5/8/09 - Someway, Somehow, Someday







This is one of our favorite dresses that Kayleigh's has. She looks so precious and they have these pink shorts (or should I say undies) that go with it too.

As of right now, they have decreased the Flolan for her hypertension over the past two days. They are dropping it 10% each time, and they suspect it will take at least 10 days for her to completely come off of it. Our estimated time for coming home is no less than three weeks, which we were not happy to hear and there unfortunately are no ways to make that happen sooner.

Since our main goal is to bring Kayleigh home, we decided that increasing her feeds right now will only increase the risk of her belly blowing up more than it has and keeping her in the hospital longer. We've all decided to increase the triple mix IV fluid to give her the nutrients she needs, so she can stay healthy.

Kayleigh's breathing and irritation seems to be increasing a little more today than normal and I am not sure if that is due to the weaning of the Flolan, but we will keep an eye out on that. We certainly do not want Kayleigh to be going through any pain or discomfort. Overall, she is doing well and comfortable.

Many asked if Kayleigh will remain in the sleep-in room or go back to the NICU and unfortunately she went back to the NICU after our visit. However, since we had a great time the other day, Aimee and I will be enjoying a day with Kayleigh tomorrow in one of the sleep-in rooms. My parents will be coming up to visit and hang out for a little while. Aimee and I plan to watch TV with Kayleigh and just enjoy a peaceful and quiet day with her.

I can't wait to share some more wonderful photos tomorrow. I took over 200 photos in less than 2 hours the other day when we were in the sleep-in room with Kayleigh and the kids. Aimee and I will be there for at least 6+ hours, so I should have ample time to take some really good ones.

Thank you again for everyone who donated money and prayed your hearts out to help our family through this tough time. The emotions we are dealing with change every minute that it is very hard to describe or even explain. All I know is that we are so blessed to have wonderful friends like all who have lifted us up and kept us strong through this. I only wish I can return the favor someway, somehow, someday.

God Bless,

164 comments:

jennyhamilton said...

I am so happy you guys get that one on one time! I hope she gets to go home soon!! I am praying my heart out

Alyson said...

You guys are truly amazing and you are in my thoughts and prayers!!

<3

xoxoxoxo

Alyson

Mama Notes said...

She is beautiful and you continue to be in my thoughts and prayers!

Sarah J. said...

she looks beautiful..as always. thanks for the update. We will pray for comfort for her, for all of you.


Sarah, Chris, Helaina and AvaJ.

darcie said...

What a beautiful lil princess! That is SUCH A cute dress!
can't wait to see more photos of her!

Harper Loyer said...

Kayleigh does look so beautiful in her little pink dress. I'll be praying for all of you. Have a wonderful and blessed day tomorrow with Kayleigh.

Michelle Riggs said...

Kayleigh is so beautiful. Your are constantly in our thoughts and prayers.

Robin said...

Oh Adam she looks so good in these pictures. She is growing so fast. I will keep praying that she stays on track so that she can come home as quick as possible and Kayleigh's time with you guys this weekend is blessed. Thanks for the update. Still thinking of your amazing little girl all the time.

Amy said...

God Bless your sweet baby girl. It breaks my heart to see where her journey has taken her and your family. I work at a Children's Hospital in KC and got several of the nurses following your story as well. Still praying hard for that miracle that our awesome God is capable of.

In Christ's love,

Amy S. in KS

Amy said...

God Bless your sweet baby girl. It breaks my heart to see where her journey has taken her and your family. I work at a Children's Hospital in KC and got several of the nurses following your story as well. Still praying hard for that miracle that our awesome God is capable of.

In Christ's love,

Amy S. in KS

Christie said...

I can't even find the words - just wanted you to know that I'm praying for your family - and that sweet Kayleigh is such a treasure. But you already knew that! (wink)

hug

margaret said...

We lost our son Calvin, a twin, six days after his birth due to complications from open heart surgery. We took a thousand pictures in those six days, I wished we had taken a thousand more. Cherish every moment, you will be forever grateful for these moments. If there was anything I could do for you beyond praying (which I'm not very good at), and the small donation we made, I would do it. I know how these moments are so precious, and how someday the memories you are creating will be something to look back on and smile. Hugs to you all.

Nicole Luciw said...

You have a beautiful family. Kalyleigh is so beautiful and so strong. She def. is god's miracle. Kayleigh shows us that as long as your strong you can make it through anything. Kayleigh and your family are in my prayers everyday and every night. She will be so happy to see her room when she gets home. You and your family are truly amazing and so strong. Thank you for sharing every day with all of us what is going on. Everyone that is following kayleigh's story considers your family our family. WE are all praying for each and every one of you. Stay strong.

Kate's Mommy said...

"I only wish I can return the favor someway, somehow, someday."

You already have...you shared your precious daughter with all of us. And allowed her to change so many hearts. You showed Christ through all of it. You have returned the favor 100-fold. That is enough.

God Bless.

Dara dickesheid in colorado said...

I dont think you know how much you and your family already have given to all of us! You pay us back by letting us share in your amazing life.i say thank you to you! Praying everyday. Enjoy your day tomorrow. Hugs to everyone.

Elkins 5 said...

OMG, these pics are soooo cute! Instant smile on my face! The dress is adorable and the smile she has in #3 is breathtaking! I just love the bloomers that come with baby girls' outfits!

So she cant come home on the Flolan?

Thank you God for hanging tight to Kayleigh and giving her another day and everything she needs to stay with her family. Praying for more and praying for her breathing to steady.

Cant wait to see more pics. Sooooo glad you will be chillin' with her tomorrow. Have a great day!

No need to thank us for anything....the reason we do what we do for you guys is because of all your family has given to us! Thank YOU!

