Kayleigh had another uneventful day filled with peaceful sleeping such as you see above. The swelling has not increased anymore over night, which is good news towards getting closer to bringing her home. They need to transfer her hypertension medication over before they can send her home, which they will begin to do on Monday. Pray she tolerates the new medication so she can come home soon.
Right now, she is up on her feeds and tolerating it well. She is rarely ever showing signs of irritation and her heavy breathing comes on every now and then. We are not sure what the cause of that is, but since she has never done it before, we can only relate it to her brain injury.
Our goal right now is to pray the swelling in her brain does not take her from us before we can bring her home to her beautiful room. We have prayed many prayers for this day, and even though her situation was not what we expected, we still can't wait to walk her out of those hospital doors, out in to the sunlight and make that glorious journey to our home.
Please continue to pray that our dreams come true and may her time here on earth ends with us at home and not in the hospital. May God bless us with this wish, even though His plans for Kayleigh may be different in the near future.
We thank you all again SO MUCH for your prayers and support. You have all been so wonderful to us and we can't thank you enough. I have read almost every email that has come in, but unfortunately will not be able to respond to everyone. Please know that your emails and comments keep us strong and help us through these difficult days.
God Bless,
258 comments:
«Oldest ‹Older 201 – 258 of 258You are in my prayers!!!!
Kayleigh is so beutiful sleeping peacefully. I am praying for the day you can bring home your beautiful, sweet daughter.
I just wanted to add my prayers for little Layleigh! I saw your blog on Lilly's life and I just had to say a prayer for your little angel! God bless you all.
Since my own son's accident, I am a big believer in God's grace and the power of universal prayer!
I'm going to follow Kayleigh's and your blog!
I have been following your blog a lot these days! I will continue to pray and hope she'll be home with you soon. I also have a Kayleigh, I think that's how I found your blog. You faith is amazing and its really made me thank god for all I have!
God bless you!!
Your story has touched my heart in so many ways, and it amazes me that God allows such tragedy to minister to perfect strangers all over the world. Your family is in my heart and in my prayers. I pray that the Lord allows you to bring your precious baby girl home, to the room you have prepared for her. I pray that God continues to strengthen you and comfort you through the ups and downs of this situation, and that sweet little Kayleigh would feel your love, support and comfort with every breath she takes. May God bless you and give you peace today, knowing that He is in control, and has wrapped his arms around your whole family.
Oh my goodness you guys .. I have followed your blog for so long, but don't comment often..
I think about your daily, and you're both in my heart today for sure. Kayleigh is very lucky, you know, to have such wonderful parents as you both. I pray for you that you get to bring your daughter home to her room before too long. (((Hugs))) in such a difficult time...
Sarah (Montreal)
p.s .. it's hard for me to fathom thinking about the mundane irritants in my daily life when you guys are dealing with such a huge thing .. you put things in persective for me. I'm so sad this has to be this way for you and your Kayleigh. Stay strong for her!
God's creations are absolutely beautiful. Look at her!!!!! Kayleigh and your plans for her and your family are in our prayers every morning.
God bless you all.
My heat hurts for all you are going through, but you have shown great faith and strength.
So many people love her who you will never probably know.
I will keep you in my prayers and know that so many people have their hearts with you.
Continuously praying for your beautiful baby Kayleigh for strength and peace for your family and that you can bring her home !!!!
You are constantly in my heart and prayers. Praying that you are able to bring her home soon!
She is so beautiful sleeping so peacefully! We are keeping your family in our prayers that you get to bring sweet Kayleigh home soon!!
She is just so precious. I am Praying for your wish to bring her home to come true and to come true quickly. Kayleigh definately had earned her right to go home with her family and to see her home, room and family in a different environment.
Love & Prayers,
Rachel
She is so absolutely beautiful!Many prayers that she will coming home to her own bedroom very soon. Also, praying miracles are still to be worked. xoxo to Miss Kayleigh.
Everything I do now, I do better because of Kayleigh.
Praying for you-
Adam and Aimee;
I was just wondering if you got enough money to save your house or if they gave you more time?
Kayleigh is so beautiful! You both have been blessed with such a strong family. I know your so proud!
Send love and Prayers!
Shelby
This is the first note that I'm leaving. I happened across yours on the community widget on my page, it was on there promoting your blog. From one preemie parent to another (my 7 year old was 1lb 12oz and my 2 year old was 3lbs 4oz at birth) ...
NEVER LOSE HOPE .. NEVER STOP PRAYING
We were given a TY Beanie Baby when my 7 year old was about to come, I was told he would not live through the pregnancy, he would die - if he didn't die before or at birth, he would pass in the hospital, and if that didn't happen he would have such a horrible life because he would be so mentally and physically delayed "it wouldn't be worth it" (that's what they said) ...
