4 WEEKS OLD!!! Where has the time gone? I just hope the rest of the time goes just as fast. Today was a boring day and we all know that boring days are awesome! Kayleigh's sats were good all day with only a few ups and downs with her breathing. They still have her on the Bubble CPAP, but they weaned her oxygen down to 26%. When Aimee and I went to visit, one second she would be satting high and then the next second, she would satting low. She was just all over the place.
Aimee was able to kangaroo for just about 10 minutes before Kayleigh started fussing and we had to put her back. We were just shocked that she was able to kangaroo in the first place because she had that big head piece on. She looks so cute though, but we are ready to see that pretty face again. The nurses did increase her feeds today to 5ml, but she only weighed in at 603 grams tonight. The nurse said she weighed her without the CPAP on so that is probably why it was around 30 grams less than yesterday. I wish they would all do it the same way though or atleast weigh her both ways.
We were able to sit down with the family planner today and go over some things. The cool part was, we were able to write down Kayleigh's likes, dislikes, concerns, and goals that will be placed on Kayleighs isolette for all the nurses to see. The biggest problem we are having right now, is that we are learning the nurses and we are wanting them to know Kayleigh's story. We want them to know Kayleigh and understand that this baby wasn't suppose to be here. I don't want to pull anything away from all the other babies that are in there, but I want the nurses to understand that Kayleigh is OUR miracle. We have some primaries, which is awesome but we know that our primaries are not always going to be there. Most of them do, but we want everyone to care as much as we do. :) The planner was awesome and we are so glad to have her help us.
Another NICU baby we have met through this journey is Parker. Parker had an ultrasound today to check for a possible hernia. Can everyone please include Parker in your prayers tonight. Parker was born at 29 weeks and has been in the NICU for 8 weeks so far. He is a cutie! I have included Parker's story over to the right on my tool bar.