Here is Cynthia, one of our wonderful primary nurses.
Kayleigh on the scale, weighing 930 grams (2.o5 lbs)
OH MY GOODNESS! When is the drama ever going to stop? Today, Kayleigh's belly started to get bigger and bigger as the day went on. She had an eye exam earlier so we were thinking that she was just grumpy because of that, but it turns out that she hadn't pooped in several days and the x-ray shows some trapped gas again. They decided to give her glycerin to see if they can breakdown what ever is left up in there and get rid of it. About an hour or so after that, Kayleigh finally pooped and it was some thick stuff that just had a hard time getting through her system, probably from the formula. So even though they cut of her feeds seven days ago, she had some stuff left in her that was trapping gas behind it and it slowly bloated her tummy up. Hopefully this was the issue and she will continue to get rid of what's left in there. If things continue to move in the right direction, they will still start her feeds back tomorrow.
Besides all that "crap" (literally), she had her eye exam which came back that Kayleigh has a level one ROP. The doctor said that it is nothing to worry about right now as most preemies have a level one ROP and even level two ROP. The ROP is where the blood vessels in the eye do not grow and reach the point of attachment. If they don't grow, scar tissue will build up really making it hard for the blood vessels to reach their final destination in the growth pattern. This would be considered a level minor, and could possibly correct itself. If it doesn't, it is considered a level 3 major and surgery will be needed to laser the scar tissue, allowing te blood vessels to grow before it is too late and detaching from the eye causing major damage. If the surgery is a success, the eye will still not have peripheral vision. So this is not a road we hope to go down, but like I said before, most preemies have the level one and two before it corrects itself. Let's pray and hope this is the case and it quickly corrects itself.
Even though there was drama today, Kayleigh was so cute when I got to hold her tonight. She seemed to be sleeping peacefully, but I quickly noticed that she was just not digging the lights that were on. It really wasn't even that bright, but when I would cover my hands over her face, she would perk up and start looking around as if she was never sleeping in the first place. So I would go back and forth, moving my hands away and she would close her eyes quickly and just lay as still as can be. Then I would cover it again and her eyes were wide open again. I was really getting a kick out of this. She is going to be so spoiled!!!
I also want to draw attention to all the emails I have been getting lately stating how Kayleigh's story has changed your life. It means the world to me to hear that because it really makes all this time that I put in to posting worth every single minute. Just know that Kayleigh may have touched your life someway and somehow, but God is the true reason for how you found your way to her story. He is Love & He is Life!
Thank you all so much for everything and please keep Kayleigh's tummy and eyes in your prayers as we continue to move towards the day we can bring her home.
The Freemans :)