I hung onto HOPE, and that bear went with us to the hospital, because looking at that little brown kneeling bear, I realized when I hoped up the tag, her name was HOPE. So Hope went with us.
Today, my 7 year old, the one who wasn't suppose to live, or be healthy... is a healthy physically able, smart little boy. You wouldn't know anything was wrong looking at him, not unless I told you his story.
Keep your Faith, and just treasure every moment you have with her. We'll all pray for a lifetime of those moments.
I love little Miss Kayleigh as if she were a part of my family. I pray and pray for a miracle to heal sweet baby K. (not that she isnt a miracle already herself-sweet baby-).I also pray for the healing of your hearts and of everyone who has grown to love you and your family. I've laughed with you, cried with you, and prayed with you over the course of your wonderful 10 months with your sweet little girl. I pray for more months to come and the healing of god to come over you and your family in the time of need. We love you!
Kayleigh is so beautiful. You all have such amazing strength, Kayleigh defiently gets that from both of you. I hope that you get your dream and that Kayleigh will get to come home very soon.
Sending lots of love and prayers your way!!!
Your daughter is so precious. Praying for you today ~ for strength that can only be possible through our Lord Jesus.
9PM your local time, light a candle and pray for Kayleigh Ann Freeman!
Wherever you are in the world, let's all light a candle and pray for Kayleigh to feel better enough to go home shortly and spend time with her family.
We were just stopping by for updates.. Love you all God Bless!!!
I just heard the story about your sweet little girl yesterday. Your sweet baby has touched my heart! I will continue to pray for her and your family! "With God all things are possible" Matt.19:26
God Bless you all!!
The Sims Family
Praying everyday for a miracle! Spreading the word so other will too.
-Texas
Just wanted to tell you that I am praying for yall and I am thankful for you and your blog.
Praying you get to take her home. Soon.
Precious family - I am praying for you daily. I sense that you both hae such a real relationship with Christ and I pray that He continue to strengthen and minister to you both in ways that only He can. He is mighty and powerful and He is the one who holds us in the palms of His hands.
May He carry you through this time and may His will be done.
Beth
I have been keeping up with your blog and praying for little Kayleigh and your family. Today I placed my hand on her beautiful face and prayed for a miracle for this precious child. I pray for peace and comfort within your hearts, for restful sleep for your body & mind and I hope you truly feel our arms of love around you.
Much love and hugs from SE Alabama
My heart is breaking with you right now! I have been following with you for months now, And I can't stop crying. Thinking that this beautiful miracle who has touched SO many lives might not be here to see all the lives she's changed...its heartbreaking! I dont know if you've exhausted all options and I have no idea exaclty about her condition, but my best friends son had a seizure a few months back and the lack of oxygen to his brain left him with autsim(or so they believe) Next week they will be putting him in a hyperbaric chamber to try to get the ozygen back into the brain and see if his brain waves pick up where they used to be. I have no idea if it will work or if kayleigh could do it, but m aybe ask your dr?? I'm praying for a miracle right now. I want to read a post of you guys telling me she "woke Up" and smiled and cooed at you like before. Im praying so so hard for that.
Blessings to you ALL.
Love always,
Cassie Eaby, Las vegas, NV
Any new updates? I hope everything's okay......still praying and thinking of you guys!!!
She is such a pretty baby
I came accross your blog while watching a friends. Your little girl is amazing. I also have a 23 1 lb preemie. She is 3 now and doing well. She has heart and eyes issues as well but it the light of my life. We will keep your little one in our prayers.
PRAYING for you all!
You have probably done this somewhere along the way recently. But I love the picture you use as your button with the wedding ring on her wrist. Have you gotten a picture recently of that same wedding ring in relation to how big her hand is now?
It would be a good example of how she has grown.
Keep thinking of you all and praying for you. Praying you will get to bring her home soon to her own room.
Just stopping by again to say was thinking of Kayleigh and your family.
Praying for answered prayers for you to take Kayleigh home soon.
Adam and Aimee, I'm thinking of you and praying for you daily. Hang in there and praise God in this storm. I just know that God is going to let you bring sweet Kayleigh home soon! Lean on each other! God Bless!
Dear Lord, please allow Kayleigh's family to bring her home to her room where she so much deserves to be. Please honor their request they so much deserve. Kayleigh is truly a beautiful ANGEL. Prayers continued in Montana.
She looks so beautiful sleeping that way. I'm no medical expert but I'v been thinking about kayleigh a lot today. Babies brains are still growing and even though Dr. Brain has not given much hope of a recovery, maybe, just maybe there is a little spark left in her tiny brain that will grow and develop, even though it doesn't show on the tests. I firmly believe medicine only goes so far, the rest is up to God.
Something else I stumbled upon, was a very interesting article by a neonatologist on the term "brain death". I believe his name was Dr. Byrne, but he more or less disagrees with the entire term because it implies that a person that still has a heartbeat but no brain function is somehow less of a person, and you can tell from looking at little Kayleigh that she is still very much a person full of life! Don't give up hope!
