5/6/09 - "Your Love Is So Amazing"





Isn't that just amazing? Kayleigh is now weighing just over 11 pounds. Can you believe that??? It is wild to think that she is 11 times her birth weight.

I know there are a lot of questions coming in and with all the posts that have been submitted in the past 10+ months, I am sure it will be hard to go back and get an clear understanding of everything that is going on. The summary above on the title helps clear her journey up, but I would like to break it down a little more. So, for those who are just joining us or those who have gotten dizzy on our ravaging roller coaster and and need a quick refresher on what is going on with Kayleigh, here we go:

Kayleigh was born 6/23/08 weighing 1 pound - 1 ounce (470 grams to be exact). She was 10.5 inches long. If you get a ruler and try to get an understanding of how small this miracle was, you will literally crap your pants be amazed!!

Just to sum up Kayleigh's 10 month roller coaster ride quickly for you:

Surgeries:

ROP Stage 3 - Eye Surgery
Gastrointestinal Surgery - Bowels
VSD Repair Surgery - Open Heart
Tracheostomy Surgery - Airways
G-tube Surgery - Feeding Tube
Nissen Surgery - Stomach
Bilateral Hernia Repair Surgery - Groin

Procedure:

10+ Blood Transfusions
Skin Biopsy - Chromosomal Studies
Rectal Biopsy - Hirschsprungs Disease
Intestinal Biopsy - motility
Heart Catherization - Pulmonary pressures
(3) Central Line placements
Pepcin Test - aspirations
Impedence Study - reflux
(2) Upper Gastrointestinal Studies - motility
(2) Lower Gastrointestinal Studies - motility
15+ PCVC Line Placements - long term IV's
10+ Blood Culture Tests - for infections
200+ Blood Gas Tests - Pin pricks to her toes (and I'm probably well below my guesstimate)
I am sure I am missing many other things.

So, now that you have seen what she has been through in a short period, it kills me to say that after this final surgery, she was supposed to be coming home. Coming home perfect that is. But, something happened in this final surgery which caused Kayleigh to not get enough blood and/or oxygen to her brain causing her Cerebral Cortex to be damaged and considered flat, no waves, not working, or no activity.

Kayleigh's brain stem still functions, allowing her heart to work, breath and have reactive movements (nothing purposeful). After many many hours of praying, her injured brain is now deteriorating and can not repair itself without a miracle. We went from riding up and down on this NICU roller coaster, to becoming the wheels, going round and round with our emotions in a complete whirlwind.

We now have goals to bring Kayleigh home to live out her remainder time right where we prayed she would make it from the beginning. The great news is, we are close to that prayer being answered, but Kayleigh will mind be enjoying that moment in another place. The rest of her body may be working fine here, but we believe her mind is working perfectly up there in Heaven.

From day one when the doctors didn't believe Kayleigh would survive the pregnancy, our prayer warriors have been behind us and miracles occurred. When Kayleigh went through every devastating and intense surgery, our prayer warriors were still behind us and Kayleigh pulled through the unthinkable. Right now, our prayer warriors are praying for another miracle from God, and we will never give up until God decides to show us His plan. If that plan brings Kayleigh home to the Lord and to a much better place, our prayer warriors will rejoice in one amazing journey for one beautiful little girl.

Kayleigh is our one pound blessing from God and she is nothing short of His beauty, strength and love. We are all better people for have knowing Kayleigh and we will be sure to share her story forever so others can be touched so deeply like all of us.

"God, Thank you for blessing us with Kayleigh and ALL of our old, new and future friends here through Kayleigh's journey. May we continue to find faith, hope and love through your works. We may not see your reasons sometimes, but we trust you with all of our hearts. We thank you for holding our hands through all of this and allowing us to use/sacrifice things in our lives to help others. We pray that everyone reading this will see that You (God) will not give us anything that we can't handle and no matter what other trials and tribulations people may be going through, we pray they will trust in your reasons and find peace in knowing your love is so amazing!!!"

201 comments:

1 – 200 of 201   Newer›   Newest»
Mandy said...

I will continue to keep your family in my prayers.

Melody said...

Tonight my 4 year old daughter prayed "God please keep Your heewing (healing lol) hand on baby Kayleigh."
Our entire family has been praying for Kayleigh CONSTANTLY and we will not stop praying for a miracle. She has become so very special to us and look forward to your posts and pictures every day. You guys are in our prayers as well, as I'm sure this is the ABSOLUTE hardest thing you've ever faced, and ever will. ((hugs))

Laura Gilmour said...
This comment has been removed by the author.
Mama Notes said...

still praying!

Kris said...

Our family will be praying for you.

Jen said...

Your family is beautiful. I have been following your journey and praying with your family since I came across your blog. I wish only Gods will for Kaliegh. Your family is strong. God Bless you all as you continue this journey as a family

Kelly said...

You know Kayleigh's Kentucky Prayer Warrior has been behind you all 100% since I started following and will continue to be behind your family forever!! Even though we don't know each other personally your names are on my lips and your faces are on my mind all day. I talk about your rollar coaster journey, just as much as I talk about my daily doings. I brag on Kayleigh's ups, and fall apart at her lows. I love you all soooo much. I am praying for that miracle, For Through Him ALL THINGS ARE POSSIBLE!

Joanne said...

Reading your summary and all Kayleigh has been through it's still hard to fathom. She truly is a blessing from God as you say. I can tell you that reading her story and all you have been through has brought me closer to the Lord. We know that all things are possible with Him and I am continuing to pray for a miracle for this dear girl who has so profoundly affected so many lives for the good.
Your faith is inspiring.

Crysgoss said...

Praying every chance I can for a miracle! What an amazing little girl and family! Sending many prayers and lots of love from Texas!

Breanna said...

WOW what a difference. She truly is amazing. Im praying for you and your family.

I hope she is able to go home soon and see her beautiful room and enjoy being a complete family at home.

xoxo

Amanda said...

I'm just tuning in and I'm already overly blessed by your family's faith in God to perform a miracle and it brought me to tears reading the struggles and blessings yall have gone through. Know you have yet another prayer warrior praying daily for your family and Kayleigh. I know God is the ultimate healer whether it's healing Kayleigh or healing a broken heart. Yall will be in my prayers and I will definitely pass this story on to some other prayer warriors.

Barbara said...

Dearest Aimee and Adam, We will keep crying out to our loving Father for baby Kayleigh's complete healing and for her to be able to go home with you !!!
Kayleigh is greatly loved and blessed, of the Lord !!!!!
And she is loved so deeply by her precious family and by all of us !!!!
With All My Love to Each of You, Barbara and Family
Psalm 91

Lacy's Family said...

Beautiful words. Amazing strength and faith. Praying for princess Kayleigh always.

Anonymous said...

Adam, Aimee, Allyson, Brandon and extended family,

Your lives are forever changed because of Kayleigh, your one pound blessing from God!!

God is so amazing and so is Kayleigh!

Continuing to pray for all of you.

Janet said...

This is the first time I have read your blog and my heart goes out to all of you. My thoughts and prayers are with you all the way from South Africa. x

Suzan said...

We have followed Kayleigh's journey since before she was born and I wholeheartedly agree that we are better people for having known the sweet little miracle that is Kayleigh.

We pray that your are able to bring Kayleigh home soon and look forward to sharing her life outside of the doors of the NICU with you.

Thank you for sharing your miracle with us all!

God Bless!

Cherilynn from British Columbia said...

Amen!

I am still praying for miracles! God bless you all!

- Cherilynn

wicker0407 said...

