating all proceeds to a larger organization to aid in their research efforts.

Organizing volunteers to provide assistance to families with babies in NICU. Think back to what could've helped while Kayleigh was in the hospital: new blankets, pajamas, overnight kits for mom and dad (toothbrushes, toothpaste, mouthwash, etc.), meal vouchers for mom and dad, etc.

Most importantly, please don't rush into anything. I think you and your family need to take time to exhale, acclimate to your new surroundings and gain a footing financially.

I'll still be here waiting until you send a call for help.

Much love and hugs,
Angela De Benedetto

Anonymous said...

Some people, like Kayleigh, come to this earth for a short time, but make a bigger difference than most people would in a lifetime. Her 11 months was a gift and you, as her family, will continue to carry on her purpose in life in whichever way you see best. I think of the lyrics of the song "borrowed angels."

"They can't stay forever
cause they're heaven sent
and sometimes
heaven needs them back again"

Unknown said...

Freemans,

I am a NICU nurse in Iowa and came across Kayleigh's story when I was checking care page updates on a previous patient of mine. I don't know how I missed your story, but once I started reading, I could not stop. My heart is broken for your loss, and the world's loss, of sweet little Kayleigh. But I am overjoyed with the fact that she is dancing with Jesus in heaven and smiling down on all of us. What a blessing to have loved her. I want to say THANK YOU from the bottom of my heart for sharing your story with millions...the worlds needs to know about beautiful angels like Kayleigh and the strength of their amazing families. As a NICU nurse I witness God's miracles everyday and every baby I see touches my heart and my life, but some stories stay with me more than others and I will carry Kayleigh's story with me forever. What an inspiration you all are and what a beautiful baby girl. Even when you don't know it, Kayleigh will be touching people's lives for years to come. I will keep you all in my prayers every day, as I know the road ahead will be hard to face without your beautiful girl. But God sends His blessings to those that love and follow Him and I cannot think of a family more deserving! Thank you for sharing Kayleigh with the world and allowing her to be loved by sooo many!

Lauren
-There is no foot too small that it cannot leave an imprint on this world.

Angela @ Nine More Months said...

Congratulations on the new place. I hate moving too, but I'm sure it was well worth it. I hope it becomes a comfortable place for your family to heal.

Bobbie Cummings said...

Adam, I think it would be awesome if you used some of these blog entries and turned it into a book. Maybe add in a few more things you know now that you wish you would have known then and Bible verses/ Poems that got you through these times. Then donate a copy to NICU's near you. You know as well as any nicu parent that sitting there by the bedside of your child can be difficult and this would help parents get a feel and inspiration from Kayleighs story.
Just a thought. Well, I look forward to seeing you and Aimee soon. And thank you for blogging.

Hope said...

I've missed your posts. Thank you for updating. Your family is so sweet!

Praying always,
Hope

Sally2 said...

You are truly an inspirational family - to me and l am sure a lot of other people.
I found Kayleigh's blog a month before she lost the fight of her short life.
She is a really beautiful baby who l know would be looking down on her parents with love and smiling at how truly brave they are being...
I admire both you and Aimee in the way you have been able to handle yourselves throughout this journey with Kayleigh.
Kayleigh's blog draws me back every couple of days. I feel connected to your story and so very sorry that it didn't have a happier ending. I know that by following this blog, l will never take for granted my gorgeous little boy. Charlie was born in November 2008 at 28weeks. He weighed 1.2kg (2pounds 13 oz) so substantially larger than Kayleigh but he had a battle still. We have now been home for longer than he was in hospital and l am amazed daily with everything he accomplishes. Thankyou for sharing Kayleigh with the world - she is and forever will be an inspiration to me.
I will continue to follow your blog and wish you happiness & peace in whichever direction you choose to take.
My love to your family from Victoria - Australia xxx

Lisa said...

My husband's cousins lost a little girl to complications with a heart defect many years ago. She was born with the heart defect, survived many surgeries and then started having setbacks with infections and then had a stroke.

To make a long story short... they started a foundation in her memory and it that could be something that you could do in memory of Kayleigh and her battle.

If you check out Lauren's site at http://www.laurenfaithmiller.org and check out everything that they do to raise money and then distribute the funds then that would be great if you could do something like that for parents of children that are born premature. Not only do they provide educational materials, but they also help families dealing with heart defects at several hospitals.

Definitely something to think about and what a great way to honor your sweet girl.

Blessings,
Lisa

Ande Malinowski said...

We should make our own! What school will they go to now? Guess what! At quail hollow middle school, they named the Gym Stafford's Gym! I am getting confirmed this weekend! And i passed all of my EOG's!

Stephanie said...

I am glad you were able to find a place! Funny Ally's reaction :) Bless her heart!

I'm going to think of an idea for kayleigh but I know that you will do what you feel in your heart and that's the best thing right now. I know that you and Aimee will do something to ensure that you're helping others and making sure that everyone always remembers Kayleigh!

The Good Cook said...