Love and prayers!
Susan

Kristy said...

Kayleigh looks so precious in her dress!! Absolutely adorable!! As for thank yous...it is me who shoudl be thanking you and your darling baby girl for pointing me back into the direction of God and my faith. My prayers are always with you and your family.
I am so very excited that you and Aimee get to spend some much needed mom and dad time with your wee lass. God Bless you all!!

Googsmom said...

{{{{KAYLEIGH}}}}} She is so pretty in pink :)

Lisa Daniel said...

Kayleigh is so precious! Love the pics! And you and Aimee already have given to everyone of us by sharing your sweet Kayleigh with all of us!! Kayleigh has touched so many hearts! Enjoy your special time with her tomorrow! Always praying for you and your family! God Bless!

Karen S said...

Continuing to pray for your precious family. What a pretty dress for a beautiful little girl. Looking forward to the pictures when you post them! Thank you so much for sharing.
Much love to you,
Karen

Anonymous said...

She is gorgeous!
xoxo

annb said...

I continue to pray for Kayleigh and your family! May God supply all of your needs - healing for Kaleigh (whether here or with Him) and provide comfort for you as you make decisions and love on Kayleigh!

Niecey said...

What a beauty.

You have given us all such a gift by sharing your daughter's story and photos. It's life changing, it helps us appreciate how fragile and precious life is. And the extra time spent in prayer over her strengthens our walk with God. Thank you for sharing through such a personal, intimate, difficult time in your life.

It must be such a numb, limbo state you're existing in just now. I pray for peach and comfort and strength as you savor these moments.

Kirsten: said...

Counting down the days til sweet Kayleigh can join her awesome family at home! Always praying for you guys!

Anonymous said...

Please don't feel you have to thank anyone because you have opened your lives, your hearts, your faith and Kayleigh to all of us following on this journey.

It is because of Kayleigh, and Abby (Riggs), Cody, Ian that I have found a new purpose for life. I am now making baby items for hospitals. When I crochet, or knit or sew I am praying for the child and parents who will receive these items.

I talk to God while I am making the items, too. One of your "bloggers" said that they weren't good at praying. Praying is just talking to God in your everyday language. He doesn't expect a big Biblical speaking prayer. God just wants us to open our hearts to Him. That is what I do for Kayleigh and her wonderful family.

Ann Stegall
Wake Forest, NC

Denise said...

Still praying, my little boy said a prayer for her at bedtime, God has plans for Kayleigh, we may not know them or understand them now, but some day all things will be revealed, I am also praying for peace and strength for you and your family. God bless!

mtva said...

I LOVE that dress, Kayleigh is soooo beautiful. Thank you for the update and I will continue to pray for her safe journey home. I think I'll be crying when that day comes. :)

God Bless,
Tracy

wicker0407 said...

That dress is the cutest ever! You are constantly in our prayers we love you all very much and are still praying for a miracle!
Summer and Family in California

Carrie said...

You don't ever need to worry about repaying anyone. You sharing your precious daughters story of life is payment enough.
God bless.

Suzan said...

That is a beautiful dress for a beautiful little princess. I am so glad that you guys are getting more family time with Kayleigh in the hospital. I hope things continue to go smoothly so you guys can get her home soon and enjoy her even more.

Continued prayers...God Bless!

Joanne said...

What a precious and darling baby and I love her pretty dress too!
I'm really looking forward to seeing more of your photos. Loved the last ones with you and Aimee and the kids.Continuing to pray for you all.

Tamara aka Cheapskate Mom said...

As many others have pointed out you have already given us so much. I am so moved by your faith and your love and strength for kayleigh and your family. I look at the photos of her and it is so hard for me to believe she is not there mentally with you. She seems a little alert and smiling.

I was going to ask about the swelling you mentioned earlier. Is there a way they can decrease that without it being a major operation? That was concerning to me and I am sure you are looking into it but I thought I would ask. She is so beautiful and I am still praying hard for God to keep her here with you and us.

Hugs to you & your beautiful family. I hope you have many special treasured moments with your sweet daughter tomorrow.

Anonymous said...

She looks SO adorable in that dress! Praying for your sweet little girl.

mrs. mari said...

enjoy you time with kayleigh tomorrow. keeping you all in our prayers.

Moms Helping Moms said...

She is such a beautiful baby girl! I will pray for her and your family! You are an amazing family! I look forward to seeing new pictures of your bundle of joy :) Shes absolutely gorgeous.

Tamara aka Cheapskate Mom said...

Oh one more question - you mentioned photos - have you thought about having a professional photographer come to the hospital and take photos with you and your family? I bet if you did a shout out for one in your area they may even do it free. Just a thought so you could capture your whole family together with Little Miss Kayleigh. :)

Anonymous said...

By sharing Kayleigh's story you have given me more than you will ever know!

Mama4Real said...

I wish that I understood the way God works, so that I could just tell you what He's doing and why...if only it were that easy.

Sometimes I just want to get mad about stuff like this. I know He's ok with that...In our weakness He is strong...it's just not fair.

Lifting you up to the God who knows all...even though we haven't got a clue...

Melody said...

How I long for the day you guys can bring her home with you and love on her all you want! I pray, by some miracle, it happens sooner and we will not stop praying for that miracle!! ((hugs))

Stephanie said...

Wasn't Kayleigh swollen like this when she had pneumonia too? I know you said her brain was swelling, but it looks like her little face is swollen too. I can still remember the way her eyelids looked. Just an observation. You know we all want Kayleigh to have a problem that the doctor's can fix instead of one they can't.

It amazes me that she can go through all this and still be SO DARN CUTE!

We are still praying for your family and waiting for his miracle for Kayleigh's health.