I think about Kayleigh all through my day just as often as my own kids. I feel like she is one of my own. She has made my day many times and my heart has broken many times as well. I am praying for God to lay his healing hands upon her tiny body. She has overcome so much and is such a strong little girl. I will continue to pray for her and your family she is a true blessing from God.
Much Love, Summer and Family in California

Ashley and Gary Millward said...

Your story has touched our family and hearts. We are newer to your story, and thankful for the list you have created for us. We too have a preemie that has endured a little over half of kayleigh's battle so far. You have a very beautiful little blessing for God. We are praying when the time comes for her to return to our Father in Heaven that you will have comfort and peace, that you will live on through her legacy and continue to share her story. You have been given such a powerful little girl. One who has brought many people together. Email us if you ever need another preemie parent to vent to. You are in our prayers.

margaret said...

Your strength and faith in God are amazing and a wonderful example of love. My son died six months ago and I am struggling with my relationship with God everyday. I wish I had your faith. You are a beautiful family and I wish with all my heart that God listens to your prayers and that Kayleigh gets to come home. Sending you hugs from BC. Canada.

noahandlylasmommi said...

praying for your family.

Anonymous said...

I am speechless at how amazing your words are! Kayleigh has touched thousands of people. She is one LUCKY girl to have loving parents who are so strong in their faith. I continue to pray for a miracle.
Love, Macy in Nevada

Jennifer in Seattle said...

Dear Aimee, Adam & Family,

Thank you again for sharing precious Kayleigh with all of us. There is not a day that goes by that we don't think of her and pray for you all. I am a better person because of her - it is obvious that she has touched/changed many lives. I hold my baby a little tighter now. Again, hang in there and I pray that God continues to comfort you. Kayleigh is an angel here on earth - praise the Lord for her!! We love you Kayleigh :)

The Lindsay Family
Kenmore, WA

Pattybee said...

Faith, Love, Courage, Inspiration = Kayleigh Anne Freeman and family. The realities that your family has dealt with for all of these months, has changed and influenced the lives of so many around the world in such a positive way. I hope and pray that your dream to bring Kayleigh home, to be with her loving family, will happen. You are all in my prayers.

gramma Tricia McNall said...

Thank you for sharing your family with me, and the great faith that is seeing you through even though I know it is because of Him. The pictures, oh! what do I say BUT how beautiful they are. I am sill praying and agreeing with you that Our Jesus, still can work one more miracle. With God all things are possible and He has done so many impossibles according to the worlds standards. I think of the book 'When Heaven Invades Earth' by Bill Johnson and I pray into heaven and ask My Jesus to give you the desire of your hearts. Thank you for finding the time and strengh to share with the world you are all loved. The negative words that come throw them over your shoulder and tell that enemy where he can go.

Stephanie said...

This story brought tears to my eyes. I called my husband over to read this post and his eyes teared up too. I can't imagine what you must be going through. I just sent a prayer up for you guys. I didn't know quite what to pray for so I prayed for peace and strength.

thegilbreathfam said...

Continuing to pray for your tiny miracle. You and your family certainly have touched so many peoples lives. Your strength and love of the Lord is amazing and evident. Thank you.

The Yorkshire Rambler said...

You and your family are in my prayers

miss~nance said...

I have been following your blog and praying for your precious Kayleigh for a few eeks now, this is my fist time posting. I will continue to pray that your precious little one will soon come home to be with her family and that you will continue toknow God's presence and peace.

Gail
NSW
Australia

Anonymous said...

I came across your story just tonight and after hours of reading I have read your complete journey. I am amazed with your stenght as a married couple and as a family. Your faith inspires me and your story make me both weep and smile. Kayleigh has been a miracle from the very beginning and her purpose in life will play for years.
On the very worst day imaginable, God is still God, and God is good. When everything in the world falls apart, He is still good. While we may want to understand, he is God and we are not. God gave you the best blessing he could, even if that blessing is only for a short time. Kayleigh has been loved more in one year than many children are loved in a lifetime.
I pray for you.

Candice said...

Little Kayleigh is so beautiful. I'm sorry she's had such a rough journey. I will keep your family in my prayers.

The McGuire Family said...

We are still praying for a miracle, even if that miracle is just coming home. I truly pray for more than just coming home, but her being able to enjoy both mentally and physically the blessings of her wonderful family. We know that utimately God knows best, and as long as we do His will, we are glorifying Him. I believe that God will take Kayleigh when it is her time to go, whether it be sooner or later, only God knows. There are several incidents of situations where there is recovery, and if God chooses this, that would be awesome. If He does not, we have to trust Him, for He knows best. We love you and are praying for you each and every day! May God bless your family. I pray He gives you the strength to follow any path he takes you on. You are an awesome family, and Kayleigh is blessed to have you as her loving parents (and siblings). We love you!

Wendy Glosser said...

With tears running down my face, THANK YOU for still praising our amazing Lord. What a testimony you are and it matters! Praying for you!

MissingLandan said...

Wow, I can't believe those are her little hands & feet, she's grown so much! I still have sweet Kayleigh in my prayers nightly!

-Lacey-
http://missinglandan0306.blogspot.com/

Tony and Leslie and Family said...

Preemies may be oh so fragile and tiny, but they are the strongest little souls I have ever seen. I was and am in awe of my tiny little triplet miracles (they are 18 now). I had never before seen something so little FIGHT so HARD just to BE. May God, continue to be by your side and bless your little family.

Jody and Scarlett said...

I have been following your story since the beginning, and have cried many times when it didn't look like Kayleigh was going to make it.... and then she would defy the odds. I refuse to give up hope and I will keep praying everyday for another miracle.

Kate's Mommy said...

"We are all better people for have knowing Kayleigh..."

That statement is 500% true!

Still praying for the miracle that is Kayleigh Anne Freeman!

Mel's Momma said...

I just started reading your blog the other day...and o my gosh you are one strong family! I couldn't even imagine the caos in your life. I am praying for your family everyday!

mommy to lilike (lily) locke and anjeni-katalin said...

Kayleigh is gorgeous :) Id make every moment special with her, cuddles and kisses, sweet words whispered in her ear each day. time with loved ones, dressing her in beautiful princess clothes, infant tutus/dresses and infant headbands

DianeTaylor said...

I have been following your blog for about a m onth now - every post I read, I have to run to the ladies room and wipe my eyes :( Thank you for taking us with you on this journey through Kayleigh's life - it has already made a huge change in me in such a short amount of time. God is truly working his love and faith thru her and reaching out to all of us. God bless you - and Kayleigh? Send your mom and dad and siblings a sign that you are doing ok :)

From Diane and Dave in Baltimore MD

hjg said...

Beautiful words, beautiful, baby, beautiful family! Prayers, hugs, and love!

4 Lettre Words said...

Kayleigh is a blessing, and YOU are too, Adam. This journey continues to be amazing to all of us.

Thank you!!

Renata said...

Still praying for you guys! Praying that God will honor your wishes! You have amazing faith!

Anonymous said...

Thank you Freemans for giving so much of yourselves. God bless you perfect little Kayleigh.

Holly said...

Your little girl is truly an amazing miracle! Just absolutely amazing!

Anonymous said...

Continuing to pray for this amazing blessing from God. Kayleigh is just amazing. Praying that another miricule is done if it be Gods will.

Anonymous said...

Your family is very precious and adorable. I pray that God continues to carry you through the rough days and gives Kayleigh one more miracle.

The Pirsein Family said...

Absolutely a miracle from above. She has fought many battles and won and I'm still hoping for a miracle for Kayleigh to be healed. May God grant you the strength to pull through these hard times. Miracles do happen and Kayleigh is definitely proof of that! God Bless. Many hugs to your family.

The Carpenters said...

Wow...we're getting spoiled with posts! Yay, us! :)
Thanks for summing everything up. There's a LOT to remember with sweet Kayleigh. I don't know how you guys do it. This just reiterates what all she's been through, and just how STRONG God decided to make her.
Still praying for a miracle.