Wow. I've been following this blog for some time now but have never commented. My emotions have left me with no words for your struggle. But I have to say, this post is amazing. You are truly a strong and blessed family with a set of priorities completely in the right place.

May God continue to bless and protect your family.

Christen said...

Hello~ I found your blog just after precious Kayleigh had her last surgery and just last weekend read her whole story! Wow! What a strong baby you had on your hands, I bet you feel so blessed to have been blessed with her! You were only given a short 10.5 months but what a blessed 10.5 months! I showed my 5.5 year old daughter all of her pictures and the videos, and her heart was just touched by it all, as was mine! I can just feel God in this blog and he is absolutely with you and your family!!! I feel like I know you after reading Kayleighs story and cried as the entries got closer to her final surgery. I hope you feel completely wrapped in Gods love as you deal with the heart ache that you have! God Bless you all!!!!

Sarah Benedict said...

Let me start out by saying that it is SOOOO good to hear from you guys. I still ear my Kayleigh bracelet and pray for you guys on a daily basis. Moving does stink...I'm right there with you! Are you guys still planning on finishing that book? I'm sure you have plenty of other stuff to think about right now, but just wondered if its still coming out eventually. I'm sure we will be the first to know right?! haha!!! I love your attitude and its definitely proof that there is a God and He is carrying you through this point and time of your life. What an awesome thing! Keep in touch...The worst or best thing about the past year is that you have gained a TON of "family members" that care alot about you guys. If you drop off the face of the earth we might all be on your doorstep some morning! We love you guys! Still praying for you in Northern NY

Christie O. said...

Oh yes, moving. I've moved more times than I can count. But I'm glad you made it to your new destination, my blessings to you as you begin your new journey and continue God's work. I know He has a path for you, I just know it. Love and hugs,
Christie O.

Nicole said...

I spend the majority of my volunteer time working for the Preeclampsia Foundation. www.preeclampsia.org

They are the only group in the US for hypertensive disorders of pregnancy. They have forums that are amazing support and highly recommend you stop by. They also do local and national fundraisers to help with research grants.

The Pyrat Family said...

I am so happy that you are taking the most positive path through life. I know Kayleigh is happy too.

Lindsey Barham said...

Freeman's:
What an awesome testimony of our Lord. Look at how great your attitude is and how strong your faith continues to be through this. Your family has been such an inspiration to me and continues to be. It was so nice to see a blog from you this morning and has uplifted my day. I continue to pray and think of you non stop and how much Kayleigh has forever changed me and the way I love and appreciate my kids. Thank you Lord for bringing this family into my life. I will be brainstorming some ideas. We love you guys.

Heather said...

It's so good to hear from you again! I think of you all everyday and continue to pray for your strength. Your faith is just amazing and I admire you both so much for that. No ideas here just wanted to let you know that I am still thinking of and praying for you guys!
Hugs and prayers,
Heather~ On the Homefront

Tracy said...

Thank you all for sharing your beautiful daughter with us, for giving us renewed love for our own children and for showing us what strength and faith really is! :)

Traci said...

As an auntie of a kiddo who went through (and struggled in) the NICU, I think it would be AWESOME if you guys spear headed some sort of group/organization to support those families. I'm not sure if there is one out there already, but I know that my sister really could have used the shoulder of an experienced person (who had gone through similar experiences) to cry on, to holler at, etc. Financial support for those families is SO SO important, as you guys well know.

Thank you Freemans, for being so amazingly, well... AMAZING. Through this crisis, you guys have shone with light and faith, and have helped this new Christian see that with faith and love, all things are possible.

You are amazing people, and I hope I'm given the opportunity to continue following you guys on your blog for a long time to come!!

Nichole said...

I think starting a foundation in Kayleigh's name would be a wonderful way to honor her. Maybe basing the foundation around helping other families who have babies in the nicu, or that were similar to Kayleigh's fragility, would be a wonderful cause :-)

Melissa's Thoughts said...

I just love your and your families heart. It blesses us so much. I believe that whatever you decide to do to honor Kayleigh will be the will of God. However, since you asked..LOL...I believe creating a foundation to honor little miss Kayleigh would be wonderful. She is so well known (isn't she):) to so many people and you know what parents go through in the hospitals. I believe you will honor God through her life and going home. Thank you for shairing her with us.

kimert said...

Your stregnth is amazing. Prayers for your family.

Anonymous said...

You two are amazing! I don't have any words on what wonderful people you are! I don't know what you two could do but I would say something around the NICU. Speaking to families, writing a small book just for NICU families. I have no idea but whatever you do i'm sure it's going to be awesome.

Andrea said...

Wow - I've been waiting for the right time to share this idea with you that I believe God laid on my heart. Up til now, it didn't seem the right time, so here goes...

Have you thought of starting a foundation (or seeing if one exists already) that would provide financial assistance to families of children who are ill and face extensive medical bills?

It seems that no family should have to worry about whether they can afford medical care when they are trying to focus on being with their child.