I'll be lighting a prayer candle tonight at 9:00pm and saying a prayer for Kayleigh's healing.
I keep hoping and praying that all this peaceful sleeping she's doing is helping her to recover.
O Jesus!! have mercy on that poor little baby!! I cant hold my tears when I think of Kayleigh.I wish she gets better and healthy.
God bless her
Shes so adorable!! i check for updates everyday when im online!!
no update yet today i sure hope everything is ok!!
First of thank you so much for being the definition of strength! Your story and gorgeous baby girl Kayliegh has touched my entire family. My three children wake up every morning and just as if Kayleigh is part of our family they ask if we can check to "make sure she is ok". You family has touched our hearts and we pray for Her and your entire family!
Freeman's:
I know you have a lot going on but I haven't seen an update today and was kinda getting worried. Is everything ok with the princess today and your family? Much love and prayers being sent your way.
It's been quite some time since I've been by to check on how you are doing and I was quite devastated to see on 5 Minutes for Mom about Kayleigh's current prognosis. You guys are in my thoughts everyday because I see your beautiful badge that I put on my site. I pray that you find peace and comfort, and that baby Kayleigh will go home with you soon.
Someone left a link on your FB of hope, a story similar to Kayleigh's, please check it out.
I am praying for you and hope there is no update b/c your spending quality time as a family :)
The McGuire Family
Here's the link of that AWESOME story of hope. I copied it and pasted it from your facebook page.
http://www.babiesonline.com/babies/m/miraclemegan/
I'm still praying! She is such a beautiful girl and looks so peaceful. It makes me want to reach through the picture and hug her. I wish we could all personally meet her but since we can't I thank you for sharing her story with us. We are changed because of her. God's not done, yet.
I just read this news for the first time tonight. I'm in shock. I know you are getting hundreds of comments, so I will keep this short.
I lost my precious Noah at the age of 9 mos in 1998. I relate to every single emotion you express here. I would be honored to talk with you any time, day or night as you move through this storm. Sometimes it just helps to talk to someone who fully understands.
And this is no way a plug for my blog...but I'm currently posting about all the ways God spoke to me through our loss. It's not simply recounting the details, but an offer of real hope to those who are suffering loss. Especially the loss of a child. It's my series "God Speaks Through the Storm." You'll find the button and links to the posts on my sidebar.
No pressure...just wanted you to know it was there.
And you can e-mail me and I'll give you my number if you want it.
I'm so very sorry. Until I hear differently, I will stand in agreement with you for a complete healing.
In Jesus' Name,
Sandy Cooper
Please know that you are all in my thoughts and prayers. Blessings to all of you and thanks so much for taking the time to update.
im in love with this girl!
We are praying for you. I'm so glad your faith continues to hold you up. Thankful for eternity, and the hope and joy that knowing we all will be together, never to be parted again, never to shed tears, never to hurt.
So grateful for the days you do have with Kayleigh, and pray that God's presence will always be felt by you all, and his Spirit comforts you.
Big Hugs for all of you.
God Bless,
Calvin and Rebecca Gould/clavingould@att.net
Kayleigh's due date was my son's actual birthday...i cannot imagine how hard it has been for you and your family to have gone through what you have in the past 10 months. I have been following her story for about 6 months now and i have cried and prayed for her many times now and i will continue to....i am praying that she is able to come home soon and lay in her crib as a baby should....it all makes me appreciate my children even more and be thankful they are able to crawl and walk and laugh and one day worship the Lord. Kayleigh is truly an Angel
Your welcome...continue prayers.
Just wanted to let you know that we are praying for your little girl. She is extremely strong and I hope she will once again pull through. She is a true fighter. I hope God will heal her, so that your dream of bringing her home will come true.
Keep believing and know that we are all praying for your family.
God Bless
I just found your blog tonight via My Charming Kids. My heart is breaking for you! I write this with tears streaming down my face!!! I have a baby boy who will turn one on Thursday and I realized after reading your story how I have sometimes taken his health for granted. Your daughter, your family and your faith are an inspiration! I chose to make a donation instead of buying my child another toy that he DOESN'T need for his birthday. It's not much but I couldn't have slept tonight without doing something. When I pray tonight please know that I will be lifting your family up!
You have a beautiful family!! Still praying for a miracle!
Oh My, What a precious sweet little girl. My prayers are with your beautiful family,and God willing your wish of bringing Kayleigh home comes true.
God bless
Tonniece
Hy my name is Anni From germany
my english is not so good.
the littel girl is so sweet and dinky.
i wish her good luck
I'm praying for you that god allows you to bring your beautiful daughter home, that he continues performing miracles. Your little girl and your entire family have been an inspiration to me, especially during the 3+ months my son spent in the hospital recently. God bless your entire family!
Cindie
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