JoyKids (Art In Motion Productions) said...

Praying so much for you all :) Thank you for sharing pictures of your beautiful Kayleigh and for being so open and real through such a hard time.

Praying my heart out!

Anonymous said...

Hi I've been following your blog for a while...and your journey has been a blessing to so many. I am also a social worker, and I am just wondering if you have the support of an advocate/social worker in the hospital that could possibly help move things along to get Kaleigh home quicker under the circumstances that you are now dealing with. Would homecare/hospice be an option? I'm sure you have looked at all of the options, but I just hear your hearts cry of wanting to take your precious baby girl home, and I so want that for you too.

in prayer,
Shelli

mtva said...

A lullaby for Kayleigh:

Hush a bye,
Don't you cry,
Go to sleep, my little baby.
When you wake,
You shall have
All the pretty little ponies.

In your bed,
Momma said,
Baby's riding off to dreamland.
One by one,
They've begun,
Dance and prance for little baby.

Blacks and bays,
Dapples and greys,
Running in the night.
When you wake,
You shall have
All the pretty little ponies.

Can you see the little ponies
Dance before your eyes?
All the pretty little ponies
Will be there when you arise.

I sing this to my daughter every night, I hope you too get to sing to Kayleigh in her own room.

Tracy

Winter said...

Kayleigh looks so SWEET in her little dress! Glad to hear that there is a date in the future when she can go home with ya'll! We lifted your sweet baby and your whole family up in prayer last night! Today is National Prayer Day, I pray that a lot of prayers went up for her today!! My kids ask everyday how she is doing! Thank you for sharing her life with us!
God Bless!
The Sims Family

The Red One said...

You guys having given me more than i can imagine. more than i have gotten from any material thing i have purchased. I have waited all week for my hubby to get paid to donate, n it isnt much, but i do wish that just like the guy said, "if everyone gave...it will add up" i truly believe that.

She is so cute, as always. i always notice her cute lil outfits and lil friends that she has in her pics. it must be moms doing putting her is such cute things.

So happy you get to spend more time. Dont forget to charge those batteries! Please give her our love n kisses.

We are still praying a getting specific.
The Morgan Family.

Patricia said...

Kayleigh Anne looks so sweet...I was looking back at the pics to when she had on this little dress...the post of "Stealing Kisses" 3/8/09 almost 2 months ago to the date. It is sooo hard to believe sooo much has happened in such a short time frame. I pray GOD will let her look around again, play with her clothes line...and Adam hold on to your finger...these pics of her then are priceless! I hope it is sooner than 3 weeks before you can take Kayleigh Anne home...to her beautiful room...that is waiting for her to enjoy! Praise GOD for HIS never ending Miracles! GOD bless your family!

Gramma Tricia McNall said...

I know that Kayleigh's in God's will and it is all in His timing. We are all wanting that miracle so we can watch her grow. Are we being selfish, NO we have grown to love her and the Freeman family. All I am asking is that Our God continues to receive the Glory due Him...we don't know if we will witness another miracle but for now I am asking everyone who reads this to agree here on earth with me (where 3 or more gather in My Name) that God would find favor and let mom be able to celebrate Mother's Day and Adam would be able to have his beautiful princess here on Father's Day and that the entire immediate family will all be together to celebrate her 1st birthday on June 23 (wow! this was my daddy's birthday) What a day of rejoicing this will be. So PRAY and BELIEVE with me Amen. God bless the Freeman Family

Kris said...

Praying for your family...and she is too cute in that dress!! Have fun and take lots of pictures in the sleep-in room tomorrow!!

Kris said...
This comment has been removed by the author.
awomanofthelord said...

Beautiful baby girl! Your still in our prayers and I seen a little smile from her on one of the pics. What a tough baby! May God be with you all!

Pink Slippers said...

I'm so glad that you are getting to soak up as much love & cuddling with your sweet baby girl in the hospital that you can.
Wendy

Anonymous said...

Wishing Aimee a happy Mother's Day on Sunday. Hope your family has a memorable time together this weekend. Hope Kayleigh responds well to the change in flolan. Best wishes for your family.

Bianka said...

Hello you love,
I live in Germany and my English is not especially good. However, I would like to inform you, nevertheless I pursue your history daily and pray for you. Your small one is so wonderful and strong. And you also. I wish you furthermore completely a lot of strength.

It presses you quite nicely, Bianka from Berlin.

Anonymous said...

Your faith and strength are so inspirational. My daily grumblings so very minor in comparison. The sharing of your life has forced me to take a much needed step back and to thank God for the blessings he has given my family. Happy Mother's Day Aimee! God bless you all.

Continuing prayers,
Cora A. in Deer Park, Texas

Anonymous said...

Such beautiful pictures of precious Kayleigh.
You sharing your story of your beautiful Kayleigh is far more than enough- no need to return the favor.
I will continue praying for her and I also made a small donation to make things somehow a little easier.
I sent your website to all the people I know so it can add somehow to everyone who is praying for your wonderful Kayleigh.

BIG HUGS and PRAYERS from the Rodriguez family in Washington State.

Shelby Hawkins said...

everytime you update us on Kayleigh...you are returning, evertime you post a picture on here...you are returning, everytime a couple days go by and you don't post because you are spending as much time as you can with her...you are returning. There is nothing we want more than what you are doing now. Why do you thing it is so easy to help you? Your returning the favor in the very best way.

Praying for the freemans from Indiana today!

The Pirsein Family said...

Kayleigh looks absolutely adorable in her little pink dress. I can't believe how big she's getting, she's most definitely come a very long way! You and your family have already given each and everyone of us the best "favor" of all....Kayleigh's journey. It has been amazing to watch her, pray for her and love her. God Bless.