Anonymous said...

Adam- Thanks for the "recap". It's amazing what this little sweetie has been through. I'll tell you one thing... as long as I live, the image of Kayleigh's wrist encircled in your wedding band WILL remain me with me FOREVER. I can't tell you how many times I've actually taken my wedding ring off and tried to image a sweet, perfect, little baby arm slipping through and that is what really gives me a perspective on how TINY she really was. Maybe next you can take a picture of your wedding band by her little, precious wrist.

She's amazing....she really is...just like the song says.

Continued prayers for Sweet Kayleigh to come home!

April said...

God Bless they are such a miricle! Your stregnth and courage in what you have gone threw is inspiring :) The fact that you keep a possitive outlook is awesome, I pray for your little girl all the time! Hugs!!!

Kemp and Remis mommy said...

God bless your beautiful family... May God let you take your beautiful strong, baby girl home to be in her room, house, enviroment out of NICU for the first time... shes such a fighter and an inspiration to all... god love you all, still deep in my prayers

Christy said...

Praying your requests, holding you tightly. My heart aches for your family as I know so well the trust it takes to let your child go to Jesus, I did so 9 years ago this coming Friday (May 8).

Sending you prayers.

Debbie said...

Rejoicing in the little blessings of seeing her growth,

Continuing to pray for her healing and for her to come home.

Dina said...

Kayleigh has gone through more in this short amount of time than people will go through their entire lives. I pray all day and all night for another miracle.

Do me a favor - give Kayleigh a big hug and kiss from ALL OF US that love her and pray for her!

Stay strong...

MOMof3inVA said...

I don't believe I have ever asked God, our Father, for anything as much as I have asked him to once again lay his healing Hands on Katleigh. Please know that I hold my children closer and appreciate the blessings from God in my life today more than I ever have in my life because of Kayleigh. Your little girl has brought so much light into my life. Thank you so much for sharing your journey with us and I will continue praying for a miracle...Your faith touches me and I truly believe all things are possible through God...we love you all!

Misty Rice said...

Im such a visual person and these images.... WOW. Amazing. God is SO good no matter what. I know.

I pray for Kayleigh all the time and will not stop. Because even when we have doubt and we go with what the doctors tell us, I still have faith and hope in a very big God. HE may or may not answer the thousands that pray in Kayleighs name, but in truth HE can and just may.

You said you prayed for that after this last surgery Kayleigh to come home, PERFECTLY NORMAL. When I read those words before reading any further.... it hit me that she is STILL a huge miracle. If she goes HOME (her real home in heaven) that is a answered prayer, because in heaven can anyone only be perfect then. Although, we know what you meant and so does God, but at the end if this is His will it will still be an answered prayer and miracle. Because she will have no more suffering, no more surgeries and she will be PERFECT in every way at home.

I still argue the fact is this a medical error and I get upset..... but regardless if it was a medial error or not, if God allows for it to happen, then it still is His will. I didn't really get that until now.

I had a dream last night that I lost my son and he is 8 years old. I woke up not able to breath with a headache because I had been crying so so so hard in my dream that I must have been actually holding my breath. It was devastating. I can't even begin to imagine how you as her parents really feel and my heart aches and aches and aches over this.

You are all a beautiful family in and out and GODS name and glory shine through you guys and I know He smiles down upon you guys and He will prosper you and yes He will not give you anything we can't handle, although it may seem other wise to us in the moment.

God Bless brother and sister in Christ.

I love your little girl. I am a better person for knowing her.

Jen said...

Thank you for Kayleigh. I have said this before, but she is so, so beautiful. We are all so lucky to have the opportunity to know her.

She has made me appreciate my life and my family and the simple joys, and I am grateful for her.

With my daily prayer for Kaleigh, I add a prayer of peace for you.

Beth in NC said...

God bless your family and especially precious Kayleigh.

You're in my prayers.

michele said...

Your family is a true inspiration to me. I continue to lift you up in prayers, and I ask God to grant you another miracle in Kayleigh.

God bless you all,
Michele

Stephanie said...

Seeing those pictures of her hands and feet and how much they have grown is amazing! Still praying!!!!!

Anonymous said...

Dear God,
Please heal little Kayleigh's brain so that she can be healthy and give her another miracle because only you can do that and have showed us that before please do it another timeforher she deservesit for all she has been through in the 10 months she has been so strong and fought so hard! Also please continue to give Adam and Aimee the strength to go through this journey!
Amen
Brandi in ohio

Lindsey Barham said...

Freeman's:
These last few posts have been more on a positive note and I am so glad to hear this one (she is almost on her way home to her new room). I found myself questioning the Lord this morning on why Kayleigh has had to endure all the things listed plus more. This was the way the Lord intended it to be. He knew her life before she was made in the womb and knows her outcome. He is such an awesome Lord. It is so reassuring to me to hear you say that God never gives you anymore than you can handle. Your faith amazes me day in and day out. Do you have a time frame on when you can take the princess home? I can't wait to see that post!!! Kayleigh is truely perfect if you ask me. I love her so much and have never meet her in person. We continue to pray for God's will to be done in her life and still for a miracle. I pray for peace and comfort for you both as well as the kids. We love you.

Mom2GarretandRyan said...

Your families stength during this time is nothing short of amazing.

You are all such beautiful people.

Love and hugs,
Shannon

*Reminder to self not to put my makeup on until after I read Kayleigh's update :)*

gem01 said...

Well said, yet again Adam! Kayleigh and your family really has left an imprint on my heart and the way I will live my life from here on out...never taking anything or anyone for granted.

Lord, please keep Kayleigh here on Earth with us! I know she will also serve a great purpose up there, but there will be many broken hearts down here!

We love you Kayleigh! Keep strong little baby!

Mandy Quinn said...

My prayers are with you and your family and I am praying for that miracle for Kayleigh.

We love you Kayleigh.

Laymon Tribe said...

I think and pray for Kayleigh and your family every day. Your faith and courage are so amazing and inspiring. I pray for God's total healing for you guys.

mommaof4wife2r said...

precious little k is so strong and i know you already know that...love the update and i'm praying for a miracle...and it will happen here or in heaven...and for that, i am eternally grateful. i love that little girlie of yours and i'm so glad i get to share her on this blog...thanks for allowing me to pray for you guys and for k.

Anonymous said...

I'm not even sure how I came across Kayleigh's story....but ever since I did, I've been hooked. I check this site EVERY single day and am just amazed at this little miracle. I can't imagine what you're going through but just wanted to let you know that there is, yet another, person out there praying for you and your family and little Kayleigh.

Amanda in Missouri

The Woollard Family said...

She has grown so much and I know that you and your family cannot be any more proud of her throughout her journey. She's overcome so much! I pray that she will come home soon to her room so your family can enjoy her there like you've been waiting to do for nearly a year now! God bless!

♥Heather Woollard
Wetumpka, Alabama

Anonymous said...

Praying for God's healing Hands to craddle your sweet baby Kayleigh ever so tightly as she fights the toughest battle of her amazing journey. Your baby girl has been through so much in the past 10 months - more than most of us will ever go through in an entire lifetime. Her spirit is strong and her will to live is even stronger! We are lifting up Kayleigh in prayer and praying God's will to shine down upon this sweet angel. We may not always understand the paths that God leads us down but I'm praying the path that He leads Kayleigh and her family to will bring each of you happiness, comfort and peace!!!

Sending loving thoughts and prayers from Harford County, MD

Anonymous said...