I'll be praying God gives you His peace and clarity as to how He can continue to be glorified through Kayleigh's life and in whatever He has in store for your family in the future.

Anonymous said...

Thanks for your post. Everynight I have been checking and missing you guys. Thanks for the update. I am glad you guys are getting settled.
I think it would be great for you guys to show other preemie families especially with ones who go home to be with the lord your strength and that this is God's plan even if we dont understand.
You guys are truly an inspiration and could help out so many. I know what ever you do will be great...as long as you keep updating us that is!
Sendind lits of love
Kristy from MI

Margaret Cloud said...

It is always a chore to move, we have moved 22 times since we married. Glad you found a place everyone likes. Good luck on thinking of a tribute to Kayleigh, I know I have never met her in person and this probably sounds crazy, but I miss seeing her. May God bless your family on your life journey, I say a prayer for you all in what ever you do.

Michele said...

peace and all good things to your family...

Emily said...

Good to have you guys back. :)How great that you found a place where the kids are excited and can have their own rooms. By your attitude and words, it is no secret to know that you have the peace of God through all of this. Amazing. God bless you guys and I am looking forward to seeing what great things Kayleigh's legacy will bring! The best is yet to come I am sure.

Micah said...

I know that in our area, a mother who lost her preemie son and her husband within a matter of 4 months started a foundation to provide "comfort measures" to families of babies in the NICU. Things such as more comfy chairs, couches, bedding, mini DVD players, inspirational books, etc. My family supports NILMDTS as well, and our cousin is actually a photographer for NILMDTS, and it really is an incredible thing that they do. You continue to be in our thoughts and prayers. Your strength and faith amaze me. God Bless.

Anonymous said...

Glad to see you back! You and your family are such an inspiration. You asked for ideas.......what about setting up an organization that helps families with the financial/emotional burden of being in the PICU/NICU? Maybe you, Adam, could go minister to them and share your story and show them how Great God is! God is not finished with you and your story about sweet baby Kaleigh! Hugs to the Freemans! God bless! :)

Michelle Jamie said...

amen!!

Joylynn said...

I also wanted to ask, if you would please stop by my blog. I made a special post, dedicated to Kayleigh. I put some of her pictures on there, and a family one. I did some photo editing, very mild, though. But I would like you to look over everything, and make sure it's ok with you that I used her photos. If you wish, I will take them off. I want to respect your wishes. : )


Thanks & God bless,

Joy

Micah said...

Me again. I wanted to provide you with a link to the article that was actually published today about the Tye Blanton Foundation, maybe to give you guys some ideas on ways to honor Kayleigh. http://www.citizen-times.com/apps/pbcs.dll/article?AID=/20090529/NEWS01/905290333

Anonymous said...

What strength your family continues to show, a true inspiration. Thank you and God Bless.

Have you thought about a service like String of Pearls? perhaps you can team up with them or start a similar organization in Kayleigh's honor?
http://stringofpearlsonline.org/Mission.html

Kris said...

You are one amazing daddy! I look forward to your puberty coments...I am the mother of three boys and thought I would never have to deal with all the "girly" stuff...well little did I know but boys have their "boys" stuff just the same!!!!!!! And now I have 6 granddaughters! So I'm going to stay tuned and see how you deal with it all! I love your last paragraph! It says so much about how you are honoring your precious daughter! God continue to bless you all.

bri said...

Adam and Aimee... you are so precious. Words will never explain the inside of a person truly but when your heart shines through what you've written it definitely comes close to seeing it all! Bless you all on this new journey!

When our Daughter Olivia was born premature and passed away we were able to collect income tax on her that following year. We took all the money we got for her and sent it over seas to one of our missions to use in rebuilding a villiage and helping the orphans in Sri Lanka. I figured if our little girl can help orphans and the homeless then so be it! AND now we are foster parents to children as well. So in a way she has continued to help children without parents! We miss her terribly but God's grace was sufficient in the midst of our pain and pulled us through. Crushed down but not destroyed! WE rose out of the ashes and walked out that much closer to our creator!



love you guys!

bri said...

OH and BTW... I think the journal of a dad "going through teenage puberty" would be hilarious! I think Brandon and Allyson would think it funny (one day!) too haha.

Unknown said...

Hello Freeman Family. Glad to hear you are slowly but surely re-establishing yourselves in your new home. We do know only too well what it is to move, so I totally know the feeling. I believe your thought are fantastic to keep up the legacy on Kayleigh's name for some cause, which I think should be your own, something that will teach and help other parents going through what you have, through spiritual, physical and financial help. This can be done in various ways. But today with the Web technology this is something easy to start online. Your family is SUCH an inspiration to so many of us that I believe your words put into works for others will move mountains!

Trav's Mommy said...