Praying for you all always.

kiddiescorner said...

Yes the dress is beautiful just like Kayleigh! Still praying and your whole family is in my thoughts God Bless!

Liz said...

You've already given all of us following Kayleigh's story so much. I am amazed by your family's strength. All three of your children are beautiful and you are all an inspiration. I have a month old little boy and I've told him all about Kayleigh. I can't imagine going through what you've been through and I'm so thankful that you have your faith to get you through these times. You and your family will remain in my prayers...

Liz in Plymouth, MA

Linda said...

Thinking of you and praying for you every day.

Anonymous said...

What a beautiful, lovable, SWEET little peanut!!! I'm still praying for her and her loving parents.

~ Kathy ~ said...

"I only wish I can return the favor someway, somehow, someday"......
You have more than returned the favor in sharing your life with us....God has used your family in beautiful ways....I can see the LOVE you have for your family, and your AMAZING FAITH you have in God!! You have touched many many hearts in more ways than one...I too am going through a difficulrt time right now...not with my child, but with the strongest, Godly Man I know....my Father...not only has he been diagnosed with cancer we just found out it has spread into his bones.....yes I am selfish and want him here with us forever, but even more so I want my children to have their Gan.....believe me, you have more than returned the favor....your Faith in God says it all.....THANK YOU!
Always in Our thoughts and especially in our Prayers.

The Carpenters said...

You've returned the favor. You've allowed God to use Kayleigh for the benefit of His kingdom, and that trumps our money and our prayers any day! :)
Can't wait to see more pics when you get them on here. Have a fantastic day snuggling your little princess tomorrow.

Anonymous said...

Have a wonderful day with Kayleigh and God Bless!

Christina said...

What a gorgeous baby girl! Im praying everyday for your whole family. Im looking forward to seeing new pictures :)

God Bless

Heather L. said...

Aw, she looks so beautiful in her little dress! I love it! I am praying for Kayleigh and for your family every day.

Lisa said...

Kayleigh is such a pretty little girl. I love that little outfit too... very cute!! I am still praying that you are able to take your little girl home very soon.

Be sure to tell Aimee that I said "Happy Mother's Day".

Prayers,
Lisa

Anonymous said...

Adam and Aimee- Thank you for the new pictures and update. What a beautiful child.

I'm sorry you have to wait so long to bring her home but am happy that you'll have another family day in the private room...I'm sure I speak for everyone when I say we can't wait for the next set of beautiful family pictures.

As others have said... you have already given us so much by allowing us to share in your life with Sweet Kayleigh... Our donations are our thanks to YOU.

Aimee- Wishing you a Happy Mother's Day this weekend. You have 3 beautiful children and you're such a wonderful mother and inspiration to many of us.

Kayleigh - You look so pretty in your pink dress! Have a wonderful time with Mommy, Daddy and your Grandparents this weekend!

Sending you SO MUCH love and Prayer.

Heather Marie said...

Praying for you all :)

Stephanie said...

I'm so happy that you guys are going to get some time with Kayleigh alone! I know you'll soak it all in and imprint it on your brains so you never forget a single detail :) Still praying for your sweet girl!

Do me a favor..while you're in that room with her by yourselves let her know that even though we may never meet that she has someone in SC that she has truly touched my heart and loves her!

Toni :O) said...

You are in my thoughts daily and I'm continuing to pray for your sweet baby girl and family. Sending you love and hugs from Michigan...hang in there.

Carla said...

You closed your last blog with wishing you could return "the favor" to us. You have already given to us all so much. Sharing your beautiful story is truly a blessing. Letting us know your heart is a gift as well. You have inspired us, encouraged us with your faith and dedication and love for your family. You have challenged us to trust God. You have showed us what it means not to give up hoping! You have encouraged us in our prayer lives as we have been spurred on to pray in more specific ways for God's intervention, and to never give up. You have allowed us to come into your world and fall in love with Kayleigh. THANK- YOU!

Praying always!

Pastor Steve and Carla in Maryland

Jenn said...

Your favor has been returned in more ways than you know. You have given some the glimpse of Christ, of his love, of his caring and of his miracles. If not for Kayleigh, they may not have ever witnessed that. So, you have given more than a lifetime of favors- God bless you guys. She is stunning, simply and wonderful stunning...i just adore seeing her. Keep the pictures coming guys!!! Praying for you always... much love
jennifer jordan

Sasha said...

My child had been in the NICU for 8 weeks and I was feeling sorry for myself as today we were s upposed to take her home but she had a ba ROP and had to get surgery right away. She is having it as I write.
Seeing your story and everything your family and baby had to go through put things in perspective...you must be dying t o take her home. I wish you all the best...Vanessa

Anonymous said...

Praying for our sweet kayliegh in ct. Fight princess

Christy said...

Your family is in our thoughts and prayers constantly... our routine is to pray in the car on the way to school with all the kids... and My Oldest (7yrs) keeps asking if the Lord has healed Kayleighs brain waves. He has such faith and hope that He will do that... I have talked with him in length about how the Lord is more than capable to heal her just by thinking it... but that sometimes He chooses strong families to be a light in a dark world through trials... so people can see their strong faith in the Lord... and that is just what you have. I am blessed each and every time I read your blog... the Lord will heal her in His time and in His ways. So in my sons words

' Jesus heal Kayleigh soon and make her all better, and heal poppie (his grandpa) from his auto immune disease right now... amen'

Hope that blesses you today.

Stephanie Scales said...