It is mind blowing to see the "summary", but to read your prayer at the end...so well put. I believe that it is your calling to 'minister' faith to people...AMEN. Still praying, as I have pretty nearly every day for a year, for Miss Kayleigh & family. Leslie in CT

Jessica said...

My heart breaks for you and your family. I have been following this blog for about a week and cannot get your family off my mind. I hug my kids tighter each day because of Kayleigh's story. What a fighter she is! She is so special in so many ways. She is teaching so many people to be so much better! Praying that God keeps you guys strong through this journey! You two are absolutely amazing!!!!! Your faith in God and to not turn your back on him through something like this is unbelievable!!! I look up to you! God bless all five of you!
Jessica
St Louis, MO

Anonymous said...

Still praying for your amazing family and for a miracle for Kayleigh.

Hair Bows & Guitar Picks said...

I am still praying for you and your family.

God Bless,

Shelly (Florida)

Wendy said...

everyday with kayleigh is a miracle. we just all love her. she is such a special girl. thank you again for sharing her with us. your entire family is special. allyson and brandon are adorable. they must bring you so much joy in the midst of this difficult situation. and i think miss kayleigh is far from done touching lives!

Harper Loyer said...

Thank you for sharing your story with all of us about Kayleigh. She is defiently a miracle from God and you all are so blessed to have her in your lives. I continue to pray for another miracle for Kayleigh and that you get to bring her home soon.
God bless all of you!!!

Tina said...

Yes...Kayleigh has come so far...what a journey you guys have traveled and what lessons we all have learned from this "Blessing".

Whatever happens, Kayleigh will live in the hearts of so many people that her life has touched(mine included) and I know I will be a better person for having known this beautiful child!

Praying for Kayleigh to come home to her family.

MommyIvy said...

Kayleigh is in my prayers. I pray for a miracle for you and your family. Stay strong!

Bridget said...

Your love IS amazing. Thank you sharing that special prayer with us.

With prayers & tears,
Bridget in IL

UrbanIdeas said...

We will keep on praying and keeping the candle light every night until Kayleigh goes home! Much Care!

teacheroftwos said...

Which surgery was the one that caused her recent condition?

Anonymous said...

Just tears today for your Amazing, Sweet, Beautiful, Strong, Daughter!!!! She is a true Daughter of God. I don't understand how after all she'd been through this had to happen. I know it's not for us to understand right now, but to just learn through FAITH!!!!! May our Father in Heaven bless you as you continue to have Faith in his plan, whatever that may be. My heart aches for you and all you are feeling at this time. Your sweet girl has touched my heart. Your testimony of a loving God has also touched me, and I pray you will always have this Faith to get you through the hard time that are here and to come. I know your sweet girl can feel and hear you. The Spirit is an amazing thing. Even thought it might show no brain function, her Spirit can still see, feel, hear, and touch. Keep loving her!!! We all continue to do so!!
All My Love,
Jill

jenn said...

this GA girl won't ever stop praying for baby kayleigh's miracle. i know we don't know each other but, i feel like i know you guys. i talk about you, smile with you, cry with you, pray for you each day! my family prays for you and others because you are constantly on my mind.

your strength is inspirational!
i pray that you will be able to bring kayleigh home soon!

Judi and Elaina said...

Keeping you in my prayers!!!! Kayleigh is an amazing little girl!!! You are so blessed!!

Randi said...

Just Beautiful!! Thank you for sharing your journey with all of us and bringing the world together!!

Kayleigh Anne, The One Pound Miracle, Loved By Millions!!

Sending you prayers and hugs from Mississippi!!

Chris, Randi, Corey, Christy, Colton, Lindsay and Baby Rylee

Shannon said...

I too had a one pound miracle girl. She spent 4 months in the NICU and another 4 months in/out of hospitals. She is my angel now and she did more work in her 15 months than most of do in a lifetime. Your little Kayleigh has done more of God's work without ever saying a word. What a blessing she is. I pray your family finds peace and strength during this time.

Jewelz said...

Leaving some L♡VE
♡❤♡❤♡❤♡❤♡
xXxJewels

Jewelz said...

Leaving some L♡VE
♡❤♡❤♡❤♡❤♡
xXxJewels

Michele said...

She is so perfect in every way. Just because we cant see her brain function, doesnt mean that she isnt functioning 100% in the light of God. And in her life, she is touching so many. Who can so that for many of us who have had decades and decades to live and do God's work?

I'm so glad that your family is together and that you will be home soon. My prayers for a miracle continue to be lifted to heaven.

Brandi said...

praying for Kayleigh. She is already a miracle many times over! And what a beautiful miracle she is!

Michelle said...

Your faith is unbelievable, and your entire family is an inspiration. Still praying every day for Kayleigh's miracle! "Where there is faith, there is a voice calling, keep walking..."

simplebeauty said...

My little girl and I believe in miracles. And we are praying for you little girl everynight at bedtime!! Thank you for sharing your story with all of us in blogland. It has reminded me to return my eyes to Jesus and not waiver. I know that miracles happen, and I am praying that Jesus will touch sweet little Kayleigh with his healing hand! And that HE will continue to strengthen your entire family!!

Praying for you in the Flint Hills of Kansas...

smilingfaces said...

I really don't know the right words to say...I cannot even imagine the heartache and pain you are going through right now. I am praying for you and your family and hope that you will have many more moments with Kayleigh; and if necessary, you will have the strength to make decisions for your sweet angel.

Lynn said...

Little Kayleigh has been through so much in such a short time! We ask God...Why?
My baby went to be with the Lord the same day he was born, many years ago. It was a tough time. but our God is so faithful. He is our creator, comforter and sustainer in this world. I look at this passage of scripture for my answer to why?

"Blessed be the God & Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulation, that we may be able to comfort those who are in any trouble, with the comfort with which we ourselves are comforted by God" 2Cor 1:4

I continue steadfast in prayer for a miracle for Kayleigh and peace, strength and comfort for you as you wait on the Lord's will.

Hopesrising said...

Covering your family in prayer.

Laurie in Ca. said...

Beautifully written from your heart. I am continuing to pray for Gods will and for one more miracle, accepting whatever that might be. May God continue to gently but firmly carry you through the moments and days ahead.

Love and Hugs, Laurie

Dianne said...

I am an intercessor and was just introduced to Kaleigh last night. After much weeping through the night, including rejoicing at how God is being glorified, this morning the story of Jairus' daughter being raised from the dead was put on my heart to pray through (Mark 5). As we are His hands and feet, vessels indwelled by the same Jesus and, as Eph. says, the awesome and amazing resurrection power--the power living in us through the Holy Spirit that raised Jesus from the dead...I by faith laid my hands on her little head. I prayed for her, and I believe God has led others in the Body of Christ to join me, and that someone who is an intercessor will even physically lay hands on her head remembering what Jesus did with Jairus' daughter.
I know this is "only" yet another prayer of thousands and thousands in your long journey. Yet I believe with my whole heart that He is able and may choose to raise up Kaleigh even today. I know you and Aimee pray that every moment of every day. So I pray.
And regardless of whether this takes place on this side or the other side of eternity, He is so wonderfully being glorified through her life. I am just awed.
I am awed by her little life and that miracle, but even maybe moreso awed by the miracle of transformation in a human heart. That you and your wife could be going through what you are and continuing to proclaim God's goodness and amazing love...praising Him in the worst storm. That is supernatural...that can only come from the miracle of God living in us and capturing our hearts by His love. No matter what (and I would so love to see a miracle of raising from the dead, physically so the whole world could see and believe...like in Jesus' time--in my eyes I can see what an amazing impact this could be!), but His ways and His mind are so higher than ours, so only He knows what way will most glorify Him. And if His way is to take her on to Heaven, then it won't be for lack of prayer and faith that He could certainly raise her right here/right now. His will--that is our song; so thankful it is yours and Aimee's song. It's beautiful.
I am committed to praying for you as His purposes and plans unfold.
Glory to God in the Highest!

