Today was a real fun day. Mommy got her chance today to hold Kayleigh for quite some time. Kayleigh was so cute because when we first got her out, she was fussy but quickly got situated and took to a pacifier. The funny part was when she was sound asleep and every now and then she would start sucking on the paci. If you watch the video close towards the end, you will see what I am talking about.
We had a really good visit today and good visits really make the days go by much better. Aimee and I left laughing and enjoyed the rest of our day stress free. From the first time we got bad news about Kayleigh, we would leave that hospital barely talking because our minds were spacing out about the unknown. So things have really taken a turn in the right direction. I don't think Aimee and I laughed as hard as I did today in a long time.
Kayleigh is up to 12 ml on her feeds, but they had to cut back the breast milk because Kayleigh's blood sugar count was low. They are giving her more formula to increase the calories and sugar. The crazy part is that Aimee has been able to stock up around a full months supply for Kayleigh if she fed on 12ml a day. Has anyone experienced this in their situation? From what I hear, breast milk is like liquid gold for Kayleigh, so is it bad to take that away from her even to give more formula?
I am not sure if the weight is correct for tonight, but they said she weighed in at 782 grams which is one less than last night. We will find out later to check again, but the great news is she only had one minor desat all day long. Even when Aimee was holdng Kayleigh, she was getting upset, but never desaturated at all. That is really good, especially on the nasal cannula. Let's keep up the good work. Since they have her feeds up high, I am ready to start seeing some major growth soon. This not growing a whole lot over the last couple days isn't going to cut it.
I have a good feeling that she is going to take off before you know it and just grow grow grow.
Thank you all very much for your support through all this. We are just so happy to have some good days and we hope to keep it that way.
The Freemans :)