I dotn think you understand how much you have helped by sharing your story. You see i was born with a genetic disorder that causes me to have unoperatable tumors , I have pain every day and have at times felt there was no eason to go on. I have two children, theyar emy strength.God blessed them and protected them from gettingmy disorder. Sharing your story gives me more appreciation for that blessing, and even though it may seem small....ithelps me getthrough each and every day with my kids. My son does have special needs, and at times it can beso nerve recking, expecially since i am a single parent....and yet when I am just about to throw my hands in the air and say thats enough, I give up.... I read another one of your blogs....you are so strong and its a no wonder that your baby girl has been able to fight so long she has her parents strength and faith. when i get upset or tired or fusterated beyond belife, I I htink about you guys and your struggle and I can then look at my children in a whole new light, thanking god for their health and beauty. thanking god for all the drama, and fighting and yelling and screaming, thanking god for all the sibling rivalry...thanking god for everything. Its you and your story that have helped save me from this rutt i was in...ready to give up. I love my children with all my heart and letting the devil get inside my mind and heart was not intentional, but your story helped to blastthe evil away and now all i can see is light. Thank you so very much..God bless you and your family.
PS
did you get my poem : whisper from god?

libby @ ninesandquines said...

God bless you....

Danette said...

God bless you. Your daughter is so sweet I love the photo she is smilimg in. You will always be in our prayers. You have changed my life and faith by sharing your story. I thank you from the bottom of my heart. HUg your sweet angel for me.

Anonymous said...

Yes, I am at working reading this about in tears. You have made me realize how blessed I am to have two very healthy little boys. I keep thinking, she's almost 1. There is a reason HE has decided not take her yet. She serves a purpose although we may not completely understand it yet. She is a beautiful little girl and I've been praying for you all.

Jenna said...

Thank you for sharing those beautiful pictures. My husband and I pray for your family every night.

Lindsey Barham said...

Freeman's:
The photos have made my morning. She looks just like a princess and I love the one of her smiling. I don't care what the docs say about little Kayleigh's brain she knows and feels how much her mommy and daddy and family love her and can sense when you are there. That perfect smile tells it all. I hated to hear it would be about 3 wks but as usual when does the Princess do things on our time schedule. :) I can't wait for the new post to come of the family getting to spend all day with her. Give her lots of hugs and kisses from me. I am so glad you get to do this, and I know she will enjoy every bit of it. Kayleigh contuine to do good (and we all know you will) and get out of there. I am seinding prayers your way day in and day out for God's will to be done and for a miracle. You are my light I get up thinking about you and go to bed thinking of you. Thank you Kayleigh. Love you lots.

-Shaken, not stirred said...

<3

jensones71 said...

Prayers continuing from La. I hope you get to bring her home sooner then they expect

Jennifer

Emma said...

It's good to have a plan. Hoping to see you take her home soon. God bless.

Kristin said...

So sorry to hear you are still having to wait to bring your angel home. Praying for your strength through this difficult time!

Megan & Kallyn said...

Just being able to be a part of your family's life is more repayment than anyone could ever ask for. I feel blessed knowing you (The Freemans) and being able to share your ups and downs. I can't and don't want to picture a day without you guys! The Freemans will always be a part of this family no matter WHAT! With all our love! Megan & Kallyn, in NH

Anonymous said...

It's us who should be thanking YOU....thanking you for your beautiful Kayleigh who has given us more in her 10 months of life than she will ever know. She has shown us how not to give up hope even though the odds are stack up against us. She has shown us strength and courage when all is dark and unknown, she has shown us when all is lost it is then we find each other. She is more than a beautiful special baby girl - she is a true miracle of God who has given us faith and hope. Thank you Kayleigh for not given up baby girl and for reminding us to not give up either! I am continuing to pray that God will hold Kayleigh close to His heart and shine His will down upon her. May those days until you can bring your sweet baby girl home with you pass quickly! Praying your special day with Kayleigh will be filled with happiness and joy and many, many wonderful memories that you will oneday soon be able to share with her. Please place a kiss upon her sweet face for all of us!
God Bless and praying always in Maryland

Fer said...

She is beautiful and you continue to be in my thoughts and prayers!

Robyn said...

you should really have a photographer come...maybe one of the volunteer ones and get some family shots in the sleep in room...it would be so nice to have a large professional family photo to hang forever....

you can always do some when she gets home but I would get some now as well

in my prayers-love you guys

Anonymous said...

She looks so little! But she is definitely a beautiful little girl.

Anonymous said...

thanks for the pictures she is beautiful as always. you are truly an inspiration to us all.

i was just wondering if you happen to get the po box..

hope you have a wonderful day with your family and still praying for a miracle.

lots of love
kristy

Eric & Emily said...

You have a beautiful daughter!!!!

Annie From Miami said...

Aimee, from my mother's heart to yours - May it find peace on Mother's Day with the love of all your children.
My heart aches that Kayleigh has faced this road. She is truly a blessing. My prayers for a miracle continue.

mommaof4wife2r said...

she is simply precious in her little pink outfit! thank you for continuing to share her with us...praying for you all still.

JaMean said...

Keep having patience, you guys are incredible! We are all praying for family. We will pray that she will get to come home sooner. I cannot imagine what you guys are going through. All our love and prayers!!!

The Pyrat Family said...

Helping you out was our way to pay you back.. Kayleigh is such a blessing to me... I don't ever want to be paid back... God bless you all..

Kim said...

She is absolutely beautiful!! You are in my thoughts and prayers. Love the dress!!

Erin said...

Kayleigh looks so amazing! I love your little munchkin! I keep praying for that miracle and those photos tell me there might be a possibility...she looks like a perfect little girl. Keep your chins up and enjoy your day with her. xoxo to Miss Kayleigh

Jessica ღ said...

Your little girl is not only beautiful but an amazingly strong little girl....since i came across your blog a few days ago her and the family have been in my thoughts and prayers

Shannon W. said...