Chivonne said...

I've been reading about your beautiful little angel for a few weeks now, and I never knew what to say, but I check almost everyday to see how she's doing. I keep her in my prayers every night and I just cry when I see her. She's such a beautiful baby, and I keep begging for a miracle...another miracle, and I will continue to do so. Your whole family is so strong, and I pray that you'll be able to keep up that strength. May God bless you and guide you!

sami2009 said...

This is my first time reading your blog, and I am very inspired by your little girl, she is very precious. I will be praying for your family, I can only imagine the love you must have for this precious miracle.
Love, Sami

Margaret Cloud said...

Praying for that miracle, where there is life there is always hope. God bless Kayleigh and her family. Peace be unto you and may God guide you through out your life.

Sue said...

Wanted to tell you the pics from your last post are so beautiful. I love seeing all the kids together. They all look so happy and at peace. I think if you look closely, you can see a small smile on Kayleighs face. Bless you all. PRAYING for the day she gets to go home with you. Take care.

Niecey said...

You guys are an inspiration.

Jenni said...

You're family is so amazing! That sweet baby girl is so beautiful! My heart goes out to you as I have been following your story. You and Aimee are amazing, it's not hard to see that after all of these sacrifices, you have a one way ticket straight to heaven to be with your sweet little baby girl forever and ever. God bless you! We love you! Families can be together forever. I hope you know and believe that...and if not, I pray that you will come to know that because the comfort that comes from that truth is amazing!

Shari said...

I'm still thinking of you and praying for you here in Phoenix. You all are so strong for dealing with this so well.

Reading Kayleigh's story has given me such a reminder to hold my children close.

nicoleabbott said...

I pray for your family and Kayleigh everyday. She is on my mind from the time I get up until I go to bed. Her story has made me hold my children closer, be more patient and loving with them. I thank you for that and for sharing your story. I am still praying for a miracle. May God heal Kayleigh.

Heather Marie said...

Keeping Kayleigh and the rest of you in my close prayers!

Praying for a miracle!

ANewKindOfPerfect said...

Continuing to pray!

Anonymous said...

No words.. just lots of tears! Praying for you little peanut so that you can go home to your beautiful room!

Laurie in SD

Lanypoo said...

What a gorgeous little lass! I'm thinking of you all daily and hoping for a miracle for little Kayleigh. I've never been so touched as I am now. I'm so glad you can all be together in a family room and hoping you'll be home soon. I'm blessed with a 3 month old and the docs scared us quite a few times, both during my pregnancy and after his birth. You never know - they could be wrong.

Anonymous said...

Wow! What a journey you have traveled and what wonderful praises you give our Heavenly Father for His hand in the past year. Your faith is so evident and God blesses those who are faithful! Stay Strong and thank you for sharing your heart so openly with so many. Praying!

C said...

I have shed so many tears for your sweet baby girl and I will continue to pray for her. Thank you for sharing her amazing journey with us and we'll keep on praying!

crystal said...

your family is such a encouragement to my heart!to see your hearts depending and trusting God above everything you guys have been going through blesses me more then words!I dont know you but You sharing this journey helps me to know the best part of you!your dependence on God!I will pray for your family everyday!your daughter is presious and God has a perfect plan for her and for you her parents and your other children as well.Thank you for sharing your hearts everyday and allowing me to be part of your little girls life.

Jill said...

Prayers for Kayleigh and your family.

~Jill

M. Jones said...

I am new to your blog, but I wanted to let you know that your family is amazing, your love is enduring, and your faith in God inspiring. I am and will be praying for Kayleigh and your family. May all of our prayers fall on God's ears. There are miracles that only he can grant. She is absolutely beautiful. I hope that she is allowed the chance to go home and be in her room and be a family in every way with all of you. God Bless.

Mel said...

Continuing to pray for Miss Kayleigh and her loving family. M from OK

bluekermit77 said...

you need to have HOPE! instead of wanting your daughter home to live out her last days ,, you need to say "I want her home ,,so she can have the biggest baddest,, 1 year old birthday party any little girl would want.!!

The Drenzek Family said...

thank you for this post it helps as i have shared your story with many others, because it has so very touched my heart, even though i've never commented before. this post makes it that much easier to allow kayliegh's story to reach others. your family is always in my thoughts and prayers.

"Fix your mind on me alone, the Lord says.
Rest your thoughts on Me alone.
And in Me alone, you will rest forever."

"G" Family said...

I just came to your blog via My Charming Kids. I have a very special son who they told me would pass very early due to the lack of brain activity. He only has a functioning brain stem. I can tell you from experience God is in control even when we are not. I can't tell you how many nights I have cried for my little boy as I am sure you have as well. I just wanted to let you know you are not alone and you have one more person praying for you. I found this passage encouraging and hope it helps you.

2 Chronicles 20:12 "O our God, will you not judge them? For we have no power to face this vast army that is attacking us. We do not know what to do, but our eyes are upon you."

Even though this is about war, sometimes I feel like I am at war being Eli's advocate and his care and have to remind myself I have no power over his health and I just have to keep my eyes on the Lord and he will direct the path for Eli's care.

When Eli was first born I was reading Baby Boot Camp and it suggested praying daily that at some point in your child's life that they would fulfill God's ultimate destiny "Impacting the World for Christ" It brought tears to my eyes that my little three week old had in fact fulfill God's plan for all of our lives. And, I can tell you that your little precious little girl too is impacting the world for Christ. When other see that Christ is our rock and we have not become like the world blaming others and being angry we (and our children) shine for him. Press on my sister in Christ.

Anonymous said...

I wish you completely much strength and many for you will pray. the small kayleigh is so strong and so beautiful, it a miracle earned. I white not at all which I to write is. I think of you and pray for kayleigh have much strength. many dear greet from Germany

TnAHurst said...

1 Peter 5:10
After you have suffered a little while, the God of all grace, who called you to His eternal glory in Christ will himself perfect confirm strengthen and establish you.

I pray and hope with all my heart that you will receive a wonderful miracle and that she'll be able to go home and sleep in her own bed. I also pray that you will be able to see her smile at least once more! God bless you!

Fabienne said...

Hello...
i have tears in my eyes...your daughter is so strong. We pray for her.

Fabienne from germany

Anonymous said...

Sending your family love and peace. Never give up hope and remember all things are possible with god. With love the Walton Kentucky fire dept...

April said...

Praying for you Kayleigh.

With love from
Belchertown Mass

Melissa said...

Praying for your sweet baby girl

Megan said...

Kayleigh has touched more lives so far in the short time she's been on earth that most people touch in their lifetimes! She is such an amazing, strong, beautiful girl!

Continuing to pray for you all and your sweet baby girl!!!

NewfieMoma said...

Keeping you in our prayers
Rochelle, Jeff, Chelsea and Melissa
in Brampton, Ontario, Canada

Anonymous said...

Praying for our sweet girl. Please God we thank you for our gift of Kayleigh and beg you for a miracle. Fight princess.

Jenny said...

I've been following your blog for about three weeks now. As a new mom myself, I cannot imagine the highs and lows you have gone through. Your strength, faith, and positivity are amazing. I look forward to your updates and photos each day, and keep Kayleigh in my thoughts. Each night, as I put my six-month old to sleep, I send good thoughts your way. Kayleigh (and Allyson and Brandon) is lucky to have such wonderful parents.

I felt it was important to let you know that you are reaching more and more people every day, and inspiring them with your story. I know you will stay strong and take care of each other. Best wishes from Colorado.

Tara in Ohio said...