Your positive attitude never ceases to amaze me. I admire your strength through everything you have been through. I will always pray for your family and wish for all the best. The faith you have brought to me and my family will never be forgotten and neither will Kayleigh and her wonderful ways she has blessed so many people.
I am glad the move is going well (sarcastically or not!). I too know the downs of moving so many times in my life, but it's also nice for a refreshing new start!
I can not seem to come up with any original to honor Kayleigh's name, but as soon as I do, I will be sure to let you know!

Crysgoss said...

Wow, you guys are amazing!
I agree when and if you guys are ever ready Kayleigh needs to become a big sister;) Missed seeing your posts!
If you do start an organization,even though I live in another state, I would really like to be a part of it! E-mail is Crysgoss@yahoo.com.

Wendy said...

After my twins were born and we spent a lot of time in the NICU (not nearly as long a you have) my husband and I decided to work with Children's Miracle Network. We do fund raising events all year (had a Bingo Night last night). What really drew us to CMN is that the money raised here -- stays here. So we really are helping the hospital that helped us. Another friend of mine has been working closely with March of Dimes since her son was born over 2 months early. They are both wonderful organizations.

Tammy White said...

I've been following your blog for a little while, I was heartbroken by the story. I agree with Shelby who wrote the comment on 5/28, I think that "Now I Lay Me Down To Sleep" offers an absolutely priceless service & needs to be more widely known. My son was born prematurely in 1996 with congenital heart disease and underwent 5 heart surgeries immediately after his birth, they did not expect him to survive. I would have loved to have professional pics taken at that time. I am a photographer myself and took a few photos, but it was emotionally difficult for me to do. Miraculously he is now 12 years old and doing well. He will for a lifetime regularly see a cariologist.
I had never heard of this organization before seeing it on the website and I think this is an organization well worth supporting and I am myself considering becoming a volunteer, just not sure if I can handle the emotional side of it.

Anonymous said...

So good to get an update. Sounds like you are doing well after loosing Kayleigh and then moving. The word "moving" just makes my skin crawl. It is amazing how much stuff you can accumulate. My husband and I have moved a lot and it is never a fun thing.

Thanks again for the update and I will continue to follow your blog and pray for your family.

Lynn said...

May the Lord bless your new home. Sounds wonderful! I will be praying for clear direction for you from the Lord of how He would have you minister to others. The most important thing is to wait on the Lord. He will open the doors and direct your steps.
You and Aimee have a powerful testimony. I can see that the Lord has given you a gift for communicating to others through following your blog. You might also make an excellent guest speaker at churches sharing how the Lord works when he answers prayers in His way and how we are to trust that His ways are best and how He works everything together for good. There is no doubt that you have a personal relationship with Jesus Christ. God Bless and keep us all posted. We have come to love you guys!

Anonymous said...

I don't even want to mention moving. We did that in Feb. and after throwing away so much stuff, realized that there is a ton of stuff we packed anyways that is sitting in boxes in the basement waiting to be thrown out. I hope you write a puberty blog, I've got two teen boys, a 20 month old boy, and a six month old girl. I don't know what I am going to do when she hits puberty, even if it is sometime off. I'll get whatever tips and things I can from you know so I know mostly what to be expecting. God bless your family and I will pray that you are able to find or start the charity God wishes you to. Keeping up with this blog has helped to strengthen my faith greatly. Thank you.

Raina's Retreat said...

You could have survival packages for NICU parents with quarters, shampoo, magazines, bible... folders for all the paper work, brochures of things to know about being a NICU parent and also chocolate (to ward depression), crackers for sick tummies (bc we know how guy wrenching it is to have a baby in the hospital), things like that. When my son I was in the NICU 24/7 only leaving for nurse shift change. An organization called Western Arkansas Children's Foundation donated money so we could eat bc we were so far from home and we were paying to 'live' in 2 places. Unfortunately because of lack of funding they had to close. Also, a way for families to connect in hard times like that, for example. MY family was 4 hours away so, we went through a lot by ourselves.

Anonymous said...

It's good to hear that you're doing well!
I'm sooooo glad you're not moving into the parent's house. UGH! That looked really squished.
And the kids have their own rooms - :)
Cool!
God bless you and you can turn this blog into anything you'd like. ;)
Still praying for you all!

Shannon said...

I think starting a foundation of your own and being a wonderful support system for other families that financially find themselves in your shoes a way to go.

Since your both in real estate, even doing something like a Ronald McDonald house would be amazing. Only call it, "Kayleigh's House" where you could offer spiritual support, and maybe it be close to a hospital so families that couldn't stay in or with their babies, could be close at least.

The Greene's said...

I found your story just as Kayleigh's journey on earth was ending but have been deeply touched by her life and by your incredible faith and strength in God. Your attitude continues to astound and inspire and I could only hope to act in any sort of similar fashion should I be in the same position!

God Bless as you continue to live Kayleigh's legacy here on this side of heaven :)

Beth in NC said...

I pray you and your little family will take time to settle, heal, and breathe ... summer air ... warm sunshine on your faces ....

Many blessings!
Beth

John and Jenna Gensic said...