Wishing Aimee a Happy Mother's Day with the love of her 3 beautiful children surrounding her. Thank YOU for sharing your wonderful family with all of us.

4 Lettre Words said...

She is a doll in that dress, Adam. Can't wait to see more pics.

Happy Mother's Day to Aimee! And, blessings to you all. XOXO!!
Dina

Sarah said...

Just keep building up treasures in heaven and that will be enough to repay us. The reward of seeing more hearts come to know the our Father through your life is a blessing. Still praying for a miracle for Kayleigh!

Anonymous said...

continuing to pray.... love yall so much..

Lisa Gergets said...

Still praying for you, still thinking of you daily.

Tiffany Lockette said...

What a beautiful gift Kayleigh is and what an inspiration she is as well. Leave your faith in God's hands as he has a bigger plan for all of us. I will pray with all my heart and soul for your family and for Kayleigh.

Lynn said...

I praise the Lord for little Kayleigh! I love to see her sweet photos and read the comments to see how she is touching peoples lives, giving others hope, renewed faith and blessings. It is so amazing. Then there is your posting that gives us a picture of the heart of a godly man. A godly father and godly husband. It is a mystery how God works, but I know that He works all things togethr for good (Romans 8:28)
I hope you, Aimee and Kayleigh have a sweet time today and that the Lord would give you all some rest and that the 3 weeks will go faster than you think!

Elaine said...

Kayleigh is so beautiful with her pretty pink dress. Will keep praying that she will be able to come home to be with her family. Thoughts and prayers with you family.
Elaine from MT

Anonymous said...

That is one beautiful baby girl.
We love you all.
The Smiths (in TN)

C said...

What a beautiful dress and Kayleigh looks just adorable in it! Wishing you the best of time today with your sweet baby. Always on my mind and in my prayers!

Michele said...

Still praying without ceasing for you guys.

joanna said...

Your inspirational story of hope and miracles is "payback" enough...no need to every feel like you need to give anymore! you have made millions of people give their LOs a bigger hug and kiss each night...especially ME!

kayleigh is just perfect in that dress. i just want to give her a big smooch!!!

mommyof2sons said...

Her dress says it all............BEAUTIFUL!!! Enjoy your time with her tomorrow. Prayers for your family!!

Dalila from NJ said...

Kayleigh looks Beautiful..

Happy Mother's Day Aimee.

Celeste, Phoenix, AZ said...

I've left notes here before and know you read each one, so I just wanted to let you all know that I am still pulling for you. I did donate some money the other day, not much, but I know every little bit helps :)

I am driven to write this because I admire your family's strength. I started thinking after reading Amy's blog the other day, that it sounded like she is about to go through a crisis of faith. A very common reaction in grief, especially of a young child. How could God let this happen after so many months of struggling and overcoming the odds, only to end up brain dead.

I tell you, it broke my heart and I cried. I can't imagine the agony you must be feeling and questioning "WHY?? Why make us go through all of that and think our dreams are within reach, only to take it away" I never felt that with my own children and I desperately hope I never do. I lost my faith in God through other things done to me in my life. I grew up Lutheran, was confirmed, went to church, and then life intervened...a few times, unfortunately.

Over the course of my life, I have come to grips with what happened but I ended up losing my faith in God. I am now a Buddhist and believe in goodness of the heart and the rich diversity of life. Bad things do happen, but they happen for a reason. We don't always know why or are happy with that reason, but I think we will see it clearly in the afterlife.

I think what I just wanted to say is that I am so sorry your family is now going through this. I also wanted to say, hold on to your faith and keep close to what you believe. Don't let this take away anything, because the road to finding it again is very long and hard, and you don't end your journey as the same person.

Adam, Aimee, Brandon, Allyson, and Kayleigh - may you know peace.

Rebekah K said...

Kayleigh looks so beautiful in this outfit. I am continuing my prayers throughout the days. I am happy that you have been able to spend time with Kayleigh outside of the NICU. I will continue praying for another miracle. I want for you to be able to bring her home to her room. I think it is great that when you spend time with her you treat her as if there is nothing wrong and that she is perfect because she is.I want to let you know that in Wisconsin there are many many people praying for the Freeman family. God Bless all of you. Aimee if I don't get to the blog this weekend have a Happy Mother's day and God Bless you for all that you have done and everything you continue to do.

E @ Scottsville said...

Adam, none of us want you to need to return the favor. None of us wants to ever go through what your sweet family has had to endure. HOWEVER, we know that IF WE WERE, you'd be right there praying with us and for us, too.

Love you guys! Hang in there.

Anonymous said...

She looks so precious in her dress. Keep praying, God is great and there is no telling what He'll do.

The McGuire Family said...

She is sooo beautiful. I pray that the love that surrounds her when she goes home will somehow bring her back where she can laugh, smile and play again. I saw her picture in her bumbo seat the other day, and I pray that there will be a time where she can enjoy such things again. Our praying will not cease. We love you and God bless :)

Leigh Anne said...

How do you not know you are already giving back? You are sharing God's love and His mercy with thousands of people across the world. See, when we gave, whether we knew if or not, we were doing God's work, helping out his disciples in time of need. To God be all the glory for any help you have received.

Your family is in the palm of His hand. And the blessings and miracles coming your way, just wait!

Wendy said...

Still praying for a miracle everyday! i love the pictures. thanks for updating when you already have so much on your plate. we think of Kayleigh many times a day. you are so blessed to have her, she is so blessed to have you! aimee, have a wonderful mother's day with this little miracle and your beautiful family!

Anonymous said...

I'm so glad to hear that you will have another day with Kayleigh tomorrow. I pray that you continue to have so many more.

amber said...