Hi, I am a mom to 3 little girls. I just learned of Kayleigh's story a couple of days ago and she has been in my prayers ever since. I am so amazed by her and your family. She is an amazing precious baby girl born to amazing parents! Miracles do come true and I will be praying for Kayleigh's. I have told everyone I know so she will be getting their prayers too! God Bless

Bloggymommy said...

You're in my thoughts and prayers! You have such a beautiful family and I hope and pray you will have a beautiful future together. God bless you all! ((hugs))

Anonymous said...

God bless you in your courage, your strength, and your wisdom to know that we can't always see the big picture, but there always is one. Praying for you in Rocky Face, Georgia---Renee

Mary said...

We will be praying for you and Kayleigh. May you fills Our Lords peace in your heart.

Denise said...

What a sweet post! Isn't it wonderful to know we will play with our perfect, healthy, children on the streets of heaven some day! Today is the one year anniversary of one of my triplets going to heaven, I am sad, but I rejoice in the fact that my child actually began to REALLY live one year ago today!

Anonymous said...

What a little fighter Kayleigh is! I think about and pray for your family several times a day. Your family's strength, grace and faith amazes me. Look at all the people Kayleigh has brought together, she is an inspiration to us all.

The Leighton Family! said...

Praying hard in Portland,TN!!!!!

redhat1 said...

Just wanted you to know that your family is in our thoughts and prayers. You and Kayleigh have been through so much and there are no easy answers. No one can explain why and that bothers us sometimes. But I know that you know the God of all Creation will never leave you or forsake you. Nor will he leave or forsake Kayleigh. While we do not understand why this had to be endured, many have been blessed in the process. I know, it's a high price to pay, but through it all the Lord will be glorified.

Erin said...

THE BUZZARD:
If you put a buzzard in a pen that is 6 feet by 8 feet and is entirely open at the top, the bird, in spite of its ability to fly, will be an absolute prisoner. The reason is that a buzzard always begins a flight from the ground with a run of 10 to 12 feet. Without space to run, as is its habit,it will not even attempt to fly, but will remain a prisoner
for life in a small jail with no top.

THE BAT:
The ordinary bat that flies around at night, a remarkable nimble creature in the air, cannot take off from a level place. If it is placed on the floor or flat ground, all it can do is shuffle about helplessly and, no doubt, painfully, until it reaches some slight elevation from which it can
throw itself into the air. Then, at once, it takes off like
a flash..

THE BUMBLEBEE:
A bumblebee, if dropped into an open tumbler, will be there until it dies, unless it is taken out. It never sees the means of escape at the top, but persists in trying to find some way out through the sides near the bottom.. It will
seek a way where none exists, until it completely destroys
itself.

PEOPLE:
In many ways, we are like the buzzard, the bat, and the
bumblebee. We struggle about with all our problems and frustrations, never realizing that all we have to do is look up! That's the answer, the escape route and the solution to any problem! Just look up.

Sorrow looks back, Worry looks around, But faith looks up!

Live simply, love generously, care deeply, speak kindly and trust in our Creator who loves us.

Keeping you and yours in my prayers! Always Look up little Kayleigh, for you are a wonderous miracle!

Live Well, Laugh Often & Love Much said...

Praying every chance we can for a miracle! What an amazing little girl and family! Sending many prayers and lots of love!

Normal, IL

GOD BLESS !

Anonymous said...

she is still perfect...

Lyndie said...

I will pray for a miracle, for Kayleigh to come home, for the strength of your amazing family, and for God's will to be known and understood. Thank you for opening your hearts and lives to us. Your story is helping me in my walk with the Lord. I will continue to spread the word about your blog so that other lives may be blessed!

scrappy quilter said...

Still praying...

JaJa Sally said...

I continue praying for your little girl. Even though I do not know her I have shed many tears over this little girl. i pray that god will work a miracle in her life. Nothing is impossible for him.

Anonymous said...

Happy to hear that you're getting closer to bringing your sweet little girl home. Still praying every day for a miracle, God is good and has the power.

Anonymous said...

Praying for God to keep your family cradled tight in His arms, and trusting in Him for all that is needed for each of you, especially Kayleigh...what an angel.

Destination Mom said...

Hi, I've been reading about Kaleigh for awhile now, and am praying that she will be able to come home with her family soon. I think a lot about what your family is going through, and what lies ahead. I don't know if you will be interested in this or not, but our minister and his wife have a blog about their life with 2 severely brain damages children. Their daughter is now 22, and their second child passed away when he was 5. Their situation is quite different from yours, as their children were not born prematurely, however their brain damage was caused by severe seisures. Anyway, they wrote a book, that was published awhile back, but currently out of print. I think you can find it on ebay though. Anyway, the entire book is posted on their family blog. I think it would benefit your family to read it. I think both of your families share a lot of the same feelings, and what you have been through, the emotional roller-coaster, and so forth, is probably the same. I am just offering it to you, because I think it could help. Especially since Kaliegh will hopefully get to go home with your family soon. Here's the link, if you are interested:

http://www.joyinaforeignland.com/photos.html

I hope it helps. I know when I read it, it helped me a lot.

Love to your family. In Christ,

The Bailey Family

Tinika said...

Truly I am a better person for having had the blessing of friendship with your family, even though we do live in each others computers.

Kayleigh has not only touched my life but the lives of family members that have never even saw your blog.

Still praying for you guys!

Shinita Freeman said...

I read the last blog with tears in my eyes...I am praying for your family.

FairyWonderful said...

I am constantly checking in on little sweet Lady "K" for updates and to just see how she and your family are doing.... I feel as though she has become such a part of so many peoples lives....daily thoughts and nightly prayers. Thank you for sharing such a sweet blessing with the world. I sure wish I had the support system you have when my little girl was born at 28 weeks gestation... it amazes me at all of the kindness:0)
Love and light
Shanna
http://www.fairywonderful.blogspot.com

4 Little Men and Girly Twins said...

Wow! Look at those prints... she is truly an amazing little girl!

She has fought so hard! We are continuing to pray for a miracle!

britt

Lisa/Cindy said...

We came across Kayleigh through Cayden's web site! We have fallen in love with you and your family!! We are prayer warriors in Houston, Texas!! We are praying for your miracle! Your FAITH is amazing!!

Tamara aka Cheapskate Mom said...

You are Amazing! I pray every day for litle Kayleigh. I am hurting with you and praying for a miracle. I am so insprired by your unwavering faith. I am still new in my walk with the Lord and I only hope to hold onto Him as tightly as you do when I am faced with trials. My heart is just breaking for the loss of Kayleigh's brain function and I don't know God's will for her but I am praying so hard that even though His beauty and grace is radiating off little Kayleigh - somehow He can breathe life back into her and give you and your beautiful family the one wish you have had from the moment you knew off her...to bring her home. I know you have fought so hard to keep your home and to keep Kayleigh's room ready and waiting for her. I can't imagine going through this whole journey to not have that one simple wish come true. I am holding on tight to the hope that you get your wish as well as one more miracle to keep Kayleigh and make her whole again.

Hugs from Colorado.

Tamara

HoundDogMom said...

Still praying for your family. Sherri

kiddiescorner said...

Still praying for your beautiful daughter she truly is a miracle and so strong. God bless

Tracy said...

I also have tears in my eyes when I read every post. I think about sweet, little Kayleigh and your family all day long, and continue to pray!! I was wondering if it's still possible to purchase Kayleigh bracelets?? Lots of love to you and your family!!

Crystal said...

i pray for baby Kayleigh everyday...i hope and pray she gets to come home in her little room. God Bless Your Family

The McGuire Family said...