I loved reading this post. I felt the same way about wanting to help out some foundation/organization after our son was born. I haven't organized myself yet either, but I share your drive to keep the legacy alive. You guys are wonderful parents. I pray for your family daily.

Jenna

Megan and Company said...

Your humility, clarity and hope is refreshing. I pray that God will continue to strengthen and encourage you as you go through so much transition.

Scrappy quilter said...

What a wonderful positive attitude is right. Can't wait to see what all happens to honor your precious Kayleigh.

Monica said...

You are a truly awesome family! I admire your strength and faith so much. Thoughts and prayers are with you as your hearts begin to heal and for whatever journey our precious Lord has planned for you.

Sincerely,

Monica Greene

Cristi said...

Great thoughts! (Well except for the kids hitting puberty part.) I know that whatever God shows you two to do you will do it with all your might as the Word tells us. God bless you in every way.

Robin said...

I would love to see you use Kayleigh's name to the full meaning> I don't know if you read my note before about the meaning of the name in Gaelic?? It is spelled ceilidh and means party - festival of song and dance - Wouldn't it be great to organize a "kayleigh" every year on her birthday for all the special children born too soon and their families to get together and celebrate the gift of these beautiful blessings?
Your family is a wonderful example of God's love. You have truly used the light that He has given you. I have know doubt the He will lead you to where you are supposed to be.
I pray God's protection of your hearts and minds as you proclaim Him to the world.

Blessings,
Robin

dragonfly domain said...

AMEN!!!!!!
PRAISE THE LORD!!!!
For not only Kayleigh but also for her mother and her father and for her Brother and sister. Thank the Lord for the people that gather here to shower you with prayers and Love.

I wish that when I lost my boy there would have been a place that I could have shouted out that I needed prayers. I wish that my LOVE for the LORD would have been what it is today. Losing my son is what brought me to the Lords arms. But it took a lot of pain and heart ach and a struggle within myself to find that ONLY HIS ARMS would heal my broken heart.

You are so blessed that you KNEW that love... before you were thrown into this Roller coaster ride. That the Lord was already holding you and loving you and you KNEW he was there for you before you were ever given this road. GOD BLESS YOU! May He Continue to help you walk on the right road. May He continue to Love you and hold you. and please what ever you do. Continue to turn to him with open arms and RECIEVE that which He continues to give to you.
Love you all
JennT.

Anonymous said...

You guys are such an inspiration!! Several people have said that starting your own foundation would be a great idea to help other NICU parents. I have been blessed to have had normal deliveries with my children but we live in a rural area in Texas and the closest NICU is almost 2 hours away in Forth Worth, TX. If I had suffered complications or one of my babies had to be in the NICU as long as Kayleigh, I don't know what we would do. We would have to continue working to support our family and I know it would be exhausting to make a 2 hour drive every day back and forth. I don't know what kind of supports are in place for families to stay close by their babies, but I would guess it's hard to find someplace to stay for nearly 11 months. Maybe something similar to the Ronad McDonald house but only for NICU or PICU parents?

God Bless you and please continue to keep us updated. I love hearing how you are doing. Kayleigh changed my life for sure.

-Amy

Anonymous said...

Thank you for the update! I have been thinking about you guys a lot. I will pray that God continues to guide you as you seek a new direction. God has great things in store for your family! I just know it!
Laura in Portland, Or

Sara said...

It is great to hear from you. It sounds like you all are getting settled into your new living quarters, so that is good!
I look forward to entering this new journey with you! I think about you guys often and pray for you daily. Your positive attitude is contagious!

queenmari said...

you never cease to amaze me. moving is a chore to begin with, and with what you have been through to then have to endure the task of moving is smply amazing. your attitude is great. god bless you.

i an intrigued with your ideas of what to do now. one idea for you would be taking your own experiences of the medical world with kayleigh, and developing a foundation which could, among other things offer a reference program for others. helping parents, in an already stressful situation, find their way through doctors, research, cities to find the best medical care possible, etc. also monies could be used to provide housing for families needing to live closer to the hospital. there are lot of things foudation monies can do and services they can provide.

i am retired from non-profit and most recently the executive director of a program. i don't live any where near you, but in whatever you decide to do, i would like to offer to help with grant writing and anythng else i could do from seattle.
my email is marilroll@comcast.net or you can also find me on facebook.

Unknown said...

So glad to hear from you guys. I have been checking several times a day to see if there were any updates on you all. I would love to send you a gift in memory of Kaleigh, if you could give me an address. If you are not comfortable giving out an address I totally understand. Here is my email address if you would like to contact me thought email.
debsredbirds@yahoo.com
Love you guys

jan kessler said...

Oh Adam I think that is a wonderful idea. An organization to help families that are going through what you and Aimee, Ali,and Bran have gone through. Helping them see how positive they can be through God's strength. To encourage them to take pictures and be a family just like you guys did. That spoke to me and touched my heart so deeply. Mommies and daddys along with siblings need that sensitivity. Let me know what I can do to help get it started and have it become a National Organization. You could start a chapter around the nation, around the world. I will continue to pray. God is so Amazing and so Awesome. He knows our hearts and He can help us to minister to so many families across the world.