She looks so beautiful in her cute pink dress. I couldn't imagine what you both are going through even as a mother myself I know the pain you feel when your child is in pain. Please know your in my thoughts and prayers and I hope Kayleigh comes home soon :) Aimee I hope you have the best mother's day ever hold your babygirl close and thank the lord above that he blessed you with a precious little angel. God Bless XoXo.

Thinking of you all the way in Ohio <3

Crysgoss said...

How precious is she, she looks happy in those photos:)
I was listening to the song Bring the Rain, the words made me think about you and Aimee.
I thank you and for each update you give! I have fallen in love with your sweet girl and her story has given so much to me!
I pray and worry about you guys soo many times a day. Please God work one more miracle for Kayleigh!

Anonymous said...

Why does that little angel of your's face look so red and swollen? She is such a beautiful little girl! You guys have been truly blessed! She has touched my life as well as so many others! I pray for you and Kayleigh!

Joylynn said...

Well first of all, look at lil' miss Kayleigh Anne!! What a sweet little dress. I think it matches her sweet spirit, perfectly. :-)
And that Pooh pillow/sheet is in my home right now!!! lol Well, not that one, but the same kind! My two year old LOVES Pooh, so I bought two of those sheets. So, it was a surprise to see this precious girl laying on the same thing that my baby is laying on!

Keep going strong Adam & Aimee. I know what you mean about emotions changing so often! I am going through my own dark Valley. At times I feel strong in the Lord, and feel I can face anything with, and in, Him. Then the next, I feel sick and discouraged and a failure. This is NOT an easy journey we are on, that's for sure. But we will make it. I'm not always sure how, lol. But God will get us there. Someday.
:-)

I love you guys, and I'm praying for you!!! Tell Allyson and Brandon that they are super-special! :-D


Your Sis in Christ,
Joy

MommyLovin2 said...

She is beautiful as always!! You know, I'm not a doctor, but she certainly looks like she is smiling in the last picture. There have been a few pictures that I've seen lately that she seems to be showing some sort of 'emotion'.....the doctors are certainly not God and maybe He is trying to tell you something!! :-)

Mom2anAngel&amiracle said...

I just love your little girl so much. Your pictures make my day. I wanted to mention to you about a photography service that comes to the hospitals for free and takes all the pics you want when time is limited with your precious miracle. It is called Now I lay me down to sleep. They are a fantastic service - FREE to families of terminnally ill and pregnancy/infant losses. They are all over the US and I wish I had known about them when I lost my son. They takes pics "before, during and after" I can't say enough about this company. Please google Now I lay me down to sleep for the website and a photographer that will come to you, even in the middle of the night.

Many thoughts and prayers for your family.

Anonymous said...

Another one of God's little angels....she is a doll!!! Still praying, and Happy Mother's Day Aimee (isn't it a blessing to be called Mommy) Praise the Lord.

Aidan and Cam's Mom said...

Kayleigh is such an angel. I did not know the news about the surgery until today at work. It broke my heart. But, I am going to fast and pray for her and for you all. I know that God can do miracles. I know that He will do what is best for her. I know that He loves her and one way or another that sweet little baby is going to be free. I will continue to pray and pray. What a sweet little angel she is. She is so beautiful.
Much Love and Prayers,
Shannon

Anonymous said...

How hard it must be to stand over your child like this and not be able to help her or fix it. My heart is breaking for you, please keep the faith, God is the answer for all things. Only He could supply the comfort your family needs at this time, i am so thankful that you know God, trust in Him, and believe in Him. One day we will understand why, and the reward will be worth it all.

Daniela from Offenbach said...

A little princess ... so wonderful.
I will pray for your family, pray for Kayleigh.

God bless your family.

Daniela

Christie said...

I am praying for you and your little girl everyday. Your family amazes me and I hope that your little miracle gets to come home soon.

Erica said...

Thank you for sharing. We hope your little one can come home sooner than planned. Praying!

The Adoption Journey of Baby King said...

My prayers to you and your family. You are truely amazing and I can only imagine what you are going through. I don't know you, but my heart goes out to you and your family. You have a beautiful family. I loved the photos of your older children with their sister.

Regardless of what anoymous above me wrote about...I can totally understand your desire to have her at home. It does matter! She will know.

bri said...

Sweet Kayleigh... we love you and are praying for you to go home soon!

Bless you all and I pray for peace to overwhelm your hearts as this time is so uncertain!

Anonymous said...

have you set up a PO box yet?

we would love to send gifts for allison and brandon-- we're sure they could use the reasons to smile.

<3

Belle's Blog said...

Praying for all of you. Praying that Kayleigh doesnt have to be in pain and can just enjoy feeling her families love! You can tell her that my family loves her too! We mention her at every prayer. God bless you!

AJ said...

She's just too cute not to fall in love with! Even though I've never had the pleasure of meeting Miss Kayleigh, I absolutely adore her. We're all looking forward to the day that she greets us upstairs!

Until the day comes when she's gone from this world, we're still praying our hearts out in Camp Lejeune, NC!!

Wendy said...

aimee and adam, Don't listen to any of the negative from anon. above. just delete it! and know that 99.9% of us love you guys and are praying for a miracle. Kayleigh is beautiful. she wears some battle scars from being such a little fighter! but to us, they make her even more amazing. keep your chins up!

Mirna said...

Stay positive and focus on what our God can do: See the miracle and don't give up. Praying for you all.
Hugs

Anonymous said...

Kayleigh is beautiful, and you are wonderful parents. God bless you all.

Laura said...

Praying for you.

Jody and Scarlett said...

