8/5/08 LOOK WHO'S OFF THE CPAP!!!!!
Since Kayleigh had quite a few good days in a row, they decided to take her off the Bubble CPAP and put her on the nasal cannula. She has been doing great on it so far. Her oxygen is set at 26 and she did not have a single desat. She is also up to 11ml on her feeds, which is the highest she has ever been. She is tolerating it very well.
Today was a very exciting day. When we first came in to see Kayleigh without the CPAP, we were just blown away with excitement. It was a good sight to see Kayleigh without her face all covered up. Since they had the beanie on her for so long, it gave her a little cone head. That should fix itself now that she is off it. Not only was it so wonderful to see Kayleigh on the nasal cannula, this was the first time we have ever seen her so alert. She was moving around a lot, looking around all over the place and making tons of noise. It was a true turning point of emotions to just see her act like a normal baby. She was awake for a good 30 minutes before all the hustle and bustle caused her to conk out.
I captured some video that really shows how alert she was. Poor Kayleigh was in the middle of getting an IV removed, so she was crying a little bit. Mommy was able to put her hands in there to comfort her and Kayleigh was squeezing her hands like crazy!!! The cutest part of the whole video was catching her sneeze. I never understood the parents who would go completely nuts over a babies smallest actions until I saw Kayleigh sneeze today. It is the most adorable thing I have ever seen that I made one of those "parent" sounds: (AWWWwwwwwwaa)Look at me now!
There was something about today that just eased my nerves. To see her so alert and doing so well on the cannula, I just feel so much more positive than I have been feeling over the past 18 weeks. This has certainly been a really tough road to travel and when Doctors were not so positive for so long, you couldn't help to think about the negative aspect of it all. Today a big piece of it just went out the window. She just looks so much more healthier today and so active, that it blows my mind. Our nurse told us today that if Kayleigh continues to do so well with her breathing when she gets to 1000 grams, she will not have to have the heart surgery to insert the pulmonary band. We will have to still do the VSD repair on her heart at 2000 grams, but this eliminates them haing to go in twice. How awesome is that???
We just need to pray that she will continue to tolerate her feeds, breath well and grow fast!!! Kayleigh is just beating all the odds and it's because of all of your prayers. I saw a road sign yesterday that hit the nail on the head. It read "PRAYER, The Best Wireless Provider Around" That is completely the truth!