I continue to pray for all of you and I see so much that God has done and is going to do through you guys. I am so excited.

Jan

Joanna Davis said...

Hi Adam, great to hear from you. I check often for updates and am glad you all are doing well.

Here is my idea: Every year I buy christmas cards made by children for (i believe) the children's miracle network or even the world wildlife foundation from pier 1 imports. they are so sweet and very "honest", if you know what i mean. i am an art teacher.

wouldn't it be cool to do (on the internet, and i can give you resources to have a "call to artists" requesting artwork from all over the country) child-created christmas cards and sell them at boutiques, stationary stores, etc for a kayleigh anne foundation, or for a NICU foundation, or something like that? i think i pay $15.99 for 10 cards, and i do it every year.

anyways, if you think this might be cool, let me know. you can email me at JLD1983@aol.com and like i said, i have "connections" even as far as printers go....

best of luck with your settling in!
~joanna

Hope said...

Adam and Aimee I would LOVE to help you come up with something (organization, day, whatever) to honor Kayleigh's memory and have her story live on.... Feel free to contact me.....

As for the move..... MOVING SUCKS!!!!! :o) I have done it more times in my life then I care to think about!

Your family is still in my thoughts and prayers!

~Hope
Marlboro, NY

Anonymous said...

Freeman family: Glad to hear you are all getting settled, thanks for posting and keeping everyone updated, we appreciate it! One small idea that my daughters and I did last Christmas (and will continue to do)was contributing to the NICU at Oklahoma City Childrens Hospital where my granddaughter was for two months. My two daughters and myself put our money together (money usually spent on gifts amongst ourselves and family) and made preemie gift bags (we did thirty this past year). We bought items locally and also ordered preemie items. My one daughter (who had a preemie baby recently) put a prayer on one side of the gift tag, and a small message about her daughter on the other side. The bags came out beautiful and were distributed as needed in the NICU and also in the area where moms and babies stay before they come home. Just thought I would write to let you know what we do now for the NICU.

Anonymous said...

I want to say first, that each day, I look into the sky for a pink balloon...if its not there, thats ok, because I know that Tuesday is...My best friend died last year and the thing (0k, we are in our 50's) that she always told me, was look for the pink clouds, thats where she and her father before her will be...Miss her as I know that you miss Tuesday, yet somehow, everything pink is so great now...silly, I know, and I know that a sister-friend does not compare in the least to a child, but comfort comes from strange places. I will continue to support you and your sweet family, and if there is anything that I can do here in CA, just let me know, I will help. I pray that you will find some comfort and peace and that each day you see "pink".

Anonymous said...

I glad yall are in good spirits i think your right to do something like march of dimes

Anonymous said...

God Bless you all!! Thank you for staying positive for your baby girl, your daughter, son, wife, all of us, and of course the good Lord!!! You are awesome!! Thank you for teaching us strength, courage, unconditional love. You are amazingly strong, all of you. I admire you!!

I think that you should make up your own organization in honor of Kayleigh. You have lived through what many more people will have to go through. Maybe you can go off of some things you already have on this site. Info about premature babies and the complications they go through; you could open up a donation site and have people donate money for the families with preemies. Maybe you can follow some local families and help them get through what you did. Feature them on your site. You can sell items...whether donations or a set price....just like you did with the bracelets. The sales can help out with hospital bills, clothes for the babies, baby toys, etc.

I don't know if there is anything that could have been done to save Kayleigh, but I'm sure research towards preventing premature births...helping them stay alive and live normal lives.

God Bless

Kathy

Mama2aMiracle said...

I think the March of Dimes is a wonderful idea! I walk for my son every year (born at 25wks). You can fundraise all year in honor of Kayleigh!

You guys are amazing!

Lori

Anonymous said...

The NICU where our sons Micah and Zephan spent their first weeks and months recently started a "Family Advisory Council". Parent volunteers are working with staff doctors, nurses and social workers to make the NICU better. Our first projects include developing a website for the NICU that will provide families with information, stories, encouragement and connection to one another. We're working on creating a playroom/community room for families who have a child or sibling in the NICU. We're also working on creating a support group or network of some sort.

From what you've told everyone in your blog, there are a few areas your NICU could improve. One of the ones that just broke my heart was that your older kids couldn't be in the NICU. At our hospital, siblings are welcome to visit as long as they are healthy and take the same precautions as adults. I cannot imagine how difficult it was for your children to not be with Kayleigh at all from August through May.

I don't know if it would be possible to get involved in some sort of advisory committee, but that is one way to think about giving back.

I'm training for my first traithlon this year and I've thought about pulling together a team of preemie parents from our hospital next year to do a triathlon and raise money for special projects in our NICU. Things like toys in the playroom, books or other resources for parents, preemie clothes for families who cannot afford them, food for families in the NICU.