I can't get your family and Kayleigh off of my mind. I just can't help to think God has more in store for her...He is not done. I hope to hear good news on her coming home sooner than later. I pray for her all the time. She is a precious gift from God, and we all thank you for sharing your gift and blessing others. We love you and are praying for your family.

JaMean said...

We pray for all of you every time we think of Kayleigh. (Which is a LOT!)

Thank you SO much for sharing Kayleigh with us. She has definitely brought me back to the Lord. Thank you Kayleigh.

TONS of love and prayers from Utah!

~Sheena~ said...

My heart is just breaking for your family and this precious angel of yours. Your strength and faith amaze me and I praise God for the many ways you are being such a great example of the Christian faith. I found your blog by "divine intervention" (nothing is by accident) and can't get you off my mind. We are praying for you continually. Our church is also praying. I know the Lord has great plans for this beautiful baby. I wanted to share this with you: A CHILD OF GOD WILL NEVER FACE A CIRCUMSTANCE THAT EXCEEDS "HIS" GRACE. WHEN WE HAVE NO RESOURCES OF OUR OWN, "HIS" RESOURCES HAVE NOT BEGUN TO BE DEPLETED. WHEN WE ARE WEAK -- "HE" IS STRONG. May the Lord show you his strength and give you his amazing grace. Praying for you in Southern Indiana.
sheena-marie.blogspot.com

Anonymous said...

Prayer is powerful!

I propose that all of Kayleigh’s prayer warriors fast together. Whether it be food, TV, caffeine or whatever each person decides. Let’s all sacrifice something meaningful for 24 hours. Let us be reminded to pray passionately for Kayleigh and her family every time we think of the amenity we’ve decided to forfeit. I BEG that you publish this thought on your blog. Propose it a day or two in advance so everyone has the opportunity to prepare.

Can you imagine the impact as thousands of prayer warriors simultaneously and fervently pray for a single cause?

Expecting a miracle!

Mainda said...

My heart is breaking for you. I have just had the great privilege of sitting down and reading your blog from start to finish. Thank you for all that you've written. For the bravery you have displayed as you have shared your story. Kayleigh is perhaps the bravest person I have ever known...as are you and Aimee. You have touched me more than you will ever know. You have another prayer warrior interceding for you. God bless...

jag said...

Just feeling so blessed to be one of Kayleigh's prayer warriors. She has made such an impact on the world!

Anonymous said...

Something that helped me so much during a time of deep pain and suffering is the book "When Bad Things Happen to Good People". Prayers are being sent by the people of Jacobs Well in Minneapolis.

Andrea said...

The Freeman Family is so strong and beautiful! Your kids are absolutely amazing - what awesome parents you are! May God bless you and keep you always. Prayers and love to you all

Christy said...

You don't know me - I just "discovered" Kayleigh. I will be praying for all of you.
God Bless You all.

CinderellaMommy said...

We're praying for you here in Wisconsin!

Carol Ann said...

You are forever in our hearts. Praying for you always,
The Nadeaus

Anonymous said...
This comment has been removed by a blog administrator.
Jill said...

Another beautiful post!

Prayers continue and may the blessings of His peace, comfort and joy fill your hearts to overflowing!

Love and hugs,
Jill

Anonymous said...

She has fought an amazing battle, and her mind is at rest.

You say yourself that you believe her mind is in Heaven. Is not her spirit there as well?

The body is but a vessel of the spirit, isn't it? What is a body when the spirit has gone ahead to be with Jesus?

Praying for a clear answer for you all, soon. TODAY. And giving thanks for the peace for your tiny girl, who has known too much pain in her short life but who now is laughing a sweet baby laugh and playing with her angels.

Mandy said...

Leave everything in God and Kayleigh's hands. We had the same situation with our family. We didn't know what the right thing was to do. I was certain that my brother had left us and he was gone. He no longer seemed to be in his body and his EEGs were nearly flat. They took him off of the monitoring and tried to urge us to give up. My brother has been very sick all of his 31 years. His struggle with cancer is my first memory as a 4 year old. Looking at his body and watching him right after we were given the news that only his brain stem was alive was the worse feeling that we ever faced. I described it as no longer feeling comfortable in your own skin and wanting to rip it off. It was heart wrenching to watch him as he suffered, yet, they told us that he wasn't. I didn't understand this because how do they know if less than 1% survive this. Like you we decided to continue to be positive. My brother started to recover after several weeks. He is still recovering 2 months later. Today was good day because he was allowed to start to eat pureed foods and liquids. My brother is still with us in every sense. He has trouble talking and moving but in conversations, we know that he's still him. Not another personality in his body as sometimes happens with brain injury but him. He finds the same things, funny, frustrating, annoying, sad and hurtful.

We prayed for God and my brother to tell us what to do. If God really wanted him home and my brother no longer wished to fight to be on earth with us, then he would go home with God whether he was on life support or not. You will be in our prayers. I hope my brother's story brings you hope. We searched for hope when this happened to us. It was hard to find any at all.

My brother tells us that he heard us talking to him. Keep talking to your daughter, touch her, hold her, sing to her, read to her, put good smelling things near her, put a fuzzy, warm blanket next to her skin and have her feel things. Do whatever you can to stimulate her senses.

Continue to pray and trust that God and Kayleigh will guide you and give you strength. Lots of people will tell you things to try to "prepare" you for God's will. They are trying to give you comfort and guidance and mean well. Listen to God who talks to you in your heart instead. God knows if Kayleigh's purpose on earth and will give her just the right time to complete it. It sounds as if you are.

Tinsley Family said...

praying!!

DivaDplus3 said...

I loved your family pictures, what a blessing for you to have all of your family together.
Kaleigh is just beautiful, your whole family is! My thought and prayers are with you, all the way from Lynnwood Wa. May you continue to be lifted by your "prayer warriors" and feel Gods Grace and Mercy upon you. With Love
Danielle

Maggie said...

Hi Adam and Amiee!

My name is Randi and I have followed your story for a while now. I found your blog through my friend Rhonda who had her son 10 weeks early and you have his blog on your site, Luke's Story. I started following Kayleigh's story in August when I was pregnant myself. My son is now 10 weeks old.

Amiee, I was reading your blog post, trying to catch up on my blogging and I had tears reading it. I did not understand a mother's love until I had Noah. I could not imagine the roller coaster of emotions that you have gone through. I truely admire you. I wanted to tell you what happened as I was reading your blog post... as I was reading your feeling, a song came on the radio - it was Martina McBride's "Anyway". Oh the tears became stronger. I felt it very fitting for what I was reading. The song lyrics say
"God is great
but sometimes life ain't good
And when I pray
It doesn't always turn out like I think it should
but I do it anyway"

I know that everyone says this, but you truely are in my thought and my prayers during this very difficult time. I pray that God's will will be done. And I pray for you and Adam and your family to accept what God's will is.

Much Love,
Randi Funderburg

ps - we are posting prayer requests for Kayleigh on our blog, www.theweddingdog.blogspot.com for all of our family and friends!

elteescat said...

I just remembered that it's Thursday so I posted my Thoughtful/Thankfull Thursday. I wish Kayleigh would get better! I love her very much!

Spellbound said...

You and your family are in my prayers!

Ohilda said...

God is so good!!! Lifting Kayleigh up right now.

Anonymous said...

Praying for a miracle in Havelock, NC.

Just an ordinary woman said...

Your baby girl is indeed loved by so many people all over the world.. I tell everyone about her..

She is so beautiful, and has touched more hearts and lives in 10 months than most people will do in a lifetime

Keeping you and your family constantly in our thoughts and hearts..

Kerren
South Africa

SingerMamaMelody said...

I'm praying for you...it was so neat to see the pictures of all of you together. May God hold you close right now.

Melody
Minnesota

BlogBaby said...