Adam and Aimee, my life will never be the same as a result of you sharing you story and precious family with us. My little girl is just 2 weeks older than Kayleigh and your journey has had a profound effect on us, as I have been following your story from the start. I lost my dad when Scarlett was 7 weeks old, and it was your strength and courage that helped me get through that, Scarlett is a beneficiary of the love of Kayleigh, the cuddles she gets are doubled the love I have for her is off the richter scale as it has made every moment I have with her far mor cherished - this is what you, your family and the gorgeous Kayleigh have brought to people's lives. We have the responsibility now, to ensure we use this as a way of improving our own lives and lives of others. I will be praying hard for a quick move for Kayleigh to her beautiful bedroom, and nothing will stop me praying for a miracle! The pictures of Kayleigh are too beautiful for words, and her pretty dress is just divine. You are always in our thoughts and I hope you get your wish to be a family at home as soon as you can. God Bless.

Shelby said...

I just want to point out something...All of her "FUZZ" on top! She is growing something up there and it looks blond! TOO CUTE!

The Ski's said...

Praying for you sooooo hard. Love from Ohio.

Patty said...

Praying for you and your family, the pictures are so dear, what an "angel", that precious little face and hands, so so sweet.My heart breaks for you both.

Proud Mama said...

Lots of love and prayers from Ky.

debasu said...

Hang in there, dont give up !

Jackie P. said...

Aimee - my thoughts to you on this Mother's Day weekend.

A Newborn's Conversation with God

A baby asked God, "They tell me you are sending me to earth tomorrow,
but how am I going to live there being so small and helpless?"
God said, "Your angel will be waiting for you and will take care of you."
The child further inquired, "But tell me, here in heaven I don't have to do anything but sing and smile to be happy."
God said, "Your angel will sing for you and will also smile for you. And you will feel your angel's love and be very happy."
Again the small child asked, "And how am I going to be able to understand
when people talk to me if I don't know the language?"
God said, "Your angel will tell you the most beautiful and sweet words
you will ever hear, and with much patience and care, your angel will
teach you how to speak."
"And what am I going to do when I want to talk to you?"
God said, "Your angel will place your hands together and will teach you how to pray."
"Who will protect me?"
God said, "Your angel will defend you even if it means risking its life."
"But I will always be sad because I will not see you anymore."
God said, "Your angel will always talk to you about Me and will teach
you the way to come back to Me, even though I will always be next to you."
At that moment there was much peace in Heaven, but voices from Earth
could be heard and the child hurriedly asked, "God, if I am to leave now, please tell me my angel's name."
God said, You will simply call her, "Mom."

michele said...

"I only wish I can return the favor someway, somehow, someday."

Loving Kayleigh and treasuring every moment you have with her is repayment enough.

Still praying so hard for you guys! Kayleigh is absolutely precious.

God Bless,
Michele

Erica said...

She looks like she's smiling in the last picture! God Bless you all, you are in my prayers!

Kaycee said...

The pictures of Kayleigh are so beautiful!! I love all of her little pink outfits :)

So happy you got the bracelet link fixed. I've been wanting one for my girls. We will send in pictures when we receive them.

Anonymous said...

You have already returned the favor by sharing your daughter's story with us all. That takes alot of courage and it means you are very unselfish.
God bless you.

Anonymous said...

We love you freemans

Anonymous said...

we are praying for you freeman we all love you guys from southview

Erika said...

Thank you for sharing your beautiful angel with the world. We pray for your strength through this time.
Erika in Germany

Brandee said...

We are praying for your family through this tough time. God is watching over you and Kayleigh.

Love,

The Felling Family
St. Michael, MN

bASSMA said...

I am so sorry for the loss of our beautiful angel "KAYLEIGH", it has been a very touching story and my eyes just balled out, i can't imagine what you are going through, but hang in there she is not suffering anymore and in Gods hands. We will always remember your story about the little angel and never forget it. Again my deepest sympathy to all of you.

Bethany Anderson said...

Dear Freemans-

I watched the episode of The Doctors today and it truly touched my heart. I had tears streaming down my face the whole time. In the midst of the sadness, I was so moved by your attitude as parents and how you wanted to share you story to inspire others. I was so moved and truly blessed by your story of your angel Kayleigh. Even though she has gone on to be the with the Lord in heaven, her spirit and courage of strength will always live on and on. GOD BLESS YOU GUYS!!!

Love,
**Bethany**

chrissiebrooks said...

My deepest sympathy is not enough to comfort you at this time but I send it to you. Hold on to each other and let God hold both of you as he now holds your precious daughter, kayleigh. Talk, laugh & cry together but never hide your emotions - even when it seems that they are too powerful to allow out. May God bless you.

Anonymous said...

My prayers are with you. I am the grandfather (mother's side...Christina)of Nathan. I just logged on to your site for the first time. My deepest condolences to the family and my prayers are with you. May God Almighty take your sweet child under his wing and Bless your family. I am certain that Kayleigh has been (as Nathan has been and continues to be) a Blessing to many. God Bless you! Frank

Kim Hester-Edwards said...

WOW!!! What a strong precious little girl. I'm so sorry for your loss, she is truly a miracle. My prayers and thoughts are with you and your family.

Venna said...

I just finished watching the show (The Doctors) and I want you to know that you are what the scripture tells us to be, an example in word, conversation, spirit, faith and purity. I am in tears right now and can hardly see to type but I want you to know you have my prayers and tho we do not know each other you are in my hearts! God will reward you for taking care of your daughter and selling all you could etc to pay for her expenses..She is truly in HIS peace now and YOU will one day meet again for sure! Just think your Kayleigh will one day soon welcome you through those pearly gates and streets of gold that now awaits for you! God bless and know we hold you in our hearts always.