Another idea would be to create a scholarship, either for former preemies who go on to college or for med students who want to research neonatology, or for?

We have friends here whose 7 year old was killed when he was hit by a car while riding his bike in front of their house. They created a foundation that puts on a "bike rodeo" every year where thousands of kids learn about bike safety, get free helmets and bike checks. It's not the same as having their son, but what a legacy. And how many lives will be saved through this work.

Anonymous said...

Oh yes, moving can be ... well, let's just say we don't have any desire to move again soon. We just moved in late October and we still have boxes that I need to tackle in our basement (so glad there's a door to the basement!).
Your family remains in our thoughts and prayers.
Off the top of my head, I have a few ideas but I want to think them through before I type them. How do your children want to keep the memory of Kayleigh strong?
Take care and happy "house adjusting".
Terri from Ontario, Canada

Sue said...

Does your families STRENGTH come in a bottle? You guys are strong and unwavering and it blows my mind. I am very spiritual, not religious, and everyday I still pray for you all. It just amazes me your positive attitude and strength. ALWAYS thinking about you guys. Take care.

Bless you all.

Sue

Anonymous said...

It is so good to hear from you guys again!! Glad to hear that you are doing Ok. I know that you must still be dealing with pain and sorrow, but I am glad that Kayleigh's legacy continues and will continue in whatever you figure out to do. Give it time, God will speak to you and come up with a brilliant idea. I hope you continue to update this blog and let us all know how you are doing. I feel like we are family after this past year. God Bless you!

Debby@Just Breathe said...

I haven't even read your post yet. I know that I will be touched beyond words but I have to say that I will stay connected. God gives me signs and when I came to your page my very favorite song started to play and I just started to cry. I will be back and I am so very sorry for your loss.

jlwgator said...

I think starting your own foundation would be wonderful. You could call it the Kayleigh Foundation and make its purpose to benefit premature babies and their parents who are enduring the same hardships you have endured. Doing your own foundation will allow you guys to develop your own by-laws, your own vision & mission, etc, and YOU will decide how the money you raise is spent. It's honorable to want to work an exisiting organization but you will doing so under their terms. It will be a ton of work to get yours off the ground, but you & Aimee are so amazing that you will easily find people who will join your cause and provide some solid financial support as you get started and sustain your journey. It's like "pay it forward"...you can do the exact same thing that so many of your readers have done for you and Kayleigh. Maybe that's what Kayleigh would want you to do...to keep helping other babies, her little friends, some she met, some she hasn't yet, but that could be why Kayleigh was put on this earth. I think it's a segment of our society that many people take for granted...NICU babies are "taken care of" and that's it...or so they think...but the truth & reality is exactly what you have gone through together. Parents don't just need financial assistance, but advice and basically a guide book for how to navigate the system. The Kayleigh Foundation could bring peace and happiness to countless families. (or whatever you want to name it!) I'd love to help. gatorgirl93@yahoo.com

ronansmama said...

I love you all, too, for your true love, strength and hope for Kayleigh, even up in heaven!!! :)

Gina said...

Adam and Aimee,
Thank you for this update. Your attitude to this new journey is amazing. I have no ideas to share, but I am sure that you both are following God's direction. Sending prayers for strength and comfort for your family.
Love from Texas!

Anonymous said...

Freemans, You are definitely meant to do great things! I know you will find your way, and I look forward to following you on the journey. I've missed the blog over the past week, and it was odd not to see a picture of Kayleigh when I came to your new post - gotta get used to that.
All the best to your family, take care of each other.

Jennifer said...

Glad to hear your finaly all moved in. I agree, moving sucks. I've moved more times than I care to count within the past 5yrs. We too have lost a home due to foreclosure... not fun stuff.

Anyway, I think helping a family that is going through what you and Aimee went through is a wonderful idea. A family that is struggling financially, emotionally, and spiritually with the ordeal of a little-one going through such medical hardship. Think of all you have to offer. I'm sure the local hospital where you all spent so many months would be a good start to look. Ask the nurses.
Your hearts are in the right place. God bless you Freemans! God's not ending your beautiful story here.

~AZ Mommy

Justine, Romy's Mama said...

Your strength will forever amaze me! My continued prayers are with you and your wonderful family! Kayleigh has given so much to the world, much more than most can say they've given. God Bless!

Adam and Sherry said...

I am so glad you got moved and settled. I am also glad you found a place of your own to live. I really think your family needs that right now. Have fun findin your "new normal" in life. And through it all don't forget to enjoy every minute.

Anonymous said...

AMAZING! That is all I can say! You all have been such an inspiration and I would love to see you start an organization in Kayleigh's name. I am still squeezing my little ones tighter every night and thanking God at all times because of Kayleigh. Your faith has moved more than mountains.

Ever grateful for your story! May Kayleigh continue to touch others as she has touched me.

Tammy Ricard said...

You guys are Amazing people,
Love you all

savvy squirrel said...

I have been reading your blog for a few weeks now. Thanks to Cheaper by the dozen blog. Your story & and strength have really touched me. You are a great writer. You should write a book. God has given you a great talent. I know you are going to affect many peoples lives! My prayers are with you in your difficult transition. :)

Wendy said...

thank you! i needed to see that you were doing ok! God continues to use you to inspire others!

TheSooner7 said...

Thinking of you and your family today :)

Anonymous said...

Continued prayers are with you and your family. I am still utterly amazed with your strength, faith, and positive attitude while faced with so many challenges - I can certainly see where your beautiful Kayleigh got her incredible strength!! God definitely is holding you! He will remain ever faithful through all your days, no matter how dark they seem! Love to all of you!

Lisa Daniel said...

Adam and Aimee I pray God will help heal you and your family. Sounds like you are headed in a new possitive direction. Kayleigh would want you to be happy! Just like you were before she was born. She blessed you! So always remember to be happy just like you know Kayleigh would want her mom and dad to be. You all did everything RIGHT! Made the best decissions possible and all of your kids are blessed to have such terrific strong loving parents!

Anonymous said...

Just popping by because I am thinking of Kayleigh...

Bridget said...

You continue to inspire! Thanks for the update. Moving is absolutely horrible, but doesn't it feel kinda great to get rid of the clutter? As far as opinions on what to do next, here's my $0.02- - Smother Brandon and Allyson with tons of attention and love. Then do the same for each other. You have been through such a rollercoaster ride of life, perhaps it's "time" to breathe, play and simply pray. I'm sure your next step with present itself when the time is right.

With love & prayers,
Bridget in IL

Full of Grace said...

Have a Good Move! :)

Anonymous said...

I think the "Kayleigh Freeman Memorial Foundation" is a great idea! Maybe more of a family focus. Such as on the siblings of the ill little patients or families like yourselves that were overwhelmed with the choice of keeping a home or paying the high cost of medical insurance. This happens too often in the country and I really feel you could help by providing a resource for those who are in desperate need of help. You have kept your family together but not without struggle. Some people are not so lucky and have no place to turn. Often the siblings have no place to turn with Mom and Dad so worried with the financial and physical needs of the tiny patient the spiritual and psycological needs of the other children are not addressed and I think you are the ones who handled this very well. I just feel that you have a wonderful love of God and family that you need to share with others and a big organization such as the March of Dimes is not personal enough for your style. Beth

Andrea said...

So happy to see you back! I will continue to follow you and see what the future holds! God Bless you all!

Michelle said...

I've followed your blog for a few months now. I am so sorry to hear of your loss. We also lost our tiny son, about 2 years ago. Kayleigh was truly a miracle, and I am happy that you were able to have as much time with her as you did. One thing someone suggested to me after we lost our little boy was to choose a stuffed animal to represent your baby in your future family pictures. I thought that was a nice way of always remembering that your family is bigger than it appears to those who don't know what you have been through. The time right after your loss is so hard. Do know that it does get better. It takes time, and you will never forget, but the pain will diminish over time. Thank you for sharing your story and your faith. You have given many people hope through your journey.

Anonymous said...

Adam,
I completely agree with Jackie Metcalf when she said
”Maybe you could start your own non profit organization in honor of Kayleigh. Maybe use whatever money to help families when they are going through the same thing. You would know exactly what they need. Whether it be money for food, a place to stay, gas cards for back and forth to the hospital. I feel that you could do more with your own organization. I guess I feel it would be something you could personally give back.” I would also take this one step further. I would say also that you can post on your blogg info about the family that you are helping so that we can all pray for them. Then when they come through the journey with the NICU they will have to help give back to the cause by contributing and blessing someone else. It’s like paying it forward. What an awesome testament of how God uses his people to bless others in their time of Sorrow offering them HOPE (Love of GOD)

May God continue to bless you and stegnth your family.

Nia McWhorter

Anonymous said...

Just wanted to send my love and write that the commenter :jlwgator could not have said it any better ...i agree completely

Anonymous said...

I found your blog today. I can't even begin to tell you how much your beautiful little girl has affected me already, after one day. My twins were born at 28 weeks and your story reminds me how very lucky we are to have such healthy and happy babies. My heart goes out to you. Your beautiful little Kayleigh has touched me so many lives and I'll hold a special place in my heart for your whole family.

I will continue to follow your blog and I look forward to seeing how you honor the memory of your precious little girl.

Anonymous said...

First, thanks so much for sharing Kayleigh's story. It has blessed so many lives! I agree that your own foundation may be the best way to go; you may lose some potential donors if you go with the March of Dimes as they are under a pro-life boycott. (Google it for more info.) Just continue to let God lead you and GOOD will come of your plan!
Blessings,
Becca in Iowa

cancersucks said...

God bless you guys...thinking of you! It looks like you have settled nicely into your new home and were able to remember Kayleigh with lots of love on her birth day. I'm sure it must have been difficult. Take care.