I don't even know what to say. My heart aches for you and yet somehow it is so easy to see God in this. How is that possible?? Only by his Grace, I guess.

Although I have only now read some of Kayleigh's story, I must tell you that I felt compelled to pray for her last night. As I sat with my 4 year old son, not knowing anything about your needs, my sweet boy prayed these words - "Dear Lord, only you know what is going on in baby Kayleigh's little mind, I pray she has peace and gets to come home really soon, AMEN"

We will continue to pray for all of you.

Blessings,

BlogBaby and Family

Anonymous said...

Adam,
I would like to share some words with you. When I first read the post "Lord Please help us" I think that was the title of the post in which you let all of us know that she was not doing well and that she had a flat reading I really thought she was on her way to heaven. I dont know why if it is the way she looks so beautiful in the pictures or what it might be but I have a feeling she might stick around a little longer. I really hope she does. Another thing I would like to tell you is, well I really dont know how or what is required to become a preacher since I am a catholic but I see in the way you express yourself and the enormous faith you have that it just tells me "Gosh Adam has the perfect words all the time" he should preach. Has anyone ever told you this? I know that I am not the only one thinking it.
God Bless your family always,
From Laredo (Deep in the South of Texas)

Heidi said...

I am sad to say that I have just learned of your baby and read the story. I can't imagine what you and your family have gone through but your strength and faith in God is simply amazing. I will be praying for her and your family and will continue to do so no matter what the outcome.

grandma mac said...

Have been praying and keeping your family in my thoughts and prayers, I believe in miracles and I know whatever happens, a miracle did happen, and that was Kayleigh. I am praying for your miracle to go home with you and that peace will follow you each day:)

BButler said...

What a true testament to the love of a Father who knows what each of us need and knows your family and you. You are amazing parents of an amazing angel in a teeney tiny body. Our girls (one premature with a fighting spirit as well) will continue praying for your family. Miracles happen everyday...just sometime not the miracle we expected. You keep your strong faith and you know that you will be with that amazing baby girl through the eternities!!! Much love from ours to yours.

Anonymous said...

I have been a follower of another website belonging to Kristy Schwade. Her son's brain was damaged when he was shaken at four months. EEGs said no brain activity, etc. It has now been two years and she just posted an update. Her son Kaleb has received those chamber treatments for over a year now and I am taking a quote out of her update for you:

"He also had an EEG the day of the vigil. His EEG that he had done in March of 08 showed very little brain activity. His EEG two weeks ago showed TONS of activity on the right and center of his brain. The left side of his brain is dead and shows nothing. This is AWESOME! Obviously the chamber treatments have done something. I was so ecstatic that I told everyone at the vigil. This is a miracle. Although the activity was very disorganized it shows that his brain is healing slowly. Thank you so much for your prayers!! They are working in God's time."

They have been on a rollercoaster journey for two years now. You should check out her site for inspiration and more information about the chamber treatments at: http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendid=34091583

Hopefully it will take you right there. Her name is Kristy Schwade and Baby Kaleb is a true miracle too. It is amazing what he has survived. Her latest update talks about his new brain activity. AMAZING! Are these treatments available for Kayleigh?

Karen Andwan - facebook buddy
cincymomof4

Anonymous said...

In addition to my previous post Adam, Baby Kaleb's site cites a new website called "http://www.thebrainproject.org/"

It is for babies with many types of brain injuries caused by various things, including lack of oxygen. Looks like a very informative site. I found it through Kristi Schwade's Baby Kaleb's site. They may have more information about the chamber treatments also.

Karen Andwan - your facebook buddy
cincymomof4

Aura said...

I am so sorry for what you are going through. After living 3 years on a roller coaster ride of hospitals and surgeries with my son, he passed away 2 years ago. The pain is horrible and now we just have memories of our beautiful son. One of the nicest things I have is a memory box of things my son loved, hair clippings, molds of his hands and feet,and some family pictures we have framed around the house. There is a wonderful organization that will come to the hospital or your home free of charge and take portraits of your family with Kayleigh nowIlaymedowntosleep.org. The hand and foot molds can be done with plaster or the glass molds like these http://www.mom4life.com/catalog.php?item=1554 you can email the owner of moms for life, she lost a child too. Prayers for Kayleigh and I hope all your memories are always wonderful and cherished.

Anonymous said...

God Bless you and your family. Still praying for you all.
Praying in New Braunfels, TX

Shannon said...

It breaks my heart that your precious daughter has had to endure so much.

I'm a mom to a preemie if you ever need to talk.

In my prayers!

CRUSTYBEEF said...

My dear Freeman Family-
I'm without words..except to say, You're in my thoughts..

Just a internet lurking family from chicago,
Elizabeth

thepopsneezed said...

I have been reading your blog for quite a while, and my heart goes out to you. I cannot tell you how many tears I have shed for your family and your sweet baby girl. I, too, have a little one (actually 2 little ones), and cannot imagine the strength the two of you must have to plow through this. You have been and will continue to be in my prayers.

Tiggerjay said...

I just stumbled upon your website by a few friends who are linked to your website. I am so happy that the hospital is making it possible to bring your precious little one home to be with the family. I spent some time in our churches prayer house as well as had quite an amazing dream about your family. May you truely be blessed by your time home with your family together as one.

Petula said...

Your family has been through so much and still you are showing an amazing love and faith. You have a true testimony. I am so so sorry that Kayleigh went through all of that and then something happening at the last surgery, I know that was so much to handle and such a huge disappointment. But it seems like your faith and strength will hold you up. You're an amazing family and your children - each and every one of them - are so beautiful. Love and kisses to you all.

Anonymous said...

Have you seen picture of the little hand holding the Dr. finger during surgery before birth? It is called Hand of Hope. When I saw Kayleigh's sweet hand it brought it to mind. God is so good is all things.

queenoftheclick said...

Praying for you and your family.

John and Steph said...

I have been following Kayleigh's story since not long after her birth. She and the rest of your family have been through so much, bless your hearts.

I hadn't been on the site for about a month, but yesterday I Kayleigh was on my mind. My heart sank when I read the updates. My husband came in and I showed him your latest post. Through our tears, we immediately started praying for Kayleigh and all of you. We will continue praying for a miracle. We serve a mighty God. He can do all things.

Jess said...

While we have obviously never met, I come home everyday to read your blog...and have started sharing it with my coworkers too...You see I work on a unit at a children's hospital that takes care of babies just like Kayleigh...please know that the way she has touched the lives of her family, she is also touching the lives of each and every nurse. We have many babies just like Kayleigh and those babies become sons and daughters to each and every one of us...we have sent so many home with their parents...yet sent so many home to be with Jesus too....just know that Kayleigh's love is felt everywhere...by everyone who has ever taken care of her, read about her, and prayed for her...I can't wait for the day when you get to take your little girl home!!

Anonymous said...

Right this very minute, I am carrying a baby the same size Kayleigh was when she was born. (That's not just a textbook estimate; we had an ultrasound on Monday that told us the current size and weight.)

I want to thank you for several things: for making clear your faith and basically showing that your kind of circumstance CAN be lived through and CAN be survived, and there IS hope and comfort to be found. Also, for the in-my-face reminder to be actively thankful for every day that passes with my baby still healthy inside me.

And lastly, I thank you for loving God and loving Kayleigh. You are blessing God by following his example in loving her - I know you'll say "what parent wouldn't" but the true answer is: many parents. Your obedience to being godly... the like-God-ness of offering love... is a blessing to Him and to us that observe it.

Anonymous said...

May god keep Kayleigh in his loving arms until you are able to be with her again. I am so sorry this did not have a happier ending for your family. Take solace that your angel is with the Lord. Someday you will all be together again. God Bless...

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