That is a smile and I am sticking to it!!!
Happy 4th of July everyone! I hope everyone is being safe tonight and enjoying some fireworks. We all just got back from shooting off some fireworks with Aimee's family. It sounds like a war is going on right now by our house though. Our house is surrounded by three major attractions (Carowinds Amusement Park, Knights Triple A Baseball Stadium and Lake Wylie), who all set off professional grade fireworks.
Today was a somewhat of a mellow day. Kayleigh is 30 weeks old today. We got the results back from the blood culture and there is no infections what so ever, so they took Kayleigh off the antibiotics. Early this morning, she was having several more bad spells with the apnea, so they switched from SIMD mode, which is when the vent takes over incase Kayleigh has a apnea spell to Pressure Mode, which forces a little air in to her so it minimizes her bad spells. They don't want the vent to take over completely because they want her to get used to trying hard and giving those lungs a good workout. Even though she struggles, it will help her in the long run. I just hope she finds a happy medium, but like they say over and over, it is an up and down battle.
The scary part of the day was when Aimee went in to visit her. She was hanging out with Kayleigh and she decided to have an apnea bout. We have seen it before, but she would quickly recover by catching her breath. This time around, she didn't catch her breath so they nurse had to "bag her," meaning she had to use the manual pump to force air in to Kayleigh's lungs for her to breath again. Wow, can I say stressful? The thing that stinks is that Aimee had to see that because she is already a nervous wreck. Acutally, we both are a neervous wreck, but I would have much rather taken on the heart failure than her. After that bad spell, Kayleigh went back to normal and when I went it with Allyson, she was doing great.
Other than that, she did lose a little more weight today. She is now at 489 grams which is just over 1pound 1 ounce. Her color looks great and she just seems healthier overall. Thanks for all the prayers and thank you to those who have gone the extra mile to put us on the prayer lists at their church. That is just amazing and we are so blessed to have met people like you all.
That has got to be a smile :)
With Love,
The Freemans
6 comments:
Happy 4th of July baby Kayleigh. Mommy, Daddy, Allyson, & Brandon can't wait until next year when we could all go see fireworks together! We missed you.
I know next year baby kayleigh will be see watching those fireworks from mommy and daddy's arms!
Kim
Happy 4th. I have been following your story on babycenter. It is truely a miracle and an amazing story. I am praying for little Kayleigh and your family everyday. She is a fighter, have faith and hope. I'll be checking back in to see how things are going. Best of luck!
That is a smile! She is so adorable, and she looks great. She really does. Happy 4th of July baby Kayleigh!
Babyksmom05@yahoo.com
how scary! i have been there too when they had to bag my son when he had a bad apnea spell. just know that it won't last forever!
jennifer (mom to 30wkr)
Heck yeah that is